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possible bone mets

275 REPLIES
Member

Re: possible bone mets

Chick I wasn't sure about surgery when first offered I refused it and asked for close survlience but then I thought about the ramifications if I was in a minor car bump or took a tumble he explained that any neurological progression is irreversible in terms of surgery only preventing further decline rather than to make better I can put up with my symptoms as they are but scared of it making me disabled so I caved and said OK I think I'm realistically looking at 6 months here which I'm OK with also gives longer to get over treatment surgery etc from bc both physically and mentally I have found this latest scare a challenge and anxiety levels have crept back up but I'm also reassured my onc isn't too concerned it never rains it pours eh!! Jill it's great to hear from you the condition sounds very challenging and I hope you can get the treatment I'm sorry you are having to have your leg pinned again xx
Take care for now ladies
Mishy xx
Community Champion

Re: possible bone mets

I can see your point Chick .My back is causing me such significant mobility issues that I'm prepared to give it a go 🤞🤞🤞Could be a while though as will have to recover from leg surgery first ☹️
Member

Re: possible bone mets

Hello Jill,

Well I feel I got the lesser woes compared to yourself and Mishy. I am glad that you now have a diagnosis and it is not bone mets. But goodness what a mouthful of a rare condition and so debilitating. I hope you can get the specific treatment that will bring you benefit and relief, and no side effects.

By the way, I am against having surgery because I feel I an still dealing with the results of the cancer surgeries and wayhave enough with them then adding more woes to the list. There are no guarantees with surgery anyway.

Take care chick 🐥
Community Champion

Re: possible bone mets

Hello Chick - lovely to see you back .Happy New Year to you and Mishy - let's hope it's a better one than last year !! I now have a formal diagnosis of hypophosphatasia which is a rare genetic bone disorder - not mets - the lesser of 2 evils .I have been referred to a specialist in Manchester to see if I qualify for a new ( the only ) treatment - it is very expensive so the criteria is very tight .In the meantime I have to have my right leg pinned in next few weeks - not recovered from last surgery yet and I continue to break ribs just turning over in bed - it's very scary stuff .I see Neurosurgeon again in March and now looks like surgery will def be needed as this condition will just continue to cause my vertebrae to crumble 😬 Sorry you are still in pain Chick - why are you so against surgery ? Mishy good luck with your scan .What timescales have you been given for your op ?
Member

Re: possible bone mets

Hi Chick and Jill happy New year chick glad to hear you are doing better re pain and if the injection is working that is probably a lot better than surgery
I'm currently on the waiting list for certain spine surgery I didn't want to but weighed up what was the best thing to do and recovery from surgery is a lot better than having a neurological decline in symptoms which can't be reversed so I'm on the list and if things do get worse he will fit me in the list is quite a size so not imminent can't be walking around atm because of black ice no falls I've been told haha!!! So atm I'm having a ct scan Sunday for some shadowing on 5th rib on bc side my onc isn't concerned but radiologist wants a scan to rule out stuff fed up of things popping up to scare the crap out of me!!!!!!! Anyway my onc was reassuring so I'm feeling OK about that
I try not to take pain killers as I don't want to get reliant on them only take them now when I'm desperate
Jill how's you haven't spoken in a while I hope you have been able to get to the bottom of things
Just thought too girls maybe if we had a different thread or hijacked another rather than on the possible bone mets one as I'm sure you will both agree that's a possibility we definitely want to avoid!! Mmm just a thought!!!!!
Take care Mishy xxxx
Member

Re: possible bone mets

Hello Mishy and Jill,

I am on a return visit 😁. Happy New Year to you both (and everyone else) How are you both doing? Have things progressed for the better for both of you? Hope you got a definitive diagnosis Jill.

I eventually got the injection. The doctor who did it said it can take up to 2 weeks to work, another doc said up to 6 weeks, blah blah - make your minds up and do you really know anyway?

