Member
Posts: 1,847
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Hiya my daughter came with me anyone can use the centre if having treatment in north east you just ring them and make an appointment they are on a Monday every four weeks I just called in myself for a cuppa and asked if I could sign up for one, they have lots of different drop in things going on aswell as classes of yoga nd stuff! You and your family or friends can go it's lovely the staff are all lovely try it!
Yep thick hair thankfully cos its shedding like mad every time I move I shed just strands but constant, I hope it worked but I have a terrible feeling it's not going to stop I've been dredding this bit but I will plod on with it in hope it will stop after this one x if I get a bald patch anywhere visible and have to start some horrible comb over I will have to admit defeat and go for the shave......
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

I've been thinking the same about pulling out for a wig. I think I'll see how this week goes following
Yesterday's chemo. If mine thins at all you'll be able tell especially these days with not being able to use products or a hair dryer. I can't complain though. It seems our chemo nurses are really putting the effort in to get us a good fit with the cap. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Sounds like were having very similar success im.having my mam wash my hair and she's saying she can see new hair growth! I would think the chemo wasn't working if I hadn't been so I'll! But I would honestly spend a week in hospital than lose my hair. Is it worth buying the wig I really don't think you will need it if you havw kept this much so far even if it thins a bit Now would it not still look ok. Xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

I feel for you Kathryn. We all hope for a smooth ride. Hopefully they can get on top of whatever has caused the problems this time round so next session in kinder to you.
I haven't lost at hair yet. Second session yesterday. In fact I'd say it's even grown. I didn't think I'd lost any from elsewhere either but hubby pointed out that I've definitely lost quite a lot (probably too much info). Really hoping I get through this week without a shed. Nurses said they were surprised I hadn't lost any yet and that this is usually a very good sign, so fingers crossed for us both. I've got another tribeca appointment next Tuesday to pick up my real hair long wig. Bit nervous about how much it's going to set me back but couldn't of coped with the short synthetic. I felt I looked ridiculous. It was an awful feeling. I had to fight back from the bottom lip wobble. Nothing else through this whole episode has made me actually cry.
I feel good today apart from period cramp and a bit of a flushed face, which I think I got last time round off the steriods. Temp is normal.
Hoping they'll have everything under control for you soon so you can get on with the next round. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

I've been meaning to sign up but hospital visits have got in the way of that. Angela my hair is still staying should have been due my second chemo today. Of course I'm delighted about it but completely baffled I haven't even had a shed I'm losing less hair than I usually do. Not complaining though! Maybe determination and stubbornness do pay off after all haha. How is yours doing?

I'm neutropenic... there were treating me for sepsis but can't find a source for infection. I came in feeling unwell and with a temp last Tuesday expecting be sent straight home and im still hereSmiley Sad they sent me home last Thursday but I was back in within 3 hours with same thing. So I think they are being ultra careful with me now and don't want to send me home to soon. Just waiting on bloods coming up so I can hopefully come home! So glad my hair is staying at that would have tipped me over the edge xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Hi mishy.
My hair is thin anyway. I've moaned about it all of my life, but now it seems it might be helping me with the cap as it's tight to my head.
It would make sense that the thicker your hair is then maybe the cap wouldn't be as tight to your scalp? It should also be a lot less noticeable when you shed. It wouldn't take much shedding for me to be bald. 😳

How did you sign up for the look good session? The chemo nurses keep saying they'll get me the info but so far I haven't had anything.
Did you go alone or take someone with you? Not sure I want to get the metro on my own, but think I would rather go to the maggies centre than to my local one in Sunderland, as I've heard lovely things about the centre but nothing about sunderland's.
Member
Posts: 1,847
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Well everyone still shedding I got a bed cap to help no clumps or bald spots thank God or it would be coming off know how you feel about the wig mind I haven't got one yet dredding the thought of one I still have alot bot quite a bit has shed thank God it's thick I will keep you posted on it though I hope it bloody worked!
Feeling alot better ready for another blast on Monday and yeah the look good thing was good you should sign up for it the maggies centre is lovely it's located in the Freeman hospital x
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Hi JA48.
Hoping today goes well for you. It was a relief to get my first one out of the way early this month. It wasn't bad at all. Just a bit boring. I took plenty of snacks and water. Don't forget a 500 paracetamol about an hour before capping. The icy feeling will wear off after about 15 mins and you'll forget you're wearing a block of ice.
Member
Posts: 2
Registered: ‎26-07-2017

Re: Cold Cap - did it help keep your hair?

