07-08-2015 11:48 PM
How nice to see this thread brought back to life!
debbie_t, Congratulations!! We had our Civil Partnership back in 2007 but haven't done anything about marriage yet. Also pleased to hear you are showing no evidence of disease after three years and hope this will continue for you.
I'm now past my 5 year secondary dx and last lot of scans showed stable disease so just continue with current treatments and take each day as it comes....
If any of you other lovely ladies pop on to the thread I hope you are happy and as well as possible xx
07-08-2015 02:44 PM
27-11-2013 03:32 PM
Hello and welcome Janeo13, and hi everyone;
so sorry to hear about your partner's diagnosis Janeo13 - it is such a shock, and I found Isimply didn't really have any experience of how to be with such shocking news, but you know what, you will both kind of find a way through it, maybe with support from here, or as Gus says elsewhere as well; and then I found we kind of settled to the task of dealing with whatever the treatment plan is - oh my goodness whatever the issues its SO MUCH EASIER when you have the treatment plan in place.
So glad to hear you are moving through the treatment phases Gus, good on you. My lymphodema is a bit rubbish at the moment cos I've had the flu so not taken much exercise - pretty sure I can get back on top of it soon.
with you in spirit everyone, all the best
26-11-2013 10:15 AM
26-11-2013 08:05 AM
24-11-2013 07:12 PM
Hope you're all enjoying yourselves as it's been quiet on here recently. All looking forward to the jolly holidays? I love christmas, especially since diagnosis, makes me appreciate it so much more nowadays. Hope everyone is okay.
20-11-2013 02:32 PM
Hi JulieD, Whimsy, and anyone else popping onto the thread,
hope you all reasonably good - hope your waiting, and your partner's is over Julie..waiting is the most irritating part of being involved with the NHS I think.
Its well chilly in newcastle , my OH is in Europe learning some clever new radiotherapy technique, and I am tucking up in front of the wood burner! I've found a cracking new swimsuit website - I hate all the flouncy multicoloured ones - and am now wondering where to find the money to pay for it - its an australian shop. let me know if you want the link and I'll PM you
all the best
10-11-2013 10:51 PM
Nice to see your post.
How you all doing? Been a bit quiet on here lately so hoping thats coz everyone is out living thier lives.
I'm not too bad, bit fed-up chasing bone scan results and getting nowhere! Keep telling myself if there had been further spread my Onc would have contacted me .......My partner is still being messed around with her hip replacement so we're both a bit fed up with hospitals at the moment.
Best wishes xx
31-08-2013 04:34 PM
28-08-2013 10:00 AM
28-08-2013 08:58 AM
Morning all - how lovely that we are all sensitive to each other's possible crumple buttons; thought I might share a funny MX story - did you ever hear about me trying to throw my prosthesis at Nick Clegg? So the Lib Dems were having a conference in my home town, and were voting to support the privatisation of the NHS. I went along with a huge gang of folk to make a noise outside .....then it occurred to me - it would make the news if I threw my prosthesis and hit him.....I am a reasonable shot but could not guarantee to hit him...then I wondered if it might really hurt which I wouldn't want to do to anyone...the organisers said I had better check the legal repercussions - so I asked a very lovely policeman whose wife had died of BC what they would be - he smiled and said just lots and lots of paperwork for me and a few hours at the station for you...well I thought why not? Nick Clegg drew up - the car stopped about 100 yards further away from me than we had been informed it would and he walked away from me to a back door ....
me thinks they were tipped off
what a sight it would have been..
but you never know there is always the possibility of a next time as I don't ever intend a reconstruction!
28-08-2013 12:09 AM
27-08-2013 05:00 PM
I've just messaged Gus - I think I was unintentionally insensitive going on about my partner after Gus's post about being widowed and its impact on her body image and the newness of cancer and widowhood. Sorry to you all too - I just got caught up in a sensitive spot of my own around body image,
best wishes and warm ones
27-08-2013 04:54 PM
lovely to see this thread good and active. Body image - its the thing that got me most after I had got over the physical side effects of treatment. I had MX in March 2010 after lumpetcotmy not enough to clear disseminated cancers. My partner is wonderful, supportive, calm, but I found it very hard....to the point where at 2.5 years in I had to leave a party cos all my mates were stuffing things down each others cleavages and I couldn't bear it.....nearly lost a few mates when I rang each and everyone of them the following day to say I thought it was insensitive!
Anyway I've now changed out of swimming costumes on beaches, wandered around in firends houses in pjs without prosthesies, go to allotment without prosthesis - so I look like I am doing great, but really its very hard...even yesterday a friend came around with a lowish tshirt and I was just plain envious - I don't and never will dress like that anymore, I don't feel like that anymore. Its just a loss really, a grief, but a managable one.
to be positive and in perspective at the moment I consider myself disease free, and the lymphodema is harder than the lack of breast...but I am alive, fit enough, and working...can't complain really I can't
all the very best to you all, and great great news Debbie, well done you.,
24-08-2013 02:46 PM
23-08-2013 10:52 PM
23-08-2013 05:33 PM
22-08-2013 06:17 PM
Hi, I have had a mastectomy 5 weeks ago but having huge problemw iwth tehg woubd, Got a huge dressing and machine sucking at it 24hours a day... but it is getting better. i went out last fridqy for th firts thing that wasn't to a mediacl appointmnte to a civil partnership. I found myslef ooking at all the women's boobs! This is going to be hard...Not sure that talking agbout it with stright women wil be ok...