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Breast Cancer missed on mammogram

35 REPLIES
Member

Re: Breathlessness and lack of energy after radiotherapy

I finished my radiotherapy treatment in November 2018 and apart from itchy skin, did not seem to have any major problems however, I am finding that I get quite breathless at times and my energy levels are low.  I have had a chest x Ray which is clear - a relief but can't seem to "get going".  I have always enjoyed walking and am pushing myself to try and do 2-3 miles about 3 times a week but it is hard and so tiring.  Has anyone got any suggestions?

 

 I am also taking Ibandronic acid and Anastrozole.

 

Thanks.

Highlighted
Member

Re: Breast Cancer missed on mammogram

I was recalled following a routine mammogram in August 2017, and was diagnosed with grade 2 breast cancer following a biopsy. Only one tumour showed up on the mammogram but a scan on the morning of my surgery revealed an additional 2 tumours which were later confirmed as grade 2 as well.

 

Member

Re: Breast Cancer missed on mammogram

I don't know for sure but will always wonder if cancer was missed on my scan 3 years ago (they are 3 years apart in Wales). I had had nipple discharge 4 years ago which was investigated and the specialist told me he didn't think it was a problem, but offered to remove the area producing the discharge if I wished, or if anything further happened.

I was scared about surgery so decided to see what happened, which was nothing. The mamogram the following year didn't pick anything up, even though I told the radiographers what had happened before.

This year, a student being extremely thorough during my mamogram in August 2018 can be thanked and praised for positioning me so thoroughly (even though it was very painful), that the anomaly was picked up, at 1.6cm. By the time of my first operation, the stage 1 diagnosis had increased to a stage 2.

My follow up with the surgeon won't be until October 2019, and I won't be due another mamogram for another 6 months after that.

I don't know whether it is worth me asking about the first mamogram, or just trying to forget it, and now that my rads are finished, try and move on. What would it change if I knew for sure? (Apart from possibly not retiring from work while I was undergoing treatment, but having a few more years to get used to the idea).

Member

Re: Breast Cancer missed on mammogram

Thank you that information is really helpful x

Community Champion

Re: Breast Cancer missed on mammogram

Hi Candy2

Mine was an "interval cancer" - i.e. one that showed up between mammos and 2 years after a clear one. I believe there are protocols now that interval cancers have to be reviewed. My mammo plates were reviewed but I wasn't asked to go to a meeting - they were just looked at by presumably someone who had oversight but I got a written response, which was that nothing was seen at the previous clear mammo, so nothing was missed. I was invited to view the plates if I wished but decided that I didn't need to do that, as I felt confident that a senior person had looked at the mammo and that nothing had been evident at that time. My cancer was quite small - 1.4 cm - so  probably was not able to be seen 2 years previously.  If you are going to look at the plates, maybe just ask to see the 2nd one, and also the most recent one, side by side.  If you Google interval cancers and get to the protocols for the guidance of practitioners, it might help you know what to ask if you need to.X

 

Member

Re: Breast Cancer missed on mammogram

I also had two mammograms that did not show any suspicious lumps however when finally getting a biopsy after 2nd negative mammogram I was diagnosed with ducal cancer which was a massive shock as the first mammogram had been done 2 years previously and I was told all was fine and nothing to worry about.  It was only when the small lump started it itch that I went back to my GP who then rereffered me and subsequently got diagnosis.  I have now finished radiotherapy and am due a mammogram review meeting shortly to see if anything was missed but am not sure what questions to ask or if I will be "blinded with science"?  Has anyone been through one of these reviews?

Member

Re: Breast Cancer missed on mammogram

I had a mammogram in June 2017 received letter 10 days later to now be informed due to haveing a fast growing lump that I have breast cancer stage 2 now I have the worry that it has spread as now going for ct scan
Member

Re: Breast Cancer missed on mammogram

Hi there
My first mammogramme was taken at a mobile unit outside my GP Surgery.
On October 2014
All clear
So November 2015 the swelling I found wasn't taken seriously as I had had a clear mammogram!

Xmas eve 2015 I had to tell my family that I had a breast cancer confirmation

2016/2017
Confirmed Her2 positive (the fast growing one )
Lumpectomy
Chemotherapy
Radiotherapy
Herceptin
Medication
I was still given another mammogramme !!!
I now live in constant fear it's coming back .
Community Champion

Re: Breast Cancer missed on mammogram

Hi Moobs,

A biopsy is not done routinely, if it's clear what it is on ultrasound or mammo.

From what I've seen here, mostly a biopsy is not necessary as most breast changes can be diagnosed without it. It's only if it is still not clear what it is, that a biopsy is done. Most women get the all clear from ultrasound alone. 

Obviously, if you are still noticing changes & you're worried about it, then it maybe an idea to go back to your gp about it. 

ann

Member

Re: Breast Cancer missed on mammogram

 
Member

Re: Breast Cancer missed on mammogram

Hi im a male i recently developed man boobs with one breast 3 times the size of the other which has a hard lump the thickness of my little finger 

the breast clinic did a manogram and ultrasound but no biopsy?

they said all was ok?

and they wont operate to sort the problem or check further as they say its just man boobs from my blood pressure medications especially the doxazosin it is well known to cause lumps and sometimes cancer 

but i feel they made a mistake and its still growing

do you think i should ask for a MRI scan or at least a biopsy?

because male breast cancer is rare (but on the increase) they wont take me seriously 

am i being paranoid or should i dig my heels to make sure ? Prevention better than cure and all that 

best wishes to all 

 

Member

Re: Breast Cancer missed on mammogram

Kim's results showed the tumour was removed (ductal carcinoma 22mm, grade 3, aggressive). Lymph nodes, chest muscle and margins all clear. She will have 6 months of chemotherapy, followed by 6 months of radiotherapy, possibly herceptin treatment. Long road to come but also a long way travelled in the last few weeks.

