Member
Posts: 1
Registered: ‎16-03-2018

Re: Rib Pain from Radiotherapy?

Hi, while rib pain is there for me, breast and armpit pain are greater.  I HAD a lumpectomy in OCTOber 2015, finishd radiation December 17th, 2015.  All was well until about MARCH 2016.    MY BREAst became red, painful, the skin became orange peel and striated.  Constant pain was about 4-5 (OUT of10), the acute, stabbing pain  was a  7 or 8 (MADe me shriek).  The doctors looked for infection, reaction to the estrogen syntheis inhibitor that I am on and took a biopsy. Eight weeks later, I WAS told to see another doctor, who sent me to another doctor.  Well, I mmoved from MASsachusetts to OREGOn and started all over again.  Every doctor that I saw said that they had seen this reaction to radiation before but never as bad as mine.  They recommended a complete matectomy with a tissue transplant (FROM my thigh)>
  I was not enthusiatic.  And, along the way an Occupational Therapist that I SAw recomended a treatment used in veterinary and sports medicine:  Near INfrared LIGHT.  (my apoligies, my caps key seems to not release when I move to the next letter!)>  IT worked!  The pain is not all gone, but is more like a 0 -2, with rare spikes of 4-5.  I started APRIL 2017 and over the first few weeks I noticed some iimprovement.  By six weeks I HAd plateaued in my progress.  As long as I use the light therapy (SEE Below), my pain is managable.  

  HOWever, last week I HAD my first mammogram since the 10/2015 surgery.  Since then, my pain has worsened, which I HOpe is temporary.  But, I wonder if my body has become sensitized to radiation.

    I would like to learn from others as well as share my experieces to help others.  Thank you for listening.

 

* NEAR INFRAred light act to increase the production of NItrous OXIDe which acts as a vasodilator.  The increased blood flow brings more oxygen and nutrients while taking away more waste (SUch as damaged tissue).

Member
Posts: 1
Registered: ‎26-01-2018

Re: Rib Pain from Radiotherapy?

Thanks to everyone for posting about this. I just keep thinking, 'Why didn't the doctors tell us this could happen?' and I was certainly one of those patients who asked lots of questions of my radiologist and did a lot of research on my owe. I agree with the post that questions how this can happen, that this information is something the doctors seem to be unaware of, with all the major cancer centers and research in the U.S. and U.K. I am 2 years and 7 months post-radiation treatment and for at least 2 years I have had variously back pain, breast pain, and rib pain. It is not continuous and not excrutiating (because it only lasts a short while each time), but it occurs daily, sometimes multiple times a day. It's always frightening because I always wonder if this time it's going to continue in the same spot, which is the sign the doctors tell us to look for to catch metastasis. This is a lot of fear and pain to not be talking more about it. I will see my surgeon and have a mammogram in April and will tell her to put it in my record. Thanks again to you all, and I hope all our pain subsides and does not follow us the rest of our lives.

Member
Posts: 2
Registered: ‎31-05-2017

Re: Rib Pain from Radiotherapy?

Thank you for your kind words. I thought it would get easier after a year but I am finding it so difficult at the moment. I had my first mammogram since my diagnosis last week and I had a full on meltdown. I couldn’t believe it. I have always been so resilient and practical. X
Community Champion
Posts: 2,419
Registered: ‎08-03-2015

Re: Rib Pain from Radiotherapy?

Hi Margatemum, I'm 2.5 years on from radiotherapy and still have tender ribs, boob and arm on my treated side, it's an ongoing thing my oncologist warned me about so I don't allow myself to over worry , it's hard I know but in time you settle down and not panic over every little twinge Xx Jo 

Member
Posts: 2
Registered: ‎31-05-2017

Re: Rib Pain from Radiotherapy?

Hi I’m new to this site

I’ve been getting very panicky because over the past few days my ribs have become very sore and hurt when I bend over. I was so relived when I saw these posts as I thought that it may be the worst news. I had a mastectomy Jan 2017 and 15 rads stage one grade one idc and am taking tamoxife. I’m finding this journey really hard and need to move forward so every niggle and pain is another panic.

Still looking fir the new me x

Member
Posts: 44
Registered: ‎09-07-2017

Re: Rib Pain from Radiotherapy?

Like everyone else I’m so glad I came across this thread! I wish I’d been told about this pain ongoing after radiotherapy, I would have known what it was instead of worrying it was something worse!

thanks all of you xx

Member
Posts: 8
Registered: ‎15-05-2016

Re: Rib Pain from Radiotherapy?

Hi
Sorry you are having such a lot of pain hope they can sort it out for you my rib pain has gone again but I spoke to specialist nurse and rib pain can come and go but yours seems extreme I wish you well
Member
Posts: 1
Registered: ‎29-10-2017

Re: Rib Pain from Radiotherapy?

I am in the US. I'm having the same pain you describe. I am 69 years old.  I had radiation in May.  2 weeks after I had severe dermatitis and all the skin came off and had open wound for 4 weeks.  Then the last 4 months it's been swollen, red, hot and extremely sore.  Now, 4 months later this week I developed severe rib pain radiating around my back to my spine that sounds exactly like your pain.  I can't bend over, raise my arm and when I get up and down from a chair the pain is excruciating!  Taking a shower is awful!  I get so tired and fall asleep but when I move the pain wakes me up and I can't go back to sleep. I'm only getting 3-4 hours sleep each nigh.  I can't take Ibuprofen because of ulcer.  Acetominphen doesn't help.  I have tried vitamin E and multi vitamins but they aren't helping either.  I am so frustrated.  All the Radiation Oncologists say is that they have "never seen this before"  - while I found all this info online in about 10 minutes!  You would think with all the major cancer centers in the US that their Radiation Oncologists would have seen this. I have an appointment with the surgeon next week and trying to get an appointment with a different Radiology Oncologist.  I wish that I hadn't had the radiation. I had the 5 days twice daily.  I hope they can do something because I can't continue this.  I don't see how you are working.  Prayers that your pain will subside.  