So, initially it didn't seem to have any benefit (apart from a blissful evening hours after having it which could have been due to the local!). I also stopped physio sessions as did not see the point of appointments in dribs and drabs to use the specific equipment. Anyway just did my own thing with exercise and the pain killers.

At the moment not taking any regular pain relief and have not done for nearly a week. Still have pain but it is more manageable and variable. I think it has helped to be in a standing position a lot of the time!! Walking can still be a trial but is less painful. I have more pain now at night. Previously, I could sleep on my good side without pain. Now it is painful all night after I have been laying for 1 to 2 hours. It usually wakes me up and then I turn over to my bad side and so on. But at least I can now sleep on the bad side! Painkillers before bed don't help so I don't bother. It also does not help when I get some pains and cramps from the anastrazole as well. A night will be agony every now and again.

I have a review appointment end Jan, so will see if they may risk another injection on me. I was told by physio that they would not if first one did not work - not sure if that is quite right. I would not mind trying once more and I also could argue that things have changed for the better since the first injection. I am resolute that I do not want surgery even though I received another consultation appointment in Dec.

Member

Re: possible bone mets

Merry Christmas Jill and Chick have a lovely day xxx
Community Champion

Re: possible bone mets

Merry Christmas Mishy and Chick - hope you both manage to have as pain free a day as possible !
Member

Re: possible bone mets

Jesus Jill i really hope they haven't been mucking around delaying treatment but hopefully they will tell you def no mets the other thing sounds unverving but you will be surprised once you see the specialist in that field you could be more settled when you can have everything explained better of course it will not stop you from worrying this cold weather i think is definitely making things worse he explained thst can happen i have been thinking all kinds till he explained in detail everything which thr rheumatology will do just bloody annoying that you have been passed around with no clear answers up to now big hugs and good luck xxx
Community Champion

Re: possible bone mets

Thanks Mishy .Glad you have made some progress hope I do move things forward - my DEXA scan said I don't have osteoporosis .Im scared they will say I have mets and I have wasted 6 months not having treatment that could have helped ,the other option is not very appealing either though - rare bone disease with no current treatment funded on NHS !! My ribs are agony this week - I've sent for a support belt thing to see if that helps .
Member

Re: possible bone mets

Hey Jill good luck for Thursday hopefully you get some answers i had my meeting today no on surgeon waiting list he has 3 im in the needs it done but not an emergency symptoms quite stable should be in a couple months to 4 which is worse case he wants me to have some extra time to get over chemo rads aa i didn't finish till feb this year and it can hinder healing also need sone bone meds as test came back osteopenia so something is starting but can be sorted with pills i need my bones nice and strong before surgery im having olus side is i can have Christmas unspoilt xx take care x
Community Champion

Re: possible bone mets

I know I am having to adjust to the fact that I am going to be permanently disabled to some degree also .
Member

Re: possible bone mets

Keep in touch Jill let me know how you get on im really nervous about my op now i5s quit a lot of spine work so looking like i won't be getting back to work at all now just going yo have to get used to the idea xx
Community Champion

Re: possible bone mets

Mishy - half asleep so sorry reply a bit brief -Rheumatology next Thursday 6th Dec , back at neurosurgeon January to discuss op on lower spine ,stil have hole in leg after abcess - Nurses still coming twice a week to dress it .Still on crutches and can't drive .Oncology still can't say 100% not mets but looks more likely rare bone disorder - not a great outcome either as no treatment apart from surgery - DEXA scan says not osteoporosis so other things causing fractures - so prob a choice between 2 rubbish options - oh well . Applied for and got my disabled car badge just need to be able to get in car to use it now .Good luck Monday - I will opt for op too as my symptoms are also pretty scary .x
Member

Re: possible bone mets

Hi Jill Chick not posted in a while on this thread been having a bit of a time with anxiety since my last app with neuro how are you both doing i hope everything is ok for you both
Ihad my bone density checked last week should find out results at gp app tomorrow got my surgeon appointment on Monday with surgery date i def think i have to get it done i have been having some awful and at times pretty scary symptoms so i think i just have to grit my teeth and got on with it
It has brought alot of fears about bc back too which i think were probably still there as with all of us but have resurfaced thanks to my setback
Jill hows your leg now i hope its better and you are at least getting some relief
Chick did you get the injection and if so did it help xx
Take care lovely ladies xx mishy x
Community Champion

