Member
Posts: 21
Registered: ‎15-01-2018

Re: Just diagnosed with hormonal breast cancer

Hi Maz74

 

I also had the same diagnosis as you just over a year ago. Like bazzies I joined the Optima trial & my tumour was tested and the results showed I didn't need chemotherapy.

 

I have just had my first mammogram and annual check with the surgeon and received the all clear

 

Michele

Member
Posts: 13
Registered: ‎30-08-2018

Re: Just diagnosed with hormonal breast cancer

Hi Maz74

 

Just saw your post and my Bc is same oestrogen positive nodes involved stage 2 HER negative, ive had mx and lymph clearance with recon I’m now  6 wks post op.  I was offered the Optima trial which I agreed to.  I will now be going straight to rads and hormone therapy.  fingers crossed I made the right decision all we can do is go with  the information we are given and then make our choices.  As I keep saying to myself unfortunately none of us would choose to be taking this journey......in life there are no guarantees.  I’m quite fortunate in that my children are grown up, I have 11 grandchildren that I would like to enjoy.  Fingers crossed your journey is as smooth as possible, keep in touch x x 

 

bazzies

Member
Posts: 7
Registered: ‎02-11-2018

Re: Just diagnosed with hormonal breast cancer

Hello,im new here too.Iv been diagnosed Stage 2,estrogen positive and HER2 negative...had surgery and postive on lymph nodes.Im feeling the same scared that wont see my two girls and my special needs son future.waiting to see oncologist and im dreading to think im having chemo? does anybody of you offered clinical trials?
Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear and HaylsLou,  I too was invasive ductal hormone positive, 90mm diffuse tumour, 9/12 lymph nodes affected and here I am still here after 8 rounds of chemo, surgery and radiotherapy.  I just want you to know you can get through this.  Its mentally very hard on you and your mind spirals out of control in the early days but it gets easier.  If you have a read of my blog, you'll see you are not alone with your thoughts and feelings, you might find a few useful tips in there too:  http://lifeafterlola.com

Once your treatment plan is in place, you can chat with others going through the same on the "going through treatment" thread.  I found this really helpful and still keep in touch with my chemo buddies.  xx

Member
Posts: 2
Registered: ‎01-11-2018

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear
I’ve recently been diagnosed with invasive ductal carcinoma oestrogen positive, I’m 34 with 3yr old twin daughters. I’ve been losing the plot tbh, I’ve lost weight with worry, been put on sleeping tablets and beta blockers but nothing seems to be helping. I have aches all over so have obviously convinced myself the cancer has spread everywhere. Today I’ve decided it’s my brain. Yesterday it was my liver! I just wanted to message to say you’re definitely not alone but also thank you for your original post as even reading someone is feeling similar has helped me. Lots of love and strength xxx
Member
Posts: 121
Registered: ‎08-09-2017

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear

 

It's Emily here from Breast Cancer Care.

 

I just wanted to let you know that we have volunteers who have had a similar experience to yours, who'd be happy to talk to you too if this would be helpful. 

 

One of them is Karen (her profile is here) who can be contacted by email: karen@breastcancercare.org.uk. 

 

Or we can put you in touch with someone by phone. Feel free to drop me a private message on the forum if you think this would be helpful.

 

Best wishes in the meantime.

Emily at Breast Cancer Care 

Community Champion
Posts: 3,098
Registered: ‎08-03-2015

Re: Just diagnosed with hormonal breast cancer

[ Edited ]

Hi Clairebear, 

I see you have had some lovely support already from our ladies, you are never alone on this forum 😊 

Its an awful shock to be diagnosed and especially at your age with such a young family but we are seeing this more and more so you will certainly come across ladies here going through the same. 

 

These early days are pretty brutal, and what you are describing is completely normal but I assure you It does settle down. The shakes, the anxiety, the gut wrenching fear that you won't survive this, not sleeping or eating the list is endless!

 

You are in shock and our brains don't know how to deal with so much uncertainty, answers are the key and over the coming weeks that is what will help you settle and come to terms with things, once you have a definite treatment plan and know the way forward you will start to feel better 😊

 

I completely understand your fears after losing a friend to BC, My mum died from it and a few weeks before my diagnosis we buried a close friend of mine who had BC but died from Ovarian, my brain was fried! 

 

But you soon learn that you cant compare yourself, we all respond differently and thankfully the majority of us go on to be just fine after treatment, I was diagnosed in March 2015 at 46 and am doing great now. 

 

One thing for certain is no amount of stress and panic will change things, if I could go back and tell my newly diagnosed self anything it would be that, You will cope with things it just takes time Xx Jo 

 

Highlighted
Member
Posts: 15
Registered: ‎19-09-2018

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear

How are you doing?

