19-05-2017 05:50 PM
11-05-2017 08:55 PM
04-05-2017 11:48 PM
I did great with the cap. I used the Penguin Cold Cap May 2015-August 2015. My treatment was TCH. The way my oncologist set up my. He I mess, I only had to do it 4 times. I did everything they (The Penguin Cold Cap Company) told me to do and I continued this regiment for 10 months after I completed chemo, just to be on the safe side. I also had 6 weeks of radiation treatment. I had a little shedding but in all actuality, the strands I did loose weren't much more on a day to day basis than I have had throughout the rest of my life! When my hair fell out everywhere else, yet still upon my head, it was absolutely the greatest feeling. My eyes filled with tears because I could see the proof that it really really worked! It was also very nice to have a goal, something to focus on, something positive that I could do for myself. Something other than focusing on the cancer diagnosis. My husband and daughter got into it too. It gave them a way to be helpful, something they could do to help! As far as the temp (30' below C), well, that wasn't an issue either. I swear, it was only a few minutes of cold. Your head gets so cold, you don't feel it and there it is... problem solved! A little Ativan (0.5mg in my IV) did the trick and I stayed alert and talked with my friends and relatives while they capped me every 30 minutes! I recommend it and i's a shame so many people don't know about it. I work in the medical field as a nurse and as far as I know, it still isn't FDA approved here in the USA. I think the cost of renting the caps ($1600) was well worth it. It would take me years to grow my hair back and the cool thing was I had something positive to focus on and people didn't question me and tell me stories of loved ones with cancer etc when they saw me. It was my business if I wanted to talk about it, not someone else's.
03-05-2017 02:51 PM
01-05-2017 07:32 AM
I went today for my third FEC , I have lost 90%of hair and resemble Gollum now too, I was thinking I could no longer do the cold cap but they said carry on as changing to Tax next round and nurse advised it is not as harsh on the hair so my hair should start growing back so after reading comments on here I carried on. it was much colder this time couldnt wait to get it off , however painkillers took the edge off , I wear my topper to work and thats all good and hats and beanies at home . Like someone else said I was really disappointed in my results as other ladies I saw still had so much hair but it growing back quicker motivates me to carry on
27-04-2017 10:27 PM
27-04-2017 09:42 PM
Hello ladies. I'm a bit nervous because this is the first time I have added to a blog but I found others peoples' comments useful when I was considering using a cold cap. Like many of you I struggled through 6 chemo sessions using the cold cap and found the first 10 minutes or so the worst part but despite the tears I persevered and am glad I did. I'm not sure if anyone has experienced the same results as me but I lost more than 90% of my long hair by the time I finished chemo but found that "new" hair has continued to grow! Now just 5 weeks after finishing chemo I have a full head of hair that is 3 to 4 centremetres in length and 2 days ago trimmed of the last of my long hair so I now sport, what my best friend cals, my pixie look.
23-04-2017 10:08 PM
Hi Everyone, I am going to have my 3rd AC Treatment next Tuesday, I have been using the
Paxman Cold Cap. I am shedding loads and I'm now on Day 20, I have another 6 treatment to go. I Am following all the guidelines about how to take care of your hair during Treatments and using the Cold Cap. I would like to know if my Hair Shedding will slow down?
Thanking you all in advance
22-04-2017 08:50 PM
Hi Amoyart, I am using Paxman too fingers crossed to you get to day 14 !!Mine was ok until then and now is shedding heaps ! My hair grows very fast and they said i might lose up to 70% but it will grow back faster so I am continuing with it-they will have to put some gauze or a paper hat on to protect my scalp from frost bite lol hope I got hair in 4 days as more chemo..Good Luck hun xx
22-04-2017 08:35 PM
Hi Ladies I started the Paxman cold cap -the nurses use it -about two and a half weeks ago and as they do everything I hope its all ok, but in the last 2 days its coming out and 6 hairs together in clumps it just wont stop!! They say if your hair grows fast that you could loose up to 70% but that it will grow back quicker and to not shave it off-I am tempted but am wearing a hat all the time to collect the hair thats falling.The ladies using their own cold caps and ice seem to have better results as they monitor the temps more closely. Baldom here I come lol I am getting a wig as I will need one, I have some turbans but need a wig for work. Sharon.xx
22-04-2017 10:47 AM
22-04-2017 07:51 AM
21-04-2017 06:35 AM
I am about to have my 3rd FEC on Monday and using cold caps, too. I have been fortunate. I had a lot of hair to begin with and only shedding a bit more than usual, but nothing noticeable. I start 45min before, but continue it for 6 hours after. I know it's a pain, but it's worth it to me. my hair has not changed at all. I'm not sure if it's me or what, but I only feel a bit of discomfort the first few minutes. I will pray for you. I know it isn't easy. xoxo
21-04-2017 06:29 AM
I am about to go through chemo #3, and thankfully, I still have all my hair. I am using Arctic Cold Caps. i start 45min before infusion and continue 6 hours after. I wash my hair 2-3 x a week, but do use organic conditioner or cur activator everyday. I have curly hair, so I cannot go a day ala natural i still have my eyebrows, my eyelashes are thinning, but still have my hair. a Bad hair day is better than no hair day for me. Good Luck, all.
21-04-2017 03:12 AM
19-04-2017 01:54 PM
17-04-2017 08:30 PM