Re: possible bone mets

Oh Mishy can totally sympathise re your appointment I really don't think I asked any questions apart from "do you think it's is secondaries" when I saw neurologist - it was only after leaving that I looked into what Id been told and thought * *** should have asked more questions this is serious stuff .How depressing that he doesn't think things can be improved just stopped from getting worse - can that be right ?? I'm pretty sure I was told taking pressure off spinal cord would help relieve symptoms .The thing with my neck is also pretty scary as it actually means that because of a malformation of my skull part of my brain is poking down into spinal canal !!!! Looks like symptoms can be helped with that too but again it's major surgery.I understand how you feel about work too ,I lost my job after 12 months off sick and have not been well enough even to consider voluntary work since my hysterectomy for womb last year - feel like my life has shrunk very small indeed and very jealous of those living their lives to the full post treatment .Good idea that you are going back to see surgeon to discuss in more detail - is he sure the op won't improve things for you ?? I have appt with rheumatology on 6th December so will not be any closer a diagnosis til then .x
Member

Re: possible bone mets

Hi Jill the ribs he just felt them!!!! He checked my last bone scan (jan) which was clear very confident its that, my neuro app on the other hand i was offered surgery there and then to be out in his list or think it over or see him in 3 months to be monitored cant make anything better surgery is to stop it getting worse 😨 says i can end up getting balance problems arm weakness leg weakness as it progresses and if this happens it cant be reversed he is also concerned about me not falling as tbis could injure my neck more the prospect of becoming disaled by this is scaring me he can't say how long etc as everyone is different, its not a severe compression which would need immediate surgery but you could clearly see on scans my spinal cord is being squashed in a couple of places which is causing the problems i have got dropping things clumsy hands etche also asked what was my job i explained that i haven't been able to go back as after bc treatment this has also started so he said oh thats ok then?! i chickened out and left appointment saying I'll see you in 3 months probably not the best way to handle it so i have decided to see him again and discuss surgery properly the pros cons etc it doesn't help when because clinic is running over you feel rushed and i was also stressed before i went hopefully when i see him next we can come to a sensible decision for me after all i don't want to end up potentially in a wheelchair through it sorry for the moan and rant girls i just felt so damn deflated yesterday when i got home
Jill how are you getting along lovely i hope you are feeling a little better after leg surgery have you had any appointments yet its so tiring isnt goung to different appointments i really envy the ladies who have been abke to get back to some kind of normality after their bc treatment xx
Community Champion

Re: possible bone mets

Mishy how did you get on with your surgeons appointment ?
Community Champion

Re: possible bone mets

Chick - sorry you are still struggling so much and yes I totally understand how you feel .Ive given up telling the truth when people ask how I am and the list of ailments is so long and depressing !! The most debilitating at the moment is my ribs - which I'm sure I'm aggravating due to using crutches .Mishy how did your Onc diagnose your rib issue ?
Member

Re: possible bone mets

Hi Chick i know exactly what you mean how frustrating for you but as you say surgeon may speed things up for you, sometimes i think its also good having a break from forum too, it can be good for us, i do think exercise can help i make an effort to walk every day im even thinking of doing some tai chi as its not as strenuous but still exercise i feel the same too re surgery i really would prefer to not have to have it sick of being a patient and sick of second guessing everything after bc i think i need some much needed respite from it all, we all do
Jill hope you are ok too i think once you have some answers you will be happier too
Stay positive ladies remember we are 💪 we have been through a long haul so we need to be kind to ourselves xxxx
Mishy
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Member

Re: possible bone mets

Hello Mishy and Jill and anyone else reading, 

 

Having a bit of a break from the Forum, well apart from this response.  

