Member
Posts: 1
Registered: ‎30-07-2016

Re: Weekly paclitaxel (taxol) and hair loss

Hi, I have had my second paclitaxel. I can't seem to sleep the first few days after! My hair hasn't started to fall out yet. I have very long hair so I'm getting it cut tomorrow. I was told it will fall out. Has anyone experienced it not falling out?
Member
Posts: 2
Registered: ‎25-06-2016

Re: Weekly paclitaxel (taxol) and hair loss

I am having diarrhea
And irritable bowel. Just happy not to be constipated 😀
Member
Posts: 2
Registered: ‎25-06-2016

Re: Weekly paclitaxel (taxol) and hair loss

Hi Shalla, 

good you are done, I hope each day you feel better. I did my 3rd weekly taxol today and about 3 days my hair started thinning. I have long thick hair but my heart is breaking to watch it go. This is my seconds   time it should be easier but it's not. Did you do anything to keep your hair? Was it too thin to wear it? Did you cut it? 

 

Thank you you so much whenever you respond. I had ACT before so it came out in clumps 2 weeks after and I shaved it and moved on. This time not knowing how much will come out is killing me because I don't know what to do.

 

thanks again

Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Hi I struggled with fatigue alot. It's hard to say for how long as I am currently fatigued 12 months later as I've just had another mastectomy and recon. I was struggling with burning joint pains especially in my legs- very flu like but these subsided after my herceptin ended so am not sure if that was the taxol or the herceptin!
In terms of bowel symptoms- I had to start buscopan and omeprazole on chemo for cramps and gastric irritation and tended to have diarrhoea more than being constipated. I am now on tamoxifen which makes me very constipated and therefore I take regular laxido and Senna:
Hope this helps. Everyone is different. My Gp said the pains and fatigue were probably more evident because I was younger- if I was older then I would've felt like that anyway!
Good luck x
Member
Posts: 2
Registered: ‎27-05-2016

Re: Weekly paclitaxel (taxol) and hair loss

Hi Danmac,  

 

i recently started Taxol weekly and the Herceptin q 3 weeks - I am wondering how long it will take to regain some strength and stamina after I finish the Taxol.  I am hoping Herceptin does not have effect of fatigue also.

 

 

Member
Posts: 2
Registered: ‎27-05-2016

Re: Weekly paclitaxel (taxol) and hair loss

I recently started on Taxol and Herceptin, became very constipated after first 2 rounds of Paxil - my doctor said the anti nausea meds which are added to the IV mixtures were the cause of it.  I also had IBS issues before chemo - I find daily fiber ( Benefiber or Metamucil ) helpful.

Member
Posts: 1
Registered: ‎04-04-2016

Re: Weekly paclitaxel (taxol) and hair loss

I have just finished my weekly Taxol and will continue on herceptin.  I never lost my hair!  it has thinned out quite a bit on top, but I have very thick hair.  another question......Has anyone experienced inflamatory bowel issues?  even blood in their stool?

Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Hi there Bellamia! I didn't work during treatment and still don't at the min as I'm a hospice nurse and the environment hasn't been right for me/ I'm mainly suffering anxiety and having cognitive behavioural therapy. Are you having herceptin also?
My hair started shedding around week 5 I think so I shaved it off. I lost all my eyebrows and lashes towards the back end of chemo.
Are you on the younger breast cancer network on Facebook? Ybcn uk for women 45 and under. I was 32 at diagnosis. I do have email but not sure how to let you know it in private?? X
Member
Posts: 3
Registered: ‎29-02-2016

Re: Weekly paclitaxel (taxol) and hair loss

Danmac10 Did you work? Did you lose your hair? So many questions?! Do you have an email, maybe that would be easier if you don't mind? You are the only person I found so far with the same treatment as me... It would be comforting to speak with you 💗 Thank you for responding .
Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Hi there Bellamia!
Good luck with the start of your treatment. I finished my chemo mid May last year and have just finished my herceptin last Wednesday. I haven't been on here for a while but if there's anything I can help you with let me know. It is very doable xx
Community Champion
Posts: 590
Registered: ‎07-10-2015

