Community Champion
Posts: 4,276
Registered: ‎16-11-2016

Re: Diagnosed yesterday

Daisy

 

So glad to hear that you are feeling better today, keep it up mate and that will really help you get through, along with us lovely lot on here Smiley Happy

 

We kids dont miss a lot do we? 

 

Sending you a lovely hug

 

Helena xxxx

Community Champion
Posts: 4,276
Registered: ‎16-11-2016

Re: Diagnosed yesterday

Mai

 

Sorry I have only come on here for the first time today so just seen your post.

 

If you are having problems copying and pasting from here.  Go to the main page for this site, look for a heading at the top Information and Support, over on the right hand side there is a box headed Information and Support, click on download and order publications and it will take you to them all. They can all be downloaded as a pdf and are listed in alphabetical order so just scroll through until you get to the one your want.

 

If you want to paste from my post, you need to highlight the line, press the ctrl button hold it down and then the letter c, then go to your search bar at the top of your screen, press ctrl holding it down and then press the letter v, this will paste the link into the search bar, then press your return button.  It should take you to the booklet you want.

 

Helena xx

Member
Posts: 15
Registered: ‎18-05-2017

Re: Diagnosed yesterday

Hi Helena

 

Thank you for these links. We've told our eldest daughter and she took it well, she said she'd already guessed! So I'm glad we were open and honest with her. She's very smart and doesn't miss a trick!

Just got to tell the youngest now and I'll use the "Mummy's Lump" booklet as a guide for the language to use although I think she would find the book a bit babyish. She's 7 going on 14 Smiley LOL xx 

Member
Posts: 15
Registered: ‎18-05-2017

Re: Diagnosed yesterday

Hi Mai, I think it's the not knowing that's the worst. The distraction advice is good, I need to stop moping around in self pity! Sorry to hear about your chemo treatments :[ xx 

Member
Posts: 15
Registered: ‎18-05-2017

Re: Diagnosed yesterday

Hi Sam, you've hit the nail on the head! That's exactly how I've been feeling. Thanks for the reassuring words, I hope you're doing ok xx

Member
Posts: 15
Registered: ‎18-05-2017

Re: Diagnosed yesterday

Hi Anniej, that sounds like great advice. I've not really moved from my bedroom since the diagnosis but today I'm feeling a bit better and able to face the world. Sorry for the delayed response, my account was blocked so I was unable to log in. At least it gave me something else to vent about! :] xx

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Community Manager
Posts: 1,494
Registered: ‎01-05-2012

Re: Diagnosed yesterday

Dear everyone

 

Thank you for the wonderfuol support you are offering to Daisy52.  She is not ignoring you but we are having some issues with her accessing the Forum.  We are working hard to sort out the technical issue and she will be back to respond to you all asap.

 

Best wishes
Anna
Digital Community Officer

Member
Posts: 334
Registered: ‎19-04-2017

Re: Diagnosed yesterday

Ladybowler, how do you paste those threads, I've tried to work it out without succes! 

Member
Posts: 334
Registered: ‎19-04-2017

Re: Diagnosed yesterday

Hi Daisy, sorry to hear of your diagnosis and welcome to our friendly club that none of us wanted to be in. The beginning is the worst time whilst you wait for scans, tests, results and  decisions because whilst you are waiting your mind spirals out of control with anxiety and worst case scenario. I felt like every ache and pain in my body must be cancer spreading rapidly. (Of course it wasn't). Try and find something to distract your mind a bit, like Anniej said, look at getting healthy for treatment and immerse yourself in that. About me: Im 48 and was diagnosed at the end of Marchbwith stage 2 locally advanced invasive BC 5cm tumour on the left and 4 local nodes. This makes me a "must have" for chemo so team didn't even need to oncotype me! I started my first of eight FEC-T chemo treatments on 27th April and my second was yesterday. I've generally felt  really well and my side effects have been minimal. I know it's hard but try not to worry, have a nice camomile tea and light an aromatherapy candle and give yourself some "me" time before you try to sleep. Take care. X

Member
Posts: 16
Registered: ‎17-05-2017

Re: Diagnosed yesterday

Hi Daisy. Sorry to hear your news. These ladies are amazing. They are there with kind words and practical advise. I am 3 days ahead of you and found this on my bad day. Sitting there bawling your eyes out thinking there is no-one to turn to and all you need to do is log on. Someone is here to help and tell you that everything you are feeling is totally normal.

