Hope you are well, just wanted to update you re T3. My GP has started to prescribe it for me, On instruction via my Endocrinologist.
Astonishing. Hopefully your GP start listening to you.
Thanks for this. Yes, I'm sure I can ask to be referred but they would want to know why and if I explained why they would probably say "we can do that" though I am confident that if I asked them first off to check my T3 they would say "no". They don't seem to understand thyroid issues at my GP practice; my GP diagnosed me with Chronic Fatigue many years ago (after I complained that I'm always tired). I *don't* have chronic fatigue (I'm a psychotherapist-I know what CFS looks like). I'm tired *because* I have no thyroid gland and the thyroxine is not doing its job. I am active...I run 2 1/2 miles a couple of times a week, I work, I take care of a home. I don't have CFS. I think that diagnosis is a "cop-out" and is what GP's diagnose when they can't be bothered to look into underlying causes.
I've heard this time and time again, how important T3 is, yet I'm never tested for it. I am no longer under an endocrinologist because once my blood tests showed as "normal"-he referred me back to my GP and now my thyroid is monitored by my GP. Tests are always in the normal range yet I've had extreme fatigue ever since my radioactive idione treatment in 2010. How does one get their T3 tested if the NHS don't do it as a matter of course? It's disgusting that thyroid patients are only tested for T4 and TSH when the T3 is as important, if not more so.
Sorry to hear that you are joining the club that no one wants to be part. I understand what you're saying about your GP sadly it is not that straight forward.
When my middle sister died due to BC nearly 10 years ago my oldest sister demanded the BRAC gene test and was refused. She didn't give up and continued to fight but she was only offered yearly mammos. Last year i was diagnosed with BC and once again my sister demanded a gene test and was refused. However, they offered me one instead. The gene counsellor said they offered it to me because i have cancer and so they know what to look for in my genes.
it maybe the same with you they may not be sure what to look for.
I was formally diagnosed with an underactive thyroid in 2014, i wasn't given any meds just monitored. Now I'm just under a year post BC treatment and struggling with depression my GP has agreed to give me something because the underactive thyroid could be making it worse.
Now you've been diagnosed make sure you get the treaemtn that's right for you XX
So sorry to hear of your diagnosis. You ask a lot of good questions, and sadly, the answers will be hard to come by as it's all retrospective and we can never know. I agree with you that we must listen to our bodies and do what we can to help our GP's run the right tests. As contraversial as this is: I've learned that if your NHS doctor won't investigate something that you want investigated-go private! They will almost always investigate and run the right tests. It's awful to say it, and to have to do it, but that's the reality I'm afraid.
I'm doing OK thanks, Trixielady. It will be 4 years next 1st April since my op and it was a number of weeks later before I got the blood results from my GP. I've never been a good sleeper so put tiredness down to that but could have been a sign of the underactive thyroid, I suppose. I started on anastrozole when I had my RT in May/June 2015 and started the thyroxine after that. I had a dexa scan in June this year after 3 years on anastrozole which showed an effect on my bones so started alendronic acid 6 weeks ago. I've experimented a bit with the best time of day to take everything but now take the alendronic acid first thing on a Monday followed by the thyroxine 30-40 mins later and then 30 mins after that take my anastrozole with my breakfast!
Hi Trixie, I'm 71 and have had an under active thyroid since my 40's. My Onco has checked my thyroid for me as part of my monthly bloods, and so far I have had to have my dosage reduced over the 2 years since my first diagnosis, as I am not so active. Have to say, it's the least of my worries! X
My pre-op blood tests showed an underactive thyroid. Could have had it for years for all I know as I hadn't a clue!
Me too, underactive thyroid,thyroxine. The more you read the more you realise that the little butterfly shaped thyroid gland affects most of our body functions.
Thyroid problems and breast cancer are, sadly, very common. My surgeon, oncologist and endocrinologist all insist there is no link between my radioactive iodine treatment for Graves Disease and subsequent breast cancer.
There does seem to be a lot of ongoing research on a possible connection. However both hypothyroidism and breast cancer are fairly common conditions so there is liable to be some overlap anyway.
Signed another BC and hypothyroid one.
I also have a underactive thyroid have had it for about 15 yrs now was dx with bc 2 yrs ago then sec to lungs in march seems there are a few of us maybe I'll ask onc when I next see him