I was diagnosed in November and agree that the waiting around before treatment starts is a truly traumatic and worrying time. My nurse told me it would get better once treatment started and it did. Like you I have invasive ductal cancer and am having chemo before surgery. I started chemo on 5th December and am on EC treatment. I had ultrasound after two sessions and was relieved to hear that the chemo is working. Thoroughly agree that the time of year did not help me either. I did not want to spoil anyones Christmas but mine was well and truly out the window.
Stay positive and once you have started you will feel a bit better.
Just a note anyone else start their chemo in December 2018
Hi Val. I just wanted to say that my Mum is in a very similar position to you. She had a mammogram recall and was diagnosed with a large tumour last week. They did biopsies of that and also some lymph nodes. These tests are positive but we don’t know the extent of lymph involvement. Last week they said definite mastectomy and maybe chemo/radiotherapy etc depending on staging and hormone results. Today the breast clinic consultant said probably chemo first before any surgery but was evasive about the reasons why. She also wouldn’t reveal hormone testing results saying that the team where my Mums treatment will be carried out will discuss this. Poor Mum is now worried sick about some info being revealed but not other. All the woman would say is that it’s not first stage! They seemed very surprised Mum wanted a frank discussion with everything laid out on the table. I hope you are going on ok and know a little more about your treatment plan. My Mum has been told she has to have a CAT scan and am presuming this is to check to see whether the cancer has spread.
Hello to you all, sorry you are here but glad to have you all the same!
It is the most difficult time when you have just been diagnosed, so many unanswered questions, new terminology to get your head round and those dreaded waiting times for results. I was diagnosed with Grade 2 ductal in April 2018. I had to have an MRI before treatment plan was sorted, they explained it was to give a clearer picture of what was going on. Gave a definite answer to location, size etc. Once they had this and the results of the biospy (which sorted out whether it was ER+ (oestrogen) or HER+) I was then given my treatment plan. Before I could start chemo I had to have a bone scan, a CT scan and a heart scan... all are straight forward and pretty standard as far as I have read.. they just want to get a clear picture before they start. Unfortunately a 2 week wait for any results seems to be pretty standard.. and boy do those 2 weeks seem a long while... but like others have said before... once the treatment plan starts you do feel more in control and glad something is happening.
Hang in there, call your BCN and ask questions if you are worried, thats why they are there and obviously come on here and chat, someone always around to answer.
Take care ladies
Hi! I was diagnosed this afternoon and head was reeling - just found your threads and forum which is very helpful and thankfully feeling more grounded x
I had grade 1 tubular cancer , hormone recepter positive and I never had an MRI, my treatment plan was lumpectomy, sentinel node biopsy, both came back clear so I went on to have radiotherapy and have been on tamoxifen just over 2 years, I will be on it for 10 years altogether.
Thanks for the reply. I am pretty resigned to waiting... And I keep reassuring myself that a week or two won't make that much difference.
Sorry for taking so long to respond. I'm doing fine although real life has taken over this last year, which is good thing I guess but has given me less time to spend here. I do know that you have had a very challenging time lately, to put it mildly. I'm so sorry about that and hope 2019 gives you some respite on that front. Happy new year and hope to catch up more this year.
Thank you for your reply. How long did it take from MRI to receiving your results? We have decided to tell the children while they are still on school holidays. Hopefully that will give us all time to process it. It will also explain why I keep having to go back to the hospital! I will keep you posted on how it went...
Happy New Year everyone. Onwards and upwards.
Hi ValBeach, sorry you find yourself here, especially at Christmas (but then there is never a good time to receive a diagnosis). You are right that this is the worst time whilst you are waiting with nothing being done and you can get very paranoid about cancer spreading. Once your treatment plan is in place you can chat with others going through the same on the "going through treatment" thread. Here is my story which I hope you find some comfort from : lifeafterlola.com. I hope you have a good New Year in spite of it all. xxxx
Hello and welcome to the forum, know it is not somewhere any of us would choose to be. Just wanted to wish you well for your MRI on Wednesday hope it all goes well.
As you can see on here we are a lovely bunch of ladies who will help and support you in whatever way we can.
I was diagnosed on the 21st December so I am with you 100%. I completely understand (as do most of us on here apparently!) the fear, frustration and thinking that it's growing as we speak! I have an MRI scheduled for Wednesday but that's because I have super dense tissue and they want to be sure of what's there. (The bit that freaked me out was the contrast chemical they will use!)
Like you, I just want it sorted. I haven't told my children and won't until we have a treatment plan. I am probably waffling now but just wanted to say I am with you and we're in this together! xx
Hello Val, so sorry you have had to join the forum, especially at this time of year when the waiting is likely to take a bit longer because of the holidays etc. This really is the worst time when you are waiting for results and want to know the whole picture. At this stage we all feel/felt helpless and distressed and I'm sure lots of other people here will come along and back me up on that.
Initially there is a lot of waiting around for the full story but once your team know the full picture and share it with you things will get easier. The vast majority of people who have BC will have sucessful treatment and go on with their lives. This period you are living through now really is the pits but you will get through it.
This time three years ago I was half way through chemo, facing Christmas with no hair and worrying I would feel too sick to enjoy it. I actually enjoyed that Christmas and I enjoy life now more than ever.
Do you have a date for chemo to start? Really don't fret about it too much. For the vast majority of people it's a lot less traumatic than you would imagine.
You will get lots of good advice and friendly banter here so stick around.