09-10-2018 02:54 PM
08-10-2018 07:56 PM
I have the same problem and today the nurse at the chemo day unit gave me a couple of creams that should help. They ar ethe Aveeno moisturing cream and QV cream. Both were free so I don't have to do to the shops! Worth a try. I also use sun cream factor 50 whatever the weather when I go out and that helps
08-10-2018 03:28 PM
06-10-2018 08:54 PM
25-09-2018 12:45 AM
15-09-2018 12:17 AM
13-09-2018 04:10 PM
12-09-2018 11:06 PM
10-07-2018 09:36 PM
Hi I am on week 2 of taxol I have been told I will loose my hair and I won't so only time will tell, didn't try the cold cap it out so much time on your treatment.
i looked at it like this treatment is hopefully saving my life so what is loosing hair it will go back.
i am 62 not a young person which I could imagine effecting more.
never hear of this perjeta will look it up.
i am on same treatment as you plus I am have a acid injection every 6 months for 3 years.
after the taxol I am to have radiation therapy but haven't asked how many etc will cross that bridge when I come to it.
i wish you well in your journey I haven't found mine to bad yet and will keep you updated on my hiarloss if any I have been told week 2/3 .
take care cin up.
10-07-2018 09:27 PM
Hello I am new to this just joined today don't normally join anything like this, but thought I would put my experience down as I have read loads and found some very useful.
all so a lot I have found are years old.
so to start I had 2 breast lumps one which I found and say someone sent it to me, you see my brother has just died of prostrate cancer , which could have been avoided. It's a long story which I am not going into details but
if some one at some hospital had passed a message on to his doctors 2 years ago he would still be hear.
we are not miracle works and mistakes happen.
So one morning i woke up to a very small lump on my left breast thought Nothing of it and would normally have not gone straight to the Docters, my normal thoughts would have been it a little cyst and will go away in a few weeks.
but no due to my brother I went straight away, with in 10 days I was at hospital having all usual test!
to my amazement with in 7 hours I had had I don't know how many mammograms, scans and a biopsy.
my head was blown away. They actually found 2 lumps and as it happen there was a big one at the back grade 3 already and as they put it didn't like the look of it and it was hiding away, thank goodness for the small one who I say God sent. Someone did anyways.
long story short had to have 2 operations, found to be connected to the prostrate cancer have all the receptors family now having gene testing. My brother just died at 68, my father at 62, his brother 94 that's good there dad at 78 and his father at 50ish. I am the only girl in the family .
i am now on 3 weekly herceptin and Taxol every week for 12/18 weeks depends on how I deal with it.
Also I am on a injection every 6 months to protect it from going into my bones or hopefully kill any that might already be there, only time will tel.
my effects do far are last week on tues had my first dose of all 3 lol.
tues ok Wednesday well hyper they said it was the steroids. Thursday what a come down where had all my
energy gone felt really off ache all the time felt like really bed flue didn't like food Didn't taste sane at all, coffee tasted awful so got a lot of juice in.
found out with not having as much coffees got bad head so now drink a bit more must have been lack of caffeine.
friday wasn't as bad as Thursday but still not good, sat came to a bit had a lie down afternoon so I could go to my sons BQ after football he had just arrived home he works abroad and it was his birthday 6th he was 35 my middle one.
sunday managed church for a few hours had BQ we had people over from Chicago but came home felt achyand a bit off Monday not to bad.
Today Tues was my second dose of just taxol went well but was very tired, so went to bed when I came home and apparently you could hear me snoring down stairs, so will see what tomorrow brings.
really hope this helps someone just starting and I will continue to put on every week, I do really say how it is no sugar coating I can't see the point. So far I have found it's no where near as
15-05-2018 12:27 PM
28-03-2018 06:48 AM
27-03-2018 10:07 PM
10-03-2018 02:36 PM
Re Paclitaxel ....doany of you get sore, aching muscles at all’? I find under my bra straps and along under my bra at the back is very tender.
also I get a reddish arm on the 3rd day which I thought could be cellulitis, but don’t think so now as it goes away...but my arm muscles hurt if I do too much.
be greateful to hear if others had the same?
09-03-2018 03:15 PM
Message for Teach 124 - I have just had third cycle of epicirubicin and cyclophosphamide and will then receive Herceptin and Perjeta with - Docetaxel, I would prefer Paclitaxel to Docetaxel but am told I cannot have that combination, can you please tell me where you are receiving your treatment? I have a DCIS and HER2 pos. I hope you are doing well.
02-03-2018 11:22 PM