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DCIS and IDC

115 REPLIES 115
Member

Re: DCIS and sentinel node biopsy

Hi,

although my cancer was a different type to yours - i had triple negative bc - i was also told that although my margins and sentinel lymp nodes where clear it was suggested i have 6 chemo sessions after my 15 radiotherapy.   

I had an appt. with chemo doctor who said she would recommend having chemo after radio but 1 session every 3 weeks and with a cruise booked smack bang in the middle which she said i couldnt do anyway,  i took a week to decide what i wanted to do. The chemo she said was just to ' mop up " anything that MAY have spread elsewhere before surgery so i have taken my chances and said NO to the chemo.

this was in June last year and i am not waiting to have my first mammogram done since treatment .

hope this might help you but it will be your decision about the chemo..... Get all the info and then decide. xx

Member

Re: DCIS and sentinel node biopsy

Hi 

I've had to have  a second op as my margins weren't clear, resukls came back yesterday and I'm all clear now, as you can imagine I was delighted with the news and had been so scared, more so than the first time.

 

I was told that I will see the ocologist in two weeks to plan the treatment. However, my surgeon mentioned chemo as well as radiotherapy + hormone therapy? This worried me as I don't want to go through chemo. My tumour was incasive dcis but grade was higher than expected-3 and bigger- 20mm-quite small really.

 

Apparently according to surgeon and bcn chemo treatment may increase reoccurence by approx 1-3%, but I can talk this through with Oncologist.

 

I am worried now as I can't afford to take more time off work, as I'll lose my flat rental. Also it doesn;t seem worth it to me??

Any thoughts would be most appreciated.

Lin Xx

Member

Re: DCIS and IDC

Good luck dusty.

 

Happy New year to you all. Hope your all doing well and continue too in 2018.

 

I am 6 weeks post op today . Going back to work on 25th. Looking forward to it but apprehensive but to be expected.

 

The hospital has cancelled 2appointments due to unforeseen circumstances for a check up very strange so the latest date is February.  I am due to start fills don't know how that going go lol. 

 

Thanks as always to u all for your replies last year.

 

As

 

Luica

Community Champion

Re: DCIS and sentinel node biopsy

Dusty

 

I remember both my wle and snb scars were rather lumpy but they settled down over the next month or so.  

 

As you say you are having your wound checked next week so they can check things out then. 

 

Let us know how you get on

 

Helena xx

Community Champion

Re: DCIS and IDC

Hi Dusty ,welcome to the forum .Sounds pretty normal to me - probably just swelling around the op site .If you are having it checked on Wednesday you will be able to get some re-assurance then .Good luck with your results .
Member

Re: DCIS and sentinel node biopsy

hi there,

new to the site. Had lumpectomy surgery on 13th Dec and sentinel node biopsy. I go to have my wounds checked and possibly get results back next week.(3/1/18)

 

Today I've noticed that there are small lumps in my armpit above the biopsy scar, which has healed well. All my armpit area has been sore-nerve pains- feels like a burn (ouch) and my friend who had almost identical surgery had the same.

 

I'm wondering/worrying a little if the small lumps running up along the line of the lymph area are just a reaction to the surgery?...trying not to let my imagination run away with me!

 

Has any one got any ideas?

thanks

 

 

Member

Re: DCIS and IDC

hi there,

new to the site. Had lumpectomy surgery on 13th Dec and sentinel node biopsy. I go to have my wounds checked and possibly get results back next week.(3/1/18)

 

Today I've noticed that there are small lumps in my armpit above the biopsy scar, which has healed well. All my armpit area has been sore-nerve pains- feels like a burn (ouch) and my friend who had almost identical surgery had the same.

 

I'm wondering/worrying a little if the small lumps running up along the line of the lymph area are just a reaction to the surgery?...trying not to let my imagination run away with me!

 

Has any one got any ideas?

thanks

 

 

Member

Re: DCIS and IDC

Happy Christmas to you too Angela x 

Member

Re: DCIS and IDC

Nicola,

Brilliant news, hopefully you’ll be able to relax a bit and enjoy Christmas. So pleased for you. Merry Christmas and a happy healthy 2018

Angela xx
Member

Re: DCIS and IDC

Just and update for you All.
My cancer surgeon called on Friday evening and gave me the all clear, so no further treatment for me despite them telling me initially the felt radiation therapy would be likely next. TrIed not to get worked up after sugery. So there we go, anything is possible.