Her cancer was in an unusual position, being on the inner part of the breast and on the chest wall - this contributed to it being missed at the first mammogram as the screening programme does NOT screen this section of the breast. The only way of seeing this area fully is an MRI scan.There are 500 new breast cancers each year at in our local area and 2 of these will experience what we have experienced, due to the limitations of the breast screening programme.

Looking back at Kim's films, there is an area of tissue which looks slightly different, however the mammogram readers (2 experienced radiologists), made the judgement that it was dense breast tissue and did not send her film to the Director of Screening for her opinion.

Member

Re: Breast Cancer missed on mammogram

crawfo

apparently its somewhere between 10 and 32% that are missed.... some because they are not seen on mammo, some because they have been missed on mammo and some because they occurred after the mammo was taken.

choccie if your tumour didnt show up on mammo i think it would be fair to ask for an MRI unless it was visible on ultrasound in which case a wholebreast ultrasound may be the best option.

Lx

Member

Re: Breast Cancer missed on mammogram

I've been told that because the tumour did not show up on mammo, u/s or biopsy, I will have to have an MRI when rads is finished to make sure nothing else has been missed. Consultant and Onc also said I would not be suitable for mammo in future and would have MRI to check breasts instead of mammo.

Member

Re: Breast Cancer missed on mammogram

I found my own lump, but it didn't show up on a mammogram even though they knew where to look. So had an MRI to check that there wasn't anything else there.

I wonder if that means I'll have an MRI next year as well, instead of a mammogram? I have to say I won't have any faith in them for me if they couldn't see something they already knew was there.

Member

Re: Breast Cancer missed on mammogram

I wonder how many women are in the same situation of having cancers missed by mammograms and breast exams. I had a clear mamo in May 2010 and a breast exam by an oncologist a month before that. However, in June I was diagnosed with a primary recurrence and bone secondaries. I know they say mammos aren't infallible but it would be interesting to know exactly how many cancers are missed each year.

Member

Re: Breast Cancer missed on mammogram

Just to let you know, My consultant at first that my lump was around 4cm, but after masectomy it was actually 9cm - so they are only able to give a best guestimate at that stage. I am to have MRI's in future to check my good breast given the denseness of it. x

Good luck with results today and good luck with the meeting. I found them very helpful and they were upfront and not trying to hide anything - its easier to meet and discuss than end up with reams of leters and correspondence. The director actually summed up our meeting in a letter afterwards which was helpful and useful for the record. x

Member

Re: Breast Cancer missed on mammogram

Thanks for all your comments and suggestions, I'll print these off and put some questions together and try to get their responses on here after the appointment. Kim also gets her results from the op tomorrow at 4pm, so keep your fingers crossed for us!

With regard to the size of the lump - that's just what was quoted to us by the consultant when he measured the raised section of lump at the first appointment.

Thanks again for all contributions.

Member

Re: Breast Cancer missed on mammogram

not sure what happens in England but in scotland you get sent out a booklet when you first attend for screening which states taht like all screening programmes the breast screening programme is not 100% perfect....

this is the booklet that gets sent out with appointments here....
http://www.healthscotland.com/uploads/documents/2663-Breast%20screening%20exp.2011.1-2-2006.pdf

also in respect of digital mammography... here we use films regardless of whether your in a mobile unit or come to the static unit.... we dont have a digital machine in the screening unit... yet! however its the same radiographers that do the mammos and the same radiologists and clinician that read the films.... all are double read and if there is any differing views then a 3rd comes in to arbitrate and give their opinion.

generally for a 1st screen you would be more likely to be recalled even if they think its maybe nothing as we havent seen your breasts before.... if you have more films and its considered normal for you then you generally wouldnt be recalled for the same thing again.... so you maybe want to ask why they didnt review it as a first film and nothing to compare it to.

in respect of the increase in size i very much doubt the cancer grew 3cms in 3 weeks.... radiologically is just an estimate as some cancers which appear small turn out to be larger in reality and ones that look larger turn out to be smaller in reality... echos are often seen or not on ultrasound which can make the size seem to vary (mine was less than 1cm on US but 2.5cm including DCIS on removal the next day).

as some of the others have said you still have to be vigilant yourself... but even then we sometimes dont notice changes ourselves despite having a good root around.

in terms of not seeing things on mammo women with denser breasts dont show up so well on mammograms and younger women do tend to have more denser breasts and this one of the reasons they dont offer screening under 50 (although in england i believe its going down to 47).... there is a grading system for the denseness of breasts so it might be worthwhile finding out if you have dense breast and if your follow up will still consist of mammograms or will they offer MRI instead which has found to be more effective for women with dense breasts.

ill be interested to hear what the director says.... remember write all your questions down before you go and take notes so you can refer to them later.

Member

Re: Breast Cancer missed on mammogram

Hello Benita

I had a mammogram in a mobile unit at the end of November 2009 and by June 2010 I found a lump. When biopsied it was found to be ductal cancer. It should have been seen on the mammogram but they advised that they were unable to spot.

I think there are many of us that will not trust the mobile units going forward.

If it was me speaking to the Director, I would want to know how fast growing the cancer was and how it had managed to get to that size so quick, why it was not showing on the scan and if they were not too sure if there was an abnormality why there were no further tests done.

The NHS will not be able to improve the statistics for cancer if they continue to ignore abnormalities. I would certainly like to know what the guidelines are and why your partner fell into these guideline

Best wishes
Janette