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Diagnosed this morning

92 REPLIES
Member

Re: Diagnosed this morning

Hello Janebelinda.

I was diognosed in August with the very same thing. i was completely unprepared. Looking back I dont think i behaved normally (what ever that is). 

I just though 'fine, dig it out and let me get on with things'. it was several weeks before i began to imagine all sorts! ...and that by the way, is normal!

I was so eagre to put everyones mind at rest i played it right down. Annoyingly, (and i think people dont think sometimes) almost everyone wanted to tell me they knew someone who has cancer and proceeded to tell me stuff i really didnt want to hear. If they start that now i walk away.  Can you believe people do that!

Consequently and perhaps naturally i began to worry about it.

If you are like me, your realising you 'thought' you knew a bit about cancer but you realise you dont. Its so complex! i worked in Pharmacy and dispensed a lot of cancer meds without understanding a lot. Try not to be afraid. I know thats like being told 'dont look',  its the 1st thing we do!

Best advice i can give is listen to what the Doctors tell you. When they say its treatable its because it is!

I went off and did my own research because i couldnt grasp the information the Doctors gave me. That was not my brightest moment because i misunderstood loads and terrified myself.

 

Always take someone with you if you can! Your not gonna be good at taking in all the information and what you dont quite take in your imagination or guess work will fill in the gaps. NOT HELPFULL!

I was told that but thought i knew better. Ha!

It seemed to take ages to get me on the treatment plan. That happened in October as there was talk of me doing a drug trial but the trial was halted. Finally they decided to put me on Anastrazole and take the cancer out when the Anastrazole has shrunk it. That way it should minimise the impact of the surgery.

I go back next week to have it measured to check on progress and discuss the surgery.

 

Are you in the UK? Ive never joined a forum before.

 

Best advice i can give you is this,

Follow the medical advice

Take someone as a 2nd set of ears

Stay calm. (no dark imaginings)

Eat well and rest.

Dont keep it a secret and get all the support and kind words you can. They really do help keep you strong.

Congratulate yourself on how strong you are being.

Cry if you like, you are still being strong.

Take advantage of any sickness entitlement you have at work...and rest. You've had a shock. 

 

i'm sending you all my best wishes!!!  xxxx

 

Community Champion

Re: Diagnosed this morning

Thanks Lilacmoon, I felt exactly the same & didn't go near google until after getting my final results after surgery, then when venturing on, found this fab forum!

ann x

Member

Re: Diagnosed this morning

Well said Ann xxx
This forum had helped me so much. I didn't start to come on here till my radiotherapy was about to start.
Up until then I couldn't face reading about or ploughing the internet about BC and I had to get my own head around my diagnoses and situation first before i started to read all the information available to us..
As said, none of us want to be in this club, but here we are so lets all help each other through it.
😊
Member

Re: Diagnosed this morning

Thank you ann , I am feeling surprisingly better than I was last week while I was waiting , today I feel less stressed x x
Community Champion

Re: Diagnosed this morning

Welcome to the forum, Jackie, although of course, you would rather not be here.
There’s loads of support here, so do come & chat or vent whenever you need to. We’ve all been there.
ann x
Member

Re: Diagnosed this morning

Hi - I was diagnosed today with - invasive ductal breast cancer - I have got to go back on 23 July for results of HER2 test to find out which way treatment will go x x I hope you are ok xx
Kip
Member

Re: Diagnosed this morning

Hello everyone, and special hellos to those newly diagnosed.   I was diagnosed on 11 April, 33mm ductal invasive Grade 2, with some other spots.  I had single mx (no recon) and SNB removal (3 nodes taken).  The results showed the nodes contained some cancer cells so I have started chemo, had first one 3 weeks ago and due 2nd today.  I am having 6 x FEC-T.   I have to say the fear you have at the beginning of this journey is by far the worst part of all of this.... waiting for results, second guessing whats coming next etc.  But as everyone has said once you know everything and have a plan things do get a bit easier, you still have ups and downs, tears, anger etc but you feel more in control.  My MX was very straight forward, in and out of hopsitla in 5 hours, recovery quick, not very sore at all, arm movement back within 1 week and back driving.  First chemo was no where near as bad as I imagined, done in 2 hours, and for the first 4-5 days felt a little sickness (took all the meds given!!) and very hungry, and a little tired, within 1 week back to feeling completley normal again.   Not sure how it goes the further you go on but from everyone I've read on here, everyone manages, we all talk, offer suggestions for side effects, moan shout and laugh!  Worst part was loosing my hair, but even after that, I've got used to it, very cool in thsi weather too!.   Please join the treatment forums when you have a plan, they are so helpful and keep me sane.  Take care everyone... Kip xx

Member

Re: Diagnosed this morning

 
Member

Re: Diagnosed this morning

I saw the consultant today.I am having a double mastectomy on the 27th July.There was other options but he recommended this.Need the bloody sods gone now xx
Member

Re: Diagnosed this morning

Hi Sally,

 

Thank you for taking the time to reply, its very reassuring! I guess everyone is different. I am trying to build up strength before the 28th. 

 

I certainly will join the monthly treads for chemo and treatment bits.

 

I hope you continue with no side effects. 

 

All the best x

Member

Re: Diagnosed this morning

Hi Nina,

If you go to the going through treatment bit of the forum and then Chemotherapy monthly, there's a thread each month. Join the one for June and all of is that started this month are supporting each other with hints and tips as well as gripes and groans!

I have only had one lot so far but it's nothing like I was expecting as, apart from one day, I've had no side effects at all.
Member

Re: Diagnosed this morning


Dear Ladies

On May the 14th was diagnosed with grade 2 cancer and then on the 17th June a doublewamy, to find it spread to my bones. I've now stopped crying and trying to come to terms with this. I have yet to tell my children. For me this is the allotment challenge. I start Chemo on the 28th. Please let me know how you getting on with chemo, I'm quite anxious 😩
Member

Re: Diagnosed this morning

Good luck Janebelinda Hugs to you xx
Member

Re: Diagnosed this morning

Hi Kazzy11, yes I am OK thanks. Just want to get on with it now. Hugs to you xxx

Member

Re: Diagnosed this morning

Thankyou so much.Hope all goes well with you.I feel so much better knowing its treatable.My heart couldnt take anymore waiting for results.It does awful things to your body.xx
Member

Re: Diagnosed this morning

Bless your heart.Hope all goes well.I keep getting aches in all places thinking ooo no its gone there but i think its in my mind lol.Good luck.Thankyou for your kind words xx
Member

Re: Diagnosed this morning

Hello Kazzy
It’s a horrible shock, isn’t it, I was diagnosed on 11th May and felt just as you do, but you’ve come to the right place for reassurance and support, believe me. The forum champions will be along soon, I’m sure, to welcome you...I’m going through treatment now and feel much stronger than those dark early days. You’ll get there !

Thistle xx


Community Champion

Re: Diagnosed this morning

Hi Kazzy,
Glad you found us. I think we can all relate to that shock when first diagnosed, we’ve all been through it.
These feelings do subside & once any other investigations are completed & the treatment plan is finalised, it does feel better.
Sending hugs
ann x
Member

Re: Diagnosed this morning

Hi Janebelinda.Hope you are ok.I have just been Diagnosed.I.have cancer in both breasts.2 different types.Looks like its contained.I have 3 x 15mm and a 23mm.It is treatable.The worst part was the wait to find out from the consultant.I had a mammogram and scan and a 3D mammogram now just waiting for a Breast Mri monday.I had stabbing pains in my left boob so this has all come as a shock xx
Member

Re: Diagnosed this morning

That’s the plan Allypops...x