14-11-2016 04:03 PM
CanIi just say a very big thank you to everyone who posts on this sight, I find it the best medicine . I had primary in 2009. , all fine until 6 months ago , now bone mets ? lung , gettin on ok , then last week / liver mets Devastated , been under the duvet all weekend , I know I will surface , but finding your experiences giving me more hope than the clininal teams. Onc keeps saying all very small volume and all very slow growing xx
keep well , hugs to all x
18-10-2016 07:40 PM
14-09-2016 11:37 AM
Thank you Blondie
I am 5 yrs on from an initial diagnosis of primary with mets to bones.
Yes there are days I feel frozen with fear especially between the scans and going for results, it's like a game of Russian roulette and I know you folks understand that !
but then there are the days that I hold my grandchildren and am so grateful I've been given this time when I've lost friends that didn't get the chance to feel this.
Onwards and stable!
01-02-2016 10:33 AM
26-08-2015 06:46 PM
Hi Blondie. This is my first time here and I am so inspired by your story. I have just been diagnosed with bone Mets and was feeling pretty devastated until I read about you. You have given me hope.
11-04-2015 02:55 PM
So glad to hear you are well. Thank you for posting that is really kind of you to give us all such hope. If you wouldn't mind me asking a few questions if you are around. First of all do you have any hormonal treatments? Secondly, I don't know if I dreamt this but are you being treated at Colchester hospital? I thought I read in an old post that you were. I apologise if you don't want to disclose this. I am treated there and after the initial shock of my diagnosis in May 2013. I think that the treatment I receive is absolutely excellent. I have bone Mets and am on herceptin and perjeta or pertusamab plus tamoxifen. I go to the Mary Barron suite every 3 weeks for this for h and p. The staff on there are amazing.
Wishing you another great year.
Best wishes to you all!
08-04-2015 09:00 PM
07-04-2015 09:37 AM - edited 07-04-2015 09:38 AM
07-04-2015 09:29 AM - edited 07-04-2015 09:32 AM
28-03-2015 07:53 PM