Bone mets - please join in

[scratch]

Another winge ..3 ladies I spoke to at hospice told me they only ever wait a week before ct results.i always seem to wait about 4.once it was about six.too stressful..sharonx

[scratch]

Carolyn.i went to hospice today and iv got mouth thrush again ..so the McMillan nurse wrote me prescription.and said my ct results were in .i asked her to tell me so it was just a brief description.but she spent 45mins with me .more than hosp does.my oncologist appt is 16th.so I will know more then.i have had fec.capecitabine and recently docetaxol as chemos.and I have had five years tamoxifen.11 months letrozole and am currently on examestane which obviously hasn't worked..i dont know what the next option is or if there is one..xxsharon..

[Carolyn52]

Oh Sharon.
I'm so sorry to hear this as you have done the chemo recently too.
Is there another hormonal you can try ? Or what options do you have now ?
Has oncologist offered you other treatments or even a clinical trial with ibrance maybe.
Keep posting here ..we are all here to help as you must be feeling so downhearted .
Hope you have settled your daughter into her new flat and try not to over do things ..easy said I know.
Sending you mega hugs xxxxx

[scratch]

Hi all found out today that iv had progression in my liver Mets.normal bloods but Mets bigger and slight ascites.feel down .so obviously examastane hasn't helped me..😞 sharonx

[Carolyn52]

Oh ff
The treatments don't help us with the heat do they ?
I like September too although the darker nights are a pain. Usually I sleep with the Windows open ....but once we have rain after heat .the mozzies are about and they love me ..num num!!!☺☺

[funnyface]

Rainy, hot, and humid here! I think I'm ready for Autumn as long as it starts early and goes into winter. Not a fan of winter! Need to get out of here today! Going crazy!  FF

[Carolyn52]

Well waffles ..then you must do what a girl must do and splash the cash and shop!! 👠👜👗
Enjoy it and hopefully you will get some nice things.
I hate August . Hate the wasps and mozzies . After heavy rain last night ..had to keep Windows shut as the little uggers love me at night.
Hugs xxx

[Waffles]

Hi Carolyn,
Very muggy weather here and not very pleasant indoors, unless you have air conditioning. So , unfortunately, I'm forced to go out shopping today. Well that's my excuse anyway. 😁 xxx

[Carolyn52]

Good morning all.
Hope everyone is ok and enjoying .....the rain wellies and brollies dragged into use again.
Looks like tumble drier will b overworked again and the holiday makers all look so glum ...
Hugs xxx

[Carolyn52]

Hiya Barton.
Put the old stuff on gumtree ..inundated with replies . Put it all on too cheap I think. Tried to put a fair second hand price on.
Weather getting on my nerves as I was going to do a load of washing .never mind plants and grass need watering.
Hugs xx

[Barton]

Well, if it means you are happy Carolyn, I am happy to accept the blame!

Hugs.

Barton.x

[Carolyn52]

Hiya ladies
Well up early this morning ..so already on my second cup of coffee ..sat on decking ..no Sun but warm .
Hope everyone is coping ..know a lot of you are feeling poorly but keep eating chocolate and cake ..it won't cure you but hey hoo ..makes u feel better.
Xx☺

[bonariensis]

Hallo Artygirl Even with all the technology available it seems there can always be uncertainty. I had a bone biopsy taken from my pelvis last autumn and was already on exemestane because of what was probably my problem. But then in June my onc just happened to mention that the biopsy results had not been all that conclusive. An MRI scan showed I also have something in my skull and a tumour in a really inaccesible place below my brain which might be bc or something else but they can't tell because a biopsy would be too invasive. So we live with uncertainty. Anyway I went to the Port Eliot festival in Cornwall this weekend and had a great time 

[scratch]

Hi jultz glad youv got a nice holiday in.you deserve it yes its lovely to get hair back whatever colour and form it comes back in..it makes you feel normal somehow..some people handle hair loss better than me...wish they could find new meds that dont cause this side effect...anyway glad youv had a nice break.daughter and baby moving out tomorrow so a busy week for us..xxsharon

[Carolyn52]

Hi Barton.
Well I have impressed you .
I don't drink enough glad I'm not on cape ! Just not a thirsty person.
Hubs will cope with flat pack ..I just need ear plugs for the swearing !! Mind u its a lot to do ...large table and eight seater !! Bless him.
Just going to sell the old stuff now on gumtree.
It's your fault really ..loved your wooden stuff so much ..just had to have some new !!!
Xxxxx

[Barton]

Well done Carolyn, on several fronts: a.drinking a lot (really good for you!) and, b.buying new patio furniture (although I thought yours was lovely anyway), oh, and c.getting up late! A woman after my own heart!

Hugs. Barton.x

PS if hubs is fed-up of putting flat pack together, I can give you the names of two different people who would do a good job for you.

