11-04-2018 07:51 AM - edited 11-04-2018 07:53 AM
Hello and welcome to the forum, This is an old thread so I will add a link for you to join a more current one with ladies awaiting appointments and results. https://forum.breastcancercare.org.uk/t5/Appointments-and-waiting-for/bd-p/4428
This is a really stressful time and your emotions are all over the place, that's natural and one thing we always advise it not to google too much as you will scare yourself further!
Take one step at a time and keep in mind that the majority of ladies who are referred to a breast clinic with symptoms come back and report that all is well, we've had a couple this past week 😊Jo Xx
11-04-2018 07:32 AM
10-07-2017 01:39 PM
At my mammography recall, the radiologist thought my abnormality was something called a radial scar that is a benign condition, although he did say he couldn't guarantee it wasn't cancer.
We just have to keep telling ourselves how lucky we are that there are good screening programs and that they are so thorough checking us out. Also lucky that the treatment has become so good over the years. I doubt our Mothers and Grandmothers had it so good.
I'm a nurse so I just keep reminding myself that there are worse things I could have been diagnosed with.
MRI was ok. I personally found it uncomfortable but that may be because I have arthritis. All in all it wasn't too bad.
Glad to hear you are keeping busy. I'm just trying to laugh as much as I can. Hope your friends make you laugh lots!
Love and hugs
09-07-2017 06:11 PM
Good luck with your MRI scan Michelle tomorrow, I was diagnosed Thursday last week. I love and admire your positive attitude, and I agree keeping busy is the key. I need to work on the keeping positive bit myself, I was led to believe from scans my lump was benign but the biopsy told a different story but I am deliberately keeping busy all this week with friends, going to sewing classes. All the best.
09-07-2017 01:10 PM
Thanks Ladybowler and Ann-M.
The only time I've had the panicky/anxious feeling was right before I went for the official diagnosis, which is weird cos I had already seen the results. I sat myself down and told myself to breath. I just sat there and concentrated on my breathing for 5 mins and the anxious feelings dissapated. It really does work. Something else that might be useful for some people is Rescue Remedy. I took a couple of drops just before I went into the appoinment just to make sure I stayed calm. I was so calm and smiley when he gave me the news I think he thought I hadn't heard him, lol.
I'm feeling quite fabulous at the mo. Extremely positive and whatever the results of the MRI are I will just 'crack on' as they say. Am going to make the most of the weeks I have off post op and go for lots of lovely walks and lunches.
Only issue I have at the moment is sleep or should I say lack off ...... and by hook or by crook I am going to find a way to beat the insomnia demon!
Lots of love and positive hippy vibes to all of you lovely ladies xxx
09-07-2017 12:42 PM
Ace post, I love the bit about stopping and breathing, it is something that we all find difficult when faced with such anxiety and actually it is the best thing to ease the stress. My old boss used to say to me when I was stressed and "on one", - And breathe . It always worked and put things back into perspective again.
Good luck with the MRI and let us know how you get on, we are all there for you
09-07-2017 11:17 AM
Hello lovely ladies.
Sorry you've all landed here but there a lovely bunch so you'll get loads of support.
I was diadnosed two weeks ago and am now awaiting an MRI tomorrow to check there are no more areas in eather breast which haven't shown up on mammogram or ultrasound (they think mine might be lobular which apparently doesn't always show up on the other tests).
I'm a bit of a weirdo as I wasn't altogether suprised I've developed cancer. My Mum died of cancer 40 years ago and I've always assumed I would get it too. The only shock was that it was breast and not bowel. That being said it's still a difficult thing to deal with.
I've had pain in bones and joints for a year which was diagnosed as psoriatic arthritis a week before my BC diagnosis. As it was diagnosed by my symptoms and bloods only (no scans or xrays), I'm now paranoid that this is cancer too! My rational mind keeps telling me I'm being a complete numpty for thinking that way but my irrational mind continues to worry.
Having read these forums for the past to week I've realised that pretty much EVERY newly diagnosed lady worries about spread, has trouble sleeping and swings from positivity to negativity in 60 seconds flat! So all perfectly reasonable and normal.
To everyone just starting to research BC, please, please don't randomly start googling! Best advice I was given! Google is full of scaremongering web sites, quacks and out of date info. Stick to the reputable sites ....... here, MacMillan and Cancer Research UK.
There is also a very good forum for BC on the Macmillan site so you can get advice there too.
Most importantly ........ breath! Everytime you start to feel overwhelmed, just stop and breath. It's a very scary and anxious time whilst you wait for results and a plan but we have to go for through it so just breath. Do whatever you can to distract yourself, work, play with your kids, meet friends for lunch, anything that helps. Everyone seems to a agree that once they give you a plan you feel much better, I certainly do.
All the best ladies. We will go through this and come out the other side stronger!!!!!!
Lots of love
09-07-2017 06:48 AM
Hi Kay, I am another Factor V lady newly diagnosed with bc. As this post is a few months ago I am wondering how you are doing, how your surgery went etc. My cancer is hormone responsive which throws up a new set of challenges doesn't it with our increased clotting risk and chemotherapy treatment seems out for me at the moment. Anyway as we seem part of the same not widely known clotting club just wondered how you were doing and hoping your treatment so far has been successful and you remain clot free. All the best
25-10-2016 08:48 PM
Hi, I just saw your post and was wondering how you are doing. I was just diagnosed this week and i am going thru the same feelings. My biopsy w lymph node had it too. Now every little pain i feel i panic thinking its cancer spreading. I have an apt w dr tomorrow. Stay strong! Hope you have more news and are starting a treatment plan.
