60684members
319660posts
cancel
Showing results for 
Search instead for 
Did you mean: 

DCIS surgery not carried out

10 REPLIES 10
Member

Re: DCIS surgery not carried out

😊 thank you
Member

Re: DCIS surgery not carried out

Ingy

I'm glad you know what's happening now, it's bad enough going through biopsies and diagnosis without being left in limbo at the operating theatre door almost.

Good luck with the surgery and hope you have a speedy recovery.

Xxx

Member

Re: DCIS surgery not carried out

Hi all I said I would update on the situation. Have now seen consultant at the hospital that originally gave the diagnosis.

They told me that the clip has only moved slightly and they can see calcifications near the clip so are happy to proceed with surgery which will take place in 3 weeks

Do not really understand why my local hospital had problems but I am grateful that this looking like it has been resolved
Member

Re: DCIS surgery not carried out

Hi Daisiemoo, hope you not feeling too bad this morning and that you get that swelling sorted out.

 

I am home now and waiting for breast link nurse to visit to check wound and drain etc.

 

yes, a waiting game now for results, my dcis showed 37mm on mammo and was graded intermediate to high from core biopsies x 2.  I can’t think about ‘what if anything else is there’ at moment, need to get over this op first.

I am an A cup and having already had 2 x WLEs was glad of mastectomy really.

 

Keep in touch x x

Member

Re: DCIS surgery not carried out

Hello Kit Kat hope your surgery all went well and hopefully you are at home now.

 

I had surgery yesterday afternoon which went well but now have a swelling in my armpit and above my surgery site so surgeon seeing me lunchtime to see what might need to be done or not and will have another night in here.

 

Ingy I had an MRI scan after the marker was put in as they were not sure of size and rather than 3.5cm which was maximum for lumpectomy it showed 6cm so hence a masectomy as only a B cup and not much would have been left and one way t9 esnsure all the other bits of calicification were removed.

 

Waiting game now for results, booked in for 2 weeks yesterday for my results seems a long time away....

 

Take care all xx

Member

Re: DCIS surgery not carried out

Thanks Dizzybee

It is what is is I guess...and I’m trying to just feel ‘lucky’ that it was found early again instead of feeling ‘unlucky’ that it’s back again.
Mind you I’m on a bit of a morphine high tonight as I only had mastectomy yesterday....so Celebrating surgery being over before stressing over whether there will be anything other than dcis in results.

Take good care
X
Member

Re: DCIS surgery not carried out

KitKat

Sorry to hear about your recurrence, though I'm glad it was DCIS again. But it seems hard after everything you've gone through the first time, to have to have a mastectomy now. That's the bit I find hard, it's living with uncertainty forever more. Mine was 5cm high grade, so a relatively high recurrence risk.

I didn't know that DCIS showed up on an MRI, I hope you can get an answer that way Ingy.

 

 

Member

Re: DCIS surgery not carried out

Hi Ingy

I hope you manage to get some answers very soon.

It may well be that you need to have an MRI.

In 2012 i had low grade dcis 4mm that was not seen on a mammogram (I was 46). I had a fibroadenoma which , when removed, was found to have the tiny dcis. Because there was no clear margin I had to wait until I was mid menstrual cycle then have MRI at that time in order to assess the location of dcis. The MRI was able to show what the mammo and ultrasound had not seen and I then had a second WLE.

Dizzy bee is correct in saying dcis has an excellent prognosis and chances are some dcis will never progress.

However,
However I have just had a local recurrence of dcis, 6 years later, this time much larger and higher grade and was advised to havea mastectomy this time.

Just make sure you are happy with the answers you are given.

Take very good care,
X
Member

Re: DCIS surgery not carried out

Thank you so much for your reply. I feel like I’ve been treated as a bit of an inconvenience. My Breast care nurse said do let me know what is decided I’m intrigued! Not sure that was the sort of response I was after. The surgeon said maybe they’ll have better magnification or do an mri or monitor at the screening centre.

Wish he had persevered like your surgeon did as it would all be over now. I will certainly let you know what happens x
Member

Re: DCIS surgery not carried out

Hi Ingy

I didn't have my operation cancelled, but did have a bit of a drama over the pellet. It was put in during a vacuum assisted core biopsy, and checked by mammogram after, but on the morning of the operation the radiographer couldn't find it on ultrasound. The mammogram machine wasnt calibrated so there was a very long delay, by which time my operation was rescheduled and then cancelled. Luckily my surgeon insisted it had to be done so eventually it happened about 7 hours later than planned. Not as bad as you having the operation completely cancelled though.

 

I can imagine you feel really left in limbo, it's hard to be told you have breast cancer and now to be wondering if you do or not. The good thing about DCIS is the prognosis is excellent, and even more so if it is small and low grade. I know there is a trial running where they're not operating on some DCIS but simply watching and monitoring, because some will not become invasive.

 

I hope you get some proper answers soon about what happens next, maybe they will do another mammogram and if that is clear just monitor things. I also had one hospital for the screening and radiotherapy, and another for surgery, and got passed between them, it isn't a system that seems to work very well if things aren't straightforward.

 

Someone on another thread recommended a book, by John Boyages called DCIS, Taking Control. I found it was really useful and hugely reassuring. He's an Australian professor, it was the only book only about DCIS that I've seen.

 

Good luck, I hope you get some answers soon, let us know how you get on. Sending you a hug, this is difficult enough without wandering clips!

 

Member

DCIS surgery not carried out

I was diagnosed low grade 5 mm dcis on 27/2 and told wire guided WLE recommended treatment. Diagnosed through screening service and transferred to local hospital.

Surgery was due to take place on 28/3 but when they came to put the wire guide in the radiologist told me that the titanium marker had moved and they could no t see any residual calcs so op was cancelled. She did complain about the screening service not taking clear post biopsy mammograms.

My case went back to MDT who have decided to transfer my case back to screening hospital. I am now in limbo and have no idea where this leaves me. Was told my case is low risk and I probably wouldn’t have needed it anyway. Aghhh! No sympathy at all and it was like they couldn’t wait to get rid of me. Has anyone else had any similar experience and thoughts on what happens now? Thank you