09-11-2018 09:01 PM
Hi Clairebear, it won't change from *grade* 2 as that is your "type" - it's what your body made. The *staging* is the bit that can change but it happens slower than our minds think. That is the hard thing to get your head around and reassurance doesn't always help when the negative committee in your head won't shut up. I imaged every cell in my body changing with every breath in and every heart beat but that's just the journey of the mind of course, not a reality. I found keeping my mind distracted and busy was effective. I got busy on nutrition which is a positive distraction rather than a negative distraction. You have to work through a lot of emotions before you find peace of mind and that is ongoing. xxxx
09-11-2018 07:58 PM
09-11-2018 07:18 PM - edited 09-11-2018 07:20 PM
I know it's irritating, but just attach an innocuous (innocent) explanation to it, as opposed to a "threatening/danger" explanation to it. It's interesting because I work with a lot of panic sufferers and health anxiety patients and what we know about these problems is that the pain is real-the problem is the meaning you attach to it.
Immediately following my own BC diagnosis, I was noticing every little pain (in my back, breast/chest area) and trust me when I say that I had to do some hard core CBT on myself, i.e., "don't be ridiculous Marla-they've reassured you that it has not spread".
It *is* important to gain confirmation of the facts of your own particular case, i.e., has it spread, and if yes, where to, etc. If you've not had that confirmed yet (I can't recall which scans you've had and what they've told you), then yes, the waiting and uncertainty can really cause you to jump to the worst conclusions.
For the sake of your own mental health though, until you have good reason to believe it has spread, i.e., doctors tell you it has....please assume it hasn't. I know-easier said than done. . We're all here for you!
09-11-2018 07:12 PM
09-11-2018 06:35 PM - edited 09-11-2018 07:19 PM
Don't panic! . It's all very normal what you feel, and then what you think. I'm a CBT therapist when I'm not a breast cancer patient and what you're doing is called catastrophizing....thinking the pain near your armpit means it has spread. It's very normal to be hyper-alert to twinges and pains.....these things you may not have paid much attention to pre-cancer diagnosis but now that you have this diagnosis, you are imagining everything is linked, and in all likelihood it isn't. Try and stop yourself from jumping to the worst conclusions by seeking out evidence....if you have no evidence from your medical team that it has spread then assume it hasn't. We have so much to deal with, with what *is* true, that we don't need to make ourselves crazy over what isn't true. Again, it's perfectly normal to feel these pains but don't let your thoughts go down the catastrophe route, i.e., by attaching a "danger" meaning to the symptoms.
09-11-2018 05:07 PM
08-11-2018 08:50 PM
08-11-2018 08:07 PM
Clairebear and Hopeful....it's great that you have each other to go through the journey with and good that you have much in common too. I have spoken to many women who used to cold cap and most say it's tolerable. It sounds like you are both in good hands....I'm sending much love and healing vibes to both of you.
08-11-2018 07:59 PM
08-11-2018 04:31 PM
08-11-2018 12:05 PM
I'm somewhere in the middle. Diagnosed in August with Invasive Ductal with lobular features-Grade 2, ER +, Her2 -. I was planning for a mastectomy for next week but had some strong doubts about the op and having spoken to a Macmillan nurse for an hour last week, decided that it's not my time for the op. Saw my surgeon the following day and she agreed. I'm safe to give the hormone therapy Letrozole a go at shrinking the cancer and seeing then, what my options are. I may not be able to avoid mastectomy down the road if the cancer does not shrink the way we want it to (it's 5cm) but I want to give the Letrozole a chance before having a mastectomy. Unlike many women, having the cancer in me does not scare me or worry me. My consultant as well as a second opinion consultant at the Royal Marsden have both reassured me that whilst on Letrozole I am not putting myself a risk-the Letrozole will stop the cancer from growing and will then start to shrink it. So it's a wait and see game. I see my consultant in 2 weeks for a physical exam (just to check) and an MRI in 3 months to see how I am responding to Letrozole.
08-11-2018 09:50 AM
08-11-2018 08:12 AM
I'm really pleased for you Clairebear85-you sound positive and in good spirits re-the chemo and I agree, at each session you will enjoy the feeling of knowing you're saying "bye-bye" to the cancer.
08-11-2018 05:28 AM
07-11-2018 10:40 PM
07-11-2018 10:37 PM