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Cold Cap - did it help keep your hair?

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Re: Cold Cap - did it help keep your hair?

Can you help me I've had my first chemo and used cold caps but on day 13 my hair started coming out. Can anyone tell me if it stops?  All my other problems stopped after a few days does the hair loss stop because at the rate it's coming out it'll all be gone when I finish all my chemo treatments.  I have my 2nd chemo on Tuesday.  If someone can give me an idea if and when it'll stop.  Thanks

Member

Re: Cold Cap - did it help keep your hair?

Been on 3 Fec then 3 docetaxel, last of which was 2 days ago. Cold capped for first 4 treatments (did the usual taking painkillers, keeping it pressed down tightly but didn't bother with wetting and covering it in conditioner). Lost a lot day 14/15 especially after washing. At dose 5, nurses wouldn't allow me to continue using it as there were too many bald patches underneath and they were concerned the cold would completely kill off the follicles and it wouldn't grow back there. You couldn't see the bald bits as I pulled the hair I have left into a hair grip to cover it up and have a fringe left with no bald bits on top. Since dose 5 it has still been coming out but nothing drastic. Have to admit I haven't washed it for almost a month and just used dry shampoo. Nurses were amazed when they saw it at dose 6. I'm hoping it will last now until my next wash but will try to leave it unwashed as long as possible at least until it is stable again which according to some of the ladies on here can be anything from 6 to 14 weeks post chemo. Also the nurses checked the bald bits again and reckon it's growing in again. Seems to be true in my case that the t part is far less damaging than fec. 

Member

Re: Cold Cap - did it help keep your hair?

Hello there

 

i have just finished cold cap after starting the worst form of chemo ever in December and I kept all my hair bar a small patch on top where the cap kept lifting slightly.  The whole aim is to make sure the cold cap fits tightly to your head. The correct size inner and outer cap is imperative to get the best outcome.

i had stage 3 HER 2 positive breast cancer so had 4 different lots of chemo. Carboplatin, doxataxel, pertuzamab and herceptin. If after this regime of chemo I kept my hair then it should work for most people.

i followed strict advice and did loads of research. Although I had long hair (under advice) I got it cut within 2 inches all over to my head. The cold cap needs to be as close to scalp and hair follicles as possible to be the most effective.  So I had it all cut off into a very short hair cut. It was upsetting to see all my lovely long hair go but in the long run sooooooo worth it. I kept all my hair bar one small patch on top but this was due to the cold cap not touching that spot as it kept bouncing up. It is important to mare sure that the cold cap is good tight fit and the outer cap tight to your head.  I took hot water bottle every time with a scarf and I also put a big wooly hat over the top of the whole thing which defo helped.  It will be awful for the first 10 / 15 mins but after that you will get use to it. I had a bed every time during my chemo and not a chair as it was more comfortable to lie down.  I hardly washed my hair during the treatment and always dried it naturally. Don't rub your hair when washing it and buy yourself silk pillow cases they are fab and don't pull at your hair when you are sleeping. I have finished chemo 3 weeks ago and my hair is quite long now all over. I am getting a semi perm dye in 3 weeks time as advice is 6/7 weeks after last session. Good look  xxxxxxxxxxx

 

 

Member

Re: Cold Cap - did it help keep your hair?

I have kept a lot of my hair, about 30-40 % and it seems to be coming back fast too. I cold capped and yes it is very cold. Made my fiancé wear one for 5 minutes at the last session and he was so glad to get it off. I would keep in mind you most probably won't keep all of your hair. It is possible to keep a fair bit though so as people don't notice. It does feel colder the thinner your hair gets, nobody warned me about that. I felt like giving up so many times on the last 2 sessions but having someone there with me helped get me through. It is a very personal decision. It all depends how you feel about kepping or loosing your hair. Most who go for the bald look shave it or cut it shorter before so as not so much hair to come out. For me it was so definitely worth it! This is your decision though Lynn remember that and do what feels right for you. My mum 10 years ago did one but she suffered with Migraines and it brought them on for her and so she had to stop. My mum rocked the bald look and headscarves but it wasn't for me. I do wear a headscarf at the moment but that is more to keep my head warm as it's cold out and my hair is thin, and when sunny (yes I have seen it!) to help keep the sun off my scalp.
Good luck making your decision. If you have any questions let us ladies know! Xx
Member

Re: Cold Cap - did it help keep your hair?

