29-08-2017 10:31 AM
29-08-2017 07:59 AM
29-08-2017 06:42 AM
Hi Maldives, hope you get some sense out of your onc nurse today. You shouldn't have to find out about such things by reading a letter. I hope all goes well on Saturday we'll all be thinking about you.
Hugs Bon xx
28-08-2017 11:39 PM
Maldives...try and ignore the 'survival rate' stuff...we dont know how valid the research was and anyway...it wont help to think about that!
hope tomorrow goes well...poor thing you have had a lot of things coming up!
yes I was on Taxol, made me tired...give yourself some slack and rest upxxx
drink loads of water thoxx
28-08-2017 09:03 PM
28-08-2017 05:03 PM
28-08-2017 03:36 PM
28-08-2017 11:38 AM
28-08-2017 11:19 AM
Another wasp hater here!
Hope you are all doing as okay as possible.
I cant remember if I said or not but my QT prolongation has gone back to normal so I am currently on my cycle of being off the trial drug. On Friday I start it again, they haven't reduced the dose which has surprised me as I thought they would have done because of my heart last time. I just have to trust they know what they are doing but it is very hard and worrying.
ive not been into work since my diagnosis in May, they have been excellent with no pressure to go back and just asking me to work from home as and when I can. I've decided to be brave and try and go back tomorrow. It's a very small office with only 5 other people in. I usually start at 8am, but having not been up at that time for a while, I'm going to go gently and start at 10am I think x
28-08-2017 08:49 AM
27-08-2017 10:51 PM - edited 27-08-2017 10:52 PM
my apologies for the long absence. I was actually checking in regularly,but found very few people around for a while and ...became a bit busy elsewhere.
however, I think we all worry when one of us disappears.....makes us wonder if they are ok!
i am ok, but like Carolyn and Ff, find it hard to sleep and like ff I have been needing some space from my oh.
I do hope everyone is chugging along nicely?
MariaLouise, am so glad my words were helpful...life is a bit like that isnt it? I find that every so often someone will put something over in a way that really helps me......and of course on this forum we are lucky in having so many lovely ladies to chat with xxx. I hope things are going well for you now, am sure you will get some benefit from the drug too.
I read some research about twentyfive years ago ( must be) by the 'Simontons' drs in the usa who ran groups for terminal patients and found that many of them lived far beyond expectations.....well we are a kind of 'group'
arent we ladies?. And my guess is, this forum also extends lives.
27-08-2017 09:07 AM
Wow, great photo Bon. A definite plus side to the nights when we lie awake, I must check the sky myself when I'm lying there trying to get back to sleep. A good place to post it as its very uplifting and, as we know, we have a chat on the Bone Mets thread more than any so there's no reason not to share things like this. I have never joined the secondary private part of the forum partly because I think I'd have too many threads to try and track - it's busy enough at times on this part of the forum!
Hope everyone is enjoying the sun this Bank Holday weekend, all the others have been a wash out if I remember correctly. OH and I had a great day at Carfest South on Friday, great weather which helped a lot, a good start to the weekend - now onto clearing out our bedroom and bathroom waiting for the builders to arrive on Tuesday - not so much fun.
26-08-2017 08:23 AM
26-08-2017 05:51 AM - edited 26-08-2017 05:57 AM
There are few upsides to not sleeping well but sometimes you see beautiful things. The other day I looked out at 5 am to see Venus close by a slender crescent moon. Dawn was breaking, bats were still flying and crows were having their first morning squabble. This morning I looked out at 4 am and saw Orion low in the eastern sky - a sign that autmn is almost here. It didn't look quite like like this picture.
Slept really well the night before last, can't remember when I last did. Felt so different yesterday.
This has nothng to do with bone mets. We used to post things that had inspired and moved us in the secondary private group but hardly anyone goes there now so please excuse me for postng here.
Hugs to all Bon xx
25-08-2017 12:08 PM
Good morning all,
I am amazed at all the breast cancer knowledge I have gained from this forum.
Thank you all who take the time to get this information and post it for us to read.
I can't believe there are so many treatments oncologist use to help us live longer.
I was diagnosed with secondry bone in March this year and was devastated but over the months this forum has helped me cope and I am more relaxed about the situation. Thanks ladies.
Take care out there and I hope the sun shines for you this bank hoilday.
25-08-2017 09:38 AM
Thanks Nicky, that does explain why they had to wait quite a while to get these results through. I am afraid I am a head in the sand kind of girl when it comes to my oncologist appointments and I just get the urge to bolt !! I must be more pro active and knowledge is power but I am a complete disaster as soon as I get in the hospital. So a big thank you to you lovely ladies .
The sun is out here this morning so I hope everyone has a lovely long weekend, out and about, in the garden or just winding down.
much love xx