Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: Recently diagnosed and feeling so very scared and alone

Well done daisydi, take it easy. xx

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

It sounds like you are doing really well Daisy...well done you xx
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Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

my arm feels a bit heavy and sore not nerve pain though. Boob is sore, drain is draining. waiting for district nurse.  Oh the joys ....

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daisy,
Great to hear from you 😊
Well done you 👍🏻
How does your arm feel? X
Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

I'm done and home. Just another waiting game now. Thank you for thinking of me.x

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

You will be scared as I was...I know how you are feeling...but we have to keep positive 🙏🏻
This forum keeps me positive hearing how inspirational everyone is and there are so many good news stories 😊
I’ll be thinking about you tomorrow x
Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Thanks Julie feel like a been waiting a very long time for this op.  I am super super scared.  Have to ring hospital at 5am to see if there is a bed!  I am praying for a good result x

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daisy,
Just wanted to wish you good luck for tomorrow.

Julie x
Community Champion
Posts: 3,101
Registered: ‎08-03-2015

Re: Recently diagnosed and feeling so very scared and alone

Carol Lina, its normal to have pain and numbness after lymph node surgery, it takes a while to settle down and all the nerves to come back to life and mine is still a little numb nearly 4 years on.

Of course if it's worrying you speak to your clinic to get checked out but it's very early days for you and I remember my node incision was far more painful than my lumpectomy one. Xx 

Member
Posts: 93
Registered: ‎29-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Thanks, Daisy. I hope you don't feel so numb and painful as I am. It's making me nervous 😥
Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daisy,

So glad youve got your next date and sending you lots of good luck.

Julie x

Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Carol Lina, I didnt have pain and numbness from the biopsy because the surgeon removed the sentinel nodes through the incision in my breast as I had a mammoplasty.  When I spoke to my surgeon on Wednesday about the axillary clearance I am having on 10th Jan he told me to expect pain and numbness as they have to cut a nerve to get to all the nodes.  They also said it was very important to do the exercises and if there was any swelling on the arm to get it seen to as quickly as possible.  So I expect what you are feeling is normal.  

Member
Posts: 93
Registered: ‎29-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Daisy, I wish you all the best. Fingers crossed for you! 😃🤞

Can I ask if you felt numbness and pain in your arm and armpit after lymph node biopsy? I'm around ten days after surgery and still feeling so much pain and numb (not on the cut, but on the surrounding area). I don't know if it's normal 😥

Wish you a good weekend and Merry Christmas. Hope you can "forget" about it for a while and have the fun you deserve after having a so hard time.

Carol xx
Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Date for my next op is 10th January.  I am hoping for third time lucky.  x

Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Julie I spoke to my breast care nurse today and told her I had decided on the re reexcision as I couldnt lose my breast for the sake of 1mm.  I am going in on Wednesday to sign the consent forms for this and the axillary clearance and she said surgery would probably be first week of Jan.  I did ask about oncotype and unfortunately the policy at my hospital doesnt offer to anyone with positive nodes.  I will wait until after the clearance and if no more are positive I will pay for it myself as I dont want to go through chemo if it wont be particularly helpful.  So everything  crossed for third time lucky with the margin.  Just want to get all this surgery done with now.  Hope you're healing well now.  I will have a drain in for 5 days which I am not looking forward to.   This feels like a neverending nightmare ....

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daisy,

 

Have you asked about the oncotype test?

Do you have a date for your next op?

 

Julie x

Member
Posts: 90
Registered: ‎21-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi all, Julie wish I knew why they are insisting on clearance but they are.  My positive node showed macrometasteses so I suppose they need to check the rest to stage the disease.  I had no choice in this but then they should have done it last time so not really suprised.  So pleased no chemo required for you.  I dont seem to qualify for oncotype, dont know why.  Always feel that I am not being told the whole picture but I've had a lot of paranoia set in lately just feeling that its worse than I'm being told even though the surgeon reassured me on Wednesday that it was still early stage breast cancer.  Just wish I could wave a magic wand and it would all be over.  Not looking forward to having a bad arm. ...

Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daisydi,
Good to hear from you and so good to hear that you do have a choice.
I’m doing ok thank you. I’ve now had my oncotype results back and my score was a 6 so no chemo needed. I’m seeing my oncologist on the 7th Jan to discuss my radiotherapy plan and the tamoxifen.
My arm is still not great...had my 5th drain this week and I’m still experiencing pain and stiffness but my consultant is saying I’m doing well following the clearance.
Do you know why they are insisting on doing your clearance? I asked that question and was told it was a precaution bordering over treatment and at the time I wasn’t happy with that but now I’m feeling reassured that at least i know the one node that had a trace in has now gone.
Keep in touch Daisy and keep as positive as you can be xx
Member
Posts: 93
Registered: ‎29-10-2018

Re: Recently diagnosed and feeling so very scared and alone

Hi Daysidi, sorry to hear that but Happy that you have a choice. I think you're right trying once more if it makes you feel any better. Why are they insisting on axillary clearance if only one margin is not clear? Or the sentinel was not clear too?

I wish you all the best :-)
Community Champion
Posts: 2,597
Registered: ‎30-03-2016

Re: Recently diagnosed and feeling so very scared and alone

Hiyer Daisydi,

 

I think sometimes there is no right or wrong about these things, both outcomes often have the same clinical result and you just have to do what you'd rather do. My BCN called it a 'psychological decision', as there is no clear set of guidelines or advice in either direction. If I was you I would feel the same way I think, and there are others here who have had a few attempts at clear margins made. You have nothing to lose really, and could gain not having a mastectomy. x