[Carolyn52]

Good morning ladies
Well how are we all today ? Got up late and we had wall to wall visitors and buckets of tea ..ouch my poor bladder .
Went out to get grandson new headphones for his games box and ended up buying new patio furniture !!!! It's all being delivered Saturday . Flat pack again ..🔨🔧.poor hubs . But I've told him every time he swears ..he has to put a £1 in the swear box ...probably be able to afford a very exotic holiday on the proceeds !
Enjoy yr day xxxx

[Carolyn52]

Oh ff
Didn't realise you were on steroids ..evil things ..hubby takes them a lot for his chest infections ..he balloons on them like the Michelin man and eat ..well he's like a human dustbin and his knees creak really bad !!
Hopefully you will start to recover from them soon.
Xxx

[Carolyn52]

Oh Barton ..he's not just a dog but a pampered pooch and only the bed will do !!
Thinking about a little nap but will try to stay awake til bed time tonight now !!
Hugs xx

[Barton]

Oh Carolyn, what are you like! Put the dog in the kitchen overnight, or the sitting room! You spoil him! Hope you get a better night tonight, or have had an afternoon nap.

Hugs, Barton.x

[artygirl2061]

Hi Funnyface
Not yet. I guess if MRI scan was inconclusive they might. Are MRIs ever inconclusive? All a bit of mystery to me who hasn't a scientific bone in her body!!
x

[funnyface]

Artygirl, I hope they figure it out soon. Did they biopsy it? I can remember when they biopsied my lung there was some confusion. They had to send it out for more staining, and it took a couple weeks. Good luck! FF

[artygirl2061]

Thanks Carolyn - good plan! X

[funnyface]

Stresshead, I'm OK! Just that bone met added to the confusion of why are my legs weak. I'm off prednisone now, so if that was part of the problem it's gone. If it's because of my knees and inactivity, I've begun some physical therapy to combat it. If it's the chemo, hoping the therapy  combat that too. Hoping to see a difference in strength in a few weeks. My energy is less without the steroid, but again counting on time and exercise to help that! Maybe no steroids and exercise will help the weight too! 

Bad day at work yesterday! Thankful it's Saturday! I work at a senior center. The senior center is a place for seniors to come hang out. It is open 9-3 MTWTF. There is fine art class, exercise, yoga, ti chi, dancing, bingo, poker, entertainment, etc. It Is always busy. Most of them are very sweet and lovely, but a few can be real pips! Enjoy your weekend ladies. I'm working on some ideas for a pirate murder mystery for the center!

[Carolyn52]

Artygirl
All the technology and some things are still in doubt so all you can do is wait and see.
Fingers crossed it won't be a met ..
It's good they are double checking and it sounds like you are in good hands.
In the meantime enjoy your weekend and try to relax!!

[artygirl2061]

Morning everyone
Really nice to read your chatty thread.
Have been really struggling since abnormal spot found on pelvis two weeks ago. Picked up on both bone scan and ct scan but inconclusive. An now awaiting results of an MRI. Assuming it is a met - ON seemed pessimistic although when we left her office said she 'was sitting on the fence'. Very confused and anxious. Anyone else had a similar scan experience. Thanks Ladies. X

[Carolyn52]

Morning ladies
Phew you are all awake bright and early today.
I've had a rubbish nights sleep ..if any.
Had sons dog for a sleepover ..the little sod has been on the fidget all night ..too hot I think. I got out three times to let him out ..he's scratched, farted and licked his man bits all night long !!
Think a little nap later will b involved .
Enjoy yr weekend everyone.
Xxx

[rosie53]

Good morning ladies, well it looks like it's shaping up to be a nice day here today!
Hi Julz, sounds like you had a lovely time in the lakes, it's my most favourite place to be! We were there a few weeks ago, we always stay in Bowness but we also have a ride into either Ambleside, Kendal or Lancaster. It's roughly around an hour and 20 minutes from Manchester so it's not too far to drive. Well done you for doing that climb, I bet you felt amazing afterwards!
Nicky, thanks for the PM tip.
Marie 123, hope you have a fab day at your daughters wedding, 👰you must post some pics!!
Well I slept rubbish last night! But at least the sun is shining so that should keep me going 😆
Hugs Janette xx

[julzd]

Hi everyone yeah the lakes is a beautiful place carolyn your right after the year on chemo it's been lovely to feel and do normal things I think having my hair back even though it's a bit fluffy and curly makes me feel loads better. My husbands been off work this week so it's been good having company and being able to go places thinking about Edinburgh today. Have a good weekend everyone ❤❤❤

[funnyface]

Wow Julz you are quite energetic! That's a lot of walking! You should be proud! FF

[funnyface]

Fantastic news Janette! I stayed at stable for many years! Long may it continue! FF

[LouBoo]

I love the Lake District Julzd - spent a couple of weeks in Ambleside a couple of years ago - the scenery and walks are stunning aren't they?