 

Mishy and Jill,  so sorry to hear you are still having so many pain and mobility issues. 

Mishy - glad you got an explanation for the rib soreness. 

 

Jill - glad to hear you have at last received some specific explanations of causation.  Hopefully,  you will get explanation for the remaining issues soon  and treatment started to alleviate at least some symptoms.

 

I got a letter the other week from hospital saying I was now allowed to ring up for an appointment.  I rang and found out it was for a neurology appointment but no other details could be given.  I went to the appointment yesterday thinking that after 8 months of crap symptoms, they considered me worthy enough to have at least a discussion of having nerve injection.   

 

The appointment was with a neuro surgeon to discuss and examine suitability for effing surgery.  What a waste of mine and his time.  I clearly expressed my frustration,  though obviously not blaming him as it wasn't his fault and we both agreed there had been confusion.  That it would have been more apt to look at injection first.  However that was not his realm.

 

We still made use of the time. I actually informed him that I was against invasive surgery for now (a lot to do with my BC experiences and I have decided that I am  not in a place at the current time to accept surgery).  I also asked if he could use his influence to speed up appointment to discuss nerve injection.

 

Apart from that,  I am trying to ignore the pain and follow my own exercise routine.  Well I can't do any worse than the so called professional treatment.  My breathing has gone downhill again. I think some of it is down to the pain meds and the chilli pepper cream so going to try and reduce use even more. 

 

Some of it is down to reduction of activities as well as side effects of cancer treatments.   I did quite well trying to build myself up after chemo etc but it is a bit more difficult at the moment to be positive again.  It is just like having no respite from the BC -  over a year and half of active BC treatments and then straight into this.  I am sure you both know what I mean. 

 

Best Wishes, 

Chick 🐣 

Member

Re: possible bone mets

Eeh Jill i feel bad for you it must have sent your anxiety levels through the roof thinking it was mets i have a form of arthritis caused through psoriasis which flares up from time to time at moment its not bothered me but my skin is terrible atm, i have episodes of anxiety which elevated when i was going through treatment im alot better now hardly bothers me till i have any investigations then my mind goes into overdrive i think its awful that you have had to deal with a possible mets diagnosis for months im pleased you now have had most of your answers take care x
Community Champion

Re: possible bone mets

Yes Mishy ,it does sound very similar.I can put up with the neck issues but the leg weakness has made my mobility very poor so I would def consider surgery - when I have recovered from the last one !!! I still have an open wound that is being dressed by district nurses every other day !! I am waiting for DEXA scan and rheumatogy opinion about the bone issues - there is a chance of a genetic bone disorder according to Oncologist - just want to know what I'm dealing with after 6 months of investigations .
Member

Re: possible bone mets

Jill your feport sounds very similar to mine! I have spurs compressions of cord too however mine is neck not lower back thats has bulging disc degeneration i am back at neur5 on Rhurs to find out what hes doing and when back went yesterday couldnt lift my leg sit or anything has settled this morning but i haven't had any sleep my neck is still the same i really don't want the problems i have with my arms and hands to get worse so i suppose surgery shouldn't be turned down, had my onc app he reviewed my scans of head and spine saus not mets and has out my hip and rib pain down to spine and radio therapy!!! I think when you have a spinal problem the pain can be deferred to the hips legs and feet i also have chostochindttis in my ribs onc could feel the inflammation but no mets which was whst i wanted to hear, Jill i suspect if you have oestoarthritis and have gone through menopause you could have some osteoporosis my doc has arranged a dexa scan in Nov
Chick hi hope that you are chugging along ok and your back isn't causing you to many problems be careful when jts slippy out girls my neuro doc told me to be careful and avoid falls xx
Community Champion