Sam

Member
Posts: 434
Registered: ‎21-01-2017

Re: Diagnosed yesterday

Hi Daisy, sorry to hear you're news. It's quite natural to be confused and scared at this stage as the unknown is scary. I had to wait two weeks for the path results,  but then there was another weeks wait while the medical team decided on the course of treatment. Probably the worst period of my life, so I know where you're coming from. I can't answer your medical questions, but I can offer a few tips that worked for me. DO NOT Google . Use this site for info, and the forum for friendship and support. Chunk the journey down into small steps. It's more manageable that way. Keep busy and distract your mind. Keep a diary, and note down questions you need answers to, advice you are given, and emotions you need to vent. You are about to begin a marathon. You won't believe the tests you need before you start your treatment, so get fit and make sure your diet is healthy. This will give you back some control. Finally, BC is so very treatable, and although it's not an easy journey you WILL make it . Best wishes for your results. X

Community Champion
Posts: 4,276
Registered: ‎16-11-2016

Re: Diagnosed yesterday

Daisy

 

In terms of close friends, I basically waited until I had my  biopsy results and care plan.  I then told them that it was good bad news, the bad news was it was cancer but the good news was it was treatable, I had treatment plan that I could share with them if they wanted and that the outlook was extremely good.

 

I did not tell my mum until I had got through my op and had the results as I wanted to be able to tell her exactly what was going to happen going forward, previously all I would be able to tell her was that I was going to have a a cancerous op removed, she is 83 and does not live close by so I did not want to have the worry of her worrying about me, and I know she would have done loads of that, she was not very happy with me but totally understood why I had done it that way.

 

Helena xxx

 

 

Community Champion
Posts: 4,276
Registered: ‎16-11-2016

Re: Diagnosed yesterday

Daisy

 

Oh I am so glad to be of help xx

 

There are these two booklets not sure how old they are so might not be suitable.  I do not have children so can not help on that one but I am sure the other ladies will be able to let you know how they handled it with their childnre

 

https://www.breastcancercare.org.uk/information-support/publication/mummys-lump-bcc164https://www.br...

 

https://www.breastcancercare.org.uk/information-support/publication/talking-your-children-about-brea...

 

Helena xx

Member
Posts: 15
Registered: ‎18-05-2017

Re: Diagnosed yesterday

Thanks so much for this LadyBowler it's really helpful. They wouldn't give me my path results and told me to wait until Tuesday! All I've been given is two pamphlets on the type of cancer I have, plus two leaflets on reconstruction. It would have been helpful to have the general leaflet as I've already had to tell close friends and family and didn't know what to say. Also need advice on how to tell my children Smiley Sad
Community Champion
Posts: 4,276
Registered: ‎16-11-2016

Re: Diagnosed yesterday

Daisy

 

Hello and welcome to the forum where you will get loads of help and support from the wonderful ladies on this forum.

 

This is a scary difficult time when you are waiting for your results/ waiting for more results before your treatment plan can be finalised, but the thing to remember is each persons' treatment plan is individual to them so your team will want to make sure that they have got all of the information they need before finalising it.  I know this is not good for you as you have the worry, but you are in very good hands and they will get you through this.  Once you have your treatment plan it will set out cleary your diagnosis and what is going to happen and when.

 

There are some very useful leaflets on the information and support swection of the website but I have found the following links, especially the second one which might help you initially, if you cut and paste them into your search bar you will be able to download them as pdf files :

 

https://www.breastcancercare.org.uk/sites/default/files/publications/pdf/bcc44_breast_cancer_and_you...

 

https://www.breastcancercare.org.uk/information-support/publication/understanding-your-pathology-rep...

 

We are all here to help you so please do not hesitate to ask question because I am sure that there will be someone on here who will be able to answer them.  There is also the Ask our nurse board and the helpline number which is open 24/7 where you can actually speak to someone about anything. 

 

Please do not generally google as there is so much misinformation and out of date stuff on there, stick to this website or the Macmillan as they are the most up to date.

 

Sending you a hug and, I promise you that you will get through this and out the other side, so many of us have and are now leading our normal lives again

 

Helena xxxx

Member
Posts: 15
Registered: ‎18-05-2017

Diagnosed yesterday

Hi everyone, I'm so pleased I found this forum! I was diagnosed yesterday but have only been given limited info and have to go back on Tuesday to get more info and a treatment plan. It's awful as I now feel in limbo. I've been told I have 2 invasive lobular cancers measuring 7mm and 24mm in my right breast, and a DCIS in left breast of 7mm. They couldn't tell me whether I'll have to have a full mastectomy of the right breast or whether they can just remove the cancer. I'm scared and confused, I feel like have so many questions! I've been given some booklets about reconstruction but I don't even know if I'll be able to have it let alone which option to go for! Please can anyone advise? What questions should I be asking on Tuesday? Thanks Smiley Happy