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Cold Cap - did it help keep your hair?

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Re: Cold Cap - did it help keep your hair?

P.s. Yes, I mentioned to him there was another lady off the forum due in later and that you were desperate to keep your lovely hair. He says he had six wig fittings that day. The man on reception says they're getting so busy with bc women it's almost worrying. 😳
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Re: Cold Cap - did it help keep your hair?

Morning Kathryn.
I've ordered a wig from
Tribeca. He advised, because I've cut my hair so short it wouldn't be worth buying real hair as the synthetic will look just as authentic. So £200 instead of around 500 to 700.
If yours is still long, that's a lot to pull out for something you might not need. Here's hoping you'll keep it all, and if not that you'll keep enough that you won't be able to notice.
I had my first chemo yesterday and wore the bed cap thing last night. I woke up about 3am with it stuck to my head in sweat. 😳 Horrible. X
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Re: Cold Cap - did it help keep your hair?

Angela how did your tribeca visit go, he mentioned he's had a lady in before me who's also cold capping... I said I know haha. My hairs still hanging on at the minute so I'm going to wait to buy one xx
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Re: Cold Cap - did it help keep your hair?

Hi Amanda, I'm so glad you found my experience helpful, it makes it so worthwhile using this forum! If you need any other tips/support do please let me know. Wishing you all the best in your treatment, and let me know how it goes. If you do need chemo remember it's zapping all those nasty cancer cells!!  🙂Take care xxx

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Re: Cold Cap - did it help keep your hair?

Hi Gill... Thank you so much for sharing your experience and tips which has given me hope if I have to have chemo. I am still waiting to hear as I was only diagnosed last Thursday and have been told that I will have a lumpectomy and radiation initially but then dependant on other tests such as my HER2 results they will br able to establish other treatment for me.... dreading chemo as I don't want to lose my long hair (down to my mid back). I hope yours continues to work and that you make a full recovery Gill, take great care of yourself- Amanda xxxx

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Re: Cold Cap - did it help keep your hair?

 
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Re: Cold Cap - did it help keep your hair?

Haha. I feel like bleeping all of the time
Kathryn. Obviously im having fec-me instead of fec-t. 😳
Hoping tribeca does wonders for us without clearing out the bank balance. 🤞🤞
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Re: Cold Cap - did it help keep your hair?

Forgot you can't swear on here.... shame haha. The word bleeped out Is sh*t
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Re: Cold Cap - did it help keep your hair?

I'm also there on Monday but at 11.30 has to change it from 10.30 as have pre chemo or I would have probably seen you! Seems it varies with different hospitals with how helpful and how much you get! Trust us to get the **bleep** stick being in the north east! I had my recon done at the qe and I'm really pleased with the way my boob looks though the scars seem a lot redder now im on the chemo xx
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Re: Cold Cap - did it help keep your hair?

Hi mishy, yes I'm at the QE. I've had the rest of my treatment there so thought I might as well have it all under one roof. Although apparantly the radiotherapy is only carried out at the Freeman so I'll be there for that, and I would like my reconstruction carried out there as well as I've heard really good things about the plastic surgery.

I had my pre assesment (bloods etc) nearly three weeks ago, it's taken this long to get my ward visit monday 3rd and then straight in for chemo the next afternoon.

I'm cold capping so maybe I wouldn't of been entitled to a voucher anyway. Like you, I'm worried about the gollum look. I not overly keen on wearing a wig either, but I really wouldnt be comfortable wearing head scarfs. I couldn't stand people looking at me thinking 'she's got cancer'. I'm just not brave enough for that.

 

Carole, your hospital sound generous and on the ball when it comes to making sure you have the things you need. I cant tell you the hours I spent trawling the internet looking for advice. I didnt even know what  a softie was until I came home with one boob and wondered how I was going to wear a bra. x

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Re: Cold Cap - did it help keep your hair?

I've found my hospitals pretty generous with things.  They referred me to a wig service despite saying I was going to cold cap, which meant I got £120 off price of a wig.  Therefore I only paid £40. It is synthetic but the guy recommended this as it is so much easier to look after, stays in style and doesn't need any styling.  I'm quite happy with it. 

My BCN gave me half a dozen softies after surgery.  Yesterday I had a PICC fitted and they've given me a prescription for the waterproof Limbo cover for showering. That saves me £18 buying one. 

So I've no complaints on this side of things. 

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Re: Cold Cap - did it help keep your hair?

