Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Gateshead are just using the paxmam. I took my own paxmam conditioner and they said the paxmam owners daughter had been in and advised that you only need to use a really small amount of conditioner once the water is on. I've got quite thin hair though so doesn't take much to flatten it. And as it's going to well for you, I'd probably keep lathering it on. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Yeah mine is the same, I haven't had ice on my head after either session I don't know if that's a good think or not bit I do out like nearly a half a tub of conditioner in my hair ha. They said they are using a new machine at my hospital and are having great success with it so filled with lots of hope. I found the second session worse than the first for some reason xx
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

And still no hair loss woop woop still got hair paranoia... hoping the cap was fitted as well as last time. I couldn't have the strap as tight as last time as it was making me feel sick but still had it fairly tight xx
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Everything I read says expect a slump about day four or five? I was really surprised at how easy I found the cap. It was a bit uncomfortable for the first 15 mins, then at some points i actually thought the machine had stopped working. I was amazed to see ice on my head when I was over. I managed to eat through it though ( with difficulty) hoping it was tight enough. I was paranoid that there was a bubble at the back of my head where it wasn't touching. They kept reassuring me it was tight, but I still kept pushing it down. They left it on for 30 mins prior and 90 after. Is yours the same? X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

And still no hair loss woop woop still got hair paranoia... hoping the cap was fitted as well as last time. I couldn't have the strap as tight as last time as it was making me feel sick but still had it fairly tight xx
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Well we will be feeling pretty much the same I imagine... I was really tired yesterday but feel fine today and tomorrow I expect my steroid buzz haha. Be prepared u may slump physically and emotionally after the steroids stop. I did last time bit only lasted a few days. I am so hungry too, eat while u want too as much as u can as u may not fancy much later on in the week. How did u find the cap ? Xx
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Thanks for the tip Kathryn. Unfortunately I'm not on Facebook. I closed it down a couple of years ago. First chemo went well. Felt like I'd been to a rave for a couple of hours this morning, but fine now. Soo hungry though. I'll have to keep an eye on that.
Hope yours went well. Things should be looking good for you if you haven't had any hair loss yet. 🤞🤞🤞
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

U couldn't wear the night cap as found it too hot also. Try a hair net instead I got mine off Amazon for a couple of pound and fits really well and is still on every morning. Are u on Facebook? Private message me your details and I'll add you to a lovely little group we have goinf for people just starting chemo. Made by a lady on here. How your first chemo went ok I had my second yesterday cx
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

P.s. Yes, I mentioned to him there was another lady off the forum due in later and that you were desperate to keep your lovely hair. He says he had six wig fittings that day. The man on reception says they're getting so busy with bc women it's almost worrying. 😳
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Morning Kathryn.
I've ordered a wig from
Tribeca. He advised, because I've cut my hair so short it wouldn't be worth buying real hair as the synthetic will look just as authentic. So £200 instead of around 500 to 700.
If yours is still long, that's a lot to pull out for something you might not need. Here's hoping you'll keep it all, and if not that you'll keep enough that you won't be able to notice.
I had my first chemo yesterday and wore the bed cap thing last night. I woke up about 3am with it stuck to my head in sweat. 😳 Horrible. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Angela how did your tribeca visit go, he mentioned he's had a lady in before me who's also cold capping... I said I know haha. My hairs still hanging on at the minute so I'm going to wait to buy one xx
Member
Posts: 60
Registered: ‎20-03-2017

Re: Cold Cap - did it help keep your hair?

Hi Amanda, I'm so glad you found my experience helpful, it makes it so worthwhile using this forum! If you need any other tips/support do please let me know. Wishing you all the best in your treatment, and let me know how it goes. If you do need chemo remember it's zapping all those nasty cancer cells!!  🙂Take care xxx

Member
Posts: 1
Registered: ‎30-06-2017

Re: Cold Cap - did it help keep your hair?

Hi Gill... Thank you so much for sharing your experience and tips which has given me hope if I have to have chemo. I am still waiting to hear as I was only diagnosed last Thursday and have been told that I will have a lumpectomy and radiation initially but then dependant on other tests such as my HER2 results they will br able to establish other treatment for me.... dreading chemo as I don't want to lose my long hair (down to my mid back). I hope yours continues to work and that you make a full recovery Gill, take great care of yourself- Amanda xxxx

Member
Posts: 1
Registered: ‎01-07-2017

Re: Cold Cap - did it help keep your hair?

 
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Haha. I feel like bleeping all of the time
Kathryn. Obviously im having fec-me instead of fec-t. 😳
Hoping tribeca does wonders for us without clearing out the bank balance. 🤞🤞
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Forgot you can't swear on here.... shame haha. The word bleeped out Is sh*t
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

I'm also there on Monday but at 11.30 has to change it from 10.30 as have pre chemo or I would have probably seen you! Seems it varies with different hospitals with how helpful and how much you get! Trust us to get the **bleep** stick being in the north east! I had my recon done at the qe and I'm really pleased with the way my boob looks though the scars seem a lot redder now im on the chemo xx
Member
Posts: 440
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Hi mishy, yes I'm at the QE. I've had the rest of my treatment there so thought I might as well have it all under one roof. Although apparantly the radiotherapy is only carried out at the Freeman so I'll be there for that, and I would like my reconstruction carried out there as well as I've heard really good things about the plastic surgery.

I had my pre assesment (bloods etc) nearly three weeks ago, it's taken this long to get my ward visit monday 3rd and then straight in for chemo the next afternoon.

I'm cold capping so maybe I wouldn't of been entitled to a voucher anyway. Like you, I'm worried about the gollum look. I not overly keen on wearing a wig either, but I really wouldnt be comfortable wearing head scarfs. I couldn't stand people looking at me thinking 'she's got cancer'. I'm just not brave enough for that.

 

Carole, your hospital sound generous and on the ball when it comes to making sure you have the things you need. I cant tell you the hours I spent trawling the internet looking for advice. I didnt even know what  a softie was until I came home with one boob and wondered how I was going to wear a bra. x

Member
Posts: 241
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

I've found my hospitals pretty generous with things.  They referred me to a wig service despite saying I was going to cold cap, which meant I got £120 off price of a wig.  Therefore I only paid £40. It is synthetic but the guy recommended this as it is so much easier to look after, stays in style and doesn't need any styling.  I'm quite happy with it. 

My BCN gave me half a dozen softies after surgery.  Yesterday I had a PICC fitted and they've given me a prescription for the waterproof Limbo cover for showering. That saves me £18 buying one. 

So I've no complaints on this side of things. 

Member
Posts: 1,562
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Feal the fear are you having your treatment at QE? I'm starting mine at Freeman on 10th having my assessment and ward thing on Monday I couldn't have a voucher either I'm trying cold cap but well aware I could end up looking like gollum so would still shave it off if I end up with baldy patches all over! Not allowed a voucher when cold capping!