04-07-2017 09:36 PM
04-07-2017 07:48 PM
Hi, on this beautiful summer evening. I have been taking letrozole since April 2017, I had previously taken tamoxifen for 2 and half years. I can cope with the hot sweats, I have chillow, it's the heel, ankle and knee pain that is getting me down. My doctors, as wonderful as they are do not seem to be able to advice on this. What pain killers can I safely take as I am not able to stand when I wake up or have been sitting for a while and after driving I have to slide out of the door in front of everyone at work and try to conceal the pain I am in for a few minutes. I have carpel tunnel in both hands one hand I have had cortisone and one in the other tomorrow but don't think they can inject my whole body. I so want to be able to do gardening is there something I can get doctor to prescribe?? My doctor took photos of my reconstruction and was amazed at what I'd had done he had never seen this before. Do I need a bone scan, I feel as tho I need to ask for this and painkillers as they don't understand how much my life is being affected. I am forever in debt to our NHS for such wonderful surgery and aftercare but in order to work and just potter in garden this is almost impossible now, I am determined not to get low, I do walk but gave up swimming as legs and arms were not improving. My legs feel heavy as tho I am a wet heavy sponge. I am scared to take any pill without advice
11-07-2016 07:13 PM
07-07-2016 11:55 AM
I think my pharmicists must be trying to save money. Been given a strange Dutch brand - pom? - Makes me more achy than either cipla or accord so will ask them to chage me back x
02-07-2016 03:20 PM
02-07-2016 08:55 AM
Hi girl, have been on Letrozole for 9 months, 1st few months were horrible, however I think a chat with the pharmacist at your chemist maybe they can get another brand for you at the moment I have ACCORD and feeling much better and in control of myself. Lots of love and good wishes
20-06-2016 10:42 PM
Maryed I agree with you totally and have also stopped takiing it. Not told anyone yet. Have my first reviee on afriday!!! Guess I will get a lecture but I need to work.
15-06-2016 11:26 AM
I was given Letroxole after surgery and radio therapy for breast cancer i had about eight months ago. About two month ago i started to have pain and in spite of pain killers the pain became unbearable I couldn't put my foot to the ground and was unable to put any weight on it.
I think this is a horrible drug and since I stoped taking it about ten days ago am already fealing better. I rather take my chance than this drug
01-10-2013 06:53 PM
01-10-2013 03:50 PM
Hi lynnq. I agree pain killers do help a lot, but I find that they make me very constipated, even paracetemol. The onc says its probably as a result of chemo leaving me with a sensitive gut. I find the pain is worse when I am tired or I have been on my feet a lot. I try to pace myself and sit down when I can. Also I go for a 30 minute walk each day which does relieve the pain. I've also learnt not to try to push my way through the pain and will go and lie down on the bed for an hour when the pain is bad.
01-10-2013 03:43 PM
Hi. I too am taking letrozole and suffer from joint pain. I take aloe vera capsules to keep my hair, nails and skin in good condition. If you can take the juice that is better but it is very expensive and tastes really bad. You can get high strength aloe vera capsules online at a reasonable price. It's certainly worth a try.
30-09-2013 10:39 AM - edited 30-09-2013 10:42 AM
29-09-2013 10:50 AM
Hi Janro sorry to hear of your joint pain. I find that things are improving for me, been taking it for a couple of months now and the pains are not as frequent (usually early hours) or as bad. Hot flushes too, unless I am getting used to them. Worse thing for me is my hair is shedding, a lot! Amyone know of any supplements that may help?
28-09-2013 07:29 PM
I have been taking Letrozole for 6 months due to having a pulmonary embolism and no longer able to take Tamoxifen. The joint and muscle aches are so bad that I am limited as to what I can do ( can't get in and out of bath or chairs ). I don't want to stop treatment because of the long term benefits, does anyone have any suggestions pleaase?