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Bone mets - please join in

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Re: Bone mets - please join in

Hi jultz glad youv got a nice holiday in.you deserve it yes its lovely to get hair back whatever colour and form it comes back in..it makes you feel normal somehow..some people handle hair loss better than me...wish they could find new meds that dont cause this side effect...anyway glad youv had a nice break.daughter and baby moving out tomorrow so a busy week for us..xxsharon
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Hi Barton.
Well I have impressed you .
I don't drink enough glad I'm not on cape ! Just not a thirsty person.
Hubs will cope with flat pack ..I just need ear plugs for the swearing !! Mind u its a lot to do ...large table and eight seater !! Bless him.
Just going to sell the old stuff now on gumtree.
It's your fault really ..loved your wooden stuff so much ..just had to have some new !!!
Xxxxx
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Well done Carolyn, on several fronts: a.drinking a lot (really good for you!) and, b.buying new patio furniture (although I thought yours was lovely anyway), oh, and c.getting up late! A woman after my own heart!Smiley LOL

 

Hugs. Barton.x

 

PS if hubs is fed-up of putting flat pack together, I can give you the names of two different people who would do a good job for you.

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Good morning ladies
Well how are we all today ? Got up late and we had wall to wall visitors and buckets of tea ..ouch my poor bladder .
Went out to get grandson new headphones for his games box and ended up buying new patio furniture !!!! It's all being delivered Saturday . Flat pack again ..πŸ”¨πŸ”§.poor hubs . But I've told him every time he swears ..he has to put a Β£1 in the swear box ...probably be able to afford a very exotic holiday on the proceeds !
Enjoy yr day xxxx
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Oh ff
Didn't realise you were on steroids ..evil things ..hubby takes them a lot for his chest infections ..he balloons on them like the Michelin man and eat ..well he's like a human dustbin and his knees creak really bad !!
Hopefully you will start to recover from them soon.
Xxx
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Oh Barton ..he's not just a dog but a pampered pooch and only the bed will do !!
Thinking about a little nap but will try to stay awake til bed time tonight now !!
Hugs xx
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Oh Carolyn, what are you like! Put the dog in the kitchen overnight, or the sitting room! You spoil him! Hope you get a better night tonight, or have had an afternoon nap.

 

Hugs, Barton.x

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Hi Funnyface
Not yet. I guess if MRI scan was inconclusive they might. Are MRIs ever inconclusive? All a bit of mystery to me who hasn't a scientific bone in her body!!
x
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Artygirl, I hope they figure it out soon. Did they biopsy it? I can remember when they biopsied my lung there was some confusion. They had to send it out for more staining, and it took a couple weeks. Good luck! FF

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Thanks Carolyn - good plan! X
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Stresshead, I'm OK! Just that bone met added to the confusion of why are my legs weak. I'm off prednisone now, so if that was part of the problem it's gone. If it's because of my knees and inactivity, I've begun some physical therapy to combat it. If it's the chemo, hoping the therapy  combat that too. Hoping to see a difference in strength in a few weeks. My energy is less without the steroid, but again counting on time and exercise to help that! Maybe no steroids and exercise will help the weight too! 

 

Bad day at work yesterday! Thankful it's Saturday! I work at a senior center. The senior center is a place for seniors to come hang out. It is open 9-3 MTWTF. There is fine art class, exercise, yoga, ti chi, dancing, bingo, poker, entertainment, etc. It Is always busy. Most of them are very sweet and lovely, but a few can be real pips! Enjoy your weekend ladies. I'm working on some ideas for a pirate murder mystery for the center!