Member
Posts: 8
Registered: ‎15-05-2016

Re: Rib Pain from Radiotherapy?

Finished radio last December the last few days my left rib cage feels very sore nothing visable I have multiple seromas that the sugion does not want to do anything yet I do not see him till spring but a bit concerned

Member
Posts: 8
Registered: ‎15-05-2016

Re: Rib Pain from Radiotherapy?

Finished radio last December the last few days my left rib cage feels like it's got a big spot that's the feeling nothing visable I have multiple seromas that the sugion does not want to do anything yet I do not see him till spring but a bit concerned

Member
Posts: 18
Registered: ‎07-09-2017

Re: Rib Pain from Radiotherapy?

Just finished radsx15 after masectomy and chemo. My ribs under where breast was itch and are sore but I was told this is very common. I read the actual ribs can fracture years later but it is rare. We are all individuals

and react differently. I had constant itching in the affected breast 2 months before the diagnosis and it is still there and you have this.  I do feel sorry for you.

I had Stage 3 as well but only had 3 nodes removed (Sentinel biopsy) whereas you had more removed. I asked several times if they were going to remove more lymph nodes and was amazed they did not but I think this is all very individual . I had a Pet scan which showed cancer in local nodes very slow-growing  and the chemo worked well so maybe that is why ? Good luck

Member
Posts: 2
Registered: ‎25-07-2017

Re: Rib Pain from Radiotherapy?

Hello. New to this group. I had lumpectomy and 28 rounds radiation therapy back in 2010 on left breast close to my lower arm pit and not far from the lymph node surgical site. I'v had just started Having pain under my my ribs on left side these past 7 months but find I get relief when taking off the bra and laying down. I did start a new position at work and sit down quite a bit. I notice I lean to my left and slouch on that side quite often. I have attributed the pain to bad posture. I have picked up weight yes lively tamoxifen and attributed my pain to not getting new bras. My doctor did tell me that he did take out some muscular structure which puts more strain on that side. After reading these posts my worries of what it could be has decreased. I recently had a mammo and everything is clear.
Member
Posts: 3
Registered: ‎21-07-2017

Re: Rib Pain from Radiotherapy?

I'm nearly 10 years post breast surgery ...lumpectomy and 25 radio .... so glad to find this forum after googling rib pain and radio ... also had cervical cancer another 25 radio chemo and brachytherapy.... don't know if that would affect my ribs though!! . I seem to strain the intercostal rib muscles and it's getting more frequent or taking less to strain my ribs. I've just bought a rib brace and fingers crossed it seems like good support. Won't wear it all the time but for riding and find it great on long car journeys or sitting for a long time. Anyone else find it's worse as the years go by? Mind you small price to pay me thinks. 🎀
Member
Posts: 95
Registered: ‎27-02-2017

Re: Rib Pain from Radiotherapy?

Hi i to had really sore ribs i finished rads October 2016 ,the constant pain has now subsided but still get the random niggle now and then but nothing like it used to be, hope yours is better soon x
Member
Posts: 4
Registered: ‎06-10-2015

Re: Rib Pain from Radiotherapy?

Im still having rib pain after have radiotherapy in May 2016 but I've also noticed a thin vein like swelling down the side of my ribs. Has anyone else had this? 

Member
Posts: 2
Registered: ‎15-06-2017

Re: Rib Pain from Radiotherapy?

My radiation oncologist at M.D. Anderson Cancer Center in Houston, Texas told my that some of us are genetically predisposed to have a painful effect from radiation which could remain or even get worse over time...ugh! They continue to evaluate the survivors of the Japanese atomic bomb all these years for answers. Someday. Hugs!
Member
Posts: 2
Registered: ‎15-06-2017

Re: Rib Pain from Radiotherapy?

I had stage IIIc so had a mastectomy as well as all lymph nodes removed under my right arm and up my neck. Had reconstruction after 18 rounds of radiation. Broke 3 ribs just turning in bed then a broken collar bone that could not be set a couple of years after that. Wearing a bra was impossible. Had my reconstructed breast and my left breast reduced as much as possible which made my plastic surgeon cry! It's been 11 years post treatment and my rib and shoulder pain is barely tolerable...also have lymphedema in my right arm. I see the sun rise everyday, saw my kids graduate from college, one got married and have a granddaughter to spoil rotten! My daughter is found a great guy to share her life with and a wedding is being mentioned. It's been so worth it living on this side of the grass! Find something to giggle about even at the worst of times ladies!
Member
Posts: 17
Registered: ‎15-01-2013

Re: Rib Pain from Radiotherapy?

I still have rib pain nearly 5 years on and I've been on treatment all the time. The rib pain is iccasional, always when I'm seatef and can be relieved by lying down. I am in serious painkillers for bone mets mainly in my pelvis but this rib pain comes sharply through the painkillers.
I've bought bra extenders which have helped.
Member
Posts: 95
Registered: ‎27-02-2017

Re: Rib Pain from Radiotherapy?

Hope its better soon, how did they discover that xx
Member
Posts: 3
Registered: ‎20-05-2017

Re: Rib Pain from Radiotherapy?

Dr said no OTC meds.  I have internal blood seepage that has not been found yet.  I take some lightweight narcotic!  And hate feeling doped, cant/refuse to use when working or driving.