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Hello Helen
That's good news about stable ..as long as the treatment keeps the little blighters under control it's worth the side effects !
Jeanette ..all the best tomorrow my letrozole buddy. .hope all goes well and I will be thinking of you ...
Hugs everyone xxxx
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Re: Bone mets - please join in

Hi lovely ladies
Carolyn - pleased your appointment went well today.
Janette- good luck for your results tomorrow.
FF- Hope you're enjoying the new job & your treatment is going well.

I had my onc appointment today and I am a stable Mabel!! No visible reduction in the liver mets but no progression either so I am staying on eribulin for another 2 cycles at least (9&10) . Bone Mets behaving as well. Very relieved.
I know what you mean about the BCN sitting in on appointment- I always think it's going to be bad news if she turns up.
Big ((((cyber) ))))hugs to you all
Helen x
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Glad you didn't have anything scary today Carolyn. I had bone juice today - it took an hour to arrive from the pharmacy so
didn't go out for lunch. Malfunctioning IT wastes such a lot of nurses time rebooting their terminals when they could be doing nursing
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Hi FF,
Sorry, didn't answer you before now. I'm going to Majorca for my holidays. Really looking forward to it. Best Wishes
Waffles xxx
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Thanks ladies ..so Im not alone ..
Well home now as we stopped for lunch ..my oncologist was busy with a very poorly lady so I saw his registrar ..she looked so young and if she should still be skipping in the school playground! !

She asked me if I was feeling well, any new pain and then would see me in 4 months. Apparently I only have scans 8 monthly so not due to October.

Then had my bone juice and then out of the hospital ..think I almost skipped to the car ..if hubby didn't go with me ..I think I would run before I went into clinic !!!!
Hugs and best of luck to all of you that have to do the same soon.....it's a very good diet though ..stress as it means loads of toilet visits !!
Hugs ☺☺☺
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Carolyn, With our time difference I'm hoping you are home and had good results!  I hate going through the big doors to enter. I aware those doors get bigger and bigger and more intimidating each time! I prefer to be an ostrich before appts. This living from scan to scan is he$$! I always tell myself after every scan visit to put my smile back on and go have fun. You have been given another 3 months! I love the oral drugs, so I'm not there every week. I try not to whine about the weekly infusions when I'm going. My brother was on kidney dialysis and went 3x a week. I took him and picked him up every Saturday. It was a commitment! FF

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Afternoon ladies.
Good luck today Carolyn, it never gets any easier going to see your onc unfortunately, I'm a nightmare, I sit in the waiting room and if I see my bcn hanging about i convince myself it's going to be bad news because she's there to support me!
I've got my 3 monthly appt tomorrow along with CT results and I'm dreading it.
Hugs Janette xxx
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hi carolyn ,

NO you are not a bad example to us at all,as i am sure if everyone was honest around 60%would feel the way you do ,i was a quivering wreck on friday when waiting to see my onc ,made worse as he was double booked so running late ,only my son being with me kept me from using my wheelchair  and racing out of there ,.

hope all has gone as planned 

Reneex

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Hi Carolyn,

 

I am the same. When I had my treatment for breast cancer in 2013 that took 8months,

I went onto autopilot and they could do anything to me to get rid of the cancer.

Since I was diagnosed with secondry bone in March this year I have become a shivering wreck on my 4 weekly visits.  

My stomach churns, but it does help with the constipation so I suppose thats a bit of a bonus.

 

These visits are vital so we just have to get on with it, perhaps we need some sort of therapy to deal with it. I just want my pilot back. (preferably tall, dark and handsome) I wish.

 

Regards

crissy

 

 

 

 

Community Champion
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Hello ladies
Well off to see oncologist and for my bone juice in an hour ...am I the only one that becomes a quivering wreck once I get to the hospital doors?
I get into clinic ..forget all the questions as just want to escape as quickly as possible!
I'm such a bad example to you all xxxx
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That is nice that you hear from your family every day! It does not help with the long evenings though. Lol it is still nice to have someone there! Thank goodness you do have your dog.Do you like to do crafts or play any games. Maybe you could invite a friend over for snacks and a game. I try to think of crazy ideas (excuses for a party) mostly small groups! Full moon party, chili cook off, fried chicken cook off, break the winter blues, fabulous fall, etc. Hugs! 

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hi funnyface

yes like you i use every available light both inside and out,i really hate it ,no one to talk to is the worst part for me ,dont get me wrong my family call every day when coming from work ,which is great but still very very long nights to fill,so its me and the dog plus t v for a few months ,,also like you i do like the snow when it falls ,but just the once will do me .

today is dreadful ,torrential rain and weather warnings out all over the place ,but my friend is coming for a few hours so shall be kept busy with little jobs i can not do from my wheelchair

take care 

reneex

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Renee and Carolyn, Winter darkness is pure torture to me! I feel like I barely make it through! Renee, I don't know how you get through it by yourself! I think I turn like every light in the house on! Plus the outside front spot lights on. Anything to make it look light! I do like a good snow though! But only one! Hate the cold!

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Hi Carolyn ,

like you i hate the long winter evenings ,especially since losing hubby ,i hated the dark nights even then but more so now just wish my life away with them and pray for spring again ,why can we not just have spring and summer ,PERFECT

take care 

Renee

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Hiya ff
Our weather seems to be mirroring yours ..it's feeling very autumny today ..I have cropped jeans on (capri I think u call them) and my ankles are chilly!!
Oh no ..hate winter and all that darkness and slippery pavements ...
Hugs xx
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Hello bon
Yes ask about the butterfly next time ..my nurse who has been doing bloods for over 20 years says she always uses them to protect them for future as regular usage hardens them and they can't repair ..but it's taken two years before I knew this ..
Hugs xx
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Not raining in Dartmouth. Had a blood test this morning. My veins are still producing but there is less choice of vein than there used to be . I will ask about a butterfly needle because I want them to last as long as possible
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Raining here too! Curled up with a cup of coffee and blanket. Have to go out to work in a couple hours. I made lasagna yesterday, so dinner just needs reheated. I'm almost ready for Autumn, but a nice sunny one! Just hate that Winter follows it. 

 

The butterfly thing sounds helpful Carolyn. I don't know what my nurse did on Thursday, but it really hurt when she accessed my port and lovely shades of black and blue! FF

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Good morning Renee
It was probably like teaching the experienced ladies here how to suck eggs but if just one lady reading gets spared the aching bruised arm after the blood test is done. .my job will be done. Veins are very precious if u out don't have a port fitted ..and from now on ...no one comes near mine unless they use the butterfly needle ..
It's cold and wet here in devon today ..feel so sorry for the holidaymakers ...at least I have my home comforts! !
Hugs xxx
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hI CAROLYN 

never heard of this but will ask when phlebotomist calls next ,as i bleed under the skin so easily with blood thinning meds and my hands and arms are so bad with bruising i look like someone has abused me [i should be so lucky],

rotten day here again i think summer has been and gone .

love reneex