Re: possible bone mets

Hi all .Got a cancellation appt with neurosurgeon yesterday which has at least given me some explanations for my difficulty walking /leg weakness / numbness .The first thing he said was that the spine MRI was definately not suspicious for cancer - I have osteoarthritis causing bone spur which is causing spinal cord compression leading to weakness and numbness in legs ,osteoporosis causing disc issues and lower back pain and a neck abnormality ( prob from birth) which is causing pins and needles in hands .Further MRI in January then he will discuss surgery to remove some bone and relieve presume on spinal cord .So leg is not cancer ,spine is not cancer - crossing them off the list but still have multiple bone issues with no definite cause and a report saying multiple bone mets - exhausting .How are both coping with the pain /discomfort .My ribs are being aggravated by having to use crutches and haul myself in and out of chairs etc
Member

Re: possible bone mets

Hello all,

 

Curlylocks - I responded to you on the other thread.  Don't feel you  need to respond back as I have seen your responses here.

 

Mishy - yes as before - ask about the rib pain and anything else that is troubling you.  You are having such a hard time at the moment that I think that they should be doing everything they can to make you as comfortable as you can.  I still have sore rib area after over a year and still the stabbing pains every now and again but just expect it now.  I was told it was due to the surgery and radiation.  It gets a bit worrying when people report almost spontaneous rib or other fractures.

 

Jill - greetings - You already know my thoughts on your situation.  I hope the wound is healing fully now and the pains are decreasing.

 

Best wishes to all and anyone else who is dealing with pain and the aftermath of treatment.!

 

Chick X

Member

Re: possible bone mets

Hi ladies seems like a lot of us have rib issues min3 have been really sore lsst couple of weeks i def think the rads and chemo could affect thrm, my GP has arranged for mr to have a dexa scan in Nov as he feels i may be osteoporosis or osteopenic following treatment and menopause status confirmed in last blood test, im seeing my onc on Monday a clinic follow up so mentioning my ribs and other aches might as well while im there hate how we question everything we would have ignored before diagnosis x
Member

Re: possible bone mets

Hi Jill. I was on tamoxifen but was changed to letrozole when I complained of side effects. You’re right though, maybe I should consider going back to it 

Community Champion

Re: possible bone mets

Could you change to Tamoxifen -if you def have osteoporosis they prob should be considering that anyway ? I must admit I really did think it would be a lot more straightforward getting a diagnosid .
Member

Re: possible bone mets

Hi Jill. Thanks for responding. It is very painful. It really limits activity. I’ve been diagnosed with osteoporosis as well. He says combination of that, chemo and radiation is causing it. I’m not buying that though. It’s happening too often.  If it’s not Mets then I think the letrozole must be playing a big part. You’re right about the bone scan. They always recommend another scan or ct but won’t give a definitive diagnosis of Mets. Very frustrating. I wish you all the best in your recovery 

Community Champion

Re: possible bone mets

Hi Curlocks - I think floodsya did end up being diagnosed with mets .I am in similar position with rib issues and other areas of concern but despite numerous scans Oncologist is still not sure its mets - I thought it would be a lot more straight forward to diagnose .Does your Oncologist have another explanation for your broken ribs ? It's so uncomfortable isn't it ? I feel like someone is squeezing me really hard all the time .
Member

Re: possible bone mets

Hi floodysa. Just wondering how your mri turned out. I also have 5 rib fractures, 4 on the left and 1 on the right. My oncologist seems very unconcerned about it but I have the dreaded feeling it’s bone Mets. 

Member

Re: possible bone mets

Hey Helena glad to see you are better following drs instructions is very frustrating i probably could do these things just they could make things worse in the meantime so i have a moan which i shouldn't as there are so many others alot worse of than me my trouble is im stubborn hate asking for help but its for my own good atm!!!!
Fingers crossed mate you get in and get your op done next week hope you get it out of the way and make a speedy recovery how's your OH Helena hope he is getting along ok x
Chick it has been lovely today fresh but lovely and sunny x
Community Champion

Re: possible bone mets

Thank you Mishy - hope it works 🤞🤞
Member

Re: possible bone mets

Jill thsts awful i really feel for you sending you the
💃💃💃💃💃blood dance get rid of those nasties take care xx
Community Champion

Re: possible bone mets

Mishy

 

Sorry to hear that you are suffering so much my friend but glad your sitting in the garden this morning helped you, it is lovely to just sit and listen to the birds, I was watching our squirrel (yes it definitely is the same one) burying his nuts in our lawn, dont appreciate the holes but it is lovely to watch him.

