I was diognosed in August with the very same thing. i was completely unprepared. Looking back I dont think i behaved normally (what ever that is).
I just though 'fine, dig it out and let me get on with things'. it was several weeks before i began to imagine all sorts! ...and that by the way, is normal!
I was so eagre to put everyones mind at rest i played it right down. Annoyingly, (and i think people dont think sometimes) almost everyone wanted to tell me they knew someone who has cancer and proceeded to tell me stuff i really didnt want to hear. If they start that now i walk away. Can you believe people do that!
Consequently and perhaps naturally i began to worry about it.
If you are like me, your realising you 'thought' you knew a bit about cancer but you realise you dont. Its so complex! i worked in Pharmacy and dispensed a lot of cancer meds without understanding a lot. Try not to be afraid. I know thats like being told 'dont look', its the 1st thing we do!
Best advice i can give is listen to what the Doctors tell you. When they say its treatable its because it is!
I went off and did my own research because i couldnt grasp the information the Doctors gave me. That was not my brightest moment because i misunderstood loads and terrified myself.
Always take someone with you if you can! Your not gonna be good at taking in all the information and what you dont quite take in your imagination or guess work will fill in the gaps. NOT HELPFULL!
I was told that but thought i knew better. Ha!
It seemed to take ages to get me on the treatment plan. That happened in October as there was talk of me doing a drug trial but the trial was halted. Finally they decided to put me on Anastrazole and take the cancer out when the Anastrazole has shrunk it. That way it should minimise the impact of the surgery.
I go back next week to have it measured to check on progress and discuss the surgery.
Are you in the UK? Ive never joined a forum before.
Best advice i can give you is this,
Follow the medical advice
Take someone as a 2nd set of ears
Stay calm. (no dark imaginings)
Eat well and rest.
Dont keep it a secret and get all the support and kind words you can. They really do help keep you strong.
Congratulate yourself on how strong you are being.
Cry if you like, you are still being strong.
Take advantage of any sickness entitlement you have at work...and rest. You've had a shock.
i'm sending you all my best wishes!!! xxxx
Thanks Lilacmoon, I felt exactly the same & didn't go near google until after getting my final results after surgery, then when venturing on, found this fab forum!
Hello everyone, and special hellos to those newly diagnosed. I was diagnosed on 11 April, 33mm ductal invasive Grade 2, with some other spots. I had single mx (no recon) and SNB removal (3 nodes taken). The results showed the nodes contained some cancer cells so I have started chemo, had first one 3 weeks ago and due 2nd today. I am having 6 x FEC-T. I have to say the fear you have at the beginning of this journey is by far the worst part of all of this.... waiting for results, second guessing whats coming next etc. But as everyone has said once you know everything and have a plan things do get a bit easier, you still have ups and downs, tears, anger etc but you feel more in control. My MX was very straight forward, in and out of hopsitla in 5 hours, recovery quick, not very sore at all, arm movement back within 1 week and back driving. First chemo was no where near as bad as I imagined, done in 2 hours, and for the first 4-5 days felt a little sickness (took all the meds given!!) and very hungry, and a little tired, within 1 week back to feeling completley normal again. Not sure how it goes the further you go on but from everyone I've read on here, everyone manages, we all talk, offer suggestions for side effects, moan shout and laugh! Worst part was loosing my hair, but even after that, I've got used to it, very cool in thsi weather too!. Please join the treatment forums when you have a plan, they are so helpful and keep me sane. Take care everyone... Kip xx
Thank you for taking the time to reply, its very reassuring! I guess everyone is different. I am trying to build up strength before the 28th.
I certainly will join the monthly treads for chemo and treatment bits.
I hope you continue with no side effects.
All the best x