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Re: Twelve years on!

 
Member
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Registered: ‎17-02-2017

Re: Twelve years on!

Hi Blondie I was wondering how you are doing - sue
bel
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Registered: ‎01-05-2012

Re: Twelve years on!

 
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Registered: ‎01-01-2010

Re: Twelve years on!

 Hi  Everyone,  

 

 CanIi just say a very big thank you to everyone who posts on this sight, I find it the best medicine . I had primary in 2009. , all fine until 6 months ago , now bone mets ? lung ,  gettin on ok , then last week / liver mets    Devastated , been under the duvet all weekend , I know  I will surface , but finding your experiences  giving me more hope than the clininal teams.  Onc keeps saying all very small volume and all very slow growing  xx

 

 keep well ,  hugs to all x

Member
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Registered: ‎16-10-2016

Re: Twelve years on!

I have just been diagnosed with liver, bone and lung mets are four years clear. Tomorrow is my forth chemo. I have been told at my first scan that the lung is now clear and it's all working . Any advise, tips or suggestions?

It's been a tough start but I remain positive and I have great support but only those that going through this really understand .
Member
Posts: 132
Registered: ‎01-05-2012

Re: Twelve years on!

Thank you Blondie

I am 5 yrs on from an initial diagnosis of primary with mets to bones. 

Yes there are days I feel frozen with fear especially between the scans and going for results, it's like a game of Russian roulette and I know you folks understand that !

but then there are the days that I hold my grandchildren and am so grateful I've been given this time when I've lost friends that didn't get the chance to feel this. 

Onwards and stable! 

Magda! 

SP0
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Posts: 171
Registered: ‎08-01-2013

Re: Twelve years on!

Always good to hear the update Blondie. I'm 3 years, 9 months from dx with secondaries in liver & lungs and currently NED for the second time after treatments.
Member
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Registered: ‎06-12-2015

Re: Twelve years on!

Thank you, you have given me great hope,and inspiration. Xxx

Member
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Registered: ‎01-02-2016

Re: Twelve years on!

Always good to hear such positive stories. I had breast cancer in 2011 and diagnosed with secondary in the spine in 2015 - going through a difficult time at present and need to be more positive.
Member
Posts: 134
Registered: ‎07-01-2015

Re: Twelve years on!

Whoops I posted on your eleven years instead of your 12 years!! I get so easily confused lol

Red
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Registered: ‎26-08-2015

Re: Twelve years on!

Hi Blondie. This is my first time here and I am so inspired by your story. I have just been diagnosed with bone Mets and was feeling pretty devastated until I read about you. You have given me hope.

Member
Posts: 84
Registered: ‎23-05-2013

Re: Twelve years on!

Dear Blondie,

                          So glad to hear you are well.  Thank you for posting that is really kind of you to give us all such hope.  If you wouldn't mind me asking a few questions if you are around.  First of all do you have any hormonal treatments?   Secondly, I don't know if I dreamt this but are you being treated at Colchester hospital?  I thought I read in an old post that you were.  I apologise if you don't want to disclose this.  I am treated there and after the initial shock of my diagnosis in May 2013.  I think that the treatment I receive is absolutely excellent.  I have bone Mets and am on herceptin and perjeta or pertusamab plus tamoxifen.  I go to the Mary Barron suite every 3 weeks for this for h and p. The staff on there are amazing.  

 

Wishing you another great year.

 

Best wishes to you all!  

 

Sue Xxxx

Member
Posts: 357
Registered: ‎28-02-2013

Re: Twelve years on!

Thanks for coming back to me blondie. Consultant doesn't want to scan me often once a year unless he thinks otherwise.Think he would of left it longer if i wasn't going for reconstruction this year. I also very rarely see the consultant although when I do he is lovely and he has a great nurse practitioner. Thanks again its good to know that its not unusual to leave scans for a while in some cases.
Member
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Registered: ‎01-05-2012

Re: Twelve years on!

[ Edited ]
My place/Sandra
The waiting is awful. You will feel so much better (relative term!!!) when you feel something is being done and you are moving forward. All the best in your treatment and I will be thinking of you.
Blondie
Member
Posts: 470
Registered: ‎01-05-2012

Re: Twelve years on!

[ Edited ]
Elliedog - re Scan frequency
Probably one a year but I have to ask and they agree, but just to give me peace of mind rather than because they think I need it. I am seeing the consultant (again hardly ever see consultant either) in a months time and will ask for a scan .
Member
Posts: 19
Registered: ‎05-04-2015

Re: Twelve years on!

Hi Blondie

 

Welll Done, hope I doo as well.  I have just this week been diagnosed with Secondary in the lung and am waiting for treatment to start.

 

Sandra

 

Member
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Registered: ‎14-04-2014

Re: Twelve years on!

Thank you Blondie for posting that gives us all hope
Kaye xxxx
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Registered: ‎21-09-2013

Re: Twelve years on!


Blondie ,you go girl xxxxx thank you for keeping us informed xxxx here's to another 12 years xxxx
Member
Posts: 357
Registered: ‎28-02-2013

Re: Twelve years on!

Hi Blondie. Hope you don't mind me asking but how often are you scanned given that you are now 12 years down the road. X
Member
Posts: 357
Registered: ‎28-02-2013

Re: Twelve years on!

Thank you Blondie for taking the time to post. I've been hoping you would post your good news on this site.You were one of the first posts I read over two years ago when I was dx double whammy (liver) and when I read that post I started to believe that I wasn't going anywhere soon. Thanks again. See you next year xxx