Feal the fear are you having your treatment at QE? I'm starting mine at Freeman on 10th having my assessment and ward thing on Monday I couldn't have a voucher either I'm trying cold cap but well aware I could end up looking like gollum so would still shave it off if I end up with baldy patches all over! Not allowed a voucher when cold capping!
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Re: Cold Cap - did it help keep your hair?

Hi Kathryn.
Yea, nightmare getting anything. I came away from mastectomy without even a softie. Had to ask what I needed on here and buy everything online. I didn't have a clue.
Apparently I can't have a voucher towards a real hair wig. Only the hospital recommended fake ones. And yes, I've got an appointment at tribeca 9am Monday before my chemo ward visit. 😳
I've heard he's really good too. I know a couple of people who have had his wigs and say they're fantastic. X
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Re: Cold Cap - did it help keep your hair?

Can anyone remind me what the cold cap times are for fec, I know it's half an hour before. Im.jjst sitting here thinking and sure mine was only kept on an hour after the drugs, is this right or should it be an hour and a half ? And is this just to 'defrost' the cap wasn't stuck or anything and slid of easily after the cap x
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Re: Cold Cap - did it help keep your hair?

I didn't know that about the dry shampoo, I used Batista. I don't know of a chemical free one. Why won't they give u a voucher for that surely it's up to you what you buy! It's a total nightmare trying to get anything from them isn't it. Where are you going for it In going to a place called tribeca in Boldon, supposed to be really good xx
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Re: Cold Cap - did it help keep your hair?

Hi Ladies,

My chemo nurses advised me not to use a dry shampoo between washes as they contain lots of chemicals. I found I could manage anyway with twice weekly hair washing. x

 

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Re: Cold Cap - did it help keep your hair?

Thanks for the encouragement slowski.
Melia, I'm relieved you're not finding the chemo too bad. Well done for managing only two washes in 26 days. 😳 If I go two days I look like I've been caught in the rain. I'm going to buy some dry shampoo but I'm worried about the chemicals. Really struggling to find any info on what brand I should buy.
I want a real hair wig and apparently Gateshead won't give me a voucher towards that. I have an appointment Monday morning at a salon that does them. Have a feeling it's going to be pricey. Kind of pleased my hair is short now as it might not cost as much. Cancer is expensive. X
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Re: Cold Cap - did it help keep your hair?

Hi angela, still not been offered a voucher from my chemo nurses and reluctant to ask again. I've got an appointment at a wig shop on Monday so I'll get a fair idea of prices etc though im hoping I won't need one at all. I go from feeling totally positive and that I'm not going to lose a single hair to I'm going to look like friar tuck! As most say that's where they lose it. I've not started shedding yet but dreading it I'll freak out if it falls out in handfuls. I've only washed my hair twice 16 days since chemo With the help of my mam, I haven't used the shower but used a jug like when I was a kid! I did put dey shampoo on last week as the grease was horrific and I had to go to a party I just sprayed it and left it overnight as didn't want to rub it.. and combed out Next morning. My hair better bloody survive as it's getting treat really well haha. Also the chemo has been fine apart from really tired for a couple of days. It was the low moods I struggled with more, this doesn't seem to be listed as a side effect but everyone I've spoken too said they suffer this... so just to prepare you. I think it's the steroid come down. Good luck for starting let me know how u get on with the cap. Kathryn x
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Re: Cold Cap - did it help keep your hair?

I just wanted to encourage you cold-cappers; I shed quite a bit of hair two and a half weeks into my first FEC but that was really the bulk of the hair loss throughout 3 FEC and 3 Docetaxal. I kept about 40% of my hair and now, 8 weeks after final chemo am wearing headbands just to keep it and the new hair in order as its quite fluffly and unruly. I did find it very uncomfortable, although as others have said its the first 10-15 minutes in particular, and I always dosed up with paracetamol beforehand. By chemo 6 I was unsure I could face it again but I did, and with hindsight I'm so glad I did. So don't be discouraged by early hair loss ladies !

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Re: Cold Cap - did it help keep your hair?

Hi Melia
I hope you're coping okay with the chemo. Mine starts next Tuesday at Gateshead. I'm also trying the cold cap. My bc nurse says to expect to start losing it around week 4 to 6. She also said most of the ladies she knows who cap lose around 40%. That doesn't actually sound too bad. 🤔
Did you get a back up wig? I remember how determined you've been from the beginning to keep your hair.
Are you using a dry shampoo between washes?
Angela. X