I was diognosed in August with the very same thing. i was completely unprepared. Looking back I dont think i behaved normally (what ever that is).
I just though 'fine, dig it out and let me get on with things'. it was several weeks before i began to imagine all sorts! ...and that by the way, is normal!
I was so eagre to put everyones mind at rest i played it right down. Annoyingly, (and i think people dont think sometimes) almost everyone wanted to tell me they knew someone who has cancer and proceeded to tell me stuff i really didnt want to hear. If they start that now i walk away. Can you believe people do that!
Consequently and perhaps naturally i began to worry about it.
If you are like me, your realising you 'thought' you knew a bit about cancer but you realise you dont. Its so complex! i worked in Pharmacy and dispensed a lot of cancer meds without understanding a lot. Try not to be afraid. I know thats like being told 'dont look', its the 1st thing we do!
Best advice i can give is listen to what the Doctors tell you. When they say its treatable its because it is!
I went off and did my own research because i couldnt grasp the information the Doctors gave me. That was not my brightest moment because i misunderstood loads and terrified myself.
Always take someone with you if you can! Your not gonna be good at taking in all the information and what you dont quite take in your imagination or guess work will fill in the gaps. NOT HELPFULL!
I was told that but thought i knew better. Ha!
It seemed to take ages to get me on the treatment plan. That happened in October as there was talk of me doing a drug trial but the trial was halted. Finally they decided to put me on Anastrazole and take the cancer out when the Anastrazole has shrunk it. That way it should minimise the impact of the surgery.
I go back next week to have it measured to check on progress and discuss the surgery.
Are you in the UK? Ive never joined a forum before.
Best advice i can give you is this,
Follow the medical advice
Take someone as a 2nd set of ears
Stay calm. (no dark imaginings)
Eat well and rest.
Dont keep it a secret and get all the support and kind words you can. They really do help keep you strong.
Congratulate yourself on how strong you are being.
Cry if you like, you are still being strong.
Take advantage of any sickness entitlement you have at work...and rest. You've had a shock.
i'm sending you all my best wishes!!! xxxx
Thanks Lilacmoon, I felt exactly the same & didn't go near google until after getting my final results after surgery, then when venturing on, found this fab forum!
Hello everyone, and special hellos to those newly diagnosed. I was diagnosed on 11 April, 33mm ductal invasive Grade 2, with some other spots. I had single mx (no recon) and SNB removal (3 nodes taken). The results showed the nodes contained some cancer cells so I have started chemo, had first one 3 weeks ago and due 2nd today. I am having 6 x FEC-T. I have to say the fear you have at the beginning of this journey is by far the worst part of all of this.... waiting for results, second guessing whats coming next etc. But as everyone has said once you know everything and have a plan things do get a bit easier, you still have ups and downs, tears, anger etc but you feel more in control. My MX was very straight forward, in and out of hopsitla in 5 hours, recovery quick, not very sore at all, arm movement back within 1 week and back driving. First chemo was no where near as bad as I imagined, done in 2 hours, and for the first 4-5 days felt a little sickness (took all the meds given!!) and very hungry, and a little tired, within 1 week back to feeling completley normal again. Not sure how it goes the further you go on but from everyone I've read on here, everyone manages, we all talk, offer suggestions for side effects, moan shout and laugh! Worst part was loosing my hair, but even after that, I've got used to it, very cool in thsi weather too!. Please join the treatment forums when you have a plan, they are so helpful and keep me sane. Take care everyone... Kip xx
Thank you for taking the time to reply, its very reassuring! I guess everyone is different. I am trying to build up strength before the 28th.
I certainly will join the monthly treads for chemo and treatment bits.
I hope you continue with no side effects.
All the best x
I am a company owner and director Ann, I work mainly at a computer all day and so should be OK. A month? Ooohhhh I’d be driven nuts! 😖😖😖😂😂😂
Sounds like ‘F1 heaven’ 😄 - for my husband especially, (big Formula One fan ! )
If not, Barbados would be def acceptable ...!
Fingers and and everything are crossed, for plans to be a goer !
That’s the plan Ladybowler! I have a summer of Motorsport to get stuck into! See my reply to a Thistledown...
And if the September plan goes tits up (couldn’t resist that) then Barbados here I come!
First off Thistledown, good luck for tomorrow. Your post op recovery sounds encouraging: I am having a lumpectomy to remove mine, and SNB too. Surgery Thursday, recovery Friday and weekend....then driving and back at my desk for Monday. The Thursday after that, a week post-op I am off to Silverstone for three days for Formula One. End of July I am off to Hungary for F1 again and....if everything goes to plan, I am off to Turkey for the World Rally Championship mid Sept after a month of rads.
THAT in a nutshell, is my perfect plan. 😂🙂❤️
That is good, JaneBelinda ! Let the next stage commence - you will breeze it for sure !
