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Double Mastectomy

9 REPLIES 9
Member

Re: Double Mastectomy

Aw thank you for your message. Gosh, you’ve been through the mill, poor you.  I’m going to order a v shaped pillow now! I think it’s the fear of the unknown. But hearing from people that have gone through it is so reassuring, especially to a wimp like me 😅 xxx

Member

Re: Double Mastectomy

I had a mastectomy one side, then a mastectomy other side 7 weeks later with axillary node clearance of the first side. (lobular one side, ductal the other) - they only found the second because of MRI after first surgery. I had a drain in after the second op, but not the first. Drains are OK as long as you remember to pick them up when you move! There is surprisingly little pain post-op, can usually manage it with paracetamol and ibuprofen. If you've ever had any abdominal surgery, that is much more painful. Do the exercises they give you, that is really important. And get front fastening tops so you don't have to pull stuff over your head. I found a V-shaped pillow very helpful after having both sides operated on. Also, expect to get tired very quickly for several weeks.

I think everyone worries about a general anaesthetic (I do and I'm a doctor!). I took my teddy bear down to the anaesthetic room and woke up back on the ward with him tucked in next to me.

All the best for your surgery

Member

Re: Double Mastectomy

That is very hard for you having to drastically change your plans and having a 10 year old to support as well, My girls are grown up so I am not in that situation which must be awful for you.

Like you I am a happy person and loves a joke and had just been offered a job interview which I declined , glad I did as it took almost 3 months for my diagnosis.

i am so glad you found this forum and really hope it continues to offer you support, I feel it has become a good friend . Stay in touch and look forward to hearing from you xxx

Member

Re: Double Mastectomy

Oh bless you. We were about to exchange on our house and buy a farm in Wales, but we pulled out at the last minute. I have 4 boys, youngest is only 10, the others are over 18, but I thought he needed his little friends. Getting the diagnosis is life changing even before any treatment. Like you, I suddenly fall apart, all I can see is doom and gloom. I’m not like that normally, I’m a happy person and like to joke around. See if there’s a support group near you that you could go to? The idea of you stuck on the sofa all day is not good! Flask of tea or coffee was another tip, I don’t think we’re allowed to lift a kettle 🙄 xxx

Highlighted
Member

Re: Double Mastectomy

Hi Pip

Had not thought about not getting off the sofa,guess I will be stuck till my husband gets home!

I have my positive times and then it all falls apart, I am sure that it  will be the same for you.I moved to where we are now and worked up until July and thought it would be nice to have a few months to do what I wanted so have never had time to make new friends so chatting on this forum has really helped me not to feel alone.

Tough times ahead but I am sure you will have comfort by speaking to others.

Annie xxx

Member

Re: Double Mastectomy

Thank you so much for your reassuring message. You sound so positive even after all you have been through. Amazing! 

I have Grade 2 Invasive Ductal Carcinoma and Grade 3 Invasive Ductal Carcinoma + DCIS, and I’m having a Sentinel Node Biopsy / OSNA.

I don’t know what DCIS and OSNA stand for, but will have a look on here. 

I will open my mouth when I have the op, I’m good at keeping quiet 🙄 

I nearly didn’t join this, already, I’m so glad I did. 

Thank you again x

Community Champion

Re: Double Mastectomy

Hi Pip, sorry you have had to join this club, but you have come to the right place for help and support. I'm not the right person to answer your questions as I had a lumpectomy and full node clearance, but I'm sure that someone will be along shortly . I just wanted to assure you that you are not alone, and that all of us here understand what you are feeling. You don't say what grade or stage you are, but if I can tell you I have had surgery, chemo, rads and have secondaries but am going strong two years later, I hope it gives you hope. 

 I filled in my pre surgery info and stressed my concerns strongly re anaesthetic ( I don't do well) and my fear of sickness( I really really don't do well!) My anaesthetist visited me on the ward and had addressed both my concerns, so my op went like a dream. My after care from the community nurses was fab, and I made sure hubby had the kettle on and treated them as friends when they visited. I had a drain in as I had LN clearance , and it was a bit painful, but all manageable. Make sure you follow instructions and take all your pain meds. My nurses were very firm on that point. There are a lot of really helpful booklets on this site which I down loaded and used for hospital visits. My mind was in turmoil, so it was helpful to read up on the different stages ( don't get too far ahead!!!) so I could discuss procedures and stages of treatment with the different consultants. I would really recommend the pathology pamphlet as I didn't have a clue what all the initials stood for. From now on you will have a whole team of experts looking after you, who will meet weekly to chart progress and treatments. I hope your team is half as good as mine was/ is.  I wish you all the very best in your journey , which is not easy but very achievable . X💐 🍀

Member

Re: Double Mastectomy

Oh Annie, 

I’m so sorry you are on here too. Everyone is very positive to me about it all but I can’t stop worrying. I was told the op won’t be as bad as I imagine, but it seems such a huge thing for us to have done. Let’s hope we won’t find it as bad as we think 🤞 

Those practical ideas are great, thank you. I’m buying button up tops, to save me trying to pull a top on and slippers that I can slide on. A friend also suggested sitting in an upright chair with arms on, she thought it would be easier than trying to get off the sofa. 

I feel totally fine in myself, strange that it’s going on inside and how poorly I’m going to be.

We MUST keep our chins up, she says.

Love Pip x

Member

Re: Double Mastectomy

Hi Pip

sorry you have had to find this sight , I am fairly new and only joined last Thursday after being told I needed a Mastectomy and a breast reduction to gain symmetry,when you are told shock does not even come into it when you do not see it comming so my thoughts are with you.

I can not offer you advice post op but I was informed the pain will not be nearly as bad as when I had keyhole surgery to remove a polyp near my appendix, so I am holding on to this.

although I will get my date next week I am stocking up my cupboards and have donated to charity any thing I will not wear again, but I guess we all do things in a different way.

i hope someone can offer you advice, take care.

Annie x

Member

Double Mastectomy

Hi All, 

 

After a routine mammogram, as I’m nearly 50, I was called back. Then had biopsy’s from both sides, so painful. A week later was told I have 2 sorts of cancer, different ones each side, one being aggressive. I was devastated as it was a total shock, I had no symptoms whatsoever. Had another biopsy, then had a meeting with the surgeon. He has advised me to remove both sides and they will remove my Sentinel nodes. I’m having the surgery 27th February. 

 

I am dreadfully squeamish, so I’m totally dreading the whole thing. Also, I have huge boobs, 36K! Thankfully, I have never liked them, I’m more worried about all the needles, stitches etc.

 

I go back 2 weeks later for results and treatment plan. 

 

If if anyone has any ideas of how to help me after the op, I’d be so grateful. 

 

Much Love

 

Pip xxx