Thank you for all your posts ladies.  First chemo today,  will be using a cold cap,  it's so good to read about your experiences. 

Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Hi mishy.
When I had my second fec yesterday the nurse told me it was very unusual to have no shedding. She says when she usually applies the conditioner for cold cap there is always some hair on her hand. So hopefully that's all you'll get. Light shedding.
I can imagine how you feel though. I'm so paranoid about losing any.
I went to try on my short synthetic wig yesterday and was shocked at how emotional it made me feel. I just wanted to run away. I hated it. I then tried on a real hair, longer one and felt so so much better.
Looks like hubby will be paying at least 700 instead of 200. 😳And hopefully it will be a very big waste of money as I won't need it.
How are you baring up now?
And Kathryn, how is your hair doing and are you out of hospital yet? I hope it's nothing serious. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Oh no well hopefully it's just a small shed! I bet that course cheered you up I've seen the good bags you get If your on Facebook you should come join us on there I think I might havw seen u mention it in the chemo starters group xx
Member
Posts: 1,847
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Well girls I have started casting hair like a lab Smiley Sad started yesterday not clumps just strands of hair I keep finding hair on my clothes or if I touch it, not enkuyto get out the clippers but enough to make me think oh no here we go is this it! Hopefully it's just a small shed!

Kathryn I feel OK this week first week was horrible SE sent me to hospital for a few days so knocked me of my feet a bit, the Onc has tweeked the red stuff for next one which is Monday so fingers crossed

Went to a look good feel good at Maggies yesterday was really nice met lots of nice ladies and got a lovely goodies bag of make-up and perfume all good stuff to bring home, you should definitely both sign up for one!

Hope you are better soon Melia and both of you keep well x
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

I haven't heard of shedding after round 2 either I hope I'm not an exception. I'm actually amazed with results so so grateful it's staying as think that would tip me over the edge at the minute. I've brought my hair net and silk pillowcase to hospital with me haha. I don't care how ridiculous i look as long as I keep my hair. My next chemo is delayed due to being in here. I hope they just tell me that I don't need anymore:/ wishful thinking xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Yeah, five days in hospital doesn't sound good. Hope you're back on track Kathryn. Keeping your hair so far is excellent though. 🤞🤞🤞I've never heard of anyone staring to shed on round three.
Hi mishy. House move is a nightmare. We knew the house was bad when we bought it (worst house on best street we could afford). We're literally stripping it back to brick. I haven't got time to be ill so hoping round two is as kind to me as round one. How are you getting on? X
Member
Posts: 1,847
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Well Melia that is great nearly round 3 and still your hair Smiley Happy sorry you have been in hospital I wasting my first week!! But glad we are all OK Kathryn How's the house move and good luck for round 2 x
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

That's great news, I lost body hair just before second cycle..ive been waiting for a big shed this second time round and still nothing. Im astounded.. I expect to wake up to handfuls on the pillow but the longer it's going on the more confident im feeling about keeping it. Glad yours is doing well too. Hope the move is going well xx
Member
Posts: 541
Registered: ‎15-04-2017

Re: Cold Cap - did it help keep your hair?

Hi Kathryn. I've been off the forum for a week as just moved into a new house (building site) so not much time on my hands.
Thought I'd check in today to see how you were doing with your hair and noticed your post to me.
I've not lost any (anywhere) yet.
I'm due my second fec tomorrow and have noticed some people don't start to lose any until after the second dose, so who knows what this week might bring.
Great that yours is still in tact. I'm obsessing over mine. It's been pretty hard not washing it daily while our new house is in such a state. Walls being knocked down etc. I'm starting to feel like swampy.
Angela. X
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Hey that's great news mishy. I've done 2 cycles now was due my next one on Tuesday... but that's been delayed due to being in hospital for 5 days...but tagta another story :/ my hair is staying firmly stick to my head so im delighted with results so far xx
Member
Posts: 1,847
Registered: ‎29-04-2017

Re: Cold Cap - did it help keep your hair?

Hi Melissa it's day 14 for me after first fec I could capped too and so far so good although I hear it's around now u start losing hair so I'm bracing myself! My down below has already Started! Probably too much info but I left it on purpose to see if that fell out too and it's already happening Smiley Happy so every cloud eh!!! I will keep you posted on hair on head situation!
Member
Posts: 199
Registered: ‎16-03-2017

Re: Cold Cap - did it help keep your hair?

Angela how are you getting on with the cold cap?.x