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Recently diagnosed and feeling so very scared and alone

Member

Re: Recently diagnosed and feeling so very scared and alone

Hi Debbie,
Yes that’s exactly what I’ve told myself...it must have shown up in the operations...having been through 2 in 2 weeks now I’m hoping at least my BP is ok 😊 xxx
Member

Re: Recently diagnosed and feeling so very scared and alone

Hi JD,

I'm really sorry you're going through it, and I completely understand your feelings. I was diagnosed 2 days after you and I'm due to a mastectomy. Like you I feel alone, even though my family and friends (most of them living on the other side of the ocean) have been very supportive. For me this lonely only shrinks a bit when Im here, ate this forum, talking to people who are having the same problem as me. So use it a lot and don't feel embarrassed with your syndrome, it happens for many of us. I start shaking when I talk about it and I can feel my heart starts racing when I receive a letter or text from hospital. I've been feeling oppressed when I go to there(and I used to work in a hospital. I have no idea how I'm going to do it again).

Try to do something that you really like and try to do as much as you can before going to bed, so you'll be very tired at night and may have a good night. Sending you hugs and good thoughts. We will be fine, after all the tears we'll laugh again ;-)
Member

Re: Recently diagnosed and feeling so very scared and alone

Hi Julie! Another big step successfully taken! Re white coat syndrome - no, still can’t use home machine 😖. I always cheerfully tell whoever is doing my BP that it will be high so sometimes it’s not as bad as they were expecting! It did occur to me that perhaps I actually do have really high blood pressure - but I guess that would have shown up during my ops. Otherwise I just ignore it and hope it will go away! Not very helpful! Debbie xx

Member

Re: Recently diagnosed and feeling so very scared and alone

Daisydi thank you xxx
Thinking of you for your op 💪🏻
Member

Re: Recently diagnosed and feeling so very scared and alone

That is absolutely brilliant.  Well done.  Onwards and upwards xx

Member

Re: Recently diagnosed and feeling so very scared and alone

Hi all,
Just wanted to share some good news with you all...my BC nurse called me first thing to say all nodes removed were clear 💪🏻😃
Seeing my consultant later to start discussion my treatment plan xxx
Community Champion

Re: Recently diagnosed and feeling so very scared and alone

Julie

 

Great to hear that you are the other side of your op and WOW what a fabulous nursing team you had, your consultant is awesome to ensure all of that happened to make sure you did not have to worry about your white coat syndrome.

 

Make sure you get plenty of rest now

 

Sending you hugs

 

Helena xxx

Member

Re: Recently diagnosed and feeling so very scared and alone

Thanks Mai xxx
Community Champion

Re: Recently diagnosed and feeling so very scared and alone

Well done Julie. xx

Member

Re: Recently diagnosed and feeling so very scared and alone

Thanks Daisy and thinking of you for your op on the 29th xxx
Member

Re: Recently diagnosed and feeling so very scared and alone

Glad your op is over and that you are feeling ok.  x

Member

Re: Recently diagnosed and feeling so very scared and alone

Thanks Marla you too 😊 xxx
Member

Re: Recently diagnosed and feeling so very scared and alone

Julie-you are a real trooper! Congratulations on your successful surgery but more importantly, on how you handled *yourself* pre-, during and post the surgery! I knew you could do it!! So very happy for you. You sound in much better spirits today....I hope you have a good day knowing that is behind you now. 

 

Sending lots of love...

xxxx

Member

Re: Recently diagnosed and feeling so very scared and alone

Morning all,

Just thought I’d give you an update as I’ve had my 2nd op and managed to get home last night 🙏🏻

Thank you all for your advice on dealing with this with white coat syndrome 😩

I spoke with my wonderful consultant and my BC nurse beforehand and explained how bad my anxiety had got.
My consultant then pulled all the teams together (ward nurses and theatre staff) and briefed them fully.
My BC nurse came down to the anesthetic room with me, my theatre nurse stayed with me for the full time in the recovery room and my consultant authorized the constant BP monitor to be removed and just do the one whilst in there.
Once up in the ward she had also advised to keep the BP monitoring to a min with reassurance throughout 😊

What a wonderful team and so very grateful.

Thanks again to you all for your advice.

Julie xxx
Member

Re: Recently diagnosed and feeling so very scared and alone

Congratulations! and yes, your honeymoon is a wonderful memory to bring to the front of your mind to put you in a calm frame of mindSmiley Happy. You will be fine! 

xxxx

Member

Re: Recently diagnosed and feeling so very scared and alone

Thanks Marla and yes love Smooth too 😊
Lovely to hear your Father is visiting you xxx

Got married this year so will think of my wonderful honeymoon 💕

Yes will Definitely let you all know how today goes xxx
Highlighted
Member

Re: Recently diagnosed and feeling so very scared and alone

Julie-good good luck for later today. Please don't be anxious....you will be fine and I trust that you trust you are in good hands. Use your time this morning to get yourself ready (bag packed) etc. and sit down, put on some relaxation music (I love Smooth FM or Jazz) and just visualise your last amazing holiday....and RELAX Smiley Happy.

 

Thinking of you for later and please do update us...OK? 

 

My father is visiting from Canada this week so if I reply a little late or tomorrow, that'll be why, but I'll be thinking of you! 

xxxx

Member

Re: Recently diagnosed and feeling so very scared and alone

Hi Marla,

Many thanks for replying it means such a lot to know I’m not on my own with this.
As you can imagine I’m feeling super anxious right now as due to have my 2nd op later today 🙏🏻

Julie xxx
Member

Re: Recently diagnosed and feeling so very scared and alone

Hi JD-W,

 

I wanted to reply although I realise your Q was addressed to Debbie; my GP explained to me that the reason they take my BP (and presumably every other patients') more than once is because they *expect* our first reading to be high. Mine advised me to do the same at home....to take 3 readings-they normally record the lowest reading. I have been taking mine at home for over a year and it really does get easier. You just have to allow yourself time to get used to (sensitize) to your machine. Don't look at it as a scary old beast. Make friends with it. Take your BP a few times, and in between readings, take a deep breath in through your nose, out through your mouth, a few times, and then take your BP. Don't panic if the reading is high. Don't record it. Take time to just practice relaxing-before you take your readings. The luxury of taking it at home is that you can do it *when* you are relaxed, which is what my GP advised me. And make sure your arm is parallel (in line with) the table it is resting on....your arm shouldn't be hanging down, or on an incline, as this also alters the readings. I just wanted to post the above because I too thought I'll never be able to take mine at home, and I can now do it-albeit, yes, some of my readings *are* high, especially during weeks of stress. But just practice, as you would to overcome any phobia.

 

I hope the above works for you.

xxxx

  

Member

Re: Recently diagnosed and feeling so very scared and alone

Hi Debbie,
Thanks for posting.
You are the only other person I’ve come across that also can’t take it at home...that’s the same as me 😞
Have you done anything about it? Xxx