Community Champion
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Registered: ‎16-11-2016

Re: Diagnosed this week and very frightened

Susan

 

I had grade 1 tubular cancer , hormone recepter positive and I never had an MRI, my treatment plan was lumpectomy, sentinel node biopsy, both came back clear so I went on to have radiotherapy and have been on tamoxifen just over 2 years, I will be on it for 10 years altogether.

 

Helena xxx

Member
Posts: 677
Registered: ‎03-04-2018

Re: Diagnosed this week and very frightened

Strange, my recent cancer was lobular and I still didn't have an MRI.
Community Champion
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Registered: ‎29-05-2015

Re: Diagnosed this week and very frightened

Hi Susan ,I didn't have an MRI either - like Ann says certain types of cancer are harder to see on mammogram so MRI is needed .Higher grades of cancer and those where spread to lynphnodes is suspected may have MRI as a precaution but 95% of Breast cancers have not spread beyond breasts or lynphnodes so it really is a precaution .
Community Champion
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Registered: ‎17-03-2016

Re: Diagnosed this week and very frightened

Hi Susan,
As Sally says, not everyone has an MRI. It’s usually done for certain situations, such as if the intial biopsy shows ‘lobular’ bc. If it is ‘ductal’ it’s not usually done as this type of bc can be seen on mammogram more clearly. Lobular bc is more diffuse, so needs another imaging technique.
If you’re not sure, do check with your team.
It is a shock getting a diagnosis, so it takes time to get your head around, but we all do.
ann x
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Posts: 677
Registered: ‎03-04-2018

Re: Diagnosed this week and very frightened

I never had an MRI, either first time or this time so not everyone has one.

I had a bone scan and a CT scan this time to check for spread but 1st time round I never had then either. I think it depends on the size and grade?
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Member
Posts: 1
Registered: ‎11-01-2019

Re: Diagnosed this week and very frightened

Hi..just been diagnoised yesterday grade 1cancer...tteatment plan next week. Is an mri part of all plans. It was not mentioned at diagnosis meeting
Member
Posts: 6
Registered: ‎30-12-2018

Re: Diagnosed this week and very frightened

Thanks for the reply. I am pretty resigned to waiting... And I keep reassuring myself that a week or two won't make that much difference.

Community Champion
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Registered: ‎10-09-2015

Re: Diagnosed this week and very frightened

Hi Jill,

Sorry for taking so long to respond. I'm doing fine although real life has taken over this last year, which is  good thing I guess but has given me less time to spend here. I do know that you have had a very challenging time lately, to put it mildly. I'm so sorry about that and hope 2019 gives you some respite on that front. Happy new year and hope to catch up more this year. 

Take care.

Ruth

 

Member
Posts: 22
Registered: ‎20-11-2018

Re: Diagnosed this week and very frightened

My results took 2 weeks - pretty much each step has taken 2 weeks! So frustrating xx
Member
Posts: 6
Registered: ‎30-12-2018

Re: Diagnosed this week and very frightened

Bluetit,

Thank you for your reply. How long did it take from MRI to receiving your results? We have decided to tell the children while they are still on school holidays. Hopefully that will give us all time to process it. It will also explain why I keep having to go back to the hospital! I will keep you posted on how it went...

Happy New Year everyone. Onwards and upwards. 

xxx

Member
Posts: 22
Registered: ‎20-11-2018

Re: Diagnosed this week and very frightened

Interesting times - you sound very much like I was last month. We also chose to wait until I had a treatment plan before telling our children. Looking back we were right to do that as we wouldn't have been able to answer any of their questions. The MRI contrast injection is really easy, I bizarrely found it quite interesting. It didn't hurt at all, I was quite comfortable and it just felt slightly cool as it was pushed in half way through the scan. Be good to hear how you get on xx

Val- thank you for posting. I also had a large lump, seemingly much bigger than many who have posted here, which still frightens me. My boob is now off & I'm waiting for my chemo date. I also had a CT scan for bones, liver, lungs etc which by far has been my most anxious time so far. To reassure you, the scan itself was fine & very quick. The contrast dye they used was a warm one that sometimes makes you think you've wet yourself (I didn't feel that myself but thought it was worth mentioning in case they don't tell you!) The wait for results also was very quick but totally agonising. I'd love to hear how you get on, hopefully all good.

