04-10-2018 07:37 PM
Hi ladies, sorry you find yourself here. However, you are not alone. At this point in time you will be feeling it is all surreal, and I can remember feeling so anxious and angry and weepy at this stage. Once you have your treatment plan, if you are like me, you will feel more in control. I found the fear of the unknown almost overwhelming. There are loads of leaflets on here to help you understand your diagnosis and your treatment. Telling those close to you is very personal. I wrote myself a little script and just told my nearest and dearest. The more I said it then the real- er it was and the better I coped. Others feel very very different. There is info on here, though, to help with that. Ask questions on here. We will all try to help you through. Good luck, and best wishes. 🍀
04-10-2018 06:03 PM
Sorry to hear about your diagnosis. Sorry to hear also that you are having to flip your brain to process the change in your treatment plan. Sometimes I really think they should not say such and such will be happening until all the results are through, especially regarding Her2 results.
Anyway, regarding the grade and stage - the grade will be a 3 as, to the best of my humble knowledge, all Her2+ tumour cells are deemed a grade 3. As you know the stage is different ( I was stage 2, grade 3, Her2+ ER+ PR+). Hence the chemo first should hopefully knock the socks off it before surgery and also will allow the admininstration of Herceptin (or alternative) to treat the Her2 element, either during the last few chemos or after chemo. I also had chemo first by the way. I think one of the main benefits of this is that they can ascertain the impact of the chosen chemo - something which can not really be seen if it is given afterwards.
Anyway, just wanted to wish you all the best. I hope you do not have to have such a long journey for all your medical trips and treatments.
03-10-2018 10:27 PM - edited 03-10-2018 10:28 PM
Back from 100 mile round trip for results. 3cm tumour, Getting muddled up between stages and grades but its a 3. Her2+ ER+.
They have decided not to operate on Saturday but to go down the chemo route first, so a trip to the oncologist instead. Havign reconciled myself to surgery, need to readjust. Brain is scrambled.
30-09-2018 09:38 AM
29-09-2018 03:20 PM
Has the core biospsy on Wednesday evening, during which they found a couple of further lumps, so they did FNA on both of those. Consultant advised that he will be operating next Saturday as the lymph nodes definitely have to go, and the results of the cb will determine the extent of the surgery. So now we wait until next Wednesday evening. Finished work on Friday for 2 weeks holiday and suddenly feel exhausted and can't get motivated to much more than load the washing machine! Felt very weird when I left work as I'm not not entirely sure when I will be back so it got quite emotional with some of the team.
24-09-2018 02:49 PM
24-09-2018 10:43 AM
Admiring you're positivity. Feelings have gone from surreal over the last few days to weepy today. Everyone is back to work and school and just the new pup for company. Just had a call giving me an appointment for core biopsy on Wednesday and I think that's made it all a bit real.
22-09-2018 03:57 PM
22-09-2018 03:34 PM
I was diagnosed yesterday after mammogram, utlra-sound and fine needle aspiration. At this stage we don't know what type, but will be having a biopsy hopefully this coming week and treatment plan should be ready in 2 weeks time.
I have a significantly sized breast lump which I ignored for longer than I should have as I had a very similar lump in the right breast a few years back which disapeared on its own. While waiting for my breast clinic appointment, a lump appeared in my armpit so I was lucky to get a cancellation. Everything feels rather surreal and as many people seem to find, I'm finding it difiicult telling those close to me. I have 5 youngsters aged 17 (twins) - 24. One fo the twins has an eating disorder and my 20 year old son has had a number of mental health issues this year, so it's tough on everyone.