Hi again. I remember that stage well and the hair falling out was by far the worse part for me. I decided what was left didn't bare any resemblance to my hair or me. Once I'd decided to clipper off I found it much easier to get on with treatment and one less thing to worry about. I think FEC is tough on hair. I switched my attention to my diet and eating really well and nourishing my body through all the horrid treatment. That helped me and your hair WILL come back. The thing is to get on with treatment and get better. The hair issue becomes less important. People are kind and will support you through this. Go shopping with a friend and get some nice hats and scarves. I got the wig but hardly wore it. Just wasn't me. Treat yourself to some lovely skin and makeup and hair products. I switched to plant based products and avoided anything with strong chemicals.
Dig in you will come through this. Best wishes. X
Just to say I am nearly two years on from Diagnosis now. Stage 3 advanced to nodes. have had a full mastectomy and received high dose FEC and radiation. I used the Paxman system (we live near where the company is based) I managed two cycles of FEC using the cold cap. I found it really tough and after the second cycle my hair came out in huge clumps. as I had masses of hair before it was very noticeable and distressing. At that point I decided to clipper off what was left (with my hairdresser- she was marvellous) and do scarves with funky hats. I was lucky as this was through the winter and I love wearing hats. It was the best thing I did and felt totally liberated. I completed the third cycle of FEC without using the cap.
My hair is now fully grown back. Thick and wavy as it used to be and I have it in a shoulder length bob.
I use an organic wash in hair dye that is very gentle and have the ends regularly trimmed.
It started to grow back straight away so I was never really completely bald. I'm convinced it was the cold capping that helped even though I had a lot of hair loss and only managed two cycles. I'm sure it helped protect the hair folicles and root growth area.
So keep persevering and dont worry if you don't manage all cycles with the cold cap. It will have helped.
Best wishes xx
Thank you for all your posts ladies. First chemo today, will be using a cold cap, it's so good to read about your experiences.
My daughter has stomach cancer and will be receiving epirubicin which will cause her to lose her hair. She is just getting started on the chemo meds this next week. Where do we obtain the cold caps? I've not heard anything about them.