16-03-2018 03:10 AM
Hi, while rib pain is there for me, breast and armpit pain are greater. I HAD a lumpectomy in OCTOber 2015, finishd radiation December 17th, 2015. All was well until about MARCH 2016. MY BREAst became red, painful, the skin became orange peel and striated. Constant pain was about 4-5 (OUT of10), the acute, stabbing pain was a 7 or 8 (MADe me shriek). The doctors looked for infection, reaction to the estrogen syntheis inhibitor that I am on and took a biopsy. Eight weeks later, I WAS told to see another doctor, who sent me to another doctor. Well, I mmoved from MASsachusetts to OREGOn and started all over again. Every doctor that I saw said that they had seen this reaction to radiation before but never as bad as mine. They recommended a complete matectomy with a tissue transplant (FROM my thigh)>
I was not enthusiatic. And, along the way an Occupational Therapist that I SAw recomended a treatment used in veterinary and sports medicine: Near INfrared LIGHT. (my apoligies, my caps key seems to not release when I move to the next letter!)> IT worked! The pain is not all gone, but is more like a 0 -2, with rare spikes of 4-5. I started APRIL 2017 and over the first few weeks I noticed some iimprovement. By six weeks I HAd plateaued in my progress. As long as I use the light therapy (SEE Below), my pain is managable.
HOWever, last week I HAD my first mammogram since the 10/2015 surgery. Since then, my pain has worsened, which I HOpe is temporary. But, I wonder if my body has become sensitized to radiation.
I would like to learn from others as well as share my experieces to help others. Thank you for listening.
* NEAR INFRAred light act to increase the production of NItrous OXIDe which acts as a vasodilator. The increased blood flow brings more oxygen and nutrients while taking away more waste (SUch as damaged tissue).
26-01-2018 05:26 PM
Thanks to everyone for posting about this. I just keep thinking, 'Why didn't the doctors tell us this could happen?' and I was certainly one of those patients who asked lots of questions of my radiologist and did a lot of research on my owe. I agree with the post that questions how this can happen, that this information is something the doctors seem to be unaware of, with all the major cancer centers and research in the U.S. and U.K. I am 2 years and 7 months post-radiation treatment and for at least 2 years I have had variously back pain, breast pain, and rib pain. It is not continuous and not excrutiating (because it only lasts a short while each time), but it occurs daily, sometimes multiple times a day. It's always frightening because I always wonder if this time it's going to continue in the same spot, which is the sign the doctors tell us to look for to catch metastasis. This is a lot of fear and pain to not be talking more about it. I will see my surgeon and have a mammogram in April and will tell her to put it in my record. Thanks again to you all, and I hope all our pain subsides and does not follow us the rest of our lives.
03-12-2017 05:57 PM
03-12-2017 04:13 PM
Hi Margatemum, I'm 2.5 years on from radiotherapy and still have tender ribs, boob and arm on my treated side, it's an ongoing thing my oncologist warned me about so I don't allow myself to over worry , it's hard I know but in time you settle down and not panic over every little twinge Xx Jo
03-12-2017 02:57 PM
31-10-2017 08:37 PM
Like everyone else I’m so glad I came across this thread! I wish I’d been told about this pain ongoing after radiotherapy, I would have known what it was instead of worrying it was something worse!
thanks all of you xx
30-10-2017 05:01 PM
29-10-2017 01:17 AM
I am in the US. I'm having the same pain you describe. I am 69 years old. I had radiation in May. 2 weeks after I had severe dermatitis and all the skin came off and had open wound for 4 weeks. Then the last 4 months it's been swollen, red, hot and extremely sore. Now, 4 months later this week I developed severe rib pain radiating around my back to my spine that sounds exactly like your pain. I can't bend over, raise my arm and when I get up and down from a chair the pain is excruciating! Taking a shower is awful! I get so tired and fall asleep but when I move the pain wakes me up and I can't go back to sleep. I'm only getting 3-4 hours sleep each nigh. I can't take Ibuprofen because of ulcer. Acetominphen doesn't help. I have tried vitamin E and multi vitamins but they aren't helping either. I am so frustrated. All the Radiation Oncologists say is that they have "never seen this before" - while I found all this info online in about 10 minutes! You would think with all the major cancer centers in the US that their Radiation Oncologists would have seen this. I have an appointment with the surgeon next week and trying to get an appointment with a different Radiology Oncologist. I wish that I hadn't had the radiation. I had the 5 days twice daily. I hope they can do something because I can't continue this. I don't see how you are working. Prayers that your pain will subside.
10-10-2017 07:29 PM
Finished radio last December the last few days my left rib cage feels very sore nothing visable I have multiple seromas that the sugion does not want to do anything yet I do not see him till spring but a bit concerned
10-10-2017 07:26 PM
Finished radio last December the last few days my left rib cage feels like it's got a big spot that's the feeling nothing visable I have multiple seromas that the sugion does not want to do anything yet I do not see him till spring but a bit concerned
09-09-2017 10:40 AM
Just finished radsx15 after masectomy and chemo. My ribs under where breast was itch and are sore but I was told this is very common. I read the actual ribs can fracture years later but it is rare. We are all individuals
and react differently. I had constant itching in the affected breast 2 months before the diagnosis and it is still there and you have this. I do feel sorry for you.
I had Stage 3 as well but only had 3 nodes removed (Sentinel biopsy) whereas you had more removed. I asked several times if they were going to remove more lymph nodes and was amazed they did not but I think this is all very individual . I had a Pet scan which showed cancer in local nodes very slow-growing and the chemo worked well so maybe that is why ? Good luck
25-07-2017 09:18 PM
21-07-2017 12:48 AM
19-07-2017 01:23 PM
15-06-2017 07:14 AM
15-06-2017 07:07 AM
31-05-2017 05:24 PM
31-05-2017 05:38 AM
Dr said no OTC meds. I have internal blood seepage that has not been found yet. I take some lightweight narcotic! And hate feeling doped, cant/refuse to use when working or driving.