Have a Happy Christmas Everyone, I got the best present anyone could ask for x

Community Champion

Re: DCIS and IDC

nicola

 

Great to hear that you are home and recovering well.

 

xxx

Member

Re: DCIS and IDC

Nicola,

Glad you’ve got your op over and are Home. Hope you manage to have a good Christmas and a happy new year.

Angela xx
Community Champion

Re: DCIS and IDC

Glad you are home Nicola -take it easy .Hopefully you will be well enough to enjoy Christmas .
Member

Re: DCIS and IDC

Everything went well, a few ropey days with morphine but I am out the other side and was discharged from hospital yesterday 😊 

 

I am home, taking meds regularly to keep on top of pain and surprisingly able to do a lot of things although have been warned to rest and take it easy.

In hospital the one thing that made a difference was a heart shaped like pillow for under my arm so I'd like to recommend a Facebook page, Jen's friends-free mastectomy pillows, where you can get one from a small team of wonderful women who make them, and it helps immensely with rubbing, and resting your arm. Fabulous friendly women who know the score. I can't thank them enough.

 

Lying in bed is difficult - I got back ache after 3-4 hours lying on my back and needed pillows under my legs however my body seemed to find it's own way of working things out and I woke up on my right hand side (the left breast is the sore one) despite having the hip to hip incision from DIEP. 

 

I'm doing a little and often, making tea and toast, getting up and going to the bathroom, doing some light dishes (cups and things), light dusting (that hubby hadnt done while I was in hospital) and wrapping presents at the table and sitting in between and managing well. 

 

Thankyou all for your warm wishes! 

 

Member

Re: DCIS and IDC

Good luck Nicola

 

LUCIa

Member

Re: DCIS and IDC

Good luck Nicola

Angela xx
Member

Re: DCIS and IDC

Good luck Nicola xxf
Member

Re: DCIS and IDC

Thank you Jill. I hope so too!! 

Community Champion

Re: DCIS and IDC

Good luck Nicola -hope you manage to get some sleep .
Member

Re: DCIS and IDC

Thankyou. Have to say, where I am, the hospital is lovely. I have my own room. It's new (only 7 months old) and bright and colourful, with TV and WiFi! 

Community Champion

Re: DCIS and IDC

nicolad

 

Looking forward to hearing from you when you are the other side of your op

 

Helena xx

Member

Re: DCIS and IDC

Well, that's me admitted, mark up done, pjs on. All good!! Looking forward to being out the other side

Member

Re: DCIS and IDC

Hi nicola.

When I was diagnosed i thought u needed special bras from special just shop .

So I went online to a site called nicola Jane bought 2 bras post surgery.

They were expensive one was 42 pound. I didn't realize u could just get non padded no wire full cup bras.

My sister bought me some in M and s not specific for mastectomy daughter bought me sports s bras that u pull in over head she didn't think lol

The amount of bras i have lol.The ones from nicola Jane were front opening which made things easier. Bcn was horrified at price lol so was i. Hard to justify price but I found it comfortable  after surgery front opening as the doctors found checking all the time. Normal ful! Cup bras are doing the job now as well as my arm movement improves.

 

Read on here that ladies have bought bras from asda that done the job as well.

 

Angela good to hear all going well .

 

Not long now Nicola wish you all the best.Keep in touch when u can afterwards thinking of you it's strange Nicola but you actually get a sense of get in get it done.

 

Lucia

 

 

 

 

 

 

 

 

 

Member

Re: DCIS and IDC

Hi Pollym,

It’s good to hear from you 😊 yeah it’s a bit confusing sometimes.
You’ve been through so much! Are they planning to go back in again soon?
I get what you mean regarding your surgeon, mine was straight to the point with me, which my partner maybe found hard but I preferred.

Tomorrow is day 6 radiotherapy and going ok, hope you are recovering well

Angela xx
Member

Re: DCIS and IDC

Hi Lucia

I'm reassured definitely to know that Mr Mallon is one of the best in his field and I felt that when I was reviewed by him. The clinic nurses are great and nothing has ever been too much hassle! 

