09-08-2017 08:49 PM
09-08-2017 08:39 PM
09-08-2017 06:56 PM
09-08-2017 02:30 PM
09-08-2017 01:59 PM
Carolyn, With our time difference I'm hoping you are home and had good results! I hate going through the big doors to enter. I aware those doors get bigger and bigger and more intimidating each time! I prefer to be an ostrich before appts. This living from scan to scan is he$$! I always tell myself after every scan visit to put my smile back on and go have fun. You have been given another 3 months! I love the oral drugs, so I'm not there every week. I try not to whine about the weekly infusions when I'm going. My brother was on kidney dialysis and went 3x a week. I took him and picked him up every Saturday. It was a commitment! FF
09-08-2017 01:32 PM
09-08-2017 12:43 PM
hi carolyn ,
NO you are not a bad example to us at all,as i am sure if everyone was honest around 60%would feel the way you do ,i was a quivering wreck on friday when waiting to see my onc ,made worse as he was double booked so running late ,only my son being with me kept me from using my wheelchair and racing out of there ,.
hope all has gone as planned
09-08-2017 12:17 PM
I am the same. When I had my treatment for breast cancer in 2013 that took 8months,
I went onto autopilot and they could do anything to me to get rid of the cancer.
Since I was diagnosed with secondry bone in March this year I have become a shivering wreck on my 4 weekly visits.
My stomach churns, but it does help with the constipation so I suppose thats a bit of a bonus.
These visits are vital so we just have to get on with it, perhaps we need some sort of therapy to deal with it. I just want my pilot back. (preferably tall, dark and handsome) I wish.
09-08-2017 11:09 AM
08-08-2017 04:50 PM
That is nice that you hear from your family every day! It does not help with the long evenings though. Lol it is still nice to have someone there! Thank goodness you do have your dog.Do you like to do crafts or play any games. Maybe you could invite a friend over for snacks and a game. I try to think of crazy ideas (excuses for a party) mostly small groups! Full moon party, chili cook off, fried chicken cook off, break the winter blues, fabulous fall, etc. Hugs!
08-08-2017 08:33 AM
yes like you i use every available light both inside and out,i really hate it ,no one to talk to is the worst part for me ,dont get me wrong my family call every day when coming from work ,which is great but still very very long nights to fill,so its me and the dog plus t v for a few months ,,also like you i do like the snow when it falls ,but just the once will do me .
today is dreadful ,torrential rain and weather warnings out all over the place ,but my friend is coming for a few hours so shall be kept busy with little jobs i can not do from my wheelchair
08-08-2017 02:37 AM
Renee and Carolyn, Winter darkness is pure torture to me! I feel like I barely make it through! Renee, I don't know how you get through it by yourself! I think I turn like every light in the house on! Plus the outside front spot lights on. Anything to make it look light! I do like a good snow though! But only one! Hate the cold!
07-08-2017 05:25 PM
Hi Carolyn ,
like you i hate the long winter evenings ,especially since losing hubby ,i hated the dark nights even then but more so now just wish my life away with them and pray for spring again ,why can we not just have spring and summer ,PERFECT
07-08-2017 05:15 PM
07-08-2017 05:12 PM
07-08-2017 04:49 PM
07-08-2017 03:46 PM
Raining here too! Curled up with a cup of coffee and blanket. Have to go out to work in a couple hours. I made lasagna yesterday, so dinner just needs reheated. I'm almost ready for Autumn, but a nice sunny one! Just hate that Winter follows it.
The butterfly thing sounds helpful Carolyn. I don't know what my nurse did on Thursday, but it really hurt when she accessed my port and lovely shades of black and blue! FF
07-08-2017 01:02 PM
07-08-2017 10:20 AM
never heard of this but will ask when phlebotomist calls next ,as i bleed under the skin so easily with blood thinning meds and my hands and arms are so bad with bruising i look like someone has abused me [i should be so lucky],
rotten day here again i think summer has been and gone .