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Artygirl
All the technology and some things are still in doubt so all you can do is wait and see.
Fingers crossed it won't be a met ..
It's good they are double checking and it sounds like you are in good hands.
In the meantime enjoy your weekend and try to relax!!
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Morning everyone
Really nice to read your chatty thread.
Have been really struggling since abnormal spot found on pelvis two weeks ago. Picked up on both bone scan and ct scan but inconclusive. An now awaiting results of an MRI. Assuming it is a met - ON seemed pessimistic although when we left her office said she 'was sitting on the fence'. Very confused and anxious. Anyone else had a similar scan experience. Thanks Ladies. X
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Morning ladies
Phew you are all awake bright and early today.
I've had a rubbish nights sleep ..if any.
Had sons dog for a sleepover ..the little sod has been on the fidget all night ..too hot I think. I got out three times to let him out ..he's scratched, farted and licked his man bits all night long !!
Think a little nap later will b involved .
Enjoy yr weekend everyone.
Xxx



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Good morning ladies, well it looks like it's shaping up to be a nice day here today!
Hi Julz, sounds like you had a lovely time in the lakes, it's my most favourite place to be! We were there a few weeks ago, we always stay in Bowness but we also have a ride into either Ambleside, Kendal or Lancaster. It's roughly around an hour and 20 minutes from Manchester so it's not too far to drive. Well done you for doing that climb, I bet you felt amazing afterwards!
Nicky, thanks for the PM tip.
Marie 123, hope you have a fab day at your daughters wedding, πŸ‘°you must post some pics!!
Well I slept rubbish last night! But at least the sun is shining so that should keep me going πŸ˜†
Hugs Janette xx
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Hi everyone yeah the lakes is a beautiful place carolyn your right after the year on chemo it's been lovely to feel and do normal things I think having my hair back even though it's a bit fluffy and curly makes me feel loads better. My husbands been off work this week so it's been good having company and being able to go places thinking about Edinburgh today. Have a good weekend everyone ❀❀❀
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Wow Julz you are quite energetic! That's a lot of walking! You should be proud! FF

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Fantastic news Janette! I stayed at stable for many years! Long may it continue! FF

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I love the Lake District Julzd - spent a couple of weeks in Ambleside a couple of years ago - the scenery and walks are stunning aren't they?

Happy weekends to everyone - may they be pain and worry free xxx

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Hiya jultz
Glad you have had a few days break away from routine and wow ..all that walking you did ..you are obviously feeling better after a very hard year of treatment .
Glad you have touched base with the gang as we get worried when you don't check in !!
Hugs xx☺☺☺
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Hi ladies hope your all ok great news janette sorry I wasn't on to wish you well before you had results. I have been up the lake district for a few days and you would of all been proud of me i climbed my first Hill helm crag I had a few panic attacks on the way but kept going and reached the top took 2 hours then walked to the top of aria force where the waterfalls are it was fab I've got photos on my phone but it won't let me post on private page ❀❀❀
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Hi Janette

So pleased to hear you are a stable Mabel, long may it continue! Always good to hear such news.

Love Helen x

 

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Hi Janette

Just seen your post to Marie and I'm wondering if you put an emoji, or two, in your PM? A while back I couldn't send PM's even though I had sent them to the person before. By a process of elimination the digital team from BCC suggested this was the problem - and it was 😊 Emoji's on the main, public, forum are OK as you can see.

Nicky x

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Janette, what fantastic news...keep celebrating.

Funnyface...hope you are feeling a little brighter now. I know its a worry but your scan could have shown a lot more so try and be strong...like Carolyn says yo have coped so well for so long....

Carolyn..i wish i had your sense of humour...your 'tissue' incident had me in fits.

Hope everyone is as well as can be and sorry if i've missed anyone. xx

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Bit behind on this thread so forgive me.....Andrea what fantastic news...you were right to share it! I'm sure the fuzzy head the day after was worth it!!

Avrelia....sorry you have had to join us. I had fec as my first treatment for primary sb and was qite ill on it but i had an antisickness drug called aprepitant and i had injections for neutropenia so there is stff out there if you should need it. I found losing my hair very hard (been through it twice now and looks like a 3rd time may be round the corner) but , although i tried, couldnt face the cold cap after my first attempt, although many ladies find it ok. You will get through it though and hopefully have success. Keep posting. x

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Hello Janette, congratulations! Well done, and long may it continue! Stable is a good word to hear in our situation - wonderful.