I'm looking forward to being out the other side. I'm assuming my pathology report with tell me what else I need, if anything, afterwards. 

 

I'm glad to hear everything is going well for you so far! This is more reassuring for me then anything. Can I ask you where you got your post surgery bras? I'm finding them hard to find!! 

Member

Re: DCIS and IDC

Hello Angela (justme41) and Dizzybee,

I'm so sorry I have not been back here but I got confused about where I had posted!  Thanks so much for your support - I really appreciate it especially with what is going on for you too!

I had my mastectomy and SNLB as planned - they found a micromet in my lymph node but no invasive cancer as yet - they are going to have another go to try and find it!

I had 30mm of DCIS too which is er and pr neg - so different from my first BC on the other side!

As it stands, my surgeon is saying that I have had all the treatment - I keep thinking that surely they need to find and test the invasive cancer first - I must admit that I have not really hit it off with my surgeon and do not really feel much confidence in her - she plays everything down whereas I want the belt and braces approach especially as this is my second time!

I hope you have all had a good weekend and wish you the best with your treatment

xxx

Member

Re: DCIS and IDC

Hi  Nicola.

I am just over 2 weeks post surgery and I am gaining mire and more strength each day

Been out for walks  bit of shopping seen friends for lunch. It's amazing how quick u come on  (single masectomy).

Still tired and up and down a bit but doing good.

Will be seeing Mr Mallon in January for next part of treatment be going there a while yet. 

I am doing exercises each day but still a strain I feel in top half of arm hoping that gets easier with time.

 

 

Mr Mallon has been great as have all the staff in the City couldn't fault them. One of the senior nurses when I was in hospital said he is one if the best. 

So hope that reasures you a bit.

 

I will be having implant at later stage Mr Mallon will start the fills from January.

 

How are you. How have u found things so far.

 

 

Lucia

Member

Re: DCIS and IDC

hi Lucia

 

Mr Mallon in the City as well as Mr Sinclair in the Ulster are doing my mastectomy and reconstruction. They gave me 3 options and I went with the one that suited me the best. 
I go in on 14th to the Ulster and I have been happy with everything so far. 
How did you find everything? I hope you're healing well x 

Community Champion

Re: DCIS and IDC

Lucia

 

In all of this it is always good to hear the positive endings for all of us no matter what our journey has involved.  Have a look at this link, I think it says it all

 

https://forum.breastcancercare.org.uk/t5/Diagnosed-with-breast-cancer/14-Ladies-1-Year-on/m-p/117392...

 

Helena xxx

Member

Re: DCIS and IDC

Thanks so much girls.

 

None of this has really hit home. And I am very mindful of all other posts i have read on here and people i know personally who have to go through tough treatments decisions etc  that I didn't have to leave you with mixed emotions.

 

God bless.

 

Lucia

 

 

 

 

 

Community Champion

Re: DCIS and IDC

Lucia

 

Oh that is great news, just give yourself a bit of time to get used to it and it will all fit into place.

 

Have a wonderful Christmas xxxx

Member

Re: DCIS and IDC

So pleased for you Lucia xx
Member

Re: DCIS and IDC

Hi.

 

Great news.

All was removed nothing lurking inside clear nodes.

 

No treatment required. .

 

Have to go for check ups off wound and start the fills after Christmas .

 

Regular checks off other breast . Mammogram every year.

 

Omg I am so pleased but feel weird unsure at same time then elation.

 

Still a way to go as only 2weeks recovery so far not of off woods infections etc. I might have cording not sure wc

What fibro about that apart from excerise.

 

But the news omg so pleased so lucky.

 

Lucia

Member

Re: DCIS and IDC

Lucia - just read, good luck for tomorrow xx
Community Champion

Re: DCIS and IDC

Lucia

 

It is amazing how everything happens so quickly, there are times when you have not even got time to take it all in, which I suppose in some ways is a good thing.

 

Am at work tomorrow am but you will be in my thoughts my dear

 

Helena xxx

Member

Re: DCIS and IDC

Helena thanks so much means alot.

 

It seems like yesterday you answered my first post i was all over the show.

 

Now I am at this stage. I know having dcis is if possible a good thing but with high grade and who knows what they see when the operate i hope I get good results another sleepless night but at least I will know tomorrow.

