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Advice/insights on sharing the news

27 REPLIES
Member

Re: Advice/insights on sharing the news

Sorry! I got all carried away 🙈. How are you too? X 

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

I am well today, I’m all ready for tomorrow. I start my chemo tomorrow ☺️. I got all of my bits today. I think I went a little over the top though ha ha. I brought so many things like the toothpaste and month wash, I got my mints and ginger sweets. I cooked for the next couple of days too. 

 

I agree re allotment! Look at this fruit too, if you haven’t already heard of it, it’s called Soursap (I couldn’t paste the link). I’ve had my cup today and will continue. I will definitely try the cerlery juice too. 

 

Fingers crossed that your biopsy comes back ok xx 

 

I am glad to hear that you are focusing on other things, same here. 

 

I will I’ll let you know how I get on tomorrow, take care xx 

Member

Re: Advice/insights on sharing the news

Hi Ally,

How are you doing? Are you starting your chemo tx this week?

I've been looking more into diet/lifestyle. I might get my own allotment when I'm done with treatment, in the meantime I'm eating lots of fruit and veg and looking into organic stores and pilates courses! One of my friends with BC recommended celery juice, you can whizz it up in a juicer or make in a blender with some water however then it needs straining. I gave it a try and it tastes better than I thought Smiley Wink

I had a second biopsy this week on a suspicious looking area of tissue and on one of the lymph nodes and am awaiting the results. Keeping busy in the meantime focusing on things I can have some influence over like diet and exercise Smiley Wink

All the best, Alderney xx 

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

My main hobby is exercising and reading. I think, I will definitely try crafting and knitting, I think I need something therapeutic that will help ease my mind. So thank you for your recommendations xx 

 

I would love to go to Peru! Please tell me (if it is your sort of read) that you have read the Celestine Prophecy? I found it an amazing insight into life xx 

Highlighted
Member

Re: Advice/insights on sharing the news

Hi Helena, 

 

I hope that you’re well today x 

 

Thank you, I will definitely try it. I watched a lady on a training course do it, I think it will be definitely therapeutic for me. 

Member

Re: Advice/insights on sharing the news

Hi Ally2019,

 

I'm good thanks. Glad to hear your meeting went well and that you like your care team and got some clarity on your treatment plan and questions. I can imagine that it is back to having information spilling out of your brain however am sure that will settle over the next few days/weeks.  

 

Mmm hobbies ... what kind of thing do you like? I know gentle exercise is good ... pilates, yoga etc ... Maybe crafting? It wouldn't be my kind of thing but I can imagine it might work well. Crotcheting, knitting etc? I'm hoping to finally get my photos sorted from when I went to Peru nearly a year ago!

 

Take care, and keep in touch, Alderney xx

Community Champion

Re: Advice/insights on sharing the news

Ally

 

Whilst I was having treatment for my bc and recently whilst I was off after a hysterectomy, I have been doing cross stitch. I found it allowed me space not to think about what I was going through and it was a form of escape.  Must admit I am now very addicted to it and find when I come home from work the first thing I pick up after making myself a cup of tea is my cross stitch, I always have at least one on the go Smiley Happy Smiley Happy

 

Helena xxx

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

I feel the same, as each day is different and my emotions are too. One minute I’m ok, then the next I can get very upset. I said to my friend, this journey is very turbulent. I’m glad that your day got better as it went on 😊. Xx

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

How are you today? 

 

My meeting went well, my Oncologist is the same one my dad had. I asked a lot of questions and got clarity, it was too much information for my mind to retain. But I made notes. I will start my treatment (hopefully) on the week of the 18th February. I will have chemotherapy for 6 months, then surgery. I’ve been signed off of work, so at least I can get some head space but work keeps me going too 😒. So, I will have to find a new hobby. Any recommendations?

 

Thank you for checking in on me too xxx  

Member

Re: Advice/insights on sharing the news

Hi Ally2019,

 

Hope your meeting went okay on Friday, and you were able to get all the information you needed and ask all the questions that you needed to ask, let us know how you got on, thinking of you xx

 

 

Member

Re: Advice/insights on sharing the news

Thanks Ally2019, will be thinking of you tomorrow xx

 

I am taking it a day at a time and considering each day a fresh start, I had a wobbly start this morning however my day definitely got better as it went on Smiley Wink xx 

 

Delly, thank you for your lovely message and for coming back twice to post it! Smiley Happy xx

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

I hope that you are well today. Yesterday, my day wasn’t too good, so I’m definitely taking time off of work next week 😩

 

I think that is great that you have stocked up and taking care of yourself, I will be definitely taking a leaf out of your book. 

 

Thank you regarding tomorrow, I will definitely update you. I hope that all goes well with yours tomorrow and your feedback is good next week xx 

Member

Re: Advice/insights on sharing the news

Yey, it's appeared. I think I neglected to tick the "Robot" box !!

xxx

Member

Re: Advice/insights on sharing the news

Hi girls

I've tried twice now to leave a post, but neither have appeared, so giving it another go.

Ally - Hope all goes favourably for you on Friday.

Same for you Alderney. sorry you had scanner hiccups that have delayed "the wait" even longer, but it sounds as though you've been keeping yourself busy and bouyed up - hope that's the case. Shame the brain doesn't have a switch you can just flick on or off, hey.

