Member
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Registered: ‎29-05-2018

Re: Diagnosed this morning

I work hard to play hard LadyB 😈

Member
Posts: 156
Registered: ‎29-05-2018

Re: Diagnosed this morning

I am a company owner and director Ann, I work mainly at a computer all day and so should be OK. A month? Ooohhhh I’d be driven nuts! 😖😖😖😂😂😂

Community Champion
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Re: Diagnosed this morning

JaneBelinda

 

Blimey mrs. that is some summer you have planned, go girl xx

Community Champion
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Re: Diagnosed this morning

Crikey Jane,
A couple of days off & back to work?!
My GP signed me off for a month so I took it!!!
Superwoman 💪🥇
Sending loads of best wishes for the op
ann x
Member
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Re: Diagnosed this morning

Thanks Thistledown! ❤️❤️❤️🏁

Member
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Re: Diagnosed this morning

Sounds like ‘F1 heaven’ 😄 - for my husband especially, (big Formula One fan ! )

If not, Barbados would be def acceptable ...! 

 

Fingers and and everything are crossed, for plans to be a goer ! 

 

🤞🤞❤️

 

 

Member
Posts: 156
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Re: Diagnosed this morning

That’s the plan Ladybowler! I have a summer of Motorsport to get stuck into! See my reply to a Thistledown...

 

And if the September plan goes tits up (couldn’t resist that) then Barbados here I come!

Member
Posts: 156
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Re: Diagnosed this morning

First off Thistledown, good luck for tomorrow. Your post op recovery sounds encouraging: I am having a lumpectomy to remove mine, and SNB too. Surgery Thursday, recovery Friday and weekend....then driving and back at my desk for Monday. The Thursday after that, a week post-op I am off to Silverstone for three days for Formula One. End of July I am off to Hungary for F1 again and....if everything goes to plan, I am off to Turkey for the World Rally Championship mid Sept after a month of rads. 

THAT in a nutshell, is my perfect plan. 😂🙂❤️

Member
Posts: 142
Registered: ‎11-05-2018

Re: Diagnosed this morning

That is good, JaneBelinda ! Let the next stage commence - you will breeze it for sure ! 

 

It was two weeks yesterday since I had my TM and full axillary node clearance, I go for path results and next stage of treatment plan tomorrow. Since I’m being hit with the old anxiety gremlins again (insufficient margins?and loads of infected nodes ? 😩) I decided to do something very bad. 

We went out on our (elderly) cabin cruiser for a two hour trip to a favourite place, it meant negotiating two locks on the way there, so I was leaping off boat to moor it - (husband was driving) - opening paddles and lock gates with grim determination, untying boat and climbing back on to set off again, - and I thoroughly enjoyed it, was shattered at the end of the day but healthily so ! No ill-effects at all, and fresh air, birds, water lilies and jumping fish, dragonflies galore, bliss.

I reasoned that there would be no lifting of affected arm to 90 degrees needed, - luckily so as I still cannot do it... but I think exercises must be helping as I can lift my grandson up now (a heavy two and a half year old) without pain. The only discomfort I have is the actual underarm scarring, they are rather thick and nastily prominent as yet, hopefully Vitamin E oil will help to reduce them when I’m OK to use it..

 

So, the op will be fine for sure, and even if you are having nodes removed, - sure it is a bit uncomfortable, but very definitely manageable, do take care in the early days, but otherwise, thrash it ! 

 

( Fair dos - I know I shouldn’t have done a boat trip, but the red mist descended ! ) 😏

 

Anyway, back to gentle pursuits, Headspace app and mental visualisations (of killing this damn disease), and trying not to think of tomorrow and what that will bring.

 

Each step at a time though, have to remember that, don’t we ?

 

Thistle x

 

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Community Champion
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Re: Diagnosed this morning

JaneBelinda

 

Thats great you have now got something to work towards and know it will not be long before you are the other side of it xxx

Member
Posts: 156
Registered: ‎29-05-2018

Re: Diagnosed this morning

Got the date for my op this morning. 28 June 🙂 Bring it on!!

