There is nothing that gets me more riled than being told that DCIS isn't really cancer. There are so many women who have to have mastectomies as a result of it, it may not form a lump but it can travel a long way along those ducts. I was diagnosed nearly 18 months ago and am about to have my fourth operation, two to remove the cancer and two on the good side to achieve symmetry.
I know we're lucky that there is such a good prognosis, but having DCIS still drives a coach and horses through your life, and I will always worry about recurrence just like everyone else.
I hope you have good results from your operation. Everything seems very overwhelming in the early days, but you will get through this, and a year on you will be able to look back and see how far you've come.
Sending you a hug, and wishing you luck with the pathology results.
Rest assured the terror eventually subsides to acceptance. I'm sorry to say.
I remember when I finally went to the GP and said "By the way, I have a lump in my breast" on the 7 July this year. By the 9th August it was removed, but it's only in the last couple of weeks I finally came to terms with the fact that it was happening to ME. I am still waiting to find out what the next steps are, as a result of a nasty infection. I do know I am not due to have chemo, which should make me happy. Instead I don't know HOW I feel.
The first few weeks the lump was in my mind every waking moment, as it probably is yours, and when I laughed I felt traitorous in some way, like laughing after a funeral. And looking at every woman's breasts (pervert?), wondering if they also had cancer, and did they know.
I feel for you. Not knowing it the worst place to be. I think you said there was no node involvement? This is a good thing!
The day after tomorrow is my wedding anniversary!
WLE is a lumpectomy by any other name. I think it stands for Wide Local Excision.
Sorry to hear of your results. You'll find lots of support here, though, so welcome to the club.
Hi ladies, my understanding of dcis, it is ductal carcinoma that is still in the same place it was created, idc is invasive ductal carcinoma that has moved from duct and now growing in breast tissue. Im no expert i had idc my mother had dcis, my breast nurse tried to explain my diagnoses, hope this helps or someone may correct me if im wrong.
Happy weekend ladies
I specifically asked, and got everything including the scans. Took a while.
I was diagnosed in July, had the WLE in August. I've had an infection since then, so I'm still waiting for that to heal to then go for rads. All my research so far has related to IDC, so this has thrown me. Why did you have so many nodes removed, and why... you see what I mean? The little I thought I knew about DCIS was that it was less serious than the others, and yet so many people with DCIS seem to have had mastectomies.
I have already had the WLE. The surgeon didn't tell me I had DCIS, before or after. The initial ultrsound showed a tumour of 27-30mm, the biopsy said DCIS as well as IDC (but he didn't tell me that either), and then he told me the surgery path report said the tumour was only 21mm, but didn't tell me he removed the DCIS at the same time, which was 15mm. (I need to re-read all the reports for the exact details, as I'm in shock at the moment, I think.)
Hi there Pecan,
I have stage 2 invasive cancer which was removed and they found DCIS also. I have been offered breast conserving surgery or mastectomy. I will definitly have the mastectomy as the cancer will be gone and i will not require radiotherapy following it.
Hope you are ok. I would ask your DR for further advice, options.
I'm new to the DCIS thing, having only been told I have IDC. Both high grade. I'm starting to wonder if there's something else there, too, and it seems lots of DCIS victims (?) have mastectomies, whereas I was only offered WLE. Does anyone have an opinion to offer?