09-01-2019 10:37 PM
09-01-2019 10:11 PM
Thanks Julie feel like a been waiting a very long time for this op. I am super super scared. Have to ring hospital at 5am to see if there is a bed! I am praying for a good result x
22-12-2018 05:46 AM
Carol Lina, its normal to have pain and numbness after lymph node surgery, it takes a while to settle down and all the nerves to come back to life and mine is still a little numb nearly 4 years on.
Of course if it's worrying you speak to your clinic to get checked out but it's very early days for you and I remember my node incision was far more painful than my lumpectomy one. Xx
21-12-2018 01:03 PM
Hi Carol Lina, I didnt have pain and numbness from the biopsy because the surgeon removed the sentinel nodes through the incision in my breast as I had a mammoplasty. When I spoke to my surgeon on Wednesday about the axillary clearance I am having on 10th Jan he told me to expect pain and numbness as they have to cut a nerve to get to all the nodes. They also said it was very important to do the exercises and if there was any swelling on the arm to get it seen to as quickly as possible. So I expect what you are feeling is normal.
21-12-2018 12:42 PM
17-12-2018 06:12 PM
Hi Julie I spoke to my breast care nurse today and told her I had decided on the re reexcision as I couldnt lose my breast for the sake of 1mm. I am going in on Wednesday to sign the consent forms for this and the axillary clearance and she said surgery would probably be first week of Jan. I did ask about oncotype and unfortunately the policy at my hospital doesnt offer to anyone with positive nodes. I will wait until after the clearance and if no more are positive I will pay for it myself as I dont want to go through chemo if it wont be particularly helpful. So everything crossed for third time lucky with the margin. Just want to get all this surgery done with now. Hope you're healing well now. I will have a drain in for 5 days which I am not looking forward to. This feels like a neverending nightmare ....
15-12-2018 12:23 AM
Hi all, Julie wish I knew why they are insisting on clearance but they are. My positive node showed macrometasteses so I suppose they need to check the rest to stage the disease. I had no choice in this but then they should have done it last time so not really suprised. So pleased no chemo required for you. I dont seem to qualify for oncotype, dont know why. Always feel that I am not being told the whole picture but I've had a lot of paranoia set in lately just feeling that its worse than I'm being told even though the surgeon reassured me on Wednesday that it was still early stage breast cancer. Just wish I could wave a magic wand and it would all be over. Not looking forward to having a bad arm. ...
14-12-2018 10:15 AM
14-12-2018 08:40 AM
13-12-2018 03:30 PM
I think sometimes there is no right or wrong about these things, both outcomes often have the same clinical result and you just have to do what you'd rather do. My BCN called it a 'psychological decision', as there is no clear set of guidelines or advice in either direction. If I was you I would feel the same way I think, and there are others here who have had a few attempts at clear margins made. You have nothing to lose really, and could gain not having a mastectomy. x