Member
Posts: 156
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Re: Diagnosed this morning

Exactly, Thistledown! It was like a revelation to them! 

Part of my job ( I’m a creative head and senior designer/director in a graphic design company) is copywriting. That letter would have been filed straight under B (aka the Bin). 

Member
Posts: 142
Registered: ‎11-05-2018

Re: Diagnosed this morning

No Ann, you are right, it didn’t ! Especially as it was probably 20 mins before I was escorted down, after he’d again made sure which side of my chest he did some Picasso-like sketches with a felt-tip pen ! 😄 Pleased to say he got the op successfully and very neatly done in the end though... hope it’s not all in vain and sufficient margins exist ... find that out on Thursday...
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Re: Diagnosed this morning

The surgeon probably, for whatever reason, had not read the records beforehand Thistle, & often when dealing with a lot of people, the best thing to do is ask the patient! It doesn’t feel very reassuring though on the other side though 😳
ann x
Member
Posts: 142
Registered: ‎11-05-2018

Re: Diagnosed this morning

Mai - know exactly what you mean, my confidence went haywire when just before op, surgeon asked what I was having and which side ? 😳
Sally - 😄 - if my daughter hadn’t been there I think that would’ve been my reaction too ! Intuition or whatever - just knew it...
Member
Posts: 142
Registered: ‎11-05-2018

Re: Diagnosed this morning

Well done 😄 ! 

 

Pleased to hear encouraging and positive results, and that in future, other women don’t get that insensitive remark... it’s really important not to have any doubts sown, we are all so vulnerable at this initial period and really need positivity and self-belief.... 👍- I think you got the point over beautifully, bet you walked into your business meeting with head high after that ! 

 

As you say, focus on recovery now - I’m doing that too, mentally building my arsenal and gearing myself up, with the rest of you, to face this and crush it. 

 

Thank goodness for this forum....

 

Thistle x

 

 

Member
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Re: Diagnosed this morning

All sounds good JaneBelinda and you sound quite chirpy too.  Its unbelievable how sensitive we are to everything after a cancer diagnosis.  I got upset in the MRI machine because they played some music which was a bit dark. Then I got upset as I was being wheeled into the operating theatre when they told me to "say goodbye" to my partner.  Every day things which you wouldnt usually notice are magnified x100. xxx

Member
Posts: 559
Registered: ‎03-04-2018

Re: Diagnosed this morning

One of my letters described me as a very lovely, funny lady who took the news very calmly.

I think my words were "I f#@%*ING knew it!"
Community Champion
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Re: Diagnosed this morning

Well done, Jane!
It’s certainly poor wording & not helpful when going through this.
My letters were completely factual & although initially a bit daunting to see in black & white, were also reassuring as well. In fact, sometimes I go back & read them.
I even quite look forward to getting the yearly follow up letter from the surgeon now!
ann x
Member
Posts: 156
Registered: ‎29-05-2018

Re: Diagnosed this morning

Still getting used to this forum, but anyway, I am replying to all you girls kind enough to be joining me on this journey. 

Short story is I am awaiting a lumpectomy including lymph nodes removal, Then hopefully rads and not chemo. Then tamoxifen for 5 years. So....feeling positive 🙂 

I could go into my diagnosis in detail, Her 2 negative and such like, but I’d rather focus on getting over this. 

 

PLUS best thing is...I suggested the consultant does NOT state in his standard letter to ladies’ GPs, that he gave Mrs / Miss X ‘the bad news’. In 12 years I am The ONLY person to have commented on this poor choice of words in what should be an impartial letter. Imagine receiving that, a few days after diagnosis? Sure, at the time it IS ‘bad news’ BUT....whatever the prognosis or eventual outcome, striking a positive mental attitude is a vital part of the cancer journey. So...just as we are building that positivity...WHAM! My initial reaction was...hey, I was told three days ago that my cancer was treatable and now my GP is learning I received ‘bad news’. What is my consultant hiding?

 

it did the trick! 🙂