I was diagnosed today & getting 6 chemo sessions over 18 weeks & she mentioned cold cap is it worth it ? I'm overwhelmed, numb, terrified ... Any tips/advice
Community Champion

Re: Cold Cap - did it help keep your hair?

I remember mine shed at 17 days after first chemo only. The first time nurse cooled the cold cap before putting it on, subsequently they put it on at room temperature and cooled it in my head - it gave a much better fit, I don't know if that contributed to the success.
Member

Re: Cold Cap - did it help keep your hair?

Well 17 days after first tc treatment and shedding lots of hair. Different chemo this time from the first back in '91. Head was really sore but not as bad the last few days. Thought they were improving the treatments not making them harsher. Oh well, life goes on.....
Community Champion

Re: Cold Cap - did it help keep your hair?

Oh catpope, sorry you're going through it again. I don't know how much things have progressed in 24 years, but hopefully you'll get an even better result this time/ x
Member

Re: Cold Cap - did it help keep your hair?

I used a cold cap back in 1991 when I had breast cancer, kept most of my hair, but do have very thick hair. Now, 24 years later I am doing chemo again for cancer in the remaing breast after mastectomy. I hope the cold cap works as well this time as it did before. Some people may call it vanity, but I say why not give it a try. Good luck to all!
Member

Re: Cold Cap - did it help keep your hair?

Hi Dezdi -Well done for finishing chemo.

 I finished chemo last April and cold capped (6 x Tax, plus herceptin and Perjeta) . My hair thinned quite a lot and had one thin patch and lost around my hairline and sideburns.

I was worried because for about 4 weeks following the end of chemo I continued to shed a little but after six weeks it was starting to thicken up. I took Tesco Hair, Skin and Nails supplements and used some hair thickening lotion that my daughter bought me. Also tried to eat plenty of protein.

To be honest I have very thick hair and think I could have done without the lotion but it was a thoughtful present so I used it. Since then I have had my hair cut every 5-6 weeks and it is back to normal and if anything is even thicker.

Your hair should start getting back to normal quicker than you imagine at the moment. Good luck.  Marli x

Member

Re: Cold Cap - did it help keep your hair?

Hi All,

 

I had 3 FEC and 2 T my last T will be tomorrow. I lost around 50% of my hair or maybe little bit more I lost a lot the top of my hair not really bald patch but can see my skin a lot. After FEC it started to grow my hair a little bit, but still falling out every day. When it will stop falling out the hair. I am having chemo every 3 weeks and end of the 3. week still a lot, so after my last chemo when it will stop to fall out my hair? and grow normaly? 

Does anybody taking vitamins for the hair?

many thanks

Member

Re: Cold Cap - did it help keep your hair?

I had different chemo but hair started to grow about three weeks after last one. It's about three months before its enough and you realise how long it takes to grow a fringe! It helps when you launch the new short style to wear loads of make up;big earrings and a pretty scarf ......
Carolyn xxx
Member

Re: Cold Cap - did it help keep your hair?

Hi Katielou - I had 6 x T and cold capped. Lost hair every time it was washed and it seemed a lot but slowed down at No.3. Six years ago I lost all hair on EC as cold cap (not Paxman) did not work.
Don't panic - just be gentle with it when washing and take care. I found mine started growing after about 6 weeks post chemo although it did continue to shed. After 8 weeks it was looking good and needed trimming to tidy it up. Good
luck. Marli x
Member

Re: Cold Cap - did it help keep your hair?

I don't know Katielou but I would be interested to know too. I am also in a similar situation. My last one if all goes to plan is 1st April.
Member

Re: Cold Cap - did it help keep your hair?

Just looking for some advice/reassurance. I had 2nd T a week ago after 3 EC. I've cold capped each time and thought I was doing quite well - hair thinned, probably by 50%, but I felt didn't look too bad. I was hopeful that I wasn't going to need wig. However on washing hair yesterday I lost loads, much more than previously - I feel very despondent as understood T generally kinder to hair.