Happy weekends to everyone - may they be pain and worry free xxx

[Carolyn52]

Hiya jultz
Glad you have had a few days break away from routine and wow ..all that walking you did ..you are obviously feeling better after a very hard year of treatment .
Glad you have touched base with the gang as we get worried when you don't check in !!
Hugs xx☺☺☺

[julzd]

Hi ladies hope your all ok great news janette sorry I wasn't on to wish you well before you had results. I have been up the lake district for a few days and you would of all been proud of me i climbed my first Hill helm crag I had a few panic attacks on the way but kept going and reached the top took 2 hours then walked to the top of aria force where the waterfalls are it was fab I've got photos on my phone but it won't let me post on private page ❤❤❤

[helen44]

Hi Janette

So pleased to hear you are a stable Mabel, long may it continue! Always good to hear such news.

Love Helen x

[nicky08]

Hi Janette

Just seen your post to Marie and I'm wondering if you put an emoji, or two, in your PM? A while back I couldn't send PM's even though I had sent them to the person before. By a process of elimination the digital team from BCC suggested this was the problem - and it was 😊 Emoji's on the main, public, forum are OK as you can see.

Nicky x

[stresshead]

Janette, what fantastic news...keep celebrating.

Funnyface...hope you are feeling a little brighter now. I know its a worry but your scan could have shown a lot more so try and be strong...like Carolyn says yo have coped so well for so long....

Carolyn..i wish i had your sense of humour...your 'tissue' incident had me in fits.

Hope everyone is as well as can be and sorry if i've missed anyone. xx

[stresshead]

Bit behind on this thread so forgive me.....Andrea what fantastic news...you were right to share it! I'm sure the fuzzy head the day after was worth it!!

Avrelia....sorry you have had to join us. I had fec as my first treatment for primary sb and was qite ill on it but i had an antisickness drug called aprepitant and i had injections for neutropenia so there is stff out there if you should need it. I found losing my hair very hard (been through it twice now and looks like a 3rd time may be round the corner) but , although i tried, couldnt face the cold cap after my first attempt, although many ladies find it ok. You will get through it though and hopefully have success. Keep posting. x

[Barton]

Hello Janette, congratulations! Well done, and long may it continue! Stable is a good word to hear in our situation - wonderful.

Hugs. Barton.x

[Carolyn52]

Oh Jeanette 

we are a couple of wimps arnt we ?? When I saw Oncologist six weeks ago .. and he said stable scan etc -- I burst out crying and he produced a box of tissues from no where and do you know what I thought .. ugh Tesco  own brand .. surely I deserve some nice soft aloe vera ones or perfume ones after all the stress !!

What am I like ? 

Carolyn xxxxxxxxxxxxxxxxx

[rosie53]

Hi Marie, thanks for the PM I've tried to reply but it won't let me?? Hope you have a wonderful day tomorrow,  wishing your daughter every happiness for the future 💑👰👰

Hugs Janette xxxx 

[rosie53]

Hi Carolyn, no I don't see scans etc, really do not want to either!  I know I have cancer and that is all the info I want thank you very much,  that and my stable results every 3 months is enough for me.  I know some ladies want to know all that's going on and fair play to them but it's not for me!  No she didn't elaborate on the hole and I didn't either,  I think she knows I'm a stress head so keeps thinks brief. 

Well dropped Heidi off at the "hairdressers "she wasn't very happy so think she will be a sulky pooch when we pick her up!!

Hugs Janette xxxx 

[Carolyn52]

Ps .Jeanette
Enjoy Heidi today ...loads of doggy cuddles and kisses.
I've got Scooby my elder sons black lab here today and then tonight I have Ted younger sons boxer for a sleepover til tomorrow.
Dog hairs welcome at ours !!
Hugs xx

[Carolyn52]

Hiya Jeanette
Thanks for the info. Do u look at yr scans ? I don't as I'm a wimp. My October one last year scared me so I don't look now !! Did the oncologist say the hip hole was repairing with the denosumab as that is the idea of it ..I think.
I had a hole in femur and a hip like honeycomb and a crack in pelvis last Oct ..scary stuff after a year wasted of being told I had arthritus and a trapped nerve ..it got that bad.
Oncologist told me leyrozole stops feeding the cancer cells and they should die ..then denosumab coats and rebuilds the damage so hope it does all what it should do.
Hugs xxx

[nicky08]

Great news Janette, huge sigh of relief I'm sure!

Enjoy your day with Heidi, the perfect arrangement 🐶😊

Nicky x

[rosie53]

Thank you ladies for all your good wishes.
Carolyn, I did mention about my hip giving me some pain and she reassured me that pain doesn't always mean progression! It's just that I basically got a hole in my hip where the cancer is (yikes that was too much info for me) so don't be worrying when your hip plays up lovely!
Got my little Heidi for the day, we are taking her to be clipped she's very rag tag now 😀
Hugs Janette xxx

[scratch]

Well done Janette.now you can do hoovering❤ .sharonxx

[Waffles]

Great news Janette! You can relax now
Best wishes xxx