15-01-2019 09:07 PM
Hi. I had my first surgery nov 2016 and second in jan 2017. Since the first surgery I have been in excruciating pain. I was told other ladies suffer pain and there was nothing they could do. In mid 2007 I had pain injections into my back and breast. For the first time since that first surgery I had some relief. This was repeated later in the year. It will be done again this year. As I understand it, this can be repeated twice a year but I am unsure for how long. I am advised that the nerves were damaged in surgery although the surgeon has not acknowledged this, nor is that person interested. Every day despite the injection I wakein pain and go to sleep in pain. I have learnt to live with it. It’s not been easy. I have to find distraction techniques, which have been provided by my Counsellor and Maggies. My surgeon tells me cancer does not cause pain so I guess that is reassuring. It’s not, nor has it been, easy but l am surviving. So can you 🤗🤗🤗🤗🤗🤗
10-01-2019 04:07 PM
Thank you for sharing info about pain. I had a WLE in May 18 and just recently have started to experience pain over the scarring. When I spoke to my breast cancer nurse, she told me it is more than likely the nerves repairing themselves. I think that once you have received a cancer diagnosis any niggle and you think its returned.
18-12-2018 09:26 PM
I've gone a bit blank and can't think what WLE stands for!? Anyway, I had a mastectomy over a year ago. I have found that the area feels tight some of the time and wonder if this is to do with going to the pool quite a lot and the skin becoming dry and in need of moisturising. I did have chemotherapy and radiotherapyas well and maybe the latter also makes the skin tight(er). I experience some mild discomfort under my arm from time to time and am supposing that this is where the nodes were removed.
07-12-2018 06:07 PM
11-11-2018 08:28 PM
I do too, coming up to 4 years post op in March and still get shooting pains and tenderness, all perfectly normal I was told especially after having radiotheraphy X
11-11-2018 07:11 PM
Yes I get aches and pains arounf WLE and SNB site and am almost 2 years post-surgery. I had a clear 2 year mammogram recently and discussed the pains with the breast doc who reassured me it was normal. I have had slight breast oedema too and I think that has contributed. Hope your doc can reassure you.
07-11-2018 03:03 PM
07-11-2018 07:23 AM
Hi there, just wondering if anyone else has had pain in the affected breast a long time after their WLE? I had WLE with chemo and rads which finished about 2years ago. I am on Anaztrzole, alendronic acid and calcium for osteoporosis, but 49. The pain started intermittently about 2 months ago but now is constant and I can’t lie on that side. I say pain it’s more like the achey heavy pain you got when you were breast feeding and your milk was full (!). I can feel it with each bounce when I run. I mentioned it to my surgeon at my annual check up (when it was not constant - a month ago) and she said they had given me all the treatment there was and didn't seem bothered. Almost like if it is something there is nothing else to give you? I am going to see GP on Friday but wondered if anyone has had anything similar, could it be scars settling or slight lymphedema? , hoping for nothing more sinister!