Not sure if anyone will read this but I thought I'd jump in anyway. I volunteered to join the ROSCO trial and in my case the trials nurse and oncologist couldn't have been clearer about the risk of having 8 rounds of chemo prior to surgery instead of 4. Fortunately for me after 3 rounds of FEC, starting on 8th Feb, my own Gremlim has got smaller, so I will have my final round on 12th April, followed by surgery, then 4 rounds of TC. I have also been well aware that I can withdraw from the trial at any time. I've coped well with FEC but that could be down to the Macmillan unit I'm on which I am sure has the mantra of give anything and everything to counter any side effects of chemo. Must admit I'm not looking forward to going onto the T, but if I wasn't on the trial I would have had FEC+T both prior to and after surgery, which would have meant 12 rounds of chemo instead of 8.
I'm sorry to hear you have regrets about joining the trial, but did you also know you can change your mind at any time and leave the trial? Any trial is the same - it is your choice. If you do leave, then they would just do what is best for you given your circumstances, so might be worth asking? Might mean radiotherapy rather than chemo?.
I joined the ROSCO trial in September, and have had 3 FEC so far. I did think about leaving the trial a week or so ago, and asking to go onto the usual treatment which would mean i'd now have 3 T. But that would mean I would be having T over Christmas and NY. This way I will have my final FEC next week, then a break before surgery which I expect to be in Jan. I'll deal with whatever comes after that in the new year.
If you can get through Docetaxel and neutropenia you can get through anything JacqB! My body doesn’t tolerate the taxanes well. I developed hand/foot syndrome after first docetaxel and on Paclitaxel I have peripheral neuropathy so had some delays and now I’m on an 80% dose. I do hope FEC is kind to you. Interesting that they do the T first on the trial. I wonder why?
Onwards and Upwards indeed! I’m off for a free massage today via the Ellie’s friends charity. It will be good to be prodded and poked around for a ‘nice’ reason and not something medical!
im not on the ROSCO trial but just wanted to say I do feel for you having to go through more rounds of chemo.
I was on 4 x AC then supposed to do 4 x T. Problems with docetaxel meant I was transferred on to 9 weekly Paclitaxel and I still have six more weekly sessions to go (if I have no more delays). I also have to have bloods the day before each session. Im at the hospital at least twice a week and usually more. So bored of the place! What drug will you be on for the next 4 cycles.? I am hopeful to be finished before Christmas. I can see why you are so utterly fed up especially as your treatment will extend into next year. My hair has been growing back and I think I’ve heard from others that their hair started growing back on the second half of chemo. Hope you manage to keep yours.
Just wanted to send hugs. We’ll get there eventually!
Take Care Clare xx