What is generally time frame for hair loss after chemo? When does it stop/slow down? When would you plan to go to hairdressers to improve style? I am having final chemo on 8th March and just want some idea of what to expect over next few weeks.

Thanks for any advice/info you are able to share.

Member

Re: Cold Cap - did it help keep your hair?

Less hair thickness made cold cap feel worse this last time. Still seems to be working as no more coming out than usual after fec. If anything it may be a little less but a little early to tell yet. Xx
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi Vicky...... This time tomorrow you'll be done and I'll be just starting number 4! 😧 Had bloods yesterday, no phone call so far today so assume all going ahead on schedule. 

Trying so hard with the PMA ☺️👍🏼  I'm a bit perplexed that I'm not having any interim appointments with my oncologist?!..... Not seen him since the day I signed firms the week before cycle 1! Only see the nurses (all be it the main one I see is head onc nurse who assists my onc dr) 

Think I'll ask tomorrow when I'm likely to see him again? Deep breaths....... Got to be done, it WILL end! 

Will be with you in spirit Hun xxxx 👍🏼 hugs xxxx 

 

PS...... Thanks again Kate! Will keep you posted xxx

Member

Re: Cold Cap - did it help keep your hair?

I had 6 lots of FEC 75. Hopefully your treatment will be gentler on your hair. Good luck. X
Member

Re: Cold Cap - did it help keep your hair?

It will be ok Tina. I am right here with you, same amount of hair loss and same cycles.
I spoke with my onc the other week and he said that T is more forgiving on the hair. He is very hopeful that I shouldn't loose too much more. He was very impressed the cold cap had worked so well so far too. I am sure it will be ok. Think positive and try not to stress as some people like that girl in the video loose hair if stressed. It certainly won't help. PMA - positive mental attitude hun thats what we need right now.
Vicky xx
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi. Thanks Kate.
My heart lurched when I read you lost even more after cycle 4!Smiley Sad I'm having number 4 tomorrow and dreading it all again! I've still got my hair all be it very thin but it's still there. List about 50% so far. Did you have 3 FEC and 3 T? Wondered if same drug cycles?
Praying it's going to slow down!? But fear it's not Smiley Sad Feel sick at thought if it all again tomorrow
Xxx Tina
Member

Re: Cold Cap - did it help keep your hair?

Hi. I had chemo starting in July 2015. I decided to use the scalp cooling. It was horrible and I still feel sucking just thinking of it and writing this. It seemed to work ok until after chemo 4 and then I lost nearly all my hair. Up to chemo 4 I had got by with using mane spray to cover thinner bits. I started wearing my wig after chemo 6- my last one and wished I hadn't bothered as I felt it hasn't worked. I am now 3 and a half months past my last chemo and have loads of hair. A short style but it plenty. I stopped wearing my wig after 2 and a half months. I think it must have worked as my hair has come back so quickly. I went to the hairdressers 2 weeks after my last chemo and had a dermabrasion treatment and have been using Nioxin shampoo. I was really upset at the end of treatment about how little hair I had and how I felt the cap hadn't worked but now I have a good 2 inches of hair. Hope this is helpful to someone. X
Member

Re: Cold Cap - did it help keep your hair?

Hi Ladies - while cold capping I developed a thin patch and also lost my sideburns (have short hair so it showed) I bought a powder from Amazon that disguised any thinning. I was only £5 something compared to the very expensive ones. Lots of colours available. Don't remember the name and have passed it on to a lady at Chemo Unit.

Really did the job and I would highly recommend it.  Marlix

Member

Re: Cold Cap - did it help keep your hair?

Me too Tina although it hasn't just widened but a small bald patch by my crown can cover it with a comb over though. Makes me sound like an old man when I say it though lol xx
Community Champion

Re: Cold Cap - did it help keep your hair?

Thanks Vicky I'll take a look. Though touch wood, I've not got any bald patches......🙏🏼 mine user leg th, very dry, thin and as it dries goes fuzzy! My parting is widened and I'm trying to Comb over it to hide xx 

Member

Re: Cold Cap - did it help keep your hair?

Tina check out the videos this girl does on coping with hair loss. She suffers with hair loss due to stress and her hair has been through all sorts from bald patches in different places to it pretty much all going.
https://youtu.be/6qVjgBYus2c
I found them extremely useful.
Hope it helps. I also started a thread that is called bald patches. Some useful bits on there too.
Vicky xx
Member

Re: Cold Cap - did it help keep your hair?