10-10-2016 04:41 PM
Hi Michelle thank you for your reply I know no 2 cases are the same but yours is so similar I have to have another ultra sound on Wednesday to double check lymph nodes since they have said we need to double check my arms really ache and I'm imagining all sorts of things I also need to see a haematologist as I had a DVT last year for no apparent reason tests showed I have factor V Leiden so have to ask if I need blood thinning injections before surgery as I'm higher risk of another one worried about surgery even more now . I'm grateful for your positive comments and pleased that you can see the light at what's a very long tunnel Xx
09-10-2016 11:07 PM
Thank you for your quick response. This site has been so incredibly helpful, and inspirational. Just reading through the threads on the forum, is giving me strength. I can't thank you enough.
09-10-2016 09:16 PM
Hello Jjmabbatt and Kay, there are so many feelings that you experience when first diagnosed, shock, anxiety, fear. I was very tearful and people only had to ask how I was and I would just crumble. My story is similar to yours Kay in that I had a mammogram at 48 which was clear, I then found a small lump a year later and was referred and again the mammogram was clear but an ultrasound confirmed the lump and a biopsy confirmed it was cancer. The early days were very hard but it really does get easier. I had an mri to make sure there were no other lumps (there weren't), then a lumpectomy followed by a re-excision 2 weeks later due to unclear margins. My nodes were clear and I did not have chemo but did have radiotherapy. My journey has been easier than for some and I was diagnosed in Feb this year and finished radiotherapy in June. Once you both start whatever treatment is put in place for you, you will amaze yourselves by just how strong you really are. Don't be afraid to have bad days when it all seems so overwhelming and don't be afraid to ask for help or advice if you need it, whether on this forum or using your breast cancer nurse. We are human afterall and don't have to be strong 100% of the time. You will get through this. Take care all you ladies who are going through this awful time at the moment. Michelle xx
09-10-2016 09:02 PM
So sorry you have had this news but you have come to the right place for support. I understand how you feel -the shock is overwhelming at first. I want to reassure you that things will get better even though at the moment you will not believe it. You say you are starting chemotherapy this week so you might want to go to the October chemotherapy starters thread where you will find others who are having the same treatment. Also there is a Preparation for Chemotherapy thread where you will get tips to help you get ready and also a list of things to get to help you through the treatment. If you need to speak to someone you can call the helpline on this site. They will listen to your worries and advise you. As soon as you start your treatment you will feel more settled and know that everything is being done to get you better. I promise it does get easier. Keep coming on here to talk and ask questions - there are many people to support and help you. Wishing you the best of luck xx Lily
09-10-2016 08:44 PM
I was diognosed with breast cancer on Friday. I have cried so much, can't sleep, it's all I can think about. Telling my childen, family and friends has been the hardest thing. I almost feel that I can feel the cancer spreading in my breast, and am so scared. It is in my lymph nodes too, and I don't know what to think. I am starting chemotherapy this week, and would like to know from anyone who has gone through this? Will I definitely loose my hair? Are my feelings normal, will me life ever be the same again, please help?
09-10-2016 08:42 PM
Hello again Kay,
I absolutely understand the feelings you're going through and it's only natural. It's good to let whatever you feel out - don't bottle it up. I know you want to be upbeat for your family so have a good cry in private. Don't bottle it up, you need to be kind to yourself. Also you can come on here and say how you feel without fear of upsetting anyone so it's a great place to have a rant and nobody will judge you. You will find good advice from all on here and it is a great help as everyone understands what you are going through. Keep talking and take care xx Lily
09-10-2016 08:20 PM
Thank you so so much for replying this is the first time I have felt tearful since finding out on Friday I'm trying to be upbeat for my family but deep down I'm scared I've read so many of the other ladies stories and have taken some comfort xx
09-10-2016 07:41 PM - edited 09-10-2016 07:42 PM
Hi Kay, I'm sorry you have had to join us but we always wish a warm welcome to everyone 😊 Anxiety will be making you feel sick, I actually thought I was going to die of it I felt so bad! It will settle down i can assure you, just try and deal with things in little pieces, it's so overwhelming in the early days and you can't see an end to it all, it is a life changer there is no denying but you will cope with what's coming and you will start to feel stronger as the days go by, always plenty of support here for you xx Jo
09-10-2016 05:27 PM
Dear Kay-elder flower,
So sorry that you find yourself here but welcome. You will find so much support and advice from the other ladies (and men) so don't be afraid to ask about anything. I completely understand your fear and anxiety - it knocks you for six when diagnosed. I remember feeling quite numb at first but have since been through every emotion and so I'm sure have all the others on this forum. It may not seem possible to you but the first few weeks are the worst when you are waiting to find out what your treatment will be. After that you will start to feel calmer and want to get on with things. It does get easier! I remember being told that and not believing it, but it is true. There are so many threads on this forum that you can join to ask for advice and help.
The sick feelings and tiredness is probably caused by the anxiety, I know I have been very tired at times - it's all the adrenaline coursing around your body that is exhausting. Please do keep talking and check in to the forum for support. Let us know how you are getting on if you feel able. Wishing you the best of luck xx Lily