08-09-2018 05:39 PM - edited 08-09-2018 05:40 PM
Hi again Laura, I was just tootling around to see if there are any specific events/support sessions for younger women like yourself?
If on this site you go to Home - Information and Support - Support for You . . . . I found a page that lists 'Younger Women Together' events, so maybe if you have a look and see if anything is near to your part of the world, maybe that would help a bit with supporting you? There's a contact number, and as limited numbers, you have to book?
If this of help to any other ladies under 45 ? ( Also the ' in your area ' heading might be of some help? )
Many hugs xx
07-09-2018 12:10 PM - edited 07-09-2018 12:10 PM
Hi Laura-I've just caught up with your posts. I'm so sorry to hear about your diagnosis, but more importantly that you didn't have much time to prepare yourself emotionally. It sounds like the "urgent" need for your mastectomy has made this even more difficult for you, in that you didn't have time to process what is happening. I feel for you. The emotional part of this journey can be as difficult if not more, than the physical.
You'll see that once you start your counselling, you'll start to feel better-at the minute it must feel like your emotions are being left behind, i.e., the surgery happened at such a fast pace/rate that there was no time to get your head around what was happening.
Allow yourself to cry, to feel angry, to feel in denial...all those things. It's all normal and everyone goes through the emotions at their own pace. It's a necessary part of the process-to honour your emotions and experience them as and when they surface. I am sure I speak for everyone here in saying we are all rooting for you. xxxx
06-09-2018 10:45 PM
06-09-2018 09:20 PM
06-09-2018 09:18 PM
Hi Laura, I can only assume its IBC and if it is IBC I recommend you join this FB group: https://www.facebook.com/groups/ibcsupportuk/
Its nice to chat generally on here with others and there is a lot of knowledge but make sure you're not missing out on specialist knowledge. Best wishes. xxx
06-09-2018 09:12 PM
06-09-2018 08:59 PM
Hi Laura, Sorry you find yourself here. It is a very anxious time early on and very scary so come on here for support as much as you need to. Sometimes you need somewhere to offload away from your loved ones. Your diagnosis sounds very similar to mine. Here's my story: http://lifeafterlola.com If your diagnosis is IBC, there is an IBC facebook group which you may want to join for specialist advice. If you follow the links provided by others below the FB group link is on one of the threads. Sending hugs. xxx
06-09-2018 07:55 PM
06-09-2018 07:44 PM
OMGosh Laura, you dear girl, I too am sorry you have to join in with us, but you are so warmly welcomed.
We never close, so daytime, nightime, weekends, you come and write away and very often, even in the early hours, someone may be around to send you some comforting words and a hug. Or you can sift through and find help from past posts and experiences.
I always describe it as having a ticket for a journey that none of us wanted to go on - but while we find ourselves here, then camaraderie and sharing is what we do.
Hugs aplenty xx
06-09-2018 07:35 PM
06-09-2018 07:04 PM
06-09-2018 07:04 PM
Hi Laura, I'm sorry you have had to join us but a warm welcome all the same 😊
Can I ask why you had an emergency mastectomy? As Its not usually an emergency situation. I had a rare form called tubular cancer . Have they told you what type you had or what happens next?
It is all a shock to begin with but once you know what is going to happen it really does help Xx
06-09-2018 06:59 PM
So sorry to see you here, but glad you found us, there's loads of support from all of us here.
It is a horrible shock when first diagnosed, so to feel as you do is usual at this stage & we've all been there to varying degrees. In addition, you have a rarer bc diagnosis to get your head around. Do you know what type of bc it is? Between all of us here, we've been through all of what bc can throw at us.
It will feel better once your treatment plan is in place & you start treatment, do look at the 'going through treatment' threads & join the monthly chemo group if you feel it would help.
Sending loads of hugs, the early days of diagnosis are the pits, but it does move on.
06-09-2018 06:58 PM - edited 06-09-2018 07:01 PM
Hello Laura ,welcome to the forum - you must be in shock after having to deal with diagnosis and surgery so soon afterwards - there is lots of support and advice here.Have you been diagnosed with inflammatory breast cancer - there is a section on the forum relating to that ?There are also monthly support threads for ladies starting chemo around the same time which should give you lots of advice and moral support .I will post you a couple of links .Jill xx
06-09-2018 06:22 PM