Riversdawn I didn't realise the cap could be put on differently, I was under the illusion before cold capping that it would gradually warm to my head which I thought wound be much kinder not.only for my hair but the shock my body gets getting me head Instantly frozen... seems a much kinder way to do it that way. Don't think I'll bother to ask to change methods now though as the instant head freeze seems to.be working for.my hair xx
I kept a good covering of bob length hair through 3 x FEC and 11 x weekly paclitaxol. I agree with cap size - I've got a small head (wear a child's riding hat which my daughter outgrew when she was 8!) but I think they ended up with a large cap and medium cover as it gave a better fit.
2 different chemo nurses had different approach to firing. The first cooked the cap first then put it on ..... the hair that I lost was all from this one. The next nurse put it on at room temp then cooled it on my head. It gave a much tighter fit and I had no more significant loss.
My hair thinned pretty evenly all over, no big patches. It was pretty thin on top but a clever comb over pony tail covered that!
Hair continued to grow through the rest of treatment and I had a good 2 or 3 inches of new hair at the end xx
Hi, I started THP chemo in may, used the cold cap through all 4 cycles and my hair has only slightly thinned. I've just had my first of 2XEC cycles, used the cold cap again but all I've heard is bad things about EC and FEC making hair fall out!!! Has anybody else had this drug regime and kept their hair after the change of drugs? Thanks, Skye x
Sorry to hear you've lost your hair kbomb. I've managed to keep my so far after two fec. I agree about cap size. I was quite insulted when my chemo nurse said I needed a large cap covered by a medium. I never thought of myself as having a particularly large head. 😀 I'm glad I went with it though as it seems to be working. I'm sure you'll rock the Hollywood film star look well. 😀 I picked up my real hair wig last week and absolutely love it. I went to the look good feel good session yesterday and even the women there didn't know it was a wig. I've been wearing it even though I've lost no hair it's that gorgeous. I had my hair cut really short before chemo to ensure the best fit for the cap so the wig is giving me back my identity.
Hi KBomb you did the right thing I know I felt better after I shaved I couldn't bear watching my lovely hair just dropping out in front of my eyes so now it's gone its one less thing to worry about x yeah snap about the wig too! I need to get me one of those ASAP Melia you lucky thing hang on in there you might be one of the lucky ladies!!!!! The Fec certainly took my Barnet thats for sure 14 days after first one xx
Well last night after constantly picking lumps of fallen locks off the baby and feeling that I was walking around balancing hair on my head, I said goodbye to it all. I got my hubby to pull out the clippers on it whilst my 5 year old danced around the room laughing at how "funny mummy looked"! After the shave I can see where the cold cap had sat and where it hadn't quite been fitted properly. The bits where I had lost hair and gone bald were around the sides and back of my head. I was resembling something of a monk with a dodgy 90's undercut. I can see where it has thinned out a fair bit on top but reckon that perhaps if the cold cap had been a bit bigger then I may have got away without losing so much. Anyway it gave my 5 year old a good giggle and my hubby says I look like Angelina Jolie now (he really does know the best things to say!) so I'm just gonna go with it. However now I am thinking I perhaps should have waited a few days and got a wig ready beforehand.... Oops! Nevermind! Now where did I put my hats?....Xxx
They won't let you cold cap once you shave I had to as mine was so patchy and thin I looked like Golum so I shaved for my sanity the nurse on chemo unit said you can't cold cap of no hair to cover scalp as it will get freezing burns, hope that helps
Good luck to anyone who is still hanging on to their hair!
Does anyone know if I were to shave my head really short, if they would still let me use a cold cap? Or is there a limit to how much hair you can have? Just wondering as it's really starting to fall out and go patchy this end. Wondering if I should just shave it off? Xxx
Second daughter has the bug now... up half the night cleaning up sick! So glad no chemo today as I couldn't have managed with sickly kids on top. I swear someone is filming my life and watching it like an episode of eastenders.. so unlucky at the minute. Be really careful from day 10 angela when your bloods drop think that's when I picked up my infection. Hope you feel a little better soon mishy xx
Hi Melia yeah I'm getting used to baldy look! Just as well it's not permanent but wig going to be a def for me i think x hope your hair hangs in there for you the dryness is awful isn't it I got that more or less within week of first fec!