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New to forum...newly diagnosed

Member

Re: New to forum...newly diagnosed

Thank you Jill. Makes you realise that your not on your own.
Community Champion

Re: New to forum...newly diagnosed

Welcome to the forum Gill .It does get easier but the first few weeks are very hard .Lots of support and advice here .
Member

Re: New to forum...newly diagnosed

Hi all. New to this kind of thing and to what to put even. I was diagnosed this week. So shocked. my emotions are all over the place. Can feel ok one minute and crying the next and as mentioned in other posts every ache or pain and yes you feel it’s moved somewhere else . I have surgery in 16 days and counting. This is so so scary and out of my control. Every bone in my body aches and keep telling myself this is tension. Oh boy it’s tough.
Member

Re: New to forum...newly diagnosed

Hi feenix, the waiting is almost cruel, it’s invading my sleep and making me so paranoid. Trying to stay in routine, walking the dog, dragging Henry hoover out and blitzing the house and trying to pass the time in a way that’s as normal as possible. I’m so glad I’m not alone in my thinking, sometimes you feel you’re going crazy. I hope all goes well for you on Monday 🤞

 

cassie xx

Member

Re: New to forum...newly diagnosed

There’s a pdf in publications about talking to children Michelle21 which may be helpful.  feenix xx

Member

Re: New to forum...newly diagnosed

Sometimes finding humour in this awful situation brings me back from a dark place mentally, maybe I should stick to Sainsbury’s home delivery service in an effort to avoid the freezer aisle rampage!☺️ Xx

Member

Re: New to forum...newly diagnosed

Hi Cass 

I know how you’re feeling ... my usual aches and pains all seem suspect but I try a bit of meditation or anything to distract my thoughts.

Things are out of our control and it’s scary but I am told that things will improve when we have results and  a plan is made. I’m having MRI on Monday.

its the waiting and not knowing....

 

feenix

Member

Re: New to forum...newly diagnosed

Thanks Jo, I like your humour! Every time I read a comment I’m finding that the tears are coming. I’m looking forward to getting to the stage where I am amazing myself. 😀 I guess the whole thing is a process that needs to be gone through and can’t be rushed, it’s just a real bummer being at the beginning and not the end being able to look back at myself and say I got through it all. I tfound myself worrying that the cancer has spread throughout my body today so it is good to hear this is common and actually the chances are low. Sorry I know I am waffling on it’s just the whole thing is surreal. I’m sure everybody thinks that too, like you are watching it all happen to someone else. I’m sure once treatment starts it will become very real. I’m looking at a mastectomy although it’s yet to be confirmed. Strangely enough st the moment I don’t even care about that, I just want it all out. I have 2 lumps and what looks like one lymph node infected. No one said what stage this is so I don’t know.
Anyway I’ve waffled enough, thanks for listening x
Community Champion

Re: New to forum...newly diagnosed

Welcome ladies, certainly busy here today! you will become accustomed to the Supermarket meltdown in time, it's along the lines of going on a rampage around the aisles of Asda ( Other Supermarkets are available) shoving everyone head first in to the nearest freezer!! 😜

 

As you can see we try and keep things light hearted when possible but are also a fountain of knowledge between us so can support , listen and hopefully answer any questions you have 😊 It takes a while to let it all sink it but it does and you will amaze yourself with how you will cope! Xx Jo 

 

 

Member

Re: New to forum...newly diagnosed

Thanks Jill, good to know there are people here to help and advise. I think I’m still in shock from it all. How did your son cope?
Community Champion

Re: New to forum...newly diagnosed

Cass

 

Oh remember that feeling, just wanted to be the other end of it all and it seemed a long way off.  Am now 18 months post diagnosis and eagerly awaiting the start of the lawn bowls season, which was a major aim for me to get to this time last year.

 

Helena xxx

Member

Re: New to forum...newly diagnosed

Thanks Helena, it’s good to have a support network and express all these feelings and anxieties. If only I had a time machine x

Community Champion

Re: New to forum...newly diagnosed

Yes Cass, no matter how hard family and friends try only people who have been through this can truly understand how absolutely terrifying this is .This is a great place to express your fears without upsetting /worrying those around you .x
Community Champion

Re: New to forum...newly diagnosed

Welcome Michelle -lots of new members today.My son was doing his AS levels when I was diagnosed 3 years ago .
Member

Re: New to forum...newly diagnosed

Thanks Jill, it’s good to have a place to come where everyone is in the same boat and can truly understand what we are going through. As great as loved ones are, it’s different speaking to and sharing fears with those that truly understand. My GP has prescribed me with a short course of diazepam to ease anxiety which has really helped. Let’s hope those odds work out for me, cassie x

Community Champion

Re: New to forum...newly diagnosed

Cass

 

Welcome to the forum, not the place you would want to be in, but you will get loads of support on here from the wonderful ladies.

 

This is the worst time waiting for your treatment plan to be put in place, but once it is strangely enough it does get easier because you know exactly what is going to happen and when.  The feeling that every little ache or pain is it spreading is normal and oh we can all relate to that on here, that is your anxiety taking over. 

 

Come on here whenever you need to rant, rave whatever, and there will always be someone to help you because we know just what you are going through.

 

Helena xx

Member

Re: New to forum...newly diagnosed

Hi Feenix, I was diagnosed yesterday With IDC so still in a state of shock. I am waiting for some more results on Thursday and then I will know if I will have surgery first or chemo first. I have to say the whole thing is pretty scary. I’m most worried about telling my two daughters especially as one is oing her A levels in June and currently revising.
Mediation sounds like a good idea and true that no matter how much you worry it won’t change anything.
Community Champion

Re: New to forum...newly diagnosed

Hi Cass, welcome to the forum.The early stages when you don't know what you are dealing with are really hard and very scary .Once you have all the pieces of the jigsaw and you know what treatment you need you will feel calmer.Just about everyone becomes hyper aware of every ache and pain after being diagnosed ,things you wouldn't have thought twice about suddenly become sinister in your mind .It is actually pretty rare for breast cancer to have spread outside the Breast when first diagnosed - something like 5% of cases so the odds are in your favour 🤞🤞🤞Jill.
Member

Re: New to forum...newly diagnosed

Also new to the forum. I was diagnosed last week with stage 3 bc, spread to lymph nodes. Now awaiting a ct scan to see if it has spread further. It’s the most terrifying and agonising experience I’ve ever dealt with. The not knowing and feeling like your life has been taken out of your control is horrendous. I now think that every pain, twinge and feeling slightly off means the cancer is eating me alive, it’s so difficult to cope with. 

Community Champion

Re: New to forum...newly diagnosed

Give it time -😬