 

Hugs. Barton.x

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Oh Jeanette 

 

we are a couple of wimps arnt we ?? When I saw Oncologist six weeks ago .. and he said stable scan etc -- I burst out crying and he produced a box of tissues from no where and do you know what I thought .. ugh Tesco  own brand .. surely I deserve some nice soft aloe vera ones or perfume ones after all the stress !!

 

What am I like ? 

 

Carolyn xxxxxxxxxxxxxxxxx

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Hi Marie, thanks for the PM I've tried to reply but it won't let me?? Hope you have a wonderful day tomorrow,  wishing your daughter every happiness for the future πŸ’‘πŸ‘°πŸ‘°

Hugs Janette xxxx 

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Hi Carolyn, no I don't see scans etc, really do not want to either!  I know I have cancer and that is all the info I want thank you very much,  that and my stable results every 3 months is enough for me.  I know some ladies want to know all that's going on and fair play to them but it's not for me!  No she didn't elaborate on the hole and I didn't either,  I think she knows I'm a stress head so keeps thinks brief. 

Well dropped Heidi off at the "hairdressers "she wasn't very happy so think she will be a sulky pooch when we pick her up!!

Hugs Janette xxxx 

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Ps .Jeanette
Enjoy Heidi today ...loads of doggy cuddles and kisses.
I've got Scooby my elder sons black lab here today and then tonight I have Ted younger sons boxer for a sleepover til tomorrow.
Dog hairs welcome at ours !!
Hugs xx
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Hiya Jeanette
Thanks for the info. Do u look at yr scans ? I don't as I'm a wimp. My October one last year scared me so I don't look now !! Did the oncologist say the hip hole was repairing with the denosumab as that is the idea of it ..I think.
I had a hole in femur and a hip like honeycomb and a crack in pelvis last Oct ..scary stuff after a year wasted of being told I had arthritus and a trapped nerve ..it got that bad.
Oncologist told me leyrozole stops feeding the cancer cells and they should die ..then denosumab coats and rebuilds the damage so hope it does all what it should do.
Hugs xxx
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Great news Janette, huge sigh of relief I'm sure!

Enjoy your day with Heidi, the perfect arrangement 🐢😊

Nicky x

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Thank you ladies for all your good wishes.
Carolyn, I did mention about my hip giving me some pain and she reassured me that pain doesn't always mean progression! It's just that I basically got a hole in my hip where the cancer is (yikes that was too much info for me) so don't be worrying when your hip plays up lovely!
Got my little Heidi for the day, we are taking her to be clipped she's very rag tag now πŸ˜€
Hugs Janette xxx
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Well done Janette.now you can do hoovering❀ .sharonxx
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Great news Janette! You can relax now
Best wishes xxx
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That is excellent news Janette! Learnt today of someone who's been on Letrozole for 10+ years!  quote nice to hear! 

 

A xx

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Fantastic news Janette - a very positive appointment by the sounds of it!

xxx

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Yes hats of to letrozole!  Off to bed now I'll save my celebratory drink for the weekend, my head is still banging hoping it will be gone by the morning now results stress is over! 

Night ladies Hugs Janette xxxxxxx 

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Whoop whoop ....well done now u can enjoy a glass of something.
Stable is good and the targeted radiotherapy sounds like it will b better too.
Three cheers for letrozole .....
Hugs xxxxx
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Evening ladies, well Janette is AKA "stable Mable" yeyyyyy!  Onc very happy with tumour markers at 35 she said a person's normal range is 30!  Scan shows still stable mets.  I did mention my painful hip and she said at the Christie they are now very close (roughly 6 months)  to targeted radiothary which could work for me, I've already had radio in that area so can't have anymore. Also took in a print off of some simvastatin info which she read and said that at the moment there isn't enough research and evidence to say that it would benefit us secondary ladies. 