It was two weeks yesterday since I had my TM and full axillary node clearance, I go for path results and next stage of treatment plan tomorrow. Since I’m being hit with the old anxiety gremlins again (insufficient margins?and loads of infected nodes ? 😩) I decided to do something very bad.
We went out on our (elderly) cabin cruiser for a two hour trip to a favourite place, it meant negotiating two locks on the way there, so I was leaping off boat to moor it - (husband was driving) - opening paddles and lock gates with grim determination, untying boat and climbing back on to set off again, - and I thoroughly enjoyed it, was shattered at the end of the day but healthily so ! No ill-effects at all, and fresh air, birds, water lilies and jumping fish, dragonflies galore, bliss.
I reasoned that there would be no lifting of affected arm to 90 degrees needed, - luckily so as I still cannot do it... but I think exercises must be helping as I can lift my grandson up now (a heavy two and a half year old) without pain. The only discomfort I have is the actual underarm scarring, they are rather thick and nastily prominent as yet, hopefully Vitamin E oil will help to reduce them when I’m OK to use it..
So, the op will be fine for sure, and even if you are having nodes removed, - sure it is a bit uncomfortable, but very definitely manageable, do take care in the early days, but otherwise, thrash it !
( Fair dos - I know I shouldn’t have done a boat trip, but the red mist descended ! ) 😏
Anyway, back to gentle pursuits, Headspace app and mental visualisations (of killing this damn disease), and trying not to think of tomorrow and what that will bring.
Each step at a time though, have to remember that, don’t we ?
Thats great you have now got something to work towards and know it will not be long before you are the other side of it xxx
Exactly, Thistledown! It was like a revelation to them!
Part of my job ( I’m a creative head and senior designer/director in a graphic design company) is copywriting. That letter would have been filed straight under B (aka the Bin).
Well done 😄 !
Pleased to hear encouraging and positive results, and that in future, other women don’t get that insensitive remark... it’s really important not to have any doubts sown, we are all so vulnerable at this initial period and really need positivity and self-belief.... 👍- I think you got the point over beautifully, bet you walked into your business meeting with head high after that !
As you say, focus on recovery now - I’m doing that too, mentally building my arsenal and gearing myself up, with the rest of you, to face this and crush it.
Thank goodness for this forum....
All sounds good JaneBelinda and you sound quite chirpy too. Its unbelievable how sensitive we are to everything after a cancer diagnosis. I got upset in the MRI machine because they played some music which was a bit dark. Then I got upset as I was being wheeled into the operating theatre when they told me to "say goodbye" to my partner. Every day things which you wouldnt usually notice are magnified x100. xxx
Still getting used to this forum, but anyway, I am replying to all you girls kind enough to be joining me on this journey.
Short story is I am awaiting a lumpectomy including lymph nodes removal, Then hopefully rads and not chemo. Then tamoxifen for 5 years. So....feeling positive 🙂
I could go into my diagnosis in detail, Her 2 negative and such like, but I’d rather focus on getting over this.
PLUS best thing is...I suggested the consultant does NOT state in his standard letter to ladies’ GPs, that he gave Mrs / Miss X ‘the bad news’. In 12 years I am The ONLY person to have commented on this poor choice of words in what should be an impartial letter. Imagine receiving that, a few days after diagnosis? Sure, at the time it IS ‘bad news’ BUT....whatever the prognosis or eventual outcome, striking a positive mental attitude is a vital part of the cancer journey. So...just as we are building that positivity...WHAM! My initial reaction was...hey, I was told three days ago that my cancer was treatable and now my GP is learning I received ‘bad news’. What is my consultant hiding?
it did the trick! 🙂
Thanks Mai7, I will post tonight. Full working day for me after my meeting... I don’t mind tbh...it’s keeping me sane 😂
And I will be thinking of you on Sunday. This might happen with you...? Four days after my 50 minute long MRI and my arms, armpits and boobs still ache a bit. I guess due to the awkward positioning and freehanging boobs for so long! Just saying...so you don’t immediately panic and think it’s something more sinister!
Erm...that’s what I did, until I gave myself a sensible slap 😂
Thanks Thistledown. I will post on here tonight as I have a business meeting directly after my appointment x
Hugs for next week xxx
All the very best for tomorrow, fingers well crossed for you.
It’s such a merry go round, isn’t it - my turn again next week 😬, but you will be in my thoughts... and whatever choice you make, it will be the right one for you, as Kip says..
Keep those knickers close.
That’s what I tell myself! Don’t know what they have planned for me yet as I find that out on Friday but holding that thought is keeping me level headed during the waiting x
Thanks Fairy Dust...spinning a positive twist I quite fancy the idea of using my tummy spare. I lost 7 Stones about ten years ago...have kept it off but have a sort of flabby pouch! They can take that for sure! 😂😂
seriously....thanks for the support x