I'm 37 with a 20 month old and was diagnosed on 18th sep with grade 2, invasive ductal carcinoma, oestrogen positive but her2 negative.

Those first 2 weeks after diagnosis are the absolute worse, but once you get your team and plan in place things are so much easier. The waiting around for scans and results is a nightmare, the fear of the unknown.

I now have surgery booked for the 12th November, then will have radiotherpy and hormone treatment for 10+ years, at the moment, looks like I'll be lucky enough to escape chemo.

The appointments will start coming through thick and fast, I found it best just to focus on next appointment rather than think too far ahead. I'm now feeling really positive and looking forward to seeing my wee boy grow up. As a mum of three, the kids will really keep you going.

I was expecting to be the youngest in all the clinic waiting rooms but that's certainly not the case, I've already made some firm friends. There's a great Facebook group too, I can share the info if you like, ladies at all ages and stages who are a great support and answer all my daft questions.

My only other experience of bc is my mum, she was diagnosed July 2010, had chemo, surgery and radiotherapy, given all clear in March 11, but diagnosed with secondaries in her liver and died in Aug 11. Hard for me not to compare but have come to realisation that no two people, diagnoses, reaction to treatment etc are the same. I will beat this and so will you!! Xx
Member
Posts: 19
Registered: ‎23-10-2018

Re: Just diagnosed with hormonal breast cancer

Thankyou all for posting with your advice, I really hate that this has happened to all of us and hate feeling like my life is on a knifes edge ☹️...I just really want my treatment to start so I know it’s under way.
I do have a huge support network for all of you guys and all of my family and my husband and he’s family but I just feel so crap and scared at the minute. I’m trying to put on a brave face cos I don’t want my kids to see anything yet as I’m not sure when to tell them, I do t want them upset or scared and am just praying I come out of this the other side and get my life back ♥️🙏🏼
Member
Posts: 96
Registered: ‎19-09-2018

Re: Just diagnosed with hormonal breast cancer

waiting for results is a killer. I was recalled after my MRI of other breast and then had to wait for biopsy and CT results. Got myself into a right state about the CT results, but they were fine after all that. I'm the opposite, I eat chocolate when stressed and am trying not to put back on the 4 stone I lost with alot of effort last year!

Member
Posts: 135
Registered: ‎09-08-2018

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear85 - I can remember feeling exactly like you do when I was first diagnosed on 8th August. Following on from diagnosis I was waiting for MRI results etc. I joined the forum and started a thread on here titled 'feeling sad' on 10th August - I've just read it again now and can't believe how far I've come. In 2.5 months I've had the full facts suppied, had surgery and now in the process of having reconstructive surgery and well on the road to recovery.👍

This forum is fabulous for support and advice from others who have been through or are going through  what you're going through now, and will help you put things into perspective a bit.

Once you have your MRI results through and a treatment plan put in place you WILL feel so much better - I promise.💖

Keep in touch.

Lots of love

Helen

xxx

Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear,
BC tends to be picked up earlier, because of where it is, as it’s easier to see or pick up any breast changes sooner than in other parts of the body.
Yes, I remember the scan anxiety or scanxiety well! I also had an mri & I found that the most stressful part of it. I found it helpful to remind myself that it was far better to get the full picture, so that the best treatment plan could be sorted out. Afterwards, I was glad it was done.
It’s the uncertainty that’s so hard to handle at this stage, but honestly, this does improve once the treatment plan is confirmed & treatment starts. This stage does pass & you will move on.
ann x
Community Champion
Posts: 2,596
Registered: ‎30-03-2016

Re: Just diagnosed with hormonal breast cancer

[ Edited ]

Hiyer Clair,

 

Just dashing out, but wanted to answer some of your questions. Perhaps another cc can pick up the missed ones?

 

Finding it hard to sleep and eat are TOTALLY normal. Well, for a majority of people anyway in these very early days after diagnosis. It is THE worst time, and tests you in ways you never thought possible psychologically. It is a limbo-like state, you have been told something that is frightening, but don't yet have 'the plan'. The plan does bring back a feeling of control and bit by bit you feel better.

 

Not sleeping was my worst symptom of the anxiety in those early days. Just when you need to rest and relax, you couldn't be further from either! Infact eventually I sobbed hysterically to an out of hours doctor and asked for a small amount of sedative/sleeping tablet which I used for a few days to get me over the sleep deprivation. Not eating - YES ! I personally lost one stone in a couple of weeks. My surgeon advised that you pick on little bits that you fancy all through the day, as its recognised that those with a bc diagnosis find eating really hard. Have shakes and smoothies if you can - banana and milk are easier to get down sometimes when you can't face a meal.

