Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Recently diagnosed and feeling so very scared and alone

Hi JDW,
It is a common problem. The nurse I saw for my pre-op check was quite reassuring, she told me not to worry & that they expect people to be anxious when going through this. Ironically, on the day of the op itself, I was so relieved it was going ahead, my bp went down a bit.
Try not to worry about it, they are measuring a stressed bp, not a resting bp, so it will likely to be at it’s highest in that situation.
I decided to do it myself, following seeing my GP about my tamoxifen prescription. My heart sank when he said ‘lets just check your bp’ then he wished he hadn’t!
Once I had desensitised myself to doing it myself, my bp is just fine, as I knew it was & my GPs happy!
ann x
Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Thank you Helena for replying so quickly xx
Member
Posts: 37
Registered: ‎12-11-2018

Re: Recently diagnosed and feeling so very scared and alone

Thanks Ann for your kind words.
I know so little about having my nodes removed and have been given a booklet to read on Lymphodema which has added to my worries.
Do you have any tips on reducing the panic that comes with white coat and in particular how I can calm down when in the recovery room and then the regular BP checks they have to do post op?
Xx
Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Recently diagnosed and feeling so very scared and alone

Hi JDW,

First of all welcome & glad you found us.

I think most of us have gone through anxieties, especially during the early days of diagnosis & sometimes the whole thing can feel somewhat irrational at times.

Yes, it is daunting to have further surgery, but try & hold onto what the surgeon said about it being mainly good news. Node involvement is very common, but what is reassuring is that recent research has shown that minor node involvement as you describe, does not make a lot of difference in terms of outomes & the surgery will reduce the risk further.

I can relate to white coat syndrome & I work in the NHS! I only have to go into the clinic situation & my blood pressure shoots up. I now do my bp at home & yes, it's fine.

Anyway, feeling anxiety when going through this is quite normal, so be kind to yourself.

ann x

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Community Champion
Posts: 9,808
Registered: ‎16-11-2016

Re: Recently diagnosed and feeling so very scared and alone

JD-W

 

Hello and welcome to the forum where you willl get loads of help and support from the wonderful ladies on here who will completely understand and have experienced what you are going through.

 

With regard to the white coat syndrome, you are not alone, I am terrible, as soon as a medical person comes near me my bp goes through the roof and I have to keep explaining the reason why.  Once I am at home doing my own bp readings they are totally fine.  You would be surprised how many people actually have the same problem so you are not alone my dear.

 

Just take a deep breath and deal with each stage one at a time, so for now it is preparing yourself for the op on Wednesday and then deal with the results after that, try not to second guess the outcome as that is only going to make your stress and anxiety worse.

 

Come on here whenever you want or need to and we will get you through this, there is always someone on here who will be abe to support you.

 

Sending you hugs

 

helena xx

Member
Posts: 37
Registered: ‎12-11-2018

Recently diagnosed and feeling so very scared and alone

Hi all,

I found my lump on the 30th Sept and was formally diagnosed on the 24th Oct. I had my lumpectomy and 2 lymph nodes removed as a precaution as ultra sound was clear on the 31st Oct...I’m 47. I went back to see my consultant last Fri and was told I have G2 cancer, clear margins and wasn’t in need of the Herceptiin drug however one of my 2 nodes had shown a trace of 2.4 mm...I’m now facing another op on Wed this week to remove all my lymph nodes.
I’ve finally plucked up the courage to join this site as I feel terrified and alone despite having wonderful family and friends support. I am known as a very strong woman and in a lot of ways I am when it comes to all around me but not when it comes to myself. I suffer very badly with white coat syndrome which no one gets and laughs at but it’s adding to my fear and anxiety. I’ve not been able to sleep since diagnosed and not only dreading having another operation on Wed but what the next results will reveal....Despite my consultant telling me my results were majority good news I can’t focus on anything but one of my nodes having a trace and therefore now having to have them removed as another precaution.
I feel alone with my heightened fear of the unknown and my white coat syndrome escalating this....
Is there anyone else going through similar anxieties?