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DCIS and IDC

115 REPLIES
Member

Re: DCIS and sentinel node biopsy

Hi,

although my cancer was a different type to yours - i had triple negative bc - i was also told that although my margins and sentinel lymp nodes where clear it was suggested i have 6 chemo sessions after my 15 radiotherapy.   

I had an appt. with chemo doctor who said she would recommend having chemo after radio but 1 session every 3 weeks and with a cruise booked smack bang in the middle which she said i couldnt do anyway,  i took a week to decide what i wanted to do. The chemo she said was just to ' mop up " anything that MAY have spread elsewhere before surgery so i have taken my chances and said NO to the chemo.

this was in June last year and i am not waiting to have my first mammogram done since treatment .

hope this might help you but it will be your decision about the chemo..... Get all the info and then decide. xx

Member

Re: DCIS and sentinel node biopsy

Hi 

I've had to have  a second op as my margins weren't clear, resukls came back yesterday and I'm all clear now, as you can imagine I was delighted with the news and had been so scared, more so than the first time.

 

I was told that I will see the ocologist in two weeks to plan the treatment. However, my surgeon mentioned chemo as well as radiotherapy + hormone therapy? This worried me as I don't want to go through chemo. My tumour was incasive dcis but grade was higher than expected-3 and bigger- 20mm-quite small really.

 

Apparently according to surgeon and bcn chemo treatment may increase reoccurence by approx 1-3%, but I can talk this through with Oncologist.

 

I am worried now as I can't afford to take more time off work, as I'll lose my flat rental. Also it doesn;t seem worth it to me??

Any thoughts would be most appreciated.

Lin Xx

Member

Re: DCIS and IDC

Good luck dusty.

 

Happy New year to you all. Hope your all doing well and continue too in 2018.

 

I am 6 weeks post op today . Going back to work on 25th. Looking forward to it but apprehensive but to be expected.

 

The hospital has cancelled 2appointments due to unforeseen circumstances for a check up very strange so the latest date is February.  I am due to start fills don't know how that going go lol. 

 

Thanks as always to u all for your replies last year.

 

As

 

Luica

Community Champion

Re: DCIS and sentinel node biopsy

Dusty

 

I remember both my wle and snb scars were rather lumpy but they settled down over the next month or so.  

 

As you say you are having your wound checked next week so they can check things out then. 

 

Let us know how you get on

 

Helena xx

Community Champion

Re: DCIS and IDC

Hi Dusty ,welcome to the forum .Sounds pretty normal to me - probably just swelling around the op site .If you are having it checked on Wednesday you will be able to get some re-assurance then .Good luck with your results .
Member

Re: DCIS and sentinel node biopsy

hi there,

new to the site. Had lumpectomy surgery on 13th Dec and sentinel node biopsy. I go to have my wounds checked and possibly get results back next week.(3/1/18)

 

Today I've noticed that there are small lumps in my armpit above the biopsy scar, which has healed well. All my armpit area has been sore-nerve pains- feels like a burn (ouch) and my friend who had almost identical surgery had the same.

 

I'm wondering/worrying a little if the small lumps running up along the line of the lymph area are just a reaction to the surgery?...trying not to let my imagination run away with me!

 

Has any one got any ideas?

thanks

 

 

Member

Re: DCIS and IDC

hi there,

new to the site. Had lumpectomy surgery on 13th Dec and sentinel node biopsy. I go to have my wounds checked and possibly get results back next week.(3/1/18)

 

Today I've noticed that there are small lumps in my armpit above the biopsy scar, which has healed well. All my armpit area has been sore-nerve pains- feels like a burn (ouch) and my friend who had almost identical surgery had the same.

 

I'm wondering/worrying a little if the small lumps running up along the line of the lymph area are just a reaction to the surgery?...trying not to let my imagination run away with me!

 

Has any one got any ideas?

thanks

 

 

Member

Re: DCIS and IDC

Happy Christmas to you too Angela x 

Member

Re: DCIS and IDC

Nicola,

Brilliant news, hopefully you’ll be able to relax a bit and enjoy Christmas. So pleased for you. Merry Christmas and a happy healthy 2018

Angela xx
Member

Re: DCIS and IDC

Just and update for you All.
My cancer surgeon called on Friday evening and gave me the all clear, so no further treatment for me despite them telling me initially the felt radiation therapy would be likely next. TrIed not to get worked up after sugery. So there we go, anything is possible.

Have a Happy Christmas Everyone, I got the best present anyone could ask for x

Community Champion

Re: DCIS and IDC

nicola

 

Great to hear that you are home and recovering well.

 

xxx

Member

Re: DCIS and IDC

Nicola,

Glad you’ve got your op over and are Home. Hope you manage to have a good Christmas and a happy new year.

Angela xx
Community Champion

Re: DCIS and IDC

Glad you are home Nicola -take it easy .Hopefully you will be well enough to enjoy Christmas .
Member

Re: DCIS and IDC

Everything went well, a few ropey days with morphine but I am out the other side and was discharged from hospital yesterday 😊 

 

I am home, taking meds regularly to keep on top of pain and surprisingly able to do a lot of things although have been warned to rest and take it easy.

In hospital the one thing that made a difference was a heart shaped like pillow for under my arm so I'd like to recommend a Facebook page, Jen's friends-free mastectomy pillows, where you can get one from a small team of wonderful women who make them, and it helps immensely with rubbing, and resting your arm. Fabulous friendly women who know the score. I can't thank them enough.

 

Lying in bed is difficult - I got back ache after 3-4 hours lying on my back and needed pillows under my legs however my body seemed to find it's own way of working things out and I woke up on my right hand side (the left breast is the sore one) despite having the hip to hip incision from DIEP. 

 

I'm doing a little and often, making tea and toast, getting up and going to the bathroom, doing some light dishes (cups and things), light dusting (that hubby hadnt done while I was in hospital) and wrapping presents at the table and sitting in between and managing well. 

 

Thankyou all for your warm wishes! 

 

Member

Re: DCIS and IDC

Good luck Nicola

 

LUCIa

Member

Re: DCIS and IDC

Good luck Nicola

Angela xx
Member

Re: DCIS and IDC

Good luck Nicola xxf
Member

Re: DCIS and IDC

Thank you Jill. I hope so too!! 

Community Champion

Re: DCIS and IDC

Good luck Nicola -hope you manage to get some sleep .
Member

Re: DCIS and IDC

Thankyou. Have to say, where I am, the hospital is lovely. I have my own room. It's new (only 7 months old) and bright and colourful, with TV and WiFi!