 

Beautiful day here today albeit a little cool.  I have just been to collect my car as it was MOTed today, thankfully it passed, so that is one worry gone, lets hope the other worries I have, have as good an outcome Smiley Happy

 

xxx

 

 

Member

Re: possible bone mets

Hello all,

Mishy - lovely to hear from you. Glad it is sunny where you are and you are enjoying it.

Jill - oh goodness sake - must feel never ending. Hope they can sort it out and you manage to get home later.

Best wishes,
Chick 🐥 X
Community Champion

Re: possible bone mets

Ladies - back in hospital due to infection in wound - in A and E waiting to be admitted for IV antibiotics ☹️
Member

Re: possible bone mets

Morning ladies happy Autumn 🍁🍂 absolutely beautiful morning Jill i know you can't get about yet but if it's as sunny and fresh where you are aa it is here pull ooen the blinds and windows its lovely Chick good to see you have been able to get out a bit too the pain from a prolapsed disc is absolutely horrendous so i sympathise im lucky in some respect that mine is upper as it doesn't affect my walking its just sheer bloody frustrating that i cannot do anything normal myself silly things like carrying a bag cutting a hedge lifting the baby when she comes ir pushing her pram chopping veg all normal everyday day tasks i have to rely on someone to do for me i can't even walk my dog now nstead have to go along with someone as she is too big (lab) really frustrating however i have noticed since i stopped doing these things the pain is alot better but its not real life at the same time so the op is probably the only thing that will solve it, Jill any appointments yet for you has your pain settled any, i hope it has i hope you hsve had lots of things to occupy you there is only so much TV isn't there i enjoyed the peace and quiet this morning i sat in garden in dressing gown cold as it was just enjoying the sound of birds i find it helps me destress the anxiety monster crept in last night and kept me awake for hours the mind is a strange thing mine is anyhow at times but this morning sorted me out xxx hsve a good day ladies take care x
Member

Re: possible bone mets

Hello Jill,

Thanks for message. Went out again yesterday for afternoon and early evening. This time managed to sit down and have refreshments in comfort. It's just so nice to only feel mild pain even if it's only for a few mins. Mind you, bleeding "Jack" let me down last night - it didn't work so a few hours sleep again mixed in with watching episodes of 'Uncle" and a few walks around the house.

I totally agree about the sleeping position. I am finding it so hard to be comfortable staying on one side. I try on my back and the other side even though it really hurts but I would have to be very drugged up to fall asleep in the other positions. I do try sleeping on my knees with my body and face forward at times.
You are so right, that sleeping position can cause other problems.

How are your wounds doing? Is it all healing well? Maybe I missed another posting - have you got results appointment soon?

Best wishes as always,
Chick 🐥 X
Community Champion

Re: possible bone mets

I can totally sympathise on the pain /discomfort front Chick - finding a comfortable position to get any sleep is a challenge for me.I have now aggravated whatever is going on in my ribs as getting in and out of bed /off sofa requires me to haul myself up putting strain on my upper trunk -I feel like I am In a straight jacket (I might be if I don't get some relief soon ) .Hope you are feeling a bit better today .x
Member

Re: possible bone mets

Hello all,

 

Jill - glad that you are now moving a bit. Sleeping on your back - ouch that made me cringe!  Hope the bleeding stopped ok and wounds healing as well as can be expected. 

 

Mishy - can understand the anxiety about the precautionary head CT.  Fingers crossed for your forthcoming action plan.