Keep in touch x
Community Champion
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Registered: ‎19-04-2017

Re: Diagnosed this week and very frightened

[ Edited ]

Hi ValBeach, sorry you find yourself here, especially at Christmas (but then there is never a good time to receive a diagnosis).  You are right that this is the worst time whilst you are waiting with nothing being done and you can get very paranoid about cancer spreading.  Once your treatment plan is in place you can chat with others going through the same on the "going through treatment" thread.  Here is my story which I hope you find some comfort from :  lifeafterlola.com.  I hope you have a good New Year in spite of it all. xxxx

HappyNewYear.JPG

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Registered: ‎30-12-2018

Re: Diagnosed this week and very frightened

Thanks Helena.

Community Champion
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Registered: ‎16-11-2016

Re: Diagnosed this week and very frightened

interestingtimes

 

Hello and welcome to the forum, know it is not somewhere any of us would choose to be.  Just wanted to wish you well for your MRI on Wednesday hope it all goes well.

 

As you can see on here we are a lovely bunch of ladies who will help and support you in whatever way we can.

 

Helena xxx

Member
Posts: 6
Registered: ‎30-12-2018

Re: Diagnosed this week and very frightened

Hi Val,

I was diagnosed on the 21st December so I am with you 100%. I completely understand (as do most of us on here apparently!) the fear, frustration and thinking that it's growing as we speak! I have an MRI scheduled for Wednesday but that's because I have super dense tissue and they want to be sure of what's there. (The bit that freaked me out was the contrast chemical they will use!)

Like you, I just want it sorted. I haven't told my children and won't until we have a treatment plan. I am probably waffling now but just wanted to say I am with you and we're in this together! xx

Community Champion
Posts: 3,165
Registered: ‎17-03-2016

Re: Diagnosed this week and very frightened

Yes Val, that is exactly how in feels in those grotty early days of diagnosis, we’ve all been there, but it does pass.
As ever it’s the not knowing & the ‘what ifs’ that’s so hard to deal with in the early days.
It’s quite normal to feel all over the place & it’s ok to feel the way you do.
Although it doesn’t feel like it, getting diagnosed means, thankfully, it can now be treated.
Loads of support here whenever you need it.
ann x
Member
Posts: 2
Registered: ‎22-12-2018

Re: Diagnosed this week and very frightened

Thankyou eveyone , it’s so lovely to be able to speak to other ladies . I feel like I’m sitting here with this “thing “ and nothings being done to get rid of it , which I know isn’t true . You think it’s spreading with every ilittle tinge you get in your body ! From what I’ve read it seems this can be the worst bit , tests , scans , more tests , and trying to get your head around having it as well , I’ve got to stay positive and except I will have down moments , Merry Christmas all you lovely , strong , positive ladies ( and men ) and thankyou for all your lovely words 😬😄
Jmm
Member
Posts: 2
Registered: ‎24-12-2018

Re: Diagnosed this week and very frightened

Hello Val. It's entirely understandable that being diagnosed with breast cancer is causing you to feel panicky, frightened and unable to eat or sleep. Four days after diagnosis, I blacked out, cracked my teeth and ended up with two black eyes! Not a pretty sight but it certainly took my mind off cancer! So you are in the hands of professionals who are well versed in working through all aspects of the process and getting data at every stage to inform the next step in the process. I too had a bone scan to potentially inform future medication choices. So sending you a virtual hug, and encourage you to look after yourself. It may feel that time moves slowly as you wait for your next appointment/set of results but as other people are saying, you are not alone, there is love, support and experience to draw upon if you choose to do so. xx
Community Champion
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Registered: ‎29-05-2015

Re: Diagnosed this week and very frightened

Happy Christmas Ruth ,hope you are doing ok ?
Community Champion
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Registered: ‎10-09-2015

Re: Diagnosed this week and very frightened

Hello Val, so sorry you have had to join the forum, especially at this time of year when the waiting is likely to take a bit longer because of the holidays etc. This really is the worst time when you are waiting for results and want to know the whole picture. At this stage we all feel/felt helpless and distressed and I'm sure lots of other people here will come along and back me up on that. 

 

Initially there is a lot of waiting around for the full story but once your team know the full picture and share it with you things will get easier. The vast majority of people who have BC will have sucessful treatment and go on with their lives. This period you are living through now really is the pits but you will get through it. 

 

This time three years ago I was half way through chemo, facing Christmas with no hair and worrying I would feel too sick to enjoy it. I actually enjoyed that Christmas and I enjoy life now more than ever. 

 

Do you have a date for chemo to start? Really don't fret about it too much. For the vast majority of people it's a lot less traumatic than you would imagine. 

 

You will get lots of good advice and friendly banter here so stick around.

 

Ruth xxxx