I've just finished 3 Fec and 3 T which will be followed by surgery. I've been wearing wigs from the start and in this cold weather its been really helpful. I stopped using the cap after the first session as my hair was falling out anyway and I knew I'd have to explain to people what's going on. The wig is easily acceptable and friends think I have fancy hair extensions. Little do they know as I haven't told them anything. My tips for wigs depends on how you normally wear your hair and if you wear glasses. I wear glasses so I find a wig with a fringe is too much on my face. So I wear a lace front wig which means the front has no fringe and gives a really natural hairline. I use a special wig glue at the front to fix the wig in place and it stays there for about three weeks. 

 

Psychologically this is important for me as it means I don't really see my real head that often. I also ensure that I replace my wig before my fingers get too numb from the Doxetacel. That kicks in from about day 4. Does that help?

Community Champion

Re: Cold Cap - did it help keep your hair?

Hi guys..... Been a while since I've been in this thread. I'm cold capping, already had 3 FEC and first of three T due next Friday. 

Ive shed about 50/60 % of my hair. It's thinned a lot but it's still there. I hope every day I wake that today is going to be the day it slows down or stops..... But no. More strands on pillow this morning. I've got a wig ready, which I've not been brave enough to put on.

 

My questions are.....

On having the T drug did  this change, improve, or stay same in your opinion for you?

Have had burning sensation in set area and slight pain that started last night...... Why? Am I to expect a bald patch?!

Any tips on coping better as hair much thinner since the start? 

Tips on putting wig on and keeping it on? Please xx 

 

Thanks guys. Xxxx Tina 

Member

Re: Cold Cap - did it help keep your hair?

Hang on in there SueFag and hope you're feeling better today. It's tough but I keep telling myself that the bad cells are hopefully being dealt with. Sometimes I get forgetful and normally throwing out dates and schedules and ahead of the game!

. I've had two Tax so far and last one tomorrow then I have the op to deal with. I'm expecting the constipation again from Day 2 though I'm on Senna tabs and Buscopan to help with the lower stomach burns. Fingers are still sore whereas after the 1st session my fingers and toes felt normal after two weeks. Each night I drench my feet and hands with Diprobase which helps combat the dry skin. 

Hubby has been brilliant.

 

Member

Re: Cold Cap - did it help keep your hair?

Hi Victory

Brilliant that you have your daughter as support. My stepmother comes along with me and sends me pictures of nice wigs. There are some good wigs out there and the wig consultant at the hospital gave me a wig catalogue by Browns. What has really helped me with the hair loss is the fact that I only see my bald head once every two/three weeks as the front of my lace wig is glued on with special wig glue. The type that celebs have and I can pull the hair back in a bun. No unfortunate windy moments.

Member

Re: Cold Cap - did it help keep your hair?

Hi Pumpkin,

Thanks Smiley Happy I am planning to make an appointment to try some wigs on soon while I still have a decent amount of hair! I am coming to terms with the prospect of hair loss, it helps that the roots have started to go so grey and I can't dye them anymore!  My daughter is 18 so isn't bothered by the fact I might have to wear one, in fact she wants to come wig shopping with me.

All the best to you too.

Member

Re: Cold Cap - did it help keep your hair?

Thank you Pumpkin,

Had a bad day (lucky as first one really) sick even with anti sickness tabs ugh! Aching, dizzy, like a bad hangover without the fun! Had palpitations too after only one steriod in the morning.  Not going in workntoday, they are all fine and I do have a computers here so can work. My partner Wolf, tells me to accept the treatment and be brave, and I must, as he has been just that!

Take care, Sue xxx

 

Member

Re: Cold Cap - did it help keep your hair?

Hi SueFag

 

Me again tonight. I know there are different types of steroids but I was advised by the nurses to take them by lunchtime and no later than 3pm avoiding caffeine after that time as well. Once I forgot taking them later and like you was wide awake watching tv at 2am. I've been really lucky that my employer has allowed me to work at home totally since mid Oct. Apart from a few occasions I have resisted sleeping in the afternoon as I wanted to be knocked out sleeping at night otherwise I start to think negatively if I wake up and can't go back to sleep.