Lots of love to everyone

Delly xxxxxx

 

Member

Re: Advice/insights on sharing the news

Hi Ally2019,

 

Thanks for the information about diet Smiley Happy I had a look at the Dawn Waldron site and prefer her idea about synergy between medical treatments and nutrition, exercise etc to some other websites. I've been to the shops today and stocked up on fruit, nuts, seeds etc! Not so sure about kale and cabbage - or their side-effects!! - but I love all fruits, especially the various berries, pineapple, mango etc.   

 

All the best for your treatment plan meeting on Friday.

 

My team are discussing my treatment plan in their MDT on Friday and then I've got a meeting with my surgeon / consultant on Tuesday to find out the details. 

 

And yes, we can do this Smiley Happy xxx 

Member

Re: Advice/insights on sharing the news

Hi Anniej, 

 

Thank you, I really appreciate you replying to me. 

 

I definitely feel mindfulness is helping me get by. Mornings are my worse, but within an hour, I’m usually ok. 

 

Thank you for the recommendations, I will certainly try them. 

 

I will keep you posted, I get my treatment plan on Friday. Xxx 

Community Champion

Re: Advice/insights on sharing the news

Hi Ally, I'm glad you found this forum as its a great place both for emotional support and advice. I think keeping yourself busy is key at this time. A really good idea you have is preparing for the worst case scenario by reading around the subject. There is a great interactive web site which identifies beneficial foods for BC . Just type in foodsforbreastcancer.com.' Mindfulness is a great tool to use, specially if you have difficulty sleeping, or you find your mind in overdrive. Which I certainly did. My local Maggies Centre provided a course which I thoroughly enjoyed. I also met people in the same situation, and was able to tap into peer support, as well as the staff there. I bought a couple of good recipe books especially to support those going through cancer, and managed to get Some meals in the freezer. I also re stocked the freezer with things like frozen pineapple which is great for nasty chemo mouth, and I stewed up apples and rhubarb. Stewed apples are easy to eat, and rhubarb helped greatly with constipation. I did seem to do a lot of retail therapy as I replaced a lot of bath products with paraban free stuff, and also went the comfy cotton underwear, and pj route. Dumped the nighties as I knew raising my arm could be an issue. ( it was) I have to admit night times were worse for me, but I managed my breathing techniques, did my mindfulness meditation exercises and went on every course offered by Maggies! I also poured my heart out into my journal every night, so laid those feelings to rest before laying my head down. There is a lot of info on the top tips thread that you might want to tap into, but you have made an excellent start. Well done you. X

Member

Re: Advice/insights on sharing the news

Good luck for tomorrow too xx 

Member

Re: Advice/insights on sharing the news

Hi Alderney, 

 

Thank you for replying and your advice is greatly appreciated. 

 

I agree in regards to work, I felt the same. My manager is aware but not my team. I have just finished by biopsy appointment and it has gone well. I’m currently having a hot chocalate, thinking wow “this is really happening”. The consultant did say that she isn’t too worried about the other lumps that they found. But, they still took samples. So that is good news Smiley Wink

 

I have an appointment on Friday for my treatment plan. So that is very helpful. 

 

I have also looked at my diet and done some research about the things that I can eat. This lady’s website I found very helpful https://dawnwaldron.com also if you have Netflix there is a documentary called Heal that I found helpful. 

 

Thank you again for your advice, I will definitely take them on board. I will keep you updated, but if need to chat. Please feel free to contact me. 

 

We can do this Smiley Happy xxxxxx 

Member

Re: Advice/insights on sharing the news

 

 

 

I'm sorry to hear about your diagnosis Ally2019 and hope that you don't have too long to wait. People say that this is the hardest time, waiting for all the results to come back and to discuss the treatment plan and that as you progress through your treatment plan you find an inner strength and resilience that helps you through.

I’m still very much at the beginning of this journey and hopefully some of the champions will be along soon with their wealth of knowledge and experience however I’ve jotted down a few thoughts, please take what you find helpful from them and leave the rest. We are all unique and everyone’s journey is different, at the same time it is good to know that there are those, who have got through this and who are so willing to share their wisdom with us.

 

I'm finding it helpful to research/read up on information in small amounts and on recognised websites and then give myself time to digest this and how it may affect my life before taking on board any more information. I’m also keeping an ever-expanding list of questions in preparation for when I have the appointments with my consultant and breast care nurse to discuss my treatment plan.

 

I’ve stopped pushing myself to do x, y and z and started listening to and acknowledging my body more and where I’m at psychologically, responding with some self-care, taking time out when I need it and doing things when I can.

 

Recognising my worries and my concerns, but finding out what I need to know now at this point in my journey and trying not to leap too far ahead (mindfulness!) so that I don’t get overwhelmed. There’s some stuff that I’ve just “parked” and will come back to when it’s the right time.

Being prepared that there will be times when I do feel overwhelmed and that that’s okay and part of the course ... the first time I went into work after my diagnosis was one of those times for me ... it hit me on a whole new level because everything was the same, and yet different ... I took an early lunch, went for a walk and gave myself time, then composed myself and went back to work, the day got slowly better and it felt good to have that “first” under my belt.

 

I’m not sure whether you work or not, or if so whether you’ve been into work, it depends so much on what job you might do, how supportive your employer might be, your job/financial situation … I know for some it’s been right to take some time out, I’ve had quite a lot of leave to take which has been helpful, and when I have gone in it’s been good to have a bit of normality ... you need to do whatever works best for you.

Take care Ally2019 and let us know how you get on, Alderney xx