 

We might have different things going on but I think we can all agree that the pain and discomfort is just unbearable at times.  I am having such a hard time sleeping during the night.  The pain can intensify whether pain killers or not. I have to keep getting up and walking around.  I make a drink and even have a snack and then put my tablet on in bed and distract myself watching things.  I tend to fall asleep through the programmes so have to keep restarting and it puts me to sleep again.  Never mind white light being bad for sleep, being in pain is much worse.  I have got through "Trust", "The Killing Of Eve" and most recently "The Slap" amongst others! 

 

I had my best sleep for months the other night, but only after taiking dihydrocodeine with a shot of Jack Daniels.  I know - not a good habit and I don't want to end up an addicted insomniac  but maybe every now and then for some relief.  The day after, i.e. yesterday, was the first day I felt like going out properly  for over a week.  Spent the day in town but every step  was painful.  I could not even sit down in peace whilst having a coffee.  When I was eating my tea later at home, I ate some of it whilst squatting on the floor as it was the least painful position. 

 

Physio and that say about keep moving and doing normal activities but I just think they do not have a clue.  If I could do normal activities, then I would not be needing their services. I would like to see them continuing with their normal activies of, e.g. work, if they were experiencing the same thing.  This certainly is not getting on with life after BC treatment - I am beginning to climb the walls in frustration (or if only I could climb a wall!). I have an appointment on Monday.  I will wait and see how I feel but at the moment I think it is pointless continuing with the bits and pieces physio service. 

 

Take care all,

 

Chick X

 

 

 

Community Champion

Re: possible bone mets

It's a slow process isn't it Mishy .Good that you had a caring person doing the scan - makes all the difference .Im in a lot of discomfort tonight - back ,legs ,ribs and hips all hurting .Have had to hit the strong painkillers but they make me feel wiped out the next day and it's a drugged sleep is better than none but not very refreshing 🙁Hope you 2 are managing some pain free rest 🤞🤞
Member

Re: possible bone mets

Sorry for the typos my fingers are a bit nimb
Member

Re: possible bone mets

I know Jill i hope you get sone clarity soon and when your leg heals im sure it will be better had my head ct today with and without contrast dye, iver quickly but was feeling anxious even though its a precautionary scan i can't help with the what ifs
Spine wise i have my 2nd mri of c spine on 9th tgen my EMG in 11th so once tge nuero surgeon has reviewed them i will get an app with my action plan the lady today in ct was lovely so person centred she knew my bc history as i had to fill in the check list and prior scan questions wanted to know when i had it and which part of body so after explaining that it was a radiotherapy planning ct she was totally sympathetic to the scanxiety and wished me the very best made me a cup of tea before i left, these occasions restore my faith in the NHS although i have had nothing but the best with the bc team i fiund gps can be less than sympathetic mine had me down as neurotic when there was an actual problem thank goodness for locums and then theres your experience of late Jill and Chick which makes me think some shake uos need ti happen it must be doen to an overstretched system not enough man power etc but nit good when you are on the receiving end
Take care lovely ladies Jill keep that chin up x
Community Champion

Re: possible bone mets

Thank you Mishy - moving a little bit better today - had clips out of wounds - hoping bleeding will now stop.Sleeping on back is not great for back pain but have no choice ☹️.Nothing through for spine issues yet .Hope you and Chick are coping ok with pain and discomfort - seems to take an eternity to progress things even when "urgent " .

.
Member

Re: possible bone mets

Hope you are feeling a little better today Jill xx
Hi everyone x
Community Champion

Re: possible bone mets

Thank you Jencat .
Member

Re: possible bone mets

Hi Jill, I'm so sorry that you're going through such a horrible time at the moment and just wanted to let you know that I'm thinking of you x

Member

Re: possible bone mets

Jill i agree with Chick, it has been handled incredibly insensitively and i really do hope its not the case with your results and will be keeping everything crossed for you x
I never watched it i have recorded the episodes to watch on a binge watch im planning in trying to keep it for the recuperation period if i can wait that long haha everyones been talking about it, im currently watching big little lies on sky Atlantic with Nicole kidman and Reese Witherspoon its really good xx