Member

Re: Cold Cap - did it help keep your hair?

Hi VictoryV

 

I struggled through the cold cap for about 6 hours when I had the first session of FECT and like you had terrible headaches. As I started to lose hair anyway after two weeks me and hubby said it wasn't worth it but I know for some people it has worked with just minor hair loss. I've even read that some people moved from FEC to T and their hair started to grow! I had already purchased three wigs in preparation which I now wear everyday and my kids haven't even questioned them.

 

Good luck.

Member

Re: Cold Cap - did it help keep your hair?

Hi all

Not been on the site for some time, been hectic this last couple weeks,  self assessment time!! Felt good this last couple weeks thoug, maybe the adrenaline of work and the fact I'd got my bowels sorted !

3rd EC Fri, felt a little nauseous and the fact they were running two hours late,  helped me decide not to have the cold again. My (very fine hair to start with) is noticeably getting finner on topso this made the decisions easier. Its not tge temporary loss that worries me butvthe fact thst that the Oncologist mentioned that it may not grow back! People I have spoken say this is very rare, so hang onto that. The nurse , at Christies said tgat she would email my oncologist to ket her know what I'd decided and as this is last EC, next Doxetaxal and Herceptin,  she woukd ask if I coukd go on weekly chemo after no 4 , this can help hair loss,  but reading below may be paxlitdaxol instead ??

As ive told you, my partner just finished stroing EOX chemo for oesphageal cancer, so been through tge journey with him. My journey different I know, today is the first day I've felt rough, bad nights sleep, aching, palpitations,  I only took1 steroid as it seems to pump me up so! The nurse gave me some to take ore next session which didn't give me much confidence in next one. Should I be asking for advice on steroids. Help, feel awful, and sad Terry Wogan has died of this awful disease!

Love to all, Sue xxxx

Member

Re: Cold Cap - did it help keep your hair?

Hi, first time poster here so sorry for it being so long!!!!!  Diagnosed November with grade 3 Invasive ductal carcinoma. Had lumpectomy/mamoplasty and 3 sentinel nodes removed the week before Christmas. I was/am quite large breasted so have lost almost half of the left breast I'd guess. Looking very lopsided & wearing post surgery bras which I can fit my 'chicken fillet' into (which I get on Thursday, currently using a softie) to evens me out!! Thankfully lymph nodes were clear, I am ER+ & HER2- so based on those results I got the oncotype DX test. I needed to score 18 or below to avoid chemo, test came back with 65 so chemo was a definite. I see it as a plus that I am only having to go through 4 sessions of TC (Taxotere or Docetaxol as its also know & cyclophosphamide). Had my first session on Friday 29th, I used the Paxman cold cap. The headache & brain freeze started almost immediately when I was connected to the machine. Went prepared wearing layers & took a fleecy blanket. Had loads of hot drinks too.  Unfortunately I only lasted just over an hour, I was very upset. The headache, brain freeze & putting up with cold weren't too bad in fact if it was only these I had experienced I could have continued but it was my claustrophobia which got the better of me I am sad to say. The cap and chin strap especially were so tight I felt I couldn't breathe properly and went into a panic several times. I tried relaxing, deep breathing, reading to try take my mind off it but nothing work and I kept having panic attacks and crying. I promised myself I would try the cap and I feel gutted it hasn't worked for me, felt very jealous of the lady opposite me on Friday who managed her whole session with the cap on. Feeling apprehensive about hair loss but the cold cap was not for me and I will deal with whatever happens in the best way I can. Got 3 weeks of radiotherapy after chemo, then oncologist says some hormone treatment (not sure what that is yet) and eventually my surgeon will give me further mamoplasty on right breast to "even" me out.

Thanks for reading, good luck to all you other brave ladies xx

Community Champion

Re: Cold Cap - did it help keep your hair?

Paclitaxol is very much kinder that docetaxel. I started it around this time last year through to mid April. My ses were negligible compared to the rest of my group on docetax and cold cap definitely worked for me. I only shed hair on the first fec way back in November. Hair started to grow back around this time last year and continued to grow throughout taxol. We're all different but I'd go for paclitaxol over docetaxel every time from my experience.
Member

Re: Cold Cap - did it help keep your hair?

