11-01-2017 10:49 PM
Sounds good news about your ms Marydan. My friend had a relapse last October, having been stable for many years, and that was down to work stress. She is improving again, but waiting for MRI results.
Zena - you don't need to go anywhere. We're a diverse bunch of ladies all with different diagnoses and at different stages, but we all support each other through shared experience of this horrible disease.
Strudel - well done on working today. I popped in to school on Monday for a couple of hours and still not recovered. Don't know what's up this week but I feel really unsettled and anxious - keep worrying that my pathology results are wrong etc, and I think I'm driving my oh mad - he has been so patient through all of this but he told me tonight that I just need to get on with it and move forward - there, my eyes are leaking again at what I perceived as his total lack of understanding. I need to borrow the superhero pants - who's got them at the moment?
11-01-2017 10:44 PM
11-01-2017 10:35 PM
11-01-2017 10:14 PM
11-01-2017 09:31 PM
Hello to all my lovely friends,
Well have my brain and spinal mri results back for the multiple sclerosis.
The brain scan shows no new lesions/progression which is great but there are a couple of lesions on the spine (thoracic and cervical area of spine) which the neuro says is in keeping with the symptoms I had during the scary b.c journey. My first ever relapse.
The neurologist did say as I have never has a spinal mri before there is nothing to compare it with therefore they could be old ones.
My way of dealing with it is to tell myself they have been there for ages and its onwards and upwards.
The fact I recovered so well from the relapse and the fact I cannot take any meds for the m.s due to the tamoxifen (oncologist had said) there really is no point in worrying now.
My lower back still aches but as I had the full spine mri I am putting it to the back of my head as best I can. Lots and Lots of love to you all, you are all truly an inspiration . Mary xxxx
11-01-2017 09:31 PM
Yay go girl, robotic demolition machines bet you can have some fun with them, I have seen them on the TV really good for use in tricky building demolitions.
I must admit my seroma went on its own, same as you uncomfortable but bearable, it did take several weeks though
11-01-2017 09:27 PM
Hiya my dear.
Well I am 14 down and 6 to go. On the whole they have not been too bad, I was using bth E45 andaloe vera, but last friday the radiographer said just use the E45 and keep it in the fridge. I have generally been ok keeping up my water drinking to over 2 litres a day, it is supposed to help with the dehydration which contriubtes to the fatigue. Area around the nip is a bit leathery looking and is itching today, they just said to use the E45 and that keeping it in the fridge, the E45 not the nip!!, should help with that.
I generally find that I have a sleep for about 20 mins after although I have just realised I have not done that today and i have been feeling cold in the evenings but I am not sure whether this is to do with the rads or the tablets, I have decided to wait to see what happens once I have finished them to see if this goes xx
It is really is quite easy the session itself, takes about 10 minutes all told that is including getting on the bed, getting postioned correctly, the rad itself and then getting off the bed so very doable.
One thing I was told to do was to not wear my bra as much as possible, but i found that this was causing the nipple to rub against my top, my friend bought me a cotton vest bra top which has really been a massive help this past 5 days.
I think the hardest thing is the driving to and from the hospital it is very tiring
Hope that helps, if you think of anything and I can help with it just let me know xxx
11-01-2017 09:16 PM
11-01-2017 09:08 PM - edited 11-01-2017 09:09 PM
I always love reading your posts.
My seroma has come back and I now look like I have had a breast reconstruction again - but the hospital said that they would only be able to drain it another 2 times, so I'm going to leave it and let it absorb back into my body, it's uncomfortable but bearable.
My other boob hurts right near the nipple, I'm not sure if it is period pains, as I was told to come off my pill way back in November, but I haven't had a period, but I'm getting really bad stomach pains.
I'm on my third day back to work - it's so lovely, just carrying on pretending nothing has happened. I work with robotic demolition machines and love going into work. I'm left to do what I want, when I want, just as long as everything gets done, everyone is happy.
My new hat for my bald head arrived today and the onicolife drops for my nails - still doesn't seem real though.
Hugs to you and everyone else.
11-01-2017 08:24 PM
11-01-2017 06:26 PM - edited 11-01-2017 06:29 PM
Helena - I hope your rads went o.k. today - how many left now? I know they finish on my birthday, so a double celebration 😀😀😀
Strudel & Emily - what are your treatment plans - I don't seem to be able to keep up with all comments, have you both escaped chemo?
11-01-2017 04:38 PM
I went back to work 6 weeks after my op, only doing 3 days and 4 hours a day at the moment, they wont let me do any more until I am finished my rads, which is next Thursday
It does help I think to keep your mind off things, if you can do it but it very much depends on the type of job that you do I suppose if it enables you to, I work pretty much on my own and have no real timescales for my work, it is just on-going.
It is amazing how your perspective on life and what is important changes isnt it.