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New to forum...newly diagnosed

Member

Re: New to forum...newly diagnosed

Hi Jobo welcome to the thread. Yes it really is a scary place we are at but we just have to trust in the process and that so many ladies have gone before us and come out the other side. I know this is no easy to think when the fear and anxiety take over but try. I cannot believe I was only diagnosed 6 days ago, it has been the longest 6 days of my life!
Keep chatting on here I have found it to be a real strength x
Member

Re: New to forum...newly diagnosed

Hi Feenix,
I hadn’t noticed you’d Said ‘journey’ but no not my first choice of word to describe this mess we find ourselves in!
I understand your feelings on your op, getting it over and done with is one step closer to recovery.
I have had quite a day. Saw the Dr who explained about chemo and then told me I could start on Friday! This time last week my life was completely normal and now I’m starting chemotherapy at the end of the week, it is totally surreal. Again I am glad it will start as like you I just want to get on with treatment but I was in shock all over again today. I have been through my diary putting in all the chemo sessions and seeing what social stuff I can still do and what I will have to cancel and it did actually make me feel quite hopeful, which has to be a good thing.
I hope you get lots of info from your meeting with your nurse tomorrow, I will be running around like a headless chicken as I have a lot to organise! X
Community Champion

Re: New to forum...newly diagnosed

Hi Jobo ,welcome to the forum.All that you are feeling is completely normal and we have all been there - every ache and pain suddenly becomes very scary - it does get better -keep posting - you will get let's of support here from people who understand .

Member

Re: New to forum...newly diagnosed

Hi new to this only diagnosed last week. Scared beyond belief due a mastectomy on the 18th. Agree with the rabbit caught in headlights and every ache and pain convinced it’s spread. Even noticed today my tummy looked lower on one side so off to gp who said it’s just loose skin but Head says it’s spread. Which o could get a handle on my anxiety. Thanks for all the posts on here
Member

Re: New to forum...newly diagnosed

Hi Michelle

Apologies...can’t believe I used the journey word ..... I have lots of words about what we are all going through but I don’t think I can post them !!! What do you call it ?

thinking of you today and everybody else 

xx

 

Member

Re: New to forum...newly diagnosed

Hi Michelle

It must be very difficult regarding your children....I don’t have that added stress.

I think you are right about “ getting organised”... it is clawing a bit of control back and it does help plus I don’t want to leave it to the last minute as I’d end up like a headless chicken !!!  

I have a date for surgery which in a weird way I’ll be happy to have ....just get it out of the way but my plan may turn out to be different so I’m not holding my breath.  I realise that this journey we are on is complex and very individual.

I will prob start to feel anxious and panicky before appointment to get results/information.... it’s only natural.

You will have more information tomorrow about your chemo which is a step forward although it’s still scary but I expect we will feel more at ease when we have information to work with instead of being up in the air.

Your appointment change could probably be part of the system ... availability of appropriate doc. 

I hope the toad in the hole went ok. 

sending positive vibes for tomorrow

 xhugsx

 

Member

Re: New to forum...newly diagnosed

Hi Cass, I too was diagnosed last week with stage 3 bc, waiting for a CT scan to see if it has spread. Waiting is horrible. Itry to keep as busy as possible. Dog has walks , the ironing is done soon as, drawers have been emptied. Soooo up to date with everything. Trying not to read too far ahead on this site, gave myself a wobbly yesterday , so trying to keep it to what I know now. Should have CT within 14 days. Keep busy, talk to people  and use the Forum. I too feel that every twinge is a sign of cancer, my son said 'no Mum, thats because you're 60' Bless him, had to laugh. Take Care Cazzy

Member

Re: New to forum...newly diagnosed

Hi Feenix
Today hasn’t been too bad but like you I struggled in the morning. Having said that evenings are generally worst for me I think because I haven’t told the kids yet. I can feel like I’m suffocating and my heart races. I find it very difficult to concentrate on anything on the TV . I’m much better just being out and about and busy.
You sound like you are really getting organised before your op. That is a good thing, do you feel it helps you feel in control of something? How do you feel about 19th and the op?
I’ve had a call from my nurse today giving me an appt to see a doctor to discuss chemo tomorrow. I’m pleased the appt has come forward a day as less time to think and worry but now I’m worried I’m some desperate case that needs to be hurried through the system.
I know what you mean re cooking, I’m the same with the cleaning, and it’s starting to show!
I hope you get all the info from your nurse on Thursday, let me know how you get on and I’ll report back on my chemo trip.
Off to attempt a toad in the hole now xxx
Member

Re: New to forum...newly diagnosed

Hi Michelle

How are you today ? 

