Almost same situation as me. Routine mammogram beginning of May (first actually after 50th birthday), called back for more (ultrasound and mammogram biopsies), DCIS found, 5cm (50mm). Only practical option is mastectomy which is being done on 16th August along with immmediate reconstruction LD flap (lattisimus dorsi - muscle from below the shoulder blade), with option of lipo-filling next year to bring it more to the same size as remaining breast - or reduction of remaining breast. I also had a lymph node removal (3 nodes) in mid June which fortunately were all clear.
It's a big shock to get such diagnosis, esepcially as there don't seem to be any symptoms of DCIS and no lumps to feel/find, but it's good that it can be caught early and treated successfully. I hear nothing but good stories and see such positivity from other ladies.
I feel/have felt same as you wrote:
"I felt my world had fallen apart, but now I am more calm, and positive. Ready to deal with what comes next, although 1 day I am up and the next day I am down, very much an emotional rollercoaster."
That's where these forums are useful, let all emotions out, learn from others, support together, and take any comfort/help from family and friends.
A gentle word of advice. There's a wealth of infomration out there but pleas stick to reputable sites such as this one and Macmillan.org. In fact on hrere are lots of brochures that can be ordered (for free) or downloaded to you PC on a range of topics inlcuding DCIS, reconstruction etc. They've been very useful to me and reading so many stories from other ladies. Please be careful not to use Google for info as a lot of results can be misleading or inaccurate.
Good luck, hope all goes well, keep me/us informed of progress/concerns/thoughts etc.
Sorry to hear that you are joining the DCIS Club too. I was diagnosed with 50mm DCIS in May 2017 for which I underwent a mastectomy too. I wasn’t a good candidate for immediate reconstruction due to another minor health condition so I had a skin sparing mastectomy with a temporary implant inserted. I had reconstruction last November using an abdominal flap. The end result is fantastic.
The emotional ups and downs are very trying, the waiting too. As Jo says, normal life does continue eventually - I have just come back from holiday in Switzerland where I hiked about 70 miles across the tops of some of the smaller mountains. Eight months ago, I never would have thought that I could do that but moreover, I hardly thought about BC at all.
We have all been in your shoes one way or another so there will be plenty of support here if you need it.
Welcome to the forum 😊
It really is a roller coaster of emotions in the early days of diagnosis , as you describe you can go from thinking I've got this to feeling a quivering wreck in a matter of minutes, all perfectly normal!
Emotions will even out as you gain more knowledge, I think for most of us it's after our ops when all pathology reports are back so we know with certainty what they have found and what is going to be done.
Mastectomies are common for DCIS as it does tend to be wide spread and a lumpectomy wouldn't safely remove it all, it can seem drastic for such an early stage of cancer but it's all about preventing things getting to the invasive stage.
Plenty of ladies here who have had a mastectomy for many reasons and there will always be someone around to answer any questions for you.
I had a lumpectomy in March15 for invasive cancer followed by radiotheraphy so can't help on the surgery side of things I'm afraid but from an emotional side I can assure you it does get better and you will cope with things that at the minute you might not feel you can 😊Xx Jo