Thank you riversidedawn I took painkillers half way through this time which was better and I will ask about tramadol. Do you have any advice for afterwards? In terms of washing hair and the type of shampoo and conditioner - I was thinking of trying the paxman. Also, do you have any tips for styling hair without damaging it?
Thanks again x
I had my hair cut by a volunteer hairdresser at our local Hospice. My hair had been falling out all over while using the cold cap but as you say unless people knew - they wouldn't have known the difference. I had really long wispy bits which looked a mess. As soon as it was trimmed up - it looked so much tidier and much thicker looking. If you feel you need a trim then go for it - it's the little things that make us feel better when going through treatment.
I had my last chemo in January and now my hair is starting to thicken up on top but thin on the ends - I had it trimmed by my hairdresser four weeks ago to neaten it up before I started my phased return to work. People have been amazed at well my hair has coped with all the cold capping and chemo - it may not work for everyone but it does grow back quickly - I'm so glad I stuck it out.
Thank you for all the excellent suggestions! Could you please elaborate on the type of supplements that you took, and the hair growth products that you mention as being "best friends".
Hi, I am new to this forum and have just had my first chemo treatment with the cold cap (which I wear for 4 hours in total). I've found that the last 2 hours are the most difficult due to migraine pains and being uncomfortable. I took paracetamol beforehand but this doesn't seem to help the last couple of hours. Does anyone have any advice for me? My next session is in a weeks time and I was going to give it another go. Thanks in advance
Thank you for sharing your experience. I am having the same experience. I'm losing it all over and it and you can't really tell unless you know me and can see the difference.
The company I used said not to cut my hair for 2 months afterwards and I really don't know why that would matter. I need to cut it because it is fine like yours and I just think it will look much better and be a lot more manageable. I noticed that you did cut your hair during treatment and wonder if it seemed to affect it at all and if the company you used said it was okay.
Thank you so much! I hope everything is going great for you!
I have done 4 treatments of AC. I already did Taxotere previously so I am done with the chemo, hopefully for good. I used the Arctic Cold Caps and kept my hair until the last round and a month out I am still shedding. I don't have any noticeable bald spot but my hair is very thin and I am wearing a wig sometimes because it just looks so much better. I am afraid the shedding will continue and I will lose all of my hair but it looks like that will not be the case according to some of the responses to this thread. I am so grateful for the hope that gives to me. And it is reassuring to hear that my hair should come back faster. I have done everything I was told to do and I am still doing it. I was wondering if anyone used a dry shampoo to help with the oilness between washes. I am only washing my hair once a week because the most shedding occurs after I wash it and it starts looking pretty bad toward the end.
I did great with the cap. I used the Penguin Cold Cap May 2015-August 2015. My treatment was TCH. The way my oncologist set up my. He I mess, I only had to do it 4 times. I did everything they (The Penguin Cold Cap Company) told me to do and I continued this regiment for 10 months after I completed chemo, just to be on the safe side. I also had 6 weeks of radiation treatment. I had a little shedding but in all actuality, the strands I did loose weren't much more on a day to day basis than I have had throughout the rest of my life! When my hair fell out everywhere else, yet still upon my head, it was absolutely the greatest feeling. My eyes filled with tears because I could see the proof that it really really worked! It was also very nice to have a goal, something to focus on, something positive that I could do for myself. Something other than focusing on the cancer diagnosis. My husband and daughter got into it too. It gave them a way to be helpful, something they could do to help! As far as the temp (30' below C), well, that wasn't an issue either. I swear, it was only a few minutes of cold. Your head gets so cold, you don't feel it and there it is... problem solved! A little Ativan (0.5mg in my IV) did the trick and I stayed alert and talked with my friends and relatives while they capped me every 30 minutes! I recommend it and i's a shame so many people don't know about it. I work in the medical field as a nurse and as far as I know, it still isn't FDA approved here in the USA. I think the cost of renting the caps ($1600) was well worth it. It would take me years to grow my hair back and the cool thing was I had something positive to focus on and people didn't question me and tell me stories of loved ones with cancer etc when they saw me. It was my business if I wanted to talk about it, not someone else's.