Re: Weekly paclitaxel (taxol) and hair loss

Hi Bella ,

the last post on this thread was a while ago (about 12 months) the ladies may not be on the forum much anymore if you head over to the chemotherapy monthly threads you can join the March starters for people who are staring chemo in March, you can also pop into the other months threads to ask questions from those further along Smiley Happy

Jen x
Member
Posts: 3
Registered: ‎29-02-2016

Re: Weekly paclitaxel (taxol) and hair loss

Danmac10

I am 37 yrs old and start my regimen today of weekly taxol x12 and herceptin every 3 weeks X 1 yr. I will be receiving both today. I would love to stay in touch being we are on the same journey
Member
Posts: 3
Registered: ‎29-02-2016

Re: Weekly paclitaxel (taxol) and hair loss

I am 37 yrs old and start my regimen today of weekly taxol x12 and herceptin every 3 weeks X 1 yr. I will be receiving both today. I would love to stay in touch being we are on the same journey
Member
Posts: 3,842
Registered: ‎01-05-2012

Re: Weekly paclitaxel (taxol) and hair loss

Dear All

 

Just sending you all a gentle reminder about our daily Live Chat service - Talk Together. This is a private chat room where you can talk to others who are also facing breast cancer in confidence.

Talk Together takes place every weekday from 12.30 – 1.30pm and will not be moderated or accompanied by a nurse. If you would like to register or find out more information then please visit

 

http://www.breastcancercare.org.uk/talk-together

 

We hope that you enjoy using the service and that you find it help.

 

Thank you

June, moderator

Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Hi nan66. It is strange but it isn't bothering me yet but then I've not ventured out. I just keep walking by the mirror and forgetting! I have a selection of bandanas from Bohemia and wore a little sleep cap last night. It's my eyelashes I am dreading as they are really long and are a major Facial feature for me. Keep reminding myself it is all temporary and we will fight this xxxx
Member
Posts: 14
Registered: ‎13-01-2015

Re: Weekly paclitaxel (taxol) and hair loss

I'm so sorry to hear about your hair loss. I lost mine with FEC. I know a lot of ladies are quite comfortable without but I wore a wig when I went out and found it worked very well. Had no problems with it. The fringe hid the no eyebrows. I used 'hats' from suburban turban at home.
Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Just to update everybody... I had my 4th taxol (and 2nd herceptin) on Friday and yesterday (day 23 post 1st taxol) my hair was coming out thick and fast. If I ran my fingers through my hair it was all coming out. I couldn't stand it and my head was hurting. My sister came and shaved it off. She said my scalp looked sore and swollen and the hair was so thin. I don't know if it would've all come out but the speed and volume it was happening was freaking me out. My nephew said I had gaps in my eyebrows too- I think he may be right but they are fine anyway.
Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

Hi nanmaste. Thanks for that info. I have heard about nose hair etc which I never thought about before! I was so bunged up the other night I couldn't breathe and then wondered what would happen to all the mucous and dust etc if it went? It's my 4th taxol tomorrow and I think my hair is thinning- it certainly seems a lot 'flatter' and my eyelashes this morning felt almost fuzzy and not as long when I put mascara on. My main symptoms at the min are fatigue- especially four days after, mucositis and bad ulcers which are very sore when swallowing, film like feel in mouth, and generally feeling like my bones are 90 years old. I ache really bad!!! I have had flushing face and acne but I think that's the Iv dexamethaosne- certainly the spots were and they have been controlled on duac cream. If my hair thins badly then it's all going. I can't live wih patchy hair. I've already cut it ALOT shorter than I have in the past. I'll just watch and wait. Thanks again x
Member
Posts: 53
Registered: ‎08-04-2013

Re: Weekly paclitaxel (taxol) and hair loss

I had weekly taxol last year. I think my head hair started going after the 3rd dose but it never completely went. I did cut it very short and it got very thin, but didn't disappear. What did go completely was all my other hair. I wear glasses so the loss of eyelashes didn't affect me too badly. What really made a difference was losing my nose hair. I didn't realise how important it was till it wasn't there! Hope everything goes well for you xx

Member
Posts: 29
Registered: ‎20-10-2014

Re: Weekly paclitaxel (taxol) and hair loss

That is what am dreading most. Not just because I will look so different but because i also wear contact lenses and will be really prone to infections. I'm getting very dry eyes at the min and wearing glasses most days plus gel tears x