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Blood clots in lungs

7 REPLIES 7
Member

Re: Blood clots in lungs

Thank you windflower. What you have said , particularly about going on to warfarin, will add to the questions I will ask my onc who I am seeing tomorrow. I hadn’t thought about blood clots before.......I am in my 5 th year metastatic.........nor has anybody ever mentioned clots as a risk. If he says anything interesting I will post it here.

 

all the best,

 

mo

Member

Re: Blood clots in lungs

When my secondary breast cancer was discovered in March 2015 (because it had blocked my bowel), the CT scan also showed that I had a "large saddle pulmonary embolism".  I had not had any treatment for secondary cancer at that time.  I was told that anyone who has had cancer is more at risk of blood clots, as well as people who have cancer currently.  I had injections into my tummy (I can't remember the name), was fed by tube and couldn't drink and after six days I was operated on and given an ileostomy, so I presume the clot had disappeared by then.  I then had FEC chemotherapy and had to continue the injections for eight months, until I'd finished the chemotherapy.   Later scans showed no sign of a pulmonary embolism.  Since then I have been on Warfarin to prevent another clot and have been told this is for life.  I haven't got secondaries in my lungs. I don't know whether this helps you or not.  

Best wishes,

Windflower

Member

Re: Blood clots in lungs

Just to say that I too have a blood clot in my lung........pulmonary embolism. I was rung by our secondary Macmillan nurse last Tuesday telling me to go to a&e immediately, and not to drive! I had my scan last week.......after my fourth cycle of capecitabine........and the onc apparently told her that it was seen on the scan. No mention about whether the cape is working or not which I would like to know! I see the onc next week for that. Anyway after a long evening in a&e I was told bloods ok, ecg fine, and put on daily fragmin. I have no symptoms so was lucky it was noticed on the scan. I don’t know how long I’ll be on fragmin but the Mac nurse said probably six months. The a&e doctor said just having cancer increases the risk of clots, but I am now wondering, after reading this thread, if it is actually associated with the cape. It certainly needs to be watched, and of course scans don’t look at our legs, so leg pain should always be reported I now realise.

 

thanks for posting about your experiences..........it’s nice to know I’m not alone. Was quite depressed about it. One thing after another. I have had quite bad hand foot syndrome leaving me with infected toes, so on antibiotics. Ho hum. Anyway do take care. We have to be patient and long suffering!

 

mo

Member

Re: Blood clots in lungs

Can I ask how it was when they eventually dissolved? Was it very gradual or sudden?

Jayne

Member

Re: Blood clots in lungs

Thanks so much for your reply. Mine started in April and my breathing got a lot worse at that point. So far no particular improvement, and I'm told they could take up to 6 months to resolve. Glad to hear that yours improved, it gives me hope as I'm quite down about it at the moment

Jayne


@asilmcs wrote:

I had numerous  blood clots in my lungs after starting Capecitabine and I am too on daily injections. It’s been about 18 months since I was diagnosed with them so they should be all dissolved now I hope, my breathing is greatly improved but it did leave a part of my lung damaged and not repairable. On the whole I don’t feel it affects me greatly now I still get breathless when I exert myself too much ie going up hills.  How long have u had yours? I was told it can take a long time for them to go especially if you have a lot like I did.  Any other questions just ask, I hope this helps xx


 

Member

Re: Blood clots in lungs

I had numerous  blood clots in my lungs after starting Capecitabine and I am too on daily injections. It’s been about 18 months since I was diagnosed with them so they should be all dissolved now I hope, my breathing is greatly improved but it did leave a part of my lung damaged and not repairable. On the whole I don’t feel it affects me greatly now I still get breathless when I exert myself too much ie going up hills.  How long have u had yours? I was told it can take a long time for them to go especially if you have a lot like I did.  Any other questions just ask, I hope this helps xx

Community Manager

Re: Blood clots in lungs

Hi Jayrand56

 

I am sorry that you haven't had a reply to your post yet.  You may find it helpful to speak with one of our specialists on the Helpline, 0808 800 6000.

 

Alternatively you can post your question on the Ask Our Nurses area of the Forum where one of our experts can respond to you online.

 

Best wishes
Anna
Digital Community Officer

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Member

Blood clots in lungs

I have lung mets that have responded well to Capecitabine and at last scan we’re stable. Unfortunately I developed blood clots in my lungs around 6 weeks ago. My breathing on exertion is poor, and I have oxygen at home.

I’m told they can take 3-6 months to resolve. I’m on daily Fragmin injections. Does anyone else have experience of clots and how they dissolved? I don’t seem to be able to find anyone else who has experienced this.