 

From 31st October to 7th December i am not this stage Results.

 

Mammogram recall

Biopsy

Mastectomy

Now I am here.

 

5 weeks that took unreal.

 

Thanks again to you all 

 

Lucia

 

Community Champion

Re: DCIS and IDC

Lucia

 

Everything crossed for you, but I dont know how on earth I am going to be able to walk or eat my food now Smiley Happy

 

Helena xxx

Member

Re: DCIS and IDC

Hi all.

Just an update for phone call today from consultant Secretary to go see him tomorrow at 1pm he has the results.

 

Lucia

Member

Re: DCIS and IDC

Can’t believe that’s two weeks gone by from your op, glad you’re doing well and were able to get out for a bit. I guess we surprise ourselves sometimes 😊
Pleased youre doing so well.

I thought maybe you’d have got them this week with cons being off last week and totally get all of the anxiety bit. I was anxious waiting on mine but tbh when given them that’s when it hit and reality kicked in. Then came the comments sure it’s away and poof you’re supposed to be normal again lol. Let us know when you hear xx

Day 2 today, I’m ok. My times are all early so yest I was out for 9 and on way home

Angela xx
Member

Re: DCIS and IDC

I am 2weeks today post op.

Doing well.. Arm still sore but am doing exercises every day and range of movement is getting better and better not like before but see great improvement.

I am honestly shocked after 2weeks how much I Have come physically i know I am not 100 percent yet but my God didn't think I would be were i am.

Have been out in Sunday for first time since op

went shopping only for an hour great to start getting out and about

And 3o minute walk .   So that made me feel normal .

 

No letter yet from hospital for results yet. Thought would have heard by now so that is holding me back in a lot of ways feel like I am in limbo it's effecting me moving on more as I don't know what the outcome is any treatment needed did they find anything else etc. Was there just dcis. Before operation you are in nerves aniexty etc then got op settled down glad i was over that bit feeling positive .Now I am back to that stage pre operation again waiting on date to get results which effects you trying to get move on  nerves anxiety back.

 

 

How's treatment going for you. Your on the countdown so p!eased for you.

 

 

Lucia

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Member

Re: DCIS and IDC

Thanks Lucia, how are you

Angela xx
Member

Re: DCIS and IDC

GOOd luck Angela.

Xxx

Member

Re: DCIS and IDC

Lucia,
Went to hosp today, was a lady today. Checked where the original cyst was and she thinks it muscular rather than from it. Scar healing well, still some fluid but nothing to worry about so think that’s me done with them. Day 1 of 15 on Monday

Angela xx
Member

Re: DCIS and IDC

Thanks Helena I joined

Angela xx
Community Champion

Re: DCIS and IDC

Justme41

 

I have started a December 2017 radiotherapy thread on Going Through Treatment, Radiotherapy, if you want to post of there as well when you start as you will get loads of help and support from the ladies who are going through it at the same time as you.

 

Helena xx

Member

Re: DCIS and IDC

Have to get 15, so will finish on 22nd December.

Okey doke will do

Angela xx
Member

Re: DCIS and IDC

How many sessions of radio have you to get Angela 

 

Let me know how you get on Thursday.

 

Lucia

Member

Re: DCIS and IDC

Lucia,

It’s been really quick, mr m doesn’t hang about, said he’d refer me about original cyst so I’m back again this Thursday. Was shocked to read you’d gone in on the Monday.

She was the one who said her friend had it ‘pre cancerous cells’ it’s nothing you’ll be ok. Now she’s had a personality transplant lol and trust me I can’t either theres been no filter on my language these last few days.

Blocking it totally makes sense, I do auto pilot or as Helena says automatic.

Glad you’re taking it easy and being careful

Angela xx
Member

Re: DCIS and IDC

Thanks Kimi

 

I read that much. I didn't know what was what.

 

Lucia

Member

Re: DCIS and IDC

Yes Helena i cannot wait for shower day.

 

Angela great to hear you.

 

As for your boss. Really has no clue. I actually cannot  write the words i want to here about her would get there off site

Like  you Angela it has been so quick it hasn't hit me yet i know it hasnt.

 

I have had the tears but nothing to write home about. I think I am trying to block most of it out make it not real if that makes sense. 

 

Lucia