Hi FF, what an amazing lady you are doing caring......quite hard work, but well appreciated I’m sure. And that lady who’d had a stroke m|ight Have died if you hadn’t found herxx
Yes, it’s a bit scary being attacked by someone too...xx
enjoy the baseball game FF
love and hugs
Last two days here were stinking hot! Almost turned on the air conditioner. We just shut off the heat last weekend. I sure could enjoy a few days of not having to pay for heat or air conditioning.Today is supposed to be beautiful. I have had a few days off of work and accomplished nothing. I just sat around and enjoyed it and kept looking at all the things I need to do. I just couldn't get motivated. I promised myself I would get busy again today! It's almost 10 AM so I better get started. Leaving for a baseball game around 4 so I don't have to cook dinner! YES!!
I've had a rough time at work the last couple weeks.I'm doing care giving. A few weeks ago I went to my ladies apartment and the door was locked and she didn't answer the phone. Her apartment is in a complex for seniors, so I had to get maintenance to let me in with a master key.She was alive but had a stroke. They gave me a new lady and I've been going there for a couple weeks. The company I work for sent me to another lady in a different facility. I went to take her to her room and when we got there she flipped out. She pulled my hair, twisted my fingers, and rammed me with her wheel chair. She is normally this sweet thing. They think she she has the worse kind of dementia. It causes hallucinations and aggression. She was hallucinating. She thought a freighter was hitting the building. They are hoping to have another client for me by Wednesday. I think my lack of motivation this week was due to all this upsetting me. Life is so scary. FF
Carolyn...I totally agree with your statement about us being the forgotten ladies...especially now that all the new drugs seem to be targeting primary bc.
im praying that the research discovery Kate21 mentioned a few months back gets a move on..the substance that they think drives metastatic growth.....hopefully that will be trialled ASAP...and we can all volunteer.to take the antidote/drug which removes the substance from our bodies.
much love.......oh and I’m one of the lucky ones who does have a specialist nurse for mets...she is actually sponsored by Mc Millar, so hopefully al of us will have one soon.
As I’ve said before Anne I’m sure you wouldn’t regret it. PB is an amazing place and you do feel like you’ve gone on a little break! You’re not pressurised to do anything you don’t want to do but, that said, I’m sure that won’t arise, and you’ll be with people who understand what you’re going through. You would never think it was a charity either, just wish I was closer to Bristol as they have many things going on daily. Enjoy your weekend away, Kxx
Goodness I am lucky. My hospital is NHS and we have two secondary breast nurses. You can leave them a message and they call back the same day. One of them doesn't like me very much as I'm a bit anxious and needy but she's always really helpful. I also find 'phoning MacMillan really helpful. They are really patient. We all need support! At least we are going to get some lovely sunshine this weekend x
A breast care nurse at my hospital actually said to me they didn’t really know what to do with secondary patients and we tend to fall into a hole in the service! She said she would call me back after her holiday last October, still waiting for that call!!
Cannot praise Penny Brohn enough, The Haven too!
don't think we have secondary breast care nurses. Was introduced to breast care nurses at my first appointment - but I think they're based across the road in the hospital that deals with primary breast cancer (and other "lady" issues). I'm now seen in the Main hospital oncology department. I have the number for the breast care nurses and have phoned for advice once or twice but they just tell me to call oncologist's secretary. We do have a Macmillan centre and people there have been a bit helpful - although I get feeling sometimes that they prefer dealing with primary patients too - sometimes I feel forgotten by teh health service - we're a bit inconvenient. My oncologist is very good but appears to only care about my lung mets and seems unconcerned about my bone pain. Refuses to allow skin lump to be cut out - despite me asking at every appointment (every 6 weeks for the last year). Best help I have had is from this forum, the live chat sessions, Jane Scarth house in Romsey and Penny Brohn in Bristol.
Carolyn, I'm impressed that you iron. I only use my iron when I sew. Like to make sure things are flat before I sew them. I will iron if it is for a special occasion. Other items get tossed in the dryer to releasee the wrinkles. I do mend clothes. Used to patch hubby 's work jeans. He is a carpenter and was always hooking them on nails. He even had me teach him how to use the sewing machine. FF
Yes, it’s strange but I no longer do ironing... maybe I’m a
slut! But himself used to do all his own..but recently told me he is now bored with it!
Well I’m sure I used to when working, but often used to hang stuff on an airier in the airing cupboard, or put some in the tumble.d. Love and hugs to allxxx
Sarahlew, Great news on your scan! Congrats!
Anne, That's wonderful you were able to go back to work. I've only had one bone strengthening injection and had no problem with it. Mine is new and given differently. I only get it every 6 months. It last somehow for that long. I get it for osteoporosis. I have heard other ladies say they ache after it.
Hi Anne, definitely, almost like a heavy cold was coming on, without the sneezes! I found it got a bit easier after a few months though. Hope work is going well x
Hello All I hope your scans go well. I am back at work. Bit nerve wracking. The bone injection seems to have made me achy and a bit unwell. Is that normal? Hope you are all well and looking forward to the sunshine!
Why didn't they send you for the MRI before the appointment !?!? Grrrrrrr!! Maybe the support will give you some relief. You lucked out with the taxi service. Hope the tire is fixable.
Good luck with tomorrows scan.
Morning ladies, from a very cold and wet Hampshire. All the sun must have been concentrated into the far west over the weekend - not a glimmer here and me getting very cold ankles wearing ankle skimming jeans with slip on shoes whereas I should have had on my winter boots! Fingers crossed the weather improves as it should over the week. FF, isn’t it great that the weeks we look forward to and cheer about are the ones we don’t have any appointments for 😂😂. What the bloomin disease has done to our expectations! However it’s always good to know you didn’t need to go anywhere medical as I call it, including doctors, dentists, opticians - they all come under the same banner and it’s typical for me at least that I’ll have to go to one (or all of the above) on my week off from hospital appointments. Bring on the sun for you as well.
Anyway, hoping anyone getting results this week has good ones and everyone else has as few appointments or side effects as possible.
Take care all
Hi everyone! Just checking in to wish all a good week. I have my first week in months without a medical appointment. Wish I had off from work too. I could use a total break! I could use a beach day!
i have hand tremor in my left hand...think it’s likely due to the chemo.....I noticed it about 3-4 years ago when on Cape.
someone else had mentioned sore fingers on palbociclib, I was later surprised to read that palbo can cause peripheral neuropathy, so maybe that’s what the sore fingers are about
Glad you enjoyed your weekend in Devon. We went to Cornwall for the day yesterday to watch daugher-in-law equestrian eventing. weather not so good there. She's 4 months pregnant but I guess it's ok, her mother did it and produced 3 children.
Good luck with your onc appointment. I've got one on Thursday. Have been having all kinds of symptoms but then I always do.
thanks for replying. I've been reading your posts & am sorry to hear of your dx. You seem to be coping much better now. Its a scary situation we find ourselves in.
My main problem will be telling my 19yo daughter, shes an only child & we are very close. She is away at university at the moment. Husband is very supportive