I am 60 and completed 5 years of tamoxifen in feb 2015. I was able to wean myself off all meds since that time. Over the past 2 years I have felt worse each day. It is as if my thyroid is not working right. Weight gain, exhaustion, muscle pains, etc. Ya'll know that blah feeling you get & you just can't point your finger to one thing not feeling right. That is me. I am so sick of being sick & tired. Anyone with these type of problems after completing the tamoxifen regiment?
Hi my name is jennifer hastie and i had breast cancer in 2010 may, since i had my breast off in november of 2010 i was put on tamoxifen and im still takeing it untill 2020 its been hard get the hot flushes and the ache legs and cramps, but it will stop the cancer comeing back.well done to those who have been taking it.
I stopped tamoxifen after 7 years 2 months ago. I too am having night sweats and I just feel off most of the time! Not nauseous but kinda light headed and tired. So you are not alone but would like to hear of anyone else having issues!
Hi....I just finished 5 years about a month ago and have been feeling "strange" as well. I'm 52 premenaupausal. I have been to my primary, GYN, ans apoke to Onc and all tell me my body is adjusting to being off tamoxifen. Still I am feeling tired, flue like, I get tingling sensations, achy. My blood work is fine but I am just not used to feeling this way.
Have you contacted your oncologist, perhaps it is usual to have this once you have completed your course and it is your body adjusting back, but it might be worth checking it out for your own peace of mind.
I am 9 months into 5 years so early day for me
I've been on Tamoxifen for 6 weeks or so now and have recently noticed back pain. But that said I have been getting much more active about the house, so right now I can't tell if I've overdone it with trips to the tip and gardening etc. So watch this space!
I did have aches and pains when I first started taking Tamoxifen but it seems to have gone off now. But I do need to build up my stamina and fitness levels as I'm planning on heading back to work in May and I'm doing the Cancer Research 5K Run/walk in July with my sister and niece.
Isn't it lovely to do normal things even if things will never be the way they once were?
Hi, I do not know where to start. I am 53 years old . I diagnosed grade 2 breast cancer on 2010 Feb .. I had operation & radiotherapy only . 1 year I did not start tamoxifen. On feb 2011 I hardly started Tamoxifen (Nolvadex) untill one month ago . Quitting Tamoxifen was very difficult for me too. Anyway at the moment I feel so weak and feeling nauseation all the time and also feeling dizzy. Looks like I am going to have mensturation.. OK , spring is coming , there should be a spring tiredness but I presume it 's more than a spring . Is it normal ? Another point that felt I gain some kilos ( although I go to gym regularly ) .. I would like to know what is waiting for me after quitting Tamoxifen .. Thank you from now and love :-)
After 5.2 yrs, I stopped tamoxifen cold turkey in April 2016. 3 months post tamoxifen my breasts swelled and hurt like crazy. I felt like I was 12 again with my first period coming. My onco said it was normal and it was my hormones. It slowly subsided. In at the beginning of this month (nov. 2016),I had my first mammogram post tamoxifen, my breast still hurt.
I had chronic yeast infections for over a year at the beginning of tamoxifen. I got it under control, boy did it take a lot of research and effort to get it under control. Now I have it again, I believe it's hormone related. So the battle begins on this one....ugh. I'm thinking about calling my gyn onco to see what he says about my ovaries still working so well. I'm 51 yrs old.
Quite the roller coaster ride we've all been given a ticket to. I hope this is helpful. And please if anyone has questions or insight for me please feel free to respond.
Thank you sisters!