02-11-2018 08:01 AM
I did it last Friday, went into the hairdressers not knowing what I was doing. Told them I didn't know whether to have a trim or to have it cut megga short. She just made the decision for me, didn't scalp me but cut it short. Not had it this short for years. I'm going to open day at simply wigs today for a look around but my BCN phoned me Tuesday and told me that she would make me an appointment for a wig fitting with the NHS so I will get a free one too.
I'm off for a chemo talk and a PICC line fitting on Tuesday and then starting Chemo on Thursday next week, scary thought but just want it over and done with now.
I hope everything goes ok for you next week, I am sure that you will feel so much better when you know a definate plan as to whats going to happen.
01-11-2018 08:32 PM
Lunch was awesome, and yes I had a couple of glasses of prosecco, would have been rude not too!!My chemo induction was a bit of a farce to be honest. Went through both options of treatment as wasn't clear which road would be going down as the screening hadn't come back for the trial. Then they said they would'nt start with the treatment because the bone scan hadn't been done! Anyway, after several phone calls, I finally got a date of next Tuesday for the scan. Then another call saying chemo was now starting on the 2nd and that i had been excepted to do the trial, just needed to run the randomising (Phew!) I've ended up being drawn for the chemo only which is a little disappointing but I'm still going ahead as they seem to be having some good responses to the chemo on its own for this type of cancer.
How did you get on yesterday?
I've joined the November chemo thread so we can keep in touch on there :-)
Brows look fantastic btw. Definitely have them done if you have time before your treatment starts. A bit on the pricey side though! I was lucky as my gorgeous work colleagues chipped in for mine
I'm going to give the cold cap ago as well tomorrow, so i'll let you know how that goes
Take care xxx
30-10-2018 08:27 PM
29-10-2018 01:57 PM
Hey, I just saw your post and it was made feel days ago. How are you feeling now?
I dont think that losing your hair is a small price to pay. I was diagnosed three days ago and think about losing my hair and my breast are just driving me crazy. We have the right to feel sad and angry about that because they are part of us. I think that we will get to use it, but for now, dont feel bad for having those feelings.
Hope everything goes well to you.
29-10-2018 09:08 AM
yes its 26mm, apologies .
I have had all the scan, 2 MRI,s a CT scan and PET scan.
I am due to start weekly chemo this Friday , I am very scared of the chemo.
28-10-2018 06:05 PM
26cm sounds a bit on the large side, do you mean mm? I have 2 tumors, one larger than the other and lymph node involvement, which is why I have been invited on to a trial as Triple Negative stage 3. I have no idea at this stage what the bone scan will show (hopefully nothing they cant deal with)
Ref the trial, I would say anything like that is down to personal choice.
Wishing you all he best with your treatment
28-10-2018 05:19 PM
I have just joined the forum today, I have been diagnosed with triple negative breast cancer, the tumer is
26 cm, with couple of rib lesion.
i see you are having bone scan, have you any lesion in your bone?I have even had the PET scan, not bone scan yet,
I am at this moment not willing to go on any trial.
28-10-2018 09:56 AM
So you opted for the trial in the end. Be interesting to see, if excepted; and if we get the trial drug how we both get on. Although very scarey its very exciting too. Its all starting to feel very real now. I think my little denial bubble is on the verge of exploding! I'm off to my parents this afternoon for a Sunday dinner feast (might be the last one I feel like in a while) I'll raise a glass to us both for good luck and good health.
Will you be joining the November Chemo thread? Would love to keep in touch.
Will let you know how the micro blading goes
27-10-2018 10:48 AM
27-10-2018 10:15 AM - edited 27-10-2018 10:16 AM
So, I saw the oncologist on Tuesday and there is "something" on my sternum on my MRI. They've said not to worry as is "Unusual" (what does that mean)? So now I have to have a bone scan (great)
I agreed to take part in the PARTNER trial, so I'm now in the screening process and should know in the next few days if i've been accepted on to the trial. I've got my chemo induction meeting on Monday and will start the treatment on the 5th of November (bricking it now!) I'm having my eyebrows Micro Bladed on Tuesday and wig shopping now on Friday. Might make me feel better somewhere down the line.
How are things going with you, what decision did you make in the end with regards to your treatment route?
How was it having the markers put in, I'm having mine done on Tuesday :-)
Hope you're doing well and had a lovely birthday yesterday.
22-10-2018 09:09 AM
21-10-2018 05:52 PM - edited 21-10-2018 05:55 PM
I've been diagnosed pretty much the same - TNBC with lymph node involvement. I've had a blood sample taken to check for the BRCA1 and BRCA2 genes as have a family history of breast cancer but no ovarian cancer. Fingers crossed this comes back negative as that's a whole new journey!
I've also been asked to take part in the PARTNER trial, which after reading up about ive decided to do (look it up on the cancer research site if you might be intersted) If I remember correctly it's been running since 2014 and is in its second stage of three. It sounds very promising for this type of cancer.
I'm also mortified about possibly losing my hair, so I am going to try the cold cap, but understand this may not work 😕 I'm phoning a wig company tomorrow in Nottingham called Trendco to get an appointment for just in case it does fall out. They have shops up and down the country so they could be worth looking up.
I've got an oncology appointment on Tuesday to give consent for the trial, so I could update you if you like?
I'm also having some clips put in the tumours the week after (they're markers) before the chemo starts. So all in all a very busy time.
Hope all goes well with your treatment what ever route you decide on.
PS if 1971 is your DOB we are simular in age! I am 1970 😀
20-10-2018 10:48 AM
20-10-2018 08:00 AM
19-10-2018 10:34 PM
19-10-2018 02:06 PM
19-10-2018 12:46 PM
19-10-2018 12:37 PM - edited 19-10-2018 08:16 PM
Sorry you find yourself here but honestly it is the best place for help and support. I had chemo and used a cold cap so did not need a wig BUT if you do need one the this place is in Yorkshire: https://www.internetwigs.com/
When you have your start date for chemo be sure to join your monthly thread because there you will find women at the same stage as you and perhaps on the same regimen.
I would also recommend that you look into fasting before your chemo because it lessens the side effects. Lok at the two mice about 40 seconds into this video:
one is eating before and after chemo the other is only eating a few hours after and nothing but water for 48 hours before.
11-10-2018 04:48 PM
Welcome to the forum - hopefully one of our members will be along to offer their help soon. In the meantime you may find the following page on our website useful https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment...
All the best,
Helena at Breast Cancer Care