I went today for my third FEC , I have lost 90%of hair and resemble Gollum now too, I was thinking I could no longer do the cold cap but they said carry on as changing to Tax next round and nurse advised it is not as harsh on the hair so my hair should start growing back so after reading comments on here I carried on. it was much colder this time couldnt wait to get it off , however painkillers took the edge off , I wear my topper to work and thats all good and hats and beanies at home . Like someone else said I was really disappointed in my results as other ladies I saw still had so much hair but it growing back quicker motivates me to carry on
Hello ladies. I'm a bit nervous because this is the first time I have added to a blog but I found others peoples' comments useful when I was considering using a cold cap. Like many of you I struggled through 6 chemo sessions using the cold cap and found the first 10 minutes or so the worst part but despite the tears I persevered and am glad I did. I'm not sure if anyone has experienced the same results as me but I lost more than 90% of my long hair by the time I finished chemo but found that "new" hair has continued to grow! Now just 5 weeks after finishing chemo I have a full head of hair that is 3 to 4 centremetres in length and 2 days ago trimmed of the last of my long hair so I now sport, what my best friend cals, my pixie look.
Hi Everyone, I am going to have my 3rd AC Treatment next Tuesday, I have been using the
Paxman Cold Cap. I am shedding loads and I'm now on Day 20, I have another 6 treatment to go. I Am following all the guidelines about how to take care of your hair during Treatments and using the Cold Cap. I would like to know if my Hair Shedding will slow down?
Thanking you all in advance
Hi Amoyart, I am using Paxman too fingers crossed to you get to day 14 !!Mine was ok until then and now is shedding heaps ! My hair grows very fast and they said i might lose up to 70% but it will grow back faster so I am continuing with it-they will have to put some gauze or a paper hat on to protect my scalp from frost bite lol hope I got hair in 4 days as more chemo..Good Luck hun xx
Hi Ladies I started the Paxman cold cap -the nurses use it -about two and a half weeks ago and as they do everything I hope its all ok, but in the last 2 days its coming out and 6 hairs together in clumps it just wont stop!! They say if your hair grows fast that you could loose up to 70% but that it will grow back quicker and to not shave it off-I am tempted but am wearing a hat all the time to collect the hair thats falling.The ladies using their own cold caps and ice seem to have better results as they monitor the temps more closely. Baldom here I come lol I am getting a wig as I will need one, I have some turbans but need a wig for work. Sharon.xx
I am about to have my 3rd FEC on Monday and using cold caps, too. I have been fortunate. I had a lot of hair to begin with and only shedding a bit more than usual, but nothing noticeable. I start 45min before, but continue it for 6 hours after. I know it's a pain, but it's worth it to me. my hair has not changed at all. I'm not sure if it's me or what, but I only feel a bit of discomfort the first few minutes. I will pray for you. I know it isn't easy. xoxo
I am about to go through chemo #3, and thankfully, I still have all my hair. I am using Arctic Cold Caps. i start 45min before infusion and continue 6 hours after. I wash my hair 2-3 x a week, but do use organic conditioner or cur activator everyday. I have curly hair, so I cannot go a day ala natural i still have my eyebrows, my eyelashes are thinning, but still have my hair. a Bad hair day is better than no hair day for me. Good Luck, all.
I am on day 11 of my first fec cycle having used the paxman cold cap. I followed the advice (used simple shampoo and conditioner) and have washed my hair twice so far & dried it with T shirt with minimal combing. I haven't had any hair loss yet; just wondered the likely pattern of hairloss. I was worried that there would be clumps of hair coming out on my pillow at night. Is this likely to happen or is it more general shedding? I guess without new hair growth there will be cumulative thinning as a best case scenario. I have very fine straight hair cut in a bob at present but it doesn't have much body.
Yes I have read the booklet from cancer hair care and the paxman leaflet and i feel alot better informed. Thanks for great advice.
Hi i 'm on the other extreme and as i just started my 3 rounds of FEC75 yesterday which will be followed by 3 rounds of docetaxel. I opted for scalp cooling and they have the paxman unit at the hospital. I was abit concerned that the contact at the back wasn't as good and when taking it off the nurse commented that the strap was undone around the back, next time I will be more on the ball getting them to check it as I went to the loo and maybe things moved. I had a medium cap with a small covering hat. There wasn't much advice regarding haircare afterwards. I was wondering where you can get the scalp caps to wear at nighttime to avoid finding clumps of hair on the pillow.
I have found snail888 practical advice very useful; thankfully I rung the chemo ward so I knew to bring a headband for covering ears and forehead and I had brought some conditioner. The nurse seemed to be under pressure yesterday and there needs to be attention to detail with cap fitting to get a good result. It would be better if they could have done this in advance.
I am not going to wash my hair for a few days, had it cut from long to a bob and fringe, it is v straight so I'm lucky it looks ok, there is dried conditioner from yesterday but going to leave it if doesn't become itchy.
Thanks for advice against wearing hats if possible as best to keep scalp cooler.
best wishes to everyone going through this.
If you want to look a bit better with your thin hair I can recommend a topper. Just a wide hair extension but so easy to put in
I like the 731 best out of this lot.