04-12-2018 06:34 PM
04-12-2018 04:51 PM
03-12-2018 08:21 PM
28-11-2018 09:00 AM
27-11-2018 09:10 PM
27-11-2018 08:58 PM
02-11-2018 01:29 PM
02-11-2018 11:27 AM
02-11-2018 08:44 AM
30-10-2018 08:12 PM
30-10-2018 03:58 PM
Hello Mishy and Jill and anyone else reading,
Having a bit of a break from the Forum, well apart from this response.
Mishy and Jill, so sorry to hear you are still having so many pain and mobility issues.
Mishy - glad you got an explanation for the rib soreness.
Jill - glad to hear you have at last received some specific explanations of causation. Hopefully, you will get explanation for the remaining issues soon and treatment started to alleviate at least some symptoms.
I got a letter the other week from hospital saying I was now allowed to ring up for an appointment. I rang and found out it was for a neurology appointment but no other details could be given. I went to the appointment yesterday thinking that after 8 months of crap symptoms, they considered me worthy enough to have at least a discussion of having nerve injection.
The appointment was with a neuro surgeon to discuss and examine suitability for effing surgery. What a waste of mine and his time. I clearly expressed my frustration, though obviously not blaming him as it wasn't his fault and we both agreed there had been confusion. That it would have been more apt to look at injection first. However that was not his realm.
We still made use of the time. I actually informed him that I was against invasive surgery for now (a lot to do with my BC experiences and I have decided that I am not in a place at the current time to accept surgery). I also asked if he could use his influence to speed up appointment to discuss nerve injection.
Apart from that, I am trying to ignore the pain and follow my own exercise routine. Well I can't do any worse than the so called professional treatment. My breathing has gone downhill again. I think some of it is down to the pain meds and the chilli pepper cream so going to try and reduce use even more.
Some of it is down to reduction of activities as well as side effects of cancer treatments. I did quite well trying to build myself up after chemo etc but it is a bit more difficult at the moment to be positive again. It is just like having no respite from the BC - over a year and half of active BC treatments and then straight into this. I am sure you both know what I mean.
28-10-2018 09:53 AM
28-10-2018 08:30 AM
28-10-2018 08:18 AM
28-10-2018 07:55 AM
20-10-2018 10:36 PM
Curlylocks - I responded to you on the other thread. Don't feel you need to respond back as I have seen your responses here.
Mishy - yes as before - ask about the rib pain and anything else that is troubling you. You are having such a hard time at the moment that I think that they should be doing everything they can to make you as comfortable as you can. I still have sore rib area after over a year and still the stabbing pains every now and again but just expect it now. I was told it was due to the surgery and radiation. It gets a bit worrying when people report almost spontaneous rib or other fractures.
Jill - greetings - You already know my thoughts on your situation. I hope the wound is healing fully now and the pains are decreasing.
Best wishes to all and anyone else who is dealing with pain and the aftermath of treatment.!