Hugs Janette xxxx 

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Natalie hope all ok.....yes glad you got new hoover..i like having no cord on mine just zip round the house now.take care Sharon..hope the tv quest goes well.x
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Not sure ladies if you got the message from the moderators but if you belong to the private forum ..it's easy from your mobiles now ..at the top there is a pink box called groups . Hit that one and u r in in the inner sanctum !! Word games , gardening club , book club etc .
Xx
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Bonjour marirose
Glad u r having a nice time in France with the family. Hope u didn't get caught up in all the delays last week at the ferry port. I think if it had been me ..would have turned back and given up !!
Enjoy yr holiday and cape break too.
Xxxx
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Hiya louboo
Wow ..what a bcn you have ..these little things matter so much ..my last scan result was a 9am one and so first in for the day but bad enough the night before with worry!
It's all very scary and sometimes better we don't look too far forward at what could happen.
Day at a time ..
Xxxx
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I know exactly how you feel Janette, I mentioned to my BCC nurse that I wasn't sure I could sit in a waiting room again, waiting for results and said to me, and I quote, 'I would be happy to see you outside of clinic time, at your convenience, to talk through the results, at least I can set aside dedicated time to give you and also I could discuss the results & way forward.

How lovely is that of her - these nurses really are the best.

I have bone mets in vertabrae L1, L2, L4 and T12, T9, T8 and T3 - so not good to read about the risk of paralysis Man Sad

Keeping everything crossed that results today went well for you Janette.

xxx

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Hello avrelia
I'm glad yr first chemo went ok ..it's the fear of the unknown really for the first one. If you keep a daily diary of side effects you will b able to plan your life around good and bad days.
Positive thinking ...the hair loss might drag u down a bit but you have the right attitude.
I'm afraid my immobility is down to hip pelvis and femur Mets which restrict the amount of weight etc but I do try to do as much as poss.
Anyway rest and relax.
Hugs xx

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Hi stresshead
Just catching up on threads.i have had Denosumab nearly 4 years in fact my first jab nurse had never heard of it. I have had no trouble with it and my bones have had good results so everyone seems to have different se all the ladies I know who are on it don't have se.Mine used to be every 4 week but since cape it has been 6 weeks as I am at the hospital every 3 week.
Enjoying being with grandchildren in France.

Love and (((hugs ))) xxx
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Hi all, I am back from my first chemo, had been given two kinds of anti sickness tablets-domperidone and dexamethasone. Still not quite sure what the nurse said to drink first tonight, because the other one has to be started tomorrow. Anyway, I think it was the dexamethasone to start with today and go on 3 days. The whole chemo was not as bad as i expected, so, just to share to everyone who had not had their chemos yet-NOTHING to worry about. Be positive and all the side effects will be far away, except for the hair loss I think, but just think about the chance to have a completely new hair afterwordsSmiley Happy I wish I will not be blonde though.Smiley Happy

Speacial thanks to nicky, I will surely book an appointment and check this out, although I simply want this country to give me my health back, no need of funds, really....

Andrea, when is this meetup in Sutton, share your experience afterwards please, where are you from btw?...

Carolyn, keep on moving and find something to keep ypur mind away from this ugly thoughts of paralysis, what do you like doing in your free time? Adapt this to your current state and you will enjoy, I am sure. Well, if you want to climb Everest, that might not be the ideal option, but ....Smiley Happy

Sorry, if my humor is a bit strange, that is my usual way to get me out of the stress as well. I do like people to be happy and smiley, so please send me all your smiles and I am sending lots of love and good vibrations to you all ladies.

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Jeanette ..I know what u r going through and most of the other ladies do here too.
You seem to get the scan stress through your head ..I get mine the other end. Ha ha.
Loads of hugs to my letrozole buddy x xxx
Ps ..it's warm and sunny here .☺☺