 

Nothing is abnormal at this point to be honest! Everybody has their own individual reaction and any feeling is fine and to be expected. Let yourself cry if you need, or feel angry, or whatever you feel, its a process.....which you come out the other side of. I also had a course of sessions with a counsellor, which started before my radiotherapy and I found them very good.

Member
Posts: 19
Registered: ‎23-10-2018

Re: Just diagnosed with hormonal breast cancer

Oh really? I didn’t realise this one was detected earlier than most! Did you think the worse when you were first diagnosed and would you say that waiting on the mri and pet scan results cause more stress?
Do you think that once the results are back and a plan is in place I will start to accept it abit better?
I’m finding it so hard to sleep and eat. Is this normal?
Do you have any advice on how to deal with it and any positive thoughts for me?
Sorry for all the questions lol I have asked to be referred to a councillor aswell x
Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Just diagnosed with hormonal breast cancer

Hi Clairbear,
Thankfully, bc is normally detected earlier than other cancers, so it is unusual for it to have already spread at initial diagnosis, but in the stress of being newly diagnosed it’s something we all worry about & tend to have physical stress symptoms as well.
Sorry to hear about your friend, that is hard, but your situation is not what hers was.
We all feel high anxiety levels at this stage, so please dont think you are in any way unusual in feeling the way you do at the mo.
ann x
Member
Posts: 19
Registered: ‎23-10-2018

Re: Just diagnosed with hormonal breast cancer

Thankyou charys..wow 2 1/2 years that’s great!
I have had my mri lAstnight and pet scan done today so things are moving along really quickly, I am super anxious (I super anxious as I suffer from anxiety) and am praying that it hasn’t gone anywhere else, does this seem unlikely to be else where at this stage?
I am constantly shaking and my whole body is aching which I’m being told by family is possibly shock? Iv never had shock before so I’m not sure what the affects are.
Community Champion
Posts: 2,596
Registered: ‎30-03-2016

Re: Just diagnosed with hormonal breast cancer

[ Edited ]

Hi Clairbear, again,

 

I've just seen you've added another post , about a friend who passed. No wonder you are feeling extra frightened ! She may not have had exactly the same results as you, as there are lots of variable taken into account when they do the final biopsy at surgery. Also, by the sound of it, as your baby is only 4 months old, this has been found very early indeed. This is really good news.

 

Just so you are also aware, many of the 'community champion posters' are women who HAD breast cancer, myself over 2 1/2 years ago. (I was 47 and mine was hormonally driven) Ann, I think, was diagnose around the same time as me. The women on the helpline number have also all had BC! There's more of us around than you think. ;o)

Community Champion
Posts: 2,596
Registered: ‎30-03-2016

Re: Just diagnosed with hormonal breast cancer

Hi there Clairbear,

 

So so sorry you find yourself needing to be here, and especially with a new baby to look after as well - what a lot to take in, a terrible shock and an assault on your psychi. My cancer type was slightly different to yours I was grade 3, Her2 negative, ER and PR positive. There will be others who have had exactly the biopsy results you have had using the forum at the moment - and importantly many many others who have gone before you who no longer use the forum as they have 'moved on' with life. However, whatever type of cancer you have been diagnosed with, the treatment plan will be tailored to your cancer type with a team of specialists and nurses supporting you to make decisions. It is only slowly through this emotionally painful process over the next few weeks that you start to learn more and become educated on the intricacies of bc - you find out that for a vast majority of women treatment is effective and successful.

 

It is natural to be scared, very very scared, especially with young children in the household as well - but please take huge hope and courage from the fact that there are plenty of others here who are right where you are now. They, and we, understand the horrific rollercoaster of emotion you are on right now. I can't point you in the direction of those with the exact biopsy results, but you will find them round and about on various threads. 

 

x

Member
Posts: 19
Registered: ‎23-10-2018

Re: Just diagnosed with hormonal breast cancer

Thankyou for your reply Ann and it’s a huge relief to find everything settles down, I suffer with anxiety too which doesn’t help and a girl I have mutual friends with recently passed away from having the same diagnosis, after treatment she was clear then it had spread to her bones and brain and sadly she lost her fight, I am so scared this is going to happen to me ☹️. Hopefully I will be fine as my baby is 4months old and I hope it’s been caught early as iv been told I got it after I had her due to hormones?
Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Just diagnosed with hormonal breast cancer

Just to add, there is also loads of info on the main bcc site here, including advice & support on helping children with what’s going on. There is also the helpline here if you need to talk things through x