I don’t think everyone has an MRI... docs just want to check extent .... nothing else on my mammogram or USS but I thought I had a dimple but not evident on exam. It’s very individual. 

My op is booked for 19th but wle may change depending on mri result. I’ll be contacting nurse Thursday to see if I can glean some information. Preop  next week.

Mornings seem to be the worst time for me... the one thing I really don’t have the motivation for is cooking....just want something easy... my husband would probably say that nothings changed  !!! Smiley LOL

Been out and had bra fitting @ m&s ... got a post op bra and sports bra so that’s something. I’ve sent away for a couple of soft front fastening bras from Asda so will see what they’re like.  Xhugx

Member

Re: New to forum...newly diagnosed

Hi Feenix
Must feel good to have the MRI done, something to tick off the list and you will know exactly what you are dealing with. My dr said I won’t have MRI unless they find it in at least 4 lymph nodes which I’m a bit confused about as everyone else seems to be having one as a matter of course. Do you have a date for your op and know what you are having done. Hope you have had a good day and wake up positive x
Member

Re: New to forum...newly diagnosed

Hi Michelle

I had my MRI today. I’m not due appointment til next week, preop,  although I’m going to catch up with my Mac nurse on Thursday. Sounds as though you are going to have a good day... positive vibes. It’s good to sleep well and makes such a difference.

Will think of you on Thursday.

 Feenix xx

Member

Re: New to forum...newly diagnosed

Yes, today is going to be a good day. I'm going to gave a good fettle today, so the house should look better by the end of it!

Community Champion

Re: New to forum...newly diagnosed

Michelle

 

Love the sound of your day, it is amazing the difference having a good nights sleep can make to your overall wellbeing.

 

Have a lovely day despite the weather xxx

Member

Re: New to forum...newly diagnosed

Good morning! Can’t believe I actually slept last night, only woke once and went back to sleep without crying! I have a nice day planned, walking the dog and afternoon tea with my beautiful family. Today WILL be a good day.
I am focusing on keeping busy and getting to Thursday which is my next appointment. When is your next appointment Feenix? I hope you have a good day today. We can do this just look at the thousands before us that have come through the other side.
Thank you Jo your message radiates hope which is just the ticket. X
Community Champion

Re: New to forum...newly diagnosed

Ladies I so feel for you all at the minute, I will never forget that awful time in the early days when the fear was so over whelming and you just want it all to stop, it's was the lowest I felt throughout .

 

Things just begin to change as you tick off each stage and without even realising it the days and weeks are  passing and you are dealing with it, as you say there is nothing you can do other than go with it and Personally I found none of it was as I'd imaged at all! 

 

3 years ago I couldnt see past the end of the week let alone to all this being over and life ever being normal again but it is , life is great ! We go to work , we chat about our day over tea , go to bed and repeat! 

You appreciate the simple things , our motto is boring is good! 

 

Xx Jo 

 

 

 

Member

Re: New to forum...newly diagnosed

Thanks Helena and Feenix, tomorrow is another day x
Member

Re: New to forum...newly diagnosed

Can relate to how you’re feeling Michelle21.

Can feel myself dipping again tonight ... thoughts of MRI / results / all my twinges seem to be too enhanced to be nothing etc etc ... start to get scared. Even Top Gear isn’t distracting me Smiley LOL 

Waiting for a few good vibes to come back but I don’t find it easy to feel optimistic or hopeful... tendency to be on the dark side when the old brain cell goes into overdrive. I’ll work on it though.

Feenix

sending hugs to all

 

Community Champion

Re: New to forum...newly diagnosed

Ladies

 

Just wanted to send you all hugs and honestly it does get better in time

 

We are all here for you whenever you need us

 

Helena xxx

Member

Re: New to forum...newly diagnosed

Thanks Gill, it’s good to know others understand. I just want to scream out “someone help me” but obviously know this is useless and that all I can do is go through the process like everyone else here. The whole situation feels so helpless. X
Member

Re: New to forum...newly diagnosed

Michelle I know exactly where you are coming from. Fear of dying horrible thought but daren,t say it to anybody else. And feel the anxiety growing suddenly coming from nowhere. I had a good day yesterday but not so good today. But you can come on here and talk on things that you can’t talk to family about for whatever reason. I am really achy today and tearful and thought I could cry no more.