Hi Tandy 4 pax is an alternative drug to docetaxal .. Pax not meant to have as harsh side effects just weekly treatments but I'm not due for my docetaxal till 16 th feb just finished my 3 x EC so very anxious what im in store for next x
Member

Re: Cold Cap - did it help keep your hair?

Yes tax still has hair loss as a side effect I know I need to carry on cold capping but pax doesn't work as well with cold cap that's why my decision was to stay with docetaxal to give me a better chance of holding on to my hair .. I feel very lucky to be treated at The Christie Manchester one of the best cancer hospitals in the world they have been amazing x
Community Champion

Re: Cold Cap - did it help keep your hair?

What's pax? The drug you had? 

Member

Re: Cold Cap - did it help keep your hair?

Hi Tandy 4
I'm triple negative ..that's the regime if I was having pax ... Hairloss is a side effect on both but I was told cold capping doesn't work well with pax better with docetaxal so maybe u have just been very lucky ..
Community Champion

Re: Cold Cap - did it help keep your hair?

Significant dawn?........ Meaning it's a given? Or not? I'm on last of 3 FEC tomorrow then 3 X T. Xxxx Tina

feeking anxious!! 😖

Community Champion

Re: Cold Cap - did it help keep your hair?

I had 12 weekly sessions of paclitaxol after 3 x fec - I cold capped for every single one! It was a marathon. I felt like stopping at one point but BCN said I needed to carry on as hair loss is significant with taxol. So question what you're on dollydeb.
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi Dollydeb......... 9 weekly sessions!?!...... What regime are you having? Xx

Member

Re: Cold Cap - did it help keep your hair?

yes lush roots while cold capping and spray nioxin scalp treatment on too .. I can't stand the smell either ... Then use nioxin shampoo conditioner after 24 hrs .. I wash my hair every 7 to 10 days no brushing .. Bad hair day everyday for a while though .. Thank goodness for the cold weather bobble hats are my new bezzies !
Member

Re: Cold Cap - did it help keep your hair?

I've been told cold cap doesn't work with the weekly drug and I would need 9 sessions just want it over with my hair still firmly there but that's just me !
Member

Re: Cold Cap - did it help keep your hair?

Hi Tandy 4 I read about ice gloves for hands and feet and asked the question at The Christie Manchester they said yes I can have it they don't offer normally so ask the question like I did .. My hair has slowed down now so hopefully the worse is over finished my 3rd EC on Tuesday .. A holiday is due when all this is over .. Xxx
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi guys. 3rd and final FEC due this Friday. Hair thinned and still falling but ive still got hair on my head! 👍🏼 Hoping (as I've heard it can happen!?🙏🏼) That the hair shedding slows down after FEC done.....? . I'm due 3x T too, told the cap isn't on for as long and side effects change. DREADING the thought of losing nails!! 😖 But praying I'm  one of the lucky ones not to as its not a given...... Not been told of the ice gloves, so thinking it's not an option at my unit? 

Love to all xxx Tina 

PS....... Is it ok to use something like Nioxin during cold capping? I'm using simple shampoo and conditioner once a week. Also, first two sessions I didn't wash my hair for 48 hrs after chemo, but read now on Paxman that if you feel up to it you can wash it as soon as you're home? This might make me feel better as I hate the feeling of my hair stuck to my head with conditioner even after its dried..... Oh and the smell of the conditioner used in unit (dove... 😖) and smell of cap 😜

Community Champion

Re: Cold Cap - did it help keep your hair?

I had weekly paclitaxol which is less harsh than the docetaxel and my hair started to grow back. By the end of chemo I had 1-2 inch layers throughout my head where it had she'd and grown back.
Member

Re: Cold Cap - did it help keep your hair?

Hi red robin
Thank you I will do that .. My hair has thinned too but I can cope with that .. Regards Deb x
Member

Re: Cold Cap - did it help keep your hair?

Hi Dollydeb. Not sure if anyone on here has had tax yet. I am cold capping too. Lost a lot of hair but as it was so thick its just thinned and one bald patch. Change of hairstyle slightly and you can hardly tell.
Have you tried the monthly threads for help on the tax?
Vicky