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Brilliant news, Artygirl! Sorry I'm so late to the congratulations! That is wonderful news.

 

Hugs. Barton.x

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Thanks Waffles. xxxx
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Hi Artygirl,

What brilliant news! I am so pleased for you. xxx

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Thanks waffles
Yes it feels like I have been hit by a bus for days 4 to 18 .
Clever little injection though ..gets stabbed into tummy fat and then has to get its sat nav system going around body to get to the bone Mets! Wish I had such a good sense of direction!!
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Hi Carolyn,
I can sympathise as I get pain after the denosumab injection and it feels like I've been kicked about. Luckily mine doesn't last long. Pain isn't fun and it really affects your quality of life but I suppose at least you know that nothing sinister is causing it and the medicine is helping you. I'm sure they should be able to reduce the frequency of the denosumab injections without doing any harm.I was certainly offered 6 weekly injections if I wanted as it fitted in with my appointments better but I chose to inject myself 4 weekly. Best wishes xxx
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Hiya daisy
Glad that u had a good holiday here in Devon ..sorry about the weather though ..swings and round a bouts but u can go to Portugal and get rain like my son did !!
I think all the treatments do take a while to kick in though ..letrozole that I take ..oncologist said 6/8 weeks.
Best of luck with scan results ...it's a worrying time and we all get the stress!
Hugs xx
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Waffles
I hate the bone injection lately as I get so much bone pain for two weeks ....I asked about iv or pills but they said no ..they are phasing them out.
I have had a week free of pain ..it's lovely .I'm seeing oncologist Sept and going to ask for the injection six weekly or even eight weekly as for me ..it feels like overload !!
The injections are culmultive and I have had 7/8 now and maybe need less !! I also need a filling done at the dentist so i will have to mention that too.
Hugs xx
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Thanks Andrea - that's really kind. xxxx
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Hi Carolyn,
Also forgot to say that although Zometa is quite a bit cheaper it also can cause kidney problems in some people particularly those who have kidney issues to start with.So they always have to be on the lookout for that too.
xxx
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Hi Carolyn,
I started off on the bone infusion (zometa) but it was becoming hard to find good veins. It was taking up a lot of the nurses time and I was getting bad bruising and swelling in injection sites. Now I get denosumab which I inject myself at home with no problem.
I think also that although denosumab is a much more expensive drug than zometa it actually saves the nurses loads of time and frees up space in chemo unit as it only takes a minute to give instead of 40 mins or so with infusion.xxx
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Yes ..I wander why some of us have denosumab injections and why some still have the iv version . Must b a reason as the injection is a few seconds ..the iv version much longer and invasive .
I'm off for the bone juice again Wednesday ..the four weeks come around so quickly ..
Hugs xx
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Hello Helen
Glad u have had a good holiday in Cornwall ..hope u tried a Cornish pasty and cream tea.
I know all about the she pee as my daughter in law has ordered one for camping. E bay less than a fiver !! The one with the little tank is better !! Marvellous gadget ..what are they talking about ..you are all thinking ..it's a little plastic funnel thing for ladies to wee through if u have to go ...saves you splashing your feet !!
Trust me to lower the tone already ....
Xxxx
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Hi Debbie, I'm afraid I've no idea how long these things take to start working but understand your scanxiety I get it every time I have a scan, which is every 3 months! Will be thinking of you and have everything crossed for a good result! I would heartily recommend champagne & chocolate, well it helps me to relax!

Sending you big hugs, lets us know how it goes!

Andrea xxxx
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Hi ArtyGirl, excellent news! It is so good when someone gets good news! I always feel it's another kick in the pants for C!!

Andrea xx
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Good Morning Ladies

I haven't posted for a little while but have just come back from holiday in Devon - beautiful place, terrible weather unfortunately but hey that's holidaying in the UK!

 

Anyway, I was diagnosed with the double whammy of lobular breast cancer and extensive bone mets back in May 2016.  Since then I have been on Ibandronic acid (bisphosphonates), Zoladex injections and tamoxifen.  I am due to go back on Monday to have a CT scan with the follow up meeting with the Oncologist.  

 

I have to say the anxiety levels are starting to rise.  Can anybody offer me some words of encouragement?  I don't now whether they will see any difference in just under three months of medication.  Does anyone know how fast Tamoxifen works or how long you have to take it before it fully gets into your system.  Also I read somewhere that the Ibandronic acid takes a minimum of six months before its benefits start to show.  

 

Sending positive vibes out to everyone.  Tiger14 and Skippy I have tried to private message you but no luck.  I hope you are both doing OK.

 

Debbie xx

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Hi Andrea, I use to have my injections on different weeks and which drove me mad so on another mition to "take control" of this disease I spoke to my onc about getting them on the same day each month, I now have them every 4th Friday, that way they are both out of the way for a month. 

Hi Helen, glad you had a good holiday, sounds like you had fun!!

Hugs Janette xxxx 

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Hey arty girl that's super duper news. So lovely to hear good things :-))))

So, why am I on Zometa and everyone else seems to be on deosumab as bone strengtheners? Anyone else on Zometa?

By the way, just returned. From my VW camper trip round Cornwall..,was fab and must say to anyone who does camping but not tried a wee-she its a must. What a fabulous device for ladies who need to pee in the middle of the night! Think I might keep it by the bed now home to save the 20 steps to the bathroom...😆 Only kidding!
Helen
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Thanks Janette xxxx
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Hi Janette, notice in your comment that you have Denosumab & Zoladex at the same time! I didn't know you could do that, never really thought about it though! I have mine a week apart, Z at Dr's by practice nurse & D at hospital by chemo nurse. I might see if I can do them together! It would save my 13 appointments a year!!!!

Andrea xxx
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Hi Carolyn, I'm fine thanks, just been busy and today been out having my denosumb and zoladex, plus still can't seem to shift this headache, it eases off then comes back!!
Arty girl, so pleased for you!!
Hugs Janette xx