Highlighted
Member
Posts: 138
Registered: ‎10-08-2018

Re: Hi

[ Edited ]

Hi again Laura, I was just tootling around to see if there are any specific events/support sessions for younger women like yourself?

 

If on this site you go to Home - Information and Support - Support for You . . . . I found a page that lists 'Younger Women Together' events, so maybe if you have a look and see if anything is near to your part of the world, maybe that would help a bit with supporting you? There's a contact number, and as limited numbers, you have to book?

 

If this of help to any other ladies under 45 ?  ( Also the ' in your area ' heading might be of some help? )

 

Many hugs xx

Member
Posts: 258
Registered: ‎13-08-2018

Re: Hi

[ Edited ]

Hi Laura-I've just caught up with your posts. I'm so sorry to hear about your diagnosis, but more importantly that you didn't have much time to prepare yourself emotionally. It sounds like the "urgent" need for your mastectomy has made this even more difficult for you, in that you didn't have time to process what is happening. I feel for you. The emotional part of this journey can be as difficult if not more, than the physical. 

 

You'll see that once you start your counselling, you'll start to feel better-at the minute it must feel like your emotions are being left behind, i.e., the surgery happened at such a fast pace/rate that there was no time to get your head around what was happening. 

 

Allow yourself to cry, to feel angry, to feel in denial...all those things. It's all normal and everyone goes through the emotions at their own pace. It's a necessary part of the process-to honour your emotions and experience them as and when they surface. I am sure I speak for everyone here in saying we are all rooting for you. xxxx

Community Champion
Posts: 3,167
Registered: ‎17-03-2016

Re: Hi

It will settle down, Laura. Of course you’re going to feel shock & denial & that’s just fine to feel as you do. As JaneB says, be guided by your team & do ask them if you need anything clarified.
There is a place for it, but at this stage, general googling is not helpful. If you need to talk things through, then do give the helpline here a ring 0800 800 6000
Sending hugs
ann x
Member
Posts: 156
Registered: ‎29-05-2018

Re: Hi

Hey Laura....the most important thing right now is to focus on what everyone in your care is telling you. Stay away from Dr Google as that will really confuse you! Hang on in there girl....there’s lots of support and advice on here to help you along this roller oaster ride xxx
Community Champion
Posts: 1,573
Registered: ‎19-04-2017

Re: Hi

Hi Laura,  I can only assume its IBC and if it is IBC I recommend you join this FB group:  https://www.facebook.com/groups/ibcsupportuk/

Its nice to chat generally on here with others and there is a lot of knowledge but make sure you're not missing out on specialist knowledge.  Best wishes. xxx

Member
Posts: 7
Registered: ‎06-09-2018

Re: Hi

Aww thankyou so much. Is nice too off load it's so much easier to talk to people who understand what you are going through and understand. I'm going to have a look at some fb chats, thankyou. Mine is rare I keep getting called unique off my breast care nurse haha only 1% of woman get this type of breast cancer at 31 years old I've lost a breast and dealing with all this in 3 weeks i havnt had time to absorb I feel so lost and confused xx
Community Champion
Posts: 1,573
Registered: ‎19-04-2017

Re: Hi

Hi Laura,  Sorry you find yourself here.  It is a very anxious time early on and very scary so come on here for support as much as you need to.  Sometimes you need somewhere to offload away from your loved ones.  Your diagnosis sounds very similar to mine.  Here's my story:  http://lifeafterlola.com  If your diagnosis is IBC, there is an IBC facebook group which you may want to join for specialist advice.  If you follow the links provided by others below the FB group link is on one of the threads.  Sending hugs.  xxx

Member
Posts: 7
Registered: ‎06-09-2018

Re: Hi

Thankyou so much its nice that every one is going through the same thing and that I can come on here and people will talk to you it's very comforting 😊 your so right it is a journey but we've all got to get through it. I just want to start my chemo think mine will be end of Sept xxx
Member
Posts: 138
Registered: ‎10-08-2018

Re: Hi

OMGosh Laura, you dear girl, I too am sorry you have to join in with us, but you are so warmly welcomed.

We never close, so daytime, nightime, weekends, you come and write away and very often, even in the early hours, someone may be around to send you some comforting words and a hug.  Or you can sift through and find help from past posts and experiences.

 

I always describe it as having a ticket for a journey that none of us wanted to go on  -  but while we find ourselves here, then camaraderie and sharing is what we do.

 

Hugs aplenty xx

Member
Posts: 7
Registered: ‎06-09-2018

Re: Hi

Aww it's a total shock. My tumour was 10cm across my right breast, had a ct scan the day before went in on the Friday it had to be removed. Just waiting for an appointment to start my chemo I just want to start and get it over with. I'm in denial my breast care nurse is sorting out a Councillor to speak too xx
Member
Posts: 7
Registered: ‎06-09-2018

Re: Hi

Aww thankyou so much I really appreciate it. Its been a total shock all I'm concentrating on is my family I'm still in denial. I'm so worried about the chemotherapy.
Community Champion
Posts: 1,763
Registered: ‎19-08-2016

Re: Hi

Hi Laura
Welcome to the forum.
I'm so sorry that you have found yourself here. But there will be lots of ladies that will come forward and help and support you as much as possible.
The first few weeks are the worse. Try to give yourself plenty of time to recover both physically and mentally. Things will settle down. Once your treatment plan is in place, it will get easier to process.
Please come and chat whenever you want.
Sue xx
Community Champion
Posts: 3,102
Registered: ‎08-03-2015

Re: Hi

Hi Laura, I'm sorry you have had to join us but a warm welcome all the same 😊 

Can I ask why you had an emergency mastectomy? As Its not usually an emergency situation. I had a rare form called tubular cancer . Have they told you what type you had or what happens next? 

It is all a shock to begin with but once you know what is going to happen it really does help Xx 

 

 

Community Champion
Posts: 7,670
Registered: ‎29-05-2015
Community Champion
Posts: 7,670
Registered: ‎29-05-2015
Community Champion
Posts: 3,167
Registered: ‎17-03-2016

Re: Hi

Hi Laura,

So sorry to see you here, but glad you found us, there's loads of support from all of us here.

It is a horrible shock when first diagnosed, so to feel as you do is usual at this stage & we've all been there to varying degrees.  In addition, you have a rarer bc diagnosis to get your head around. Do you know what type of bc it is? Between all of us here, we've been through all of what bc can throw at us.

It will feel better once your treatment plan is in place & you start treatment, do look at the 'going through treatment' threads & join the monthly chemo group if you feel it would help.

Sending loads of hugs, the early days of diagnosis are the pits, but it does move on.

ann x

 

 

Community Champion
Posts: 7,670
Registered: ‎29-05-2015

Re: Hi

[ Edited ]

Hello Laura ,welcome to the forum - you must be in shock after having to deal with diagnosis and surgery so soon afterwards - there is lots of support and advice here.Have you been diagnosed with inflammatory breast cancer - there is a section on the forum relating to that ?There are also monthly support threads for ladies starting chemo around the same time which should give you lots of advice and moral support .I will post you a couple of links .Jill xx

Member
Posts: 7
Registered: ‎06-09-2018

Hi

Hi I'm 31 and just been diagnosed 3 weeks with breast cancer then 2 days later I had to have an emergency mastectomy. I am just waiting for an appointment to see my oncologist to start my chemo. I have a rare type that only 1% of woman get. I'm really confused and don't know what to do.