first post in here...would also like to hear from any ladies with triple neg and brain mets (hard even to write this)
diagnosed September 2015, had double mastectomy, chemo and radiation, did well through this and worked full time as a nurse
handed in notice at work to take some "me" time after my 2 and a half years of treatments and surgeries only to be diagnosed with a brain tumour 3 weeks later, however had surgery, gamma knife radiation and I'm doing pretty good! Anxious now after seeing my DR last week who said there is a high chance of recurrence, she burst my bubble totally, has anyone experienced this, I am so positive about everything and left the hospital feeling like crap!
this is a hard journey, however HOPE is an amazing word
Hi ladies, a little good news story for you from me.
I was diagnosed with bone mets Christmas 2017 and have been on Palbociclib / Letrazole plus Zometa and Zoladex since January.
Had my first 3 month MRI scan end of March which showed reduction in all three tumours (vertebra, sacrum and pubic bone) and the larger vetebra one has started to re-build itself.
Well, just had the results from my 6 month MRI which shows stable although there is some activity, but no growth and no new tumours.
It is really reassuring to have these regular scans as it makes the stress of living with the diagnosis and hardship of the side effects so worthwhile. x
I really pray my post brings hope to those that need to hear something positive and uplifiting.
Dx 2011 with both primary and secondary, multiple mets to both lungs (apparently I lit up like a xmas tree on the scans too many to count) and in 2014 a couple of spots spread to liver. Have done the usual chemo, mastectomy, rads then Tamoxifen, presently on Anastrozole (Armidex) and continued Herceptin which I've been on for the past 6 years. I've also taken a load of supplements, been clean and green ie: juicing and tried a variety of holistic treatments including spiritual healing. I beleive in throwing everything you've got at this thing including both conventional and alternative or complimentary.
Last Friday I went in for the results of my latest CT scan, the last one I actually had with dye contrast (they managed to get a needle in) so I was secretly dreading the outcome (you can see more with the contrast) basically I've got the all clear! Yep its happened I've got the all clear, the cancer on both lungs and liver has disappeared or as the Onc's Reg explained its so tiny we can't detect it on the CT scan. This is the best news ever........I am such a lucky, lucky, lucky girl. I knew about the lungs from the start but only found out by accident about the liver when I read a scan report that mentioned lesions on my liver!!! So for them to declare no sign of disease in both lungs and liver is mind blowing.
Whilst walking on air out of the oncology department I waited outside for the other half to pick me up, another lady was waiting and we got chatting, she told me about her Dx in her 40's (like me) over 20 years ago!!! with breast cancer, and that it had only just decided to show itself again and now she has all these new options and drugs to try out, she told me to stay positive and live my life, she was a breath of fresh air.
I hope my story inspires and brings hope to anyone that needs it. Its incredibly hard especially in the beginning when your first Dx to get to grips with whats happening to you. Letting it all out, the frustration, anger, fear its the best way forward and in time this subsides and is replaced with a new unique perspective, this is when you have to go for it, do whatever it is that you believe in and above all else live for the moment. Sending you all lots of love and light xxxxxxx
Morning ladies haven't been on for a while so having a bit of a catch up now. I have some good news to share. Last year I was diagnosed withB/C with mets in my brain liver spine and ribs. I was put on Fec for a few months but stopped eating so was taken off as it was doing more harm than good. Then put on Letrazole which worked for a little while but when that stopped working I was put on Docetaxel but I had it in smaller doses weekly to try to avoid the side effects and whoa ho it has worked!! THe largest met in my liver is now half the size it was, some of the smaller ones have gone completely with just a few tiny ones left. The bones are holding their own and as I have no more side effects from the brain that's stable to. Unfortuneatly the Docetaxel has had a severe reaction on my muscles and ability to walk so it was decided as I had nearly finnished the coarse to stop it a bit early as my results have been so good. So hang on in there until you find the right drug.I got my results on Thursday last week so now all I need to do is build the muscles back up. I will be seeing the oncologist in 4 weeks to see what happens next. I hope this bucks you up a bit Jo there is hope out there!!!
Initially stage 3, Pet scan revealed lung mets so diagnoses changed to stage 4.
Herceptn positive. First stage treatment taxotere and herceptin adjuvant chemo (May 2008) mastectomy Jan 2009.
All clear may 2009.
Relapse October 2009 . 2nd chemo Jan 2010 capecitibine and herceptin.All clear 2011. NED subsequently. No treatment required since Jan 2011.
The point of this post is to say keep the faith. Even if your diagnoses seems bleak there is hope. Never quite free of anxiety but perfectly possibly to carry on and live a great life full of